scholarly journals RETOS DEL ENVEJECIMIENTO DE LAS PERSONAS CON DISCAPACIDAD INTELECTUAL

2016 ◽  
Vol 1 (2) ◽  
pp. 47
Author(s):  
José Antonio Del Barrio ◽  
Ana Isabel Sánchez Iglesias ◽  
Josefa González
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Social Life ◽  
Adult Population ◽  
People With Disabilities ◽  
Assessment Tools ◽  
Mental Wellbeing ◽  
Calidad De Vida ◽  
Discapacidad Intelectual

Abstract.The Ageing people with disabilities, he has not yet gained scientific and social the interest that requires enormous relevance and significance of the topic. The adult population is growing dramatically, from extending their life expectancy, having increasingly elderly in our society, and therefore, more people with disabilities reach this stage of life. We will have to pay particular attention to its various and numerous fronts: cognitive, health, emotional life, social life, development of hobbies, occupation time, mode of residence or housing, self-awareness, coping with loss, and many other things....However, rarely the intellectual disability is related whit old age. Therefore, in this intervention centering on new approaches to disability: the model of support and quality of life; It addressed, the aging of older people with intellectual and developmental disabilities, with its peculiarities and needs. Both cognitive and the emotional and mental wellbeing aspects are mainly considered. It should be identified, assessment tools, programs and guidelines, all aimed at promoting a process of active aging, which contributes to improving the quality of life of older people with intellectual disabilities, promoting every one of the dimensions that make up this concept.A great social challenge is now the STAGE ageing of people with disabilities. It will be the great challenge of our century on aging.Keywords: Ageing, Mental Disability, Psychological Changes, Assessment, Intervention, Support, Quality of LifeResumen.El envejecimiento de las personas con discapacidad, no ha cobrado todavía el interés científico y social que requiere la enorme relevancia y transcendencia del tema. La población adulta va creciendo espectacularmente, a partir de la prolongación de su esperanza de vida, teniendo cada vez más ancianos en nuestra sociedad, y, por ende, más personas con discapacidad llegan a esta etapa de la vida. Habrá que prestar particular atención a sus distintos y numerosos frentes: cognitivos, salud, vida afectiva, vida social, desarrollo de aficiones, ocupación del tiempo, modo de residencia o de vivienda, conciencia de sí, afrontamiento de pérdidas, y tantas otras cosas….Sin embargo, muy pocas veces se relaciona la discapacidad intelectual con la vejez. Por ello, en esta intervención centrándolo en los nuevos enfoques sobre discapacidad: el modelo de apoyos y la calidad de vida; se aborda, el proceso de envejecimiento de las personas mayores con discapacidades intelectuales y del desarrollo, con sus peculiaridades y necesidades. Se consideran fundamentalmente los aspectos tanto cognitivos como del bienestar emocional y psíquico.Habrá que identificar, herramientas de evaluación, programas y pautas de actuación, todo ello, orientado a la promoción de un proceso de envejecimiento activo, que contribuya a la mejora de la Calidad de Vida de las personas mayores con discapacidad intelectual, promoviendo todas y cada una de las dimensiones que integran este concepto.Un gran desafío social es ahora la ETAPA DE LA VEJEZ  de las personas con discapacidad. Será el gran reto de nuestro siglo en materia de envejecimiento.Palabras Clave: Envejecimiento, Discapacidad Intelectual, Cambios psicológicos, Evaluación, Intervención, Apoyos, Calidad de Vida

Solving the mysteries of narcolepsy

2020 ◽  
Vol 16 (6) ◽  
pp. 252-253
Author(s):  
Mark Greener
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
Mental Wellbeing ◽  
The Impact ◽  
Life Work

Narcolepsy can profoundly affect a patient's quality of life, including their mental wellbeing, social life, work and study. Mark Greener briefly summarises some recent papers that offer new insights into the causes of narcolepsy, the overlap with depression and other comorbidities, and the impact on patients.

scholarly journals Promoción de la calidad de vida a través del periodismo responsable digital

2021 ◽  
Vol 11 (01) ◽  
pp. 187-217
Author(s):  
Paola Eunice Rivera Salas ◽  
◽  
María Guadalupe Curro Lau ◽  
Keyword(s):  
Quality Of Life ◽  
Latin American ◽  
Social Life ◽  
Living Standards ◽  
Calidad De Vida ◽  
Quality Life ◽  
Digital Journalism ◽  
The Media ◽  
Quantitative Descriptive

During this century, the quality life (QoL) has become a priority for many countries. There is a clear interest in the different organizations in society, such as the media, for collaborating so that their citizens have better living standards. The objective of this research is to characterize the promotion of quality life in news from Latin American companies within the framework of responsible digital journalism (RDJ), for which it developed from the concept of quality life and the areas in which this concept studied to identify the characteristics of the quality of life. A quantitative, descriptive and transversal approach implemented to analyze the notes published in three Latin American newspapers in 2019. The results show that there is a low diffusion about the quality of life in the messages where the characteristics that the reader could detect were not identified with the indicators of quality of social life. However, news adheres to principles of the PDR such as truthfulness, objective language and reflexionethics of the profession.

scholarly journals Actividad Física y sedentarismo: Repercusiones sobre la salud y calidad de vida de las personas mayores (Physical activity and sedentary lifestyle: Impact on health and quality of life of older people)

Retos ◽  
2015 ◽  
pp. 126-129
Author(s):  
Francisco Salinas Martínez ◽  
Armando Cocca ◽  
Kamal Mohamed ◽  
Jesús Viciana Ramírez
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Older People ◽  
Sedentary Lifestyle ◽  
The Elderly ◽  
Current Status ◽  
Negative Effects ◽  
Calidad De Vida ◽  
Elderly Health

Realizamos un análisis del estado actual de las personas mayores en relación con la actividad física y el sedentarismo, éste último aspecto convertido en la actualidad como una de las principales fuentes de amenaza para la salud pública de los países europeos y americanos. Damos a conocer los efectos negativos de la inactividad física sobre los parámetros cardiovasculares, diabetes, depresión y cáncer, entre otros. Mostramos los beneficios de la actividad física (herramienta clave para solucionar los problemas propios del sedentarismo) para la salud de este colectivo de la población; al tiempo que estudiamos las razones por las que las personas mayores acuden a los programas de actividad física. Finalmente, aportamos una serie de conclusiones.Palabras clave: Actividad Física. Calidad de Vida. Personas mayores. Salud. Sedentarismo.Abstract: We analyzed the current status of the elderly in relation to physical activity and sedentary, the latter now become a major source of threat to public health in the European and American countries. We report the negative effects of physical inactivity on cardiovascular parameters, diabetes, depression and cancer, among others. We show the benefits of physical activity (a key tool to solve the problems of the sedentary lifestyle) for the health of this group of the population while we study the reasons why older people attend physical activity programs. Finally, we provide a number of conclusions. Keywords: Physical Activity. Quality of Life. Elderly. Health. Sedentary.

scholarly journals Funcionalidad y calidad de vida luego de la cirugía de escoliosis neuromuscular. [Functionality and quality of life after neuromuscular scoliosis surgery.]

2018 ◽  
Vol 83 (2) ◽  
pp. 101
Author(s):  
Patricia Carolina Curbelo Nova ◽  
Claudio Silveri ◽  
Alejandro Cuneo ◽  
Rodrigo Olivera
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
Case Series ◽  
Neuromuscular Scoliosis ◽  
Scoliosis Surgery ◽  
Retrospective Case ◽  
Calidad De Vida ◽  
Case Series Study ◽  
Degree Of Satisfaction

<p><strong>Objetivo</strong></p><p>El objetivo de nuestro trabajo es estudiar las complicaciones de la cirugía en las escoliosis neuromusculares operadas en nuestro centro, así como la funcionalidad y calidad de vida de los pacientes luego del tratamiento quirúrgico.</p><p><strong>Métodos</strong></p><p>Se realizó un estudio retrospectivo, tipo serie de casos. Se revisó la historia clínica y se entrevistó a paciente y cuidador principal. Se valoró los resultados luego de la cirugía en cuanto a las complicaciones, funcionabilidad, calidad de vida y grado de satisfacción de los cuidadores.</p><p><strong>Resultados</strong></p><p>Obtuvimos un 26,7% de complicaciones, debidas a infección y alteraciones hemodinámicas. En cuanto a la funcionabilidad y calidad de vida de estos pacientes obtuvimos resultados positivos, siendo más significativos en cuanto a la capacidad de estar sentado y las actividades de la vida diaria.</p><p><strong>Conclusiones</strong></p><p>La cirugía de los pacientes con  escoliosis neuromuscular mejora la capacidad y el equilibrio de estar sentado, favoreciendo con esto la capacidad digestiva, respiratoria y de vida social del paciente. Si bien se trata de cirugías con altos indices de complicaciones muestra indices elevados de satisfacción por parte de los cuidadores.</p><p> </p><p> </p><p><strong>Abstract</strong></p><p><strong></strong><br /><strong>Introduction</strong>: The objective of this study was to evaluate surgical complications in patients with scoliosis operated on in our Center, as well as their functionality and quality of life after surgical treatment.</p><p><br /><strong>Methods</strong>: A retrospective case series study was carried out. Medical history was reviewed and the patient and primary caregiver were interviewed. Results after surgery were assessed for complications, function, quality of life and caregivers´ degree of satisfaction.</p><p><br /><strong>Results</strong>: Complication rate was 26.7%, due to infection and hemodynamic alterations. Positive results were obtained regarding function and quality of life of these patients, being more significant in terms of the ability to be seated and activities of daily living.</p><p><br /><strong>Conclusions</strong>: Surgery of patients with neuromuscular scoliosis improves the capacity and balance of sitting, favoring digestive, respiratory and social life capacity. Although rate of complications is high, satisfaction rates on the part of the caregivers are elevated.</p>

scholarly journals Valor predictivo de la Inteligencia Emocional Percibida y Calidad de Vida sobre la Satisfacción Vital en personas con Discapacidad Intelectual

2019 ◽  
Vol 38 (1) ◽  
pp. 131-148 ◽  
Author(s):  
Óscar Gavín-Chocano ◽  
David Molero
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Emotional Intelligence ◽  
Satisfaction With Life ◽  
Satisfaction With Life Scale ◽  
Calidad De Vida ◽  
Life Scale ◽  
Mood Scale ◽  
Discapacidad Intelectual

El presente estudio pretende mostrar evidencias sobre la relación entre inteligencia emocional, calidad de vida (criterios objetivos y subjetivos) y satisfacción vital en personas con Discapacidad Intelectual. La muestra está compuesta por 15 sujetos (n=15), con una edad media de 34.93 años (±12.28) y grado de discapacidad promedio del 64.07%. Se utilizaron los siguientes instrumentos: Trait Meta Mood Scale 24 (TMMS 24), Escala INICO-FEAPS (modalidad autoinforme e informe de otras personas) y Satisfaction with Life Scale (SWLS). Los resultados evidenciaron la relación positiva entre algunas de las dimensiones de inteligencia emocional, calidad de vida y satisfacción vital (p<.05). Por otra parte, los análisis de regresión mostraron la asociación positiva entre inteligencia emocional (reparación) y satisfacción vital (criterios subjetivos); calidad de vida (bienestar físico y bienestar emocional) y satisfacción vital (criterios objetivos). Las consecuencias prácticas de este estudio sugieren fomentar programas de inteligencia emocional para este colectivo. The present study attempts to provide evidence of the existing relation between emotional intelligence, quality of life (objective and subjective criteria) and life satisfaction in people with Intellectual Disability. The sample of the study is composed of 15 subjects (n=15) aged 34.93 on average (±12.28) who have a disability degree ratio of 64.07%. The following tools were used: Trait Meta Mood Scale 24 (TMMS 24), INICO-FEAPS Scale (self-report and other people’s report) and Satisfaction With Life Scale (SWLS). The results proved the positive relation between some of the dimensions of emotional intelligence, quality of life and life satisfaction (p<.05). On the other hand, the regression analysis showed a positive association between emotional intelligence (reparation) and life satisfaction (subjective criteria); quality of life (physical and emotional wellness) and life satisfaction (objective criteria). The practical consequences of this study suggest that emotional intelligence programs for this collective ought to be encouraged.

scholarly journals The influence of low back pain on health – related quality of life and the impact of balneal treatment

2021 ◽  
pp. 433-438
Author(s):  
Liliana-Elena STANCIU ◽  
Lucian Cristian PETCU ◽  
APOSTOL Sterian ◽  
Elena-Valentina IONESCU ◽  
Doinița OPREA ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Low Back Pain ◽  
Back Pain ◽  
Social Life ◽  
Functional Independence ◽  
Assessment Tools ◽  
Low Back ◽  
The Impact

Introduction. Low back pain has a direct and proportional impact on function and a general one on the quality of life. The present study aims to evaluate the functional impact of low back pain using specific self-assessment tools as indexes of appreciation and epidemiological correlations of potential risk factors involved. The conceptual model of our research is based on the importance of correlating symptoms with clinical assessment, using scales of pain, disability, quality of life, and determination of epidemiological correlations of these areas and the determined factors of the pathology. Material and method. The study group is made up of 106 cases with clinical diagnostic of low back pain, admitted from 28 September 2020 to 28 March 2021, at Balneal and Rehabilitation Sanatorium of Techirghiol. After performing anamnesis, general clinical examination, specific neuro-musculo-skeletal examination, the patients filled the surveys highlighting the impact of their low back pain on functionality and disability deriving from it. The survey included the Oswestry Disability Index, the Functional Independence Measure (FIM) instrument and the Visual analog scale (VAS) score evaluated at the moment of hospitalization and at discharge. Statistical analysis of data was carried out and correlations between variables resulting from study were highlighted. The study was conducted according to the norms of deontology and medical ethics. The authors declare no conflict of interest. Results and discussions. Lumbar pathology is common in patients who are hospitalized for a complex balneary-physical-kinetic treatment at Balneal and Rehabilitation Sanatorium of Techirghiol. About 80% of patients who have addressed to our unit in which the study was conducted, have presented low back pain. The majority of patients were females, representing 57,55% of the total number. Regarding the patients’ age, 58,5% of them were in the 50-70 years interval. The study reveals a major positive impact of our treatment on spinal symptomatology, an effect pointed out by the relevant statistical differences between the admittance and discharge VAS scores(p<0.001). Reporting the investigated disability with the Oswestry questionnaire of painful lumbar syndrome, and functional evaluation scale (FIM) demonstrates the impact of this pathology on the patient's social life, once again emphasizing the special attention to be paid to axial pathology, both as curative treatment and the importance of prophylactic treatment. Statistical analysis of identified risk factors, reveals the importance of prophylaxis and patient’s education in this area. A strong and important statistical correlation was found between the Oswestry total score and the walking and standing items, and a moderate, but strong correlation with the other items. Regarding the sex life item, the correlation is existent, but at a modest level. Conclusions. The study reveals the importance of correlation of the data obtained from anamnesis, the general clinical examination and the specific examination neuromioarthrokinetic with assessment tools that determine the level of functional independence, the functional impact on social life in high-frequency pathologies treated in medical facilities that provide healthcare in the field of medical recovery. It is necessary to quantify the therapeutic results obtained, in order to assess the level of improvement in quality of life. Keywords: low back pain, balneal, functional indicators, quality of life,

Diagnosis and management of oral mucosal lesions in older people: a review

2008 ◽  
Vol 18 (2) ◽  
pp. 115-128 ◽  
Author(s):  
Victoria Ewan ◽  
Konrad Staines
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Adult Population ◽  
Systemic Disease ◽  
Hospital Setting ◽  
Oral Lesions ◽  
Oral Mucosal Lesions ◽  
Mucosal Lesions ◽  
Mucosal Side

Oral mucosal lesions occur frequently in older people and are important as they may reduce quality of life, represent pre-malignant change or indicate systemic disease. The commonest mucosal lesions in adults are denture-related lesions such as stomatitis, angular cheilitis, ulcers and hyperplasia, and occur in 8.4% of the adult population. In the hospital setting, oral mucosal lesions may lead to malnutrition, slow rehabilitation and recovery from illness, and adversely affect quality of life. The two major risk factors associated with oral lesions are denture use and smoking, and frequently older people have been exposed to both of these. Commonly used drugs such as antihypertensives, antidepressants and antibiotics may have oral mucosal side-effects, and polypharmacy may worsen these. Decreased awareness of changes in the oral mucosa, or inability to raise concerns due to dementia, delirium, social isolation, or difficulty accessing dental care may further compound the problem. Hospital admission could represent an opportunity to intervene, but oral mucosal lesions, and indeed oral hygiene, are areas which can be overlooked by doctors. This article is intended to highlight common or important oral mucosal diseases and increase awareness of these conditions for the practising hospital or community geriatrician.

scholarly journals CaPaBLE: Comparing the Patient Generated Index to standard quality of life measures in patients and caregivers affected by high-grade brain tumours - Preliminary analysis

2021 ◽  
Vol 23 (Supplement_4) ◽  
pp. iv2-iv2
Author(s):  
Lillie Pakzad-Shahabi ◽  
James Tallant ◽  
Mary Wells ◽  
Matthew Williams
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
High Grade Glioma ◽  
Assessment Tools ◽  
Personal Life ◽  
High Grade ◽  
Randomised Study ◽  
The Impact ◽  
Over Time

Abstract Aims High grade gliomas are rare but have the highest number of cancer deaths in the under-40s. Treatment options are limited, resulting in a clinical focus on maintaining quality of life (QoL). However standard QoL assessment tools are time consuming, may not reflect an individual’s priorities, and are rarely used in clinical practice. Moreover, the impact of caring for someone with a high grade glioma is seldom assessed. An alternative approach to assessing quality of life is to use a patient - or carer-generated index (PGI/CaGI), which asks patients & carers to raise, rank and number their concerns. This may offer a route to individualised QoL assessments within clinical and research settings. The CaPaBLE study tests the feasibility and acceptability of the PGI and CaGI methodology in patients with high-grade glioma and their caregivers. This paper highlights key similarities and differences of the PGI/CaGI to standard QoL questionnaires. Method CaPABLE is an observational phase 2 non-randomised study following patients and their caregivers over 6 months starting at either first diagnosis or recurrence (https://www.isrctn.com/ISRCTN45555598). Patients and caregivers complete both standard questionnaires (EORTC QLQ C30 & BN20 and CargoQOL) and PGI/CAGI at 5 timepoints over the 6 month period. Each time the patients/caregivers complete the PGI/CAGI they are asked to identify up to 5 main topics of concern for their QoL, to score these, and rank their importance. For this analysis, we grouped topics into themes, compared the stability of themes over time and to EORTC domains. Analyses of EORTC measures are conducted using standard scoring approaches. Here we present an initial analysis of occurrence of PGI/CaGI themes compared to EORTC domains, but do not consider scores or ranking. Results 6 patients (4 male) and 5 caregivers (3 female; 4 paired with patients; one unpaired) have completed both standard questionnaire and PGI/CaGI at three or more time points, with a total of 19 (patient) and 18 (caregiver) assessments. On average people reported 3 topics at each assessment. The PGI generated 59 topics (32 themes); the CaGI, 50 topics (23 themes) and themes were consistent over time. The most common domain raised by patients was “social life” (13). Caregivers raised “personal life and family” (12 and “planning ahead” (7) more commonly. Of the 32 PGI themes, 23 align with EORTC domains. 9 PGI themes were not represented in the EORTC questionnaires, and 14 EORTC domains did not appear in the PGI. Of the 23 CaGI themes, 17 align with 7 CarGOQOL domains. 6 CaGI themes were not represented in the CarGOQOL and 3 CarGOQOL domains did not appear in the CaGI. Conclusion PGI and CaGI themes coincide with the main domains of EORTC (i.e., cognitive, social, role, physical, emotional functioning, future uncertainty). However, there were significant discrepancies: PGI (e.g., intimacy, ability to drive, and COVID related restrictions) and CaGI (e.g. personal life & family) highlighted themes that are not in the standard questionnaires. Both PGI/CaGI and standard questionnaires agree that symptom-related issues such as pain and seizures are not the main priority when it comes to QoL. In addition, CarGOQOL reports positive aspects of care, whereas CaGI only raised negative areas. This study is the first to show the feasibility of PGI/CaGI in a brain tumour patient & caregiver population. PGI/CaGI are notably quicker to complete and provide insights not captured by standard questionnaires. We are continuing to recruit patients and caregivers, and have submitted a protocol amendment to carry out qualitative interviews with patients and caregivers, to explore their views further.

scholarly journals La universidad, educadora permanente: el aula abierta de mayores = The University, Permanet Educator: The Elderly’s Open Room

2018 ◽  
pp. 31
Author(s):  
Pilar Moreno-Crespo ◽  
Esther Prieto-Jiménez ◽  
Mª Victoria Pérez-de-Guzmán
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Lifelong Learning ◽  
Aging Process ◽  
Intergenerational Relationships ◽  
The Elderly ◽  
Active Aging ◽  
Calidad De Vida ◽  
The University

Resumen: El objetivo de este artículo es ofrecer una introducción sobre el proceso de envejecimiento, aclarar las diversas concepciones y teorías desde las que podemos abordar el análisis del envejecimiento, estudiar los conceptos de calidad de vida y envejecimiento activo, así como la relación que se mantiene entre calidad de vida, envejecimiento activo y educación permanente. En este sentido profundizamos en los programas universitarios para personas mayores como ejemplo práctico de intervención socioeducativa orientada al envejecimiento activo. Igualmente analizamos el caso concreto del Aula Abierta de Mayores de la Universidad Pablo de Olavide. Dicho programa consta de la versatilidad suficiente para adaptarse a las necesidades socioeducativas de los adultos mayores que son protagonistas de su propio aprendizaje. Se crean espacios de aprendizaje y vivencias, que propician las relaciones intergeneracionales.Abstract: The objective of this article is to offer an introduction about the aging process, to clarify the different conceptions, theories and ages from which we can approach the analysis of aging, to study the concepts of quality of life and active aging, as well as the relation that is maintained between quality of life, active aging and lifelong learning. In this sense, we deepen the university programs for older people as a practical example of socio-educational intervention oriented to active aging. We also analyze the specific case of the Elderly’s Open Room of the Pablo de Olavide University. This program has the versatility enough to adapt to the socio-educational needs of the elderly who are protagonists of their own learning. They create spaces of learning and experiences, which foster intergenerational relationships.

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