scholarly journals Burden and modifications in life from the perspective of caregivers for patients after stroke

2012 ◽  
Vol 20 (5) ◽  
pp. 944-953 ◽  
Author(s):  
Huana Carolina Cândido Morais ◽  
Arethusa Morais de Gouveia Soares ◽  
Ana Railka de Souza Oliveira ◽  
Carolina Maria de Lima Carvalho ◽  
Maria Josefina da Silva ◽  
...  
Keyword(s):  
Mental State ◽  
Leisure Activities ◽  
Care Program ◽  
Daily Routine ◽  
Life Changes ◽  
Cross Sectional ◽  
Perceived Burden ◽  
Burden Scale ◽  
The Impact ◽  
State Examination

OBJECTIVE: to analyze the impact that caring has on a member of the family caring for a patient after a cerebrovascular accident, correlating life modifications and mental suffering with the perceived burden. METHOD: a cross-sectional, quantitative study, undertaken in January-April 2010 in Fortaleza, Ceará, Brazil. RESULT: 61 individuals were investigated, monitored by three hospitals' Home Care Program. Data collection was through interviews for identifying life changes, and through the application of three scales for investigating perceived burden, mental state and mental suffering. Respectively these were the Caregiver Burden Scale (CBS), the Mini-Mental State Examination (MMSE) and the Self Reported Questionnaire (SRQ). The majority of the carers were female, married, and the children of the stroke patients. The average age was 48.2 years (±12.4). The most-cited life modifications referred to the daily routine, to leisure activities, and to exhaustion or tiredness. Regarding burden, the dimensions of General tension, Isolation and Disappointment stood out. It was ascertained that overload was more severe when the carer presented more symptoms of psychological distress, in the absence of a secondary carer, and when the principal carers reported perceiving changes in their bodies and health. CONCLUSION: an association between burden and the carer's mental state was not observed. Understanding the care, through analysis of the burden and of the knowledge of the biopsychosocial situation will provide support for the nurse's work in reducing the overload for family caregivers.

scholarly journals Do Temporary Dropouts Improve the Composition of Panel Data? An Analysis of “Gap Interviews” in the German Family Panel pairfam

2017 ◽  
Vol 49 (1) ◽  
pp. 193-215 ◽  
Author(s):  
Bettina Müller ◽  
Laura Castiglioni
Keyword(s):  
Social Research ◽  
Life Changes ◽  
Cross Sectional ◽  
German Family ◽  
Sample Composition ◽  
Adequate Representation ◽  
Data Source ◽  
Panel Studies ◽  
Survey Estimates ◽  
The Impact

In the context of cross-sectional surveys, the scope of research on the impact of response enhancing strategies on sample composition and nonresponse bias is vast. This topic has rarely been addressed for panel studies, however, although these are becoming an increasingly important data source in social research. In this article, we evaluate the impact of reissuing wave nonrespondents on sample composition and survey estimates in the German Family Panel pairfam. In light of concerns about an adequate representation of life changes in panel studies, we focus on whether temporary dropouts improve sample composition in this respect: Using retrospective information from these cases provided at reentry, we approximate the impact of “lost” reports of life changes due to attrition. Our analysis reveals that the inclusion of temporary dropouts does increase sample variability regarding life changes. However, example analyses indicate that substantive conclusions would not be compromised if temporary dropouts were excluded.

scholarly journals Education does not equally influence all the Mini Mental State Examination subscales and items: inferences from a Brazilian community sample

2010 ◽  
Vol 32 (3) ◽  
pp. 223-230 ◽  
Author(s):  
Jerson Laks ◽  
Evandro Silva Freire Coutinho ◽  
Washington Junger ◽  
Heitor Silveira ◽  
Raphael Mouta ◽  
...  
Keyword(s):  
Mental State ◽  
Mini Mental State Examination ◽  
Community Sample ◽  
Community Dwelling ◽  
Delayed Recall ◽  
Functional Activities ◽  
Key Factor ◽  
Z Scores ◽  
The Impact ◽  
State Examination

OBJECTIVE: Mini-Mental State Examination cutoffs have been presented for schooling levels to screen cognitive impairment. However, items may behave differently with regards to education. The objective of this study was to examine the impact of education on MMSE subscales and items. METHOD: Community-dwelling participants aged 65 years or more (n = 990, females = 637, age = 74.1 years, range 65-108) were stratified as illiterate (n = 373), 1-8 (n = 540), 9-12 (n = 63), and more than 12 years of schooling (n = 14) and were screened with MMSE and Pfeffer Functional Activities Questionnaire. To make the Mini-Mental State Examination items comparable, each item was transformed into z scores. Multiple linear regression was used to estimate the effect of schooling on MMSE subs and items controlling for age, sex, and activities of daily life. RESULTS: Temporal and space orientation, attention/calculation, repetition, reading, writing, and drawing scores improved as education increased, but not memory registration, three step command, and naming. Reading and writing displayed the largest coefficients, whereas education exerted no influence on naming and three step command tasks. CONCLUSION: Education does not exert an important effect on naming, three step command, memory registration, and delayed recall. As memory is a key factor for diagnosing dementia, these items could be considered despite education.

scholarly journals . Sobrecarga do cuidador de pacientes atendidos na atenção domiciliar

2020 ◽  
Vol 14 ◽  
Author(s):  
Monique Évellin Alves Cruz ◽  
Daniel Vinícius Alves Silva ◽  
Júlia Rocha do Carmo ◽  
Gabriel Dias de Araújo ◽  
Luiza Rodrigues Camisasca ◽  
...  
Keyword(s):  
Home Care ◽  
Statistical Significance ◽  
Care Program ◽  
Home Care Services ◽  
Cross Sectional Study ◽  
Common Finding ◽  
Bivariate Analysis ◽  
Daily Routine ◽  
Cross Sectional ◽  
Zarit Burden Interview

Objetivo: avaliar a sobrecarga de cuidadores de pacientes atendidos por um programa de atenção domiciliar público. Método: trata-se de um estudo quantitativo, descritivo, transversal, com 127 cuidadores de pacientes atendidos pelo Programa Melhor em Casa. Coletaram-se dados sociodemográficos e clínicos e aplicaram-se também a Escala Zarit Burden Interview reduzida e a Escala de Desesperança de Beck. Realizou-se análise descritiva e bivariada de dados. Resultados: verificou-se que, dos 127 cuidadores, a maioria era do sexo feminino (114=89,8%), de cor parda (81=63,8%); composta por solteiros (56=44,1%) e a média de idade foi de 46,66 anos. Destaca-se que 38,6% (49) apresentaram sobrecarga de moderada a grave, 78,7% (110) afirmaram que houve mudanças em sua rotina diária, 59,8% (76) dizem ter sofrido alguma mudança no estado emocional após iniciar o cuidado do paciente e 56,7% (72) sentem dores no corpo. Confirmaram-se, na análise bivariada, 15 variáveis independentes que obtiveram significância estatística. Conclusão: conclui-se que a sobrecarga do cuidador de pacientes da atenção domiciliar é um achado comum e cuidados para a sua prevenção devem ser estabelecidos. Descritores: Cuidadores; Esgotamento Psicológico; Serviços de Assistência Domiciliar; Assistência Domiciliar; Pacientes Domiciliares; Enfermagem.AbstractObjective: to assess the burden of caregivers of patients treated by a public home care program. Method: this is a quantitative, descriptive, cross-sectional study, with 127 caregivers of patients treated by the Melhor em Casa Program. Sociodemographic and clinical data were collected, and the reduced Zarit Burden Interview Scale and the Beck Hopelessness Scale were also applied. Descriptive and bivariate data analyses were performed. Results: of the 127 caregivers, the majority was female (114=89.8%), pardos (81=63.8%); composed of unmarried (56=44.1%) and the mean age was 46.66 years. Importantly, 38.6% (49) had moderate to severe burden, 78.7% (110) stated the occurrence of changes in their daily routine, 59.8% (76) mentioned having suffered some change in emotional state after starting the care with the patients and 56.7% (72) have body ache. The bivariate analysis confirmed the statistical significance of 15 independent variables. Conclusion: the burden of caregivers of homebound patients is a common finding, requiring care actions for its prevention. Descriptors: Caregivers; Burnout, Psychological; Home Care Services; Home Nursing; Homebound Persons; Nursing. ResumenObjetivo: evaluar la sobrecarga de los cuidadores de pacientes tratados mediante un programa de atención domiciliaria público. Método: se trata de un estudio cuantitativo, descriptivo, transversal, con 127 cuidadores de pacientes tratados por el Programa Melhor em Casa. Recogieron datos sociodemográficos y clínicos y se aplicaron la escala Zarit Burden Interview reducida y la Escala de Desesperanza de Beck. Se realizó el análisis descriptivo y bivariado de los datos. Resultados: se constató que, de 127 cuidadores, la mayoría eran mujeres (114=89,8%), pardos (81=63,8%); compuesto de solteros (56=44,1%) y el promedio de edad fue de 46.66 años. Cabe destacar que el 38,6% (49) presentó sobrecarga moderada a severa, el 78,7% (110) declaró que ha habido cambios en su rutina diaria, el 59,8% (76) afirmó tener sufrido algún cambio en el estado emocional después de iniciar los cuidados del paciente, y el 56,7% (72) siente dolor en el cuerpo. Se confirman, en el análisis bivariado, 15 variables independientes que tuvieron significación estadística. Conclusión: se concluye que la sobrecarga de los cuidadores de pacientes en atención domiciliaria es un hallazgo común y cuidados en su prevención deben ser establecidos. Descriptores: Cuidadores; Agotamiento Psicológico; Servicios de Atención de Salud a Domicilio; Atención Domiciliaria de Salud; Personas Imposibilitadas; Enfermería.

scholarly journals Assessment of the perceived burden associated with Malignant Melanoma with Pictorial Representation of Illness and Self Measure (PRISM) and Melanoma Concerns Questionnaire (MCQ-28)

2022 ◽  
Author(s):  
Alessandro Borghi ◽  
Maria Elena Flacco ◽  
Alberto Monti ◽  
Lucrezia Pacetti ◽  
Michela Tabanelli ◽  
...  
Keyword(s):  
Malignant Melanoma ◽  
Well Being ◽  
Cross Sectional Study ◽  
Pictorial Representation ◽  
Cross Sectional ◽  
Prism Score ◽  
Related Data ◽  
Perceived Burden ◽  
Study Population ◽  
The Impact

Abstract Purpose The impact of malignant melanoma (MM) on patients’ psychophysical well-being has been poorly addressed. We aimed to assess the perceived burden in patients with a diagnosis of MM, using two different tools, one generic and one specific for MM, such as Pictorial Representation of Illness and Self Measure (PRISM) and Melanoma Concerns Questionnaire (MCQ-28), respectively. The correlation between PRISM and MCQ-28 subscales and the relevance of disease and patient-related variables were also investigated. Methods This single-centre, cross-sectional study included all adult consecutive MM patients who attended our Dermatology Unit from December 2020 to June 2021. Demographics and disease-related data were recorded. PRISM and MCQ-28 were administered. Results One hundred and seventy-one patients were included (mean age: 59.5 ±14.9 years.; 48.0% males). Median time from MM diagnosis to inclusion was 36 months. Nearly 80% of the patients had in situ or stage I MM. Overall, 22.2% of the patients reported a PRISM score <100mm and similar percentages provided scores indicating impaired quality of life, as assessed with MCQ-28 subscales. A weak, albeit significant, correlation was found between PRISM scores and ACP, CON and SOC2 subscales. The most relevant association found was that between lower PRISM scores and higher-stage MM. Conclusions In the study population, mostly affected with superficial MM, their perception of the burden associated with MM did not appear either particularly dramatic or disabling. PRISM seems a reliable system for capturing and quantifying the domains correlated with the emotive dimension of MM, especially MM-related concerns and willingness to face life

scholarly journals Hubungan Lama Hemodialisis dengan Fungsi Kognitif pada Pasien yang Menjalani Hemodialisis Menggunakan Metode Mini Mental State Examination Ditinjau dari Kedokteran dan Islam

2021 ◽  
Vol 8 (1) ◽  
Author(s):  
Suci Purnama ◽  
Linda Armelia
Keyword(s):  
Mental State ◽  
Mini Mental State Examination ◽  
Cross Sectional ◽  
Consecutive Sampling ◽  
State Examination

Hemodialisis merupakan terapi pengganti ginjal pada penyakit ginjal kronik. Terdapat data statistik yang berbeda untuk prevalensi gangguan kognitif di Indonesia pada pasien yang menjalani hemodialisis mulai dari 20% - 47%. Penelitian ini menggunakan analitik korelatif dengan desain cross sectional yang dilakukan pada bulan Agustus 2018 di RS Anna Medika Bekasi dengan jumlah sampel sebanyak 102 responden yang diambil dengan cara consecutive sampling. Peneliti melakukan wawancara dengan menggunakan kuisioner Mini Mental State Examination (MMSE). Analisis data dengan menggunakan uji spearman. Fungsi kognitif pasien hemodialisis berdasarkan MMSE didapatkan penurunan fungsi kognitif ringan sebanyak 56 (54,9%), penurunan fungsi kognitif sedang sebanyak 13 (12,7%) dan tidak mengalami penurunan fungsi kognitif sebanyak 33 (32,4%). Hubungan antara lama hemodialisis dengan fungsi kognitif didapatkan p=0,002. Terdapat hubungan signifikan antara lama hemodialisis dengan fungsi kognitif pada pasien hemodialisis di RS Anna Medika

scholarly journals Hubungan Usia, Jenis Kelamin dan Status Anemia dengan Fungsi Kognitif pada Lanjut Usia

2020 ◽  
Vol 7 (1) ◽  
pp. 12-17
Author(s):  
Riza Firdaus
Keyword(s):  
Mental State ◽  
Mini Mental State Examination ◽  
Chi Square ◽  
Cross Sectional ◽  
State Examination

Menurunnya fungsi kognitif sangat mempengaruhi kualitas hidup lanjut usia. Faktor yang mempengaruhi adalah faktor fisiologis, psikologis dan lingkungan. Studi ini bertujuan untuk mengetahui hubungan usia, jenis kelamin dan status anemia dengan fungsi kognitif pada lanjut usia. Desain penelitian yaitu analitik observasional dengan pendekatan cross-sectional. Penelitian ini dilakukan di Panti Wredha Wening Wardoyo Semarang. Jumlah sampel yang didapatkan sebanyak 51 orang lanjut usia dengan total sampling. Variabel dependen adalah fungsi kognitif dan variabel independen adalah usia, jenis kelamin dan status anemia. Pemeriksaan fungsi kognitif diukur dengan instrumen Mini Mental State Examination (MMSE) dan pemeriksaan status anemia menggunakan haemometer dengan metode Sahli. Analisis data yang digunakan adalah menggunakan uji Chi Square. Hasil penelitian menunjukkan usia < 75 tahun meningkatkan risiko fungsi kognitif normal (OR = 6,480; 95% CI 1,844- 22,769; p = 0,002), jenis kelamin laki – laki (OR = 2,357; 95% CI 0,688- 8,075; p = 0,167) dan anemia ringan (OR = 2,821; 95% CI 0,831- 9,577; p = 0,091). Penelitian ini menyimpulkan bahwa fungsi kognitif pada lanjut usia dipengaruhi oleh usia, jenis kelamin dan status anemia.

scholarly journals Lifetime Musical Training and Cognitive Performance in a Memory Clinic Population: A Cross-Sectional Study

2020 ◽  
pp. 102986492091863
Author(s):  
Daisy Fancourt ◽  
Katharina Geschke ◽  
Andreas Fellgiebel ◽  
Alexandra Wuttke-Linnemann
Keyword(s):  
Mental State ◽  
Mini Mental State Examination ◽  
Musical Training ◽  
Cognitive Impairments ◽  
Neuropsychological Test ◽  
Word List ◽  
Memory Clinic ◽  
Cross Sectional ◽  
Examination Score ◽  
State Examination

Background: Music training has been found to be beneficial for young and healthy participants but the associations between musical training and the cognitive functioning of elderly participants have not been reported consistently. We examined whether lifetime musical training is associated with neuropsychological performance in a memory clinic population of older patients. Methods: A total of 478 patients (54.2% female, mean age 73.70 ± 6.22, mean Mini Mental State Examination score 25 ± 3) were included in the cross-sectional analyses. All patients were referred to the memory clinic due to cognitive impairments. During the course of diagnosis, all patients underwent neuropsychological tests using the CERAD neuropsychological assessment battery. Patients provided information on whether they ever learned to play an instrument for at least five years in their life. Results: Neuropsychological test results differed based on musical training ( p = .042). Overall, there were no differences in any domains of cognitive functioning, other than that patients with musical training performed worse on word list memory ( p = .008). However, this relationship varied based on the extent of cognitive impairments. Patients who were cognitively unimpaired (Mini Mental State Examination score 27–30) and had musical training showed better word list learning, whereas patients with cognitive impairments (Mini Mental State Examination score < 27) and musical training performed worse in word list learning ( p = .042) and word list recall ( p = .045). Discussion: Overall, there was little evidence of associations between specific neuropsychological test results and musical training. Only in cognitively unimpaired patients was there evidence that musical training had beneficial associations. In patients with cognitive impairment, there were suggestions of negative associations with verbal memory. Future research should longitudinally investigate the beneficial effects of musical training in people with and without cognitive impairments.

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