scholarly journals #WhyWeDoResearch: Raising research awareness and opportunities for patients, public and staff through Twitter

2019 ◽  
Vol 3 (1) ◽  
pp. 7-17
Author(s):  
Emma Yhnell ◽  
Hazel A Smith ◽  
Kay Walker ◽  
Claire L. Whitehouse

The #WhyWeDoResearch campaign was set up in 2014 and was originally planned to run locally, in Norfolk, at the James Paget University Hospitals NHS Foundation Trust (JPUH) for 12 days in December. Within four days, the campaign was being utilized nationally by other trusts and charities. By the New Year of 2015 it became international and had reached Australia and Canada. The intended audience for the campaign is broad and includes: patients, the general public, all staff working in health care and/or research including (but not limited to) National Health Service (NHS), commercial companies, charities and schools. The campaign has become a community where patients, staff and public alike can share their voices about health research on an equal playing field. Each year, to coincide with International Clinical Trials Day (ICTD) on 20 May, a #WhyWeDoResearch 'Tweetfest' is hosted. This includes a number of 'tweetchats' at set times throughout the Tweetfest. Tweetchats are hosted by experts in particular diseases or other areas. Patients and patient groups are included in this group of experts. This article uses the #WhyWeDoResearch campaign annual Tweetfest to demonstrate how social media can be utilized to raise awareness of health research around the world.

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Stefan Rennick-Egglestone

AbstractSome health research studies recruit participants through electronic mechanisms such as the placement of messages on social media platforms. This raises questions for ethics committee oversight, since effective social media campaigns might involve the production and dissemination of hundreds of contemporaneous messages. For the Narrative Experiences Online (NEON) study, we have developed nine principles to control the production and dissemination of promotional material. These have been approved by an ethics committee and enable the audit of our recruitment work. We propose that the drafting for approval of recruitment principles by health research studies may, in many cases, strike an appropriate balance between enabling ethical oversight of online recruitment work and the potential burden of message review.


Author(s):  
Swati Chaudhary ◽  
Supriti Agrawal

Background: A physician offers treatments to prevent, treat, and manage sickness and to maintain mental and physical well-being. According to the World Health Organization, health care includes all raw materials and services aimed to enhance health, including "preventative health, therapeutic, and supportive interventions, either aimed to people either to nations." Stem cell is one of the innovations of health care industry. Stem cells are used to treat over 130 diseases throughout the world, and more than 500 clinical trials are ongoing to develop stem cell treatments. Henceforth, this paper aim is to enhance the stem cell role in health care industry and to find the health professional attitude towards stem cell management. Methods: For the study purpose both primary and secondary data are used. The cross sectional study conducted among 140 doctors of the Delhi-NCR for the primary data. The secondary data collected from records of the WHO, various journals, scientific study and clinical trials. The data were analysis by the using the correlation and t-test by SPSS 21 software to find the attitude of doctors towards stem cell management. Results: The study found that 97% of doctors are aware about the stem cell and 86% doctors have knowledge about the sources of stem cell and only 25% doctors collect the stem cell from umbilical cord. The study determine that the attitude of the health professional are positive towards stem cell management in India and they need government takes necessary action to developed the stem cell management for better health sector in India. Conclusions: Thus it can be concluded that with the increases of the cases the scientists try to find the use of stem cell in the treatment of various diseases. It does clearly indicate that stem cell boost the immune system. The data analysis of the study confirms that doctors in India have a positive view toward stem cell management. As a result, if sufficient initiative is made by healthcare professionals and the government, stem cell management has a wide range of adoption and acceptance opportunities.


2017 ◽  
Vol 39 (1) ◽  
pp. 4-5
Author(s):  
Jane F. Reckelhoff ◽  
Licy L. Yanes Cordozo

Gender medicine is the topic of this issue of The Biochemist. In 2014, Francis Collins, Director of the National Institutes of Health (NIH), and Janine Clayton, Director of the Office of Research on Women's Health (ORWH) at NIH, announced that NIH would begin requiring all preclinical grant proposals to address sex as a biological variable1. The ORWH was set up in 1990 with the specific mandate to promote the inclusion of women and minority individuals in all clinical trials going forward2. Similar guidelines are imposed by the European Commission and the Canadian Institutes of Health Research.


2018 ◽  
Vol 1 (01) ◽  
pp. 5-6
Author(s):  
Jitendra Shrestha

Health system should be supported by health research to deliver quality, accountable, equitable, fairer, better health care to target population.1  Earlier; defenseless people like prisoners, soldiers, poor and mentally ill along with animals were subjected to medical research without taking consent. As time pass by, new emerging health problems, shifting of epidemiological trends in disease patterns, rapid increase in population, new and emerging health problems, increasing commercial interests of private health sector and shrinking resources all contribute in inequity to health care.2  Hence it is extremely important that research addresses priorities and focuses on the most important health issues and conditions. Research must serve as a driver for health system, policies and practice. For this to happen, the health research systems should be fully accountable for sake of transparency and also have to be capable of delivering the desired returns. We are fortune to take benefit from documented experiences from history. The main goal of medical research article is to share one’s valuable experience so as to contribute to the progress of science.3  Conducting a medical research and publishing it in a medical journal, is sharing an important knowledge and experience to the world. A physician from one part of the world may have significant load of certain disease and sharing management experience in that particular disease may help doctors of other part of the world treat such kind of patient. Furthermore, author may also have individual benefits, like higher positions in academic hierarchy.4  The Journal of the institution reflects the academics wealth of the institute. Earlier, only few used to grab opportunities for professional growth via publication, majority of them suffer to lack of publication culture in the institution resulting in fossilization of their professional caliber.5  In developing countries like ours, to do quality medical research is often difficult. Furthermore, getting the article published in medical journal is another challenge. Leading international medical journals underreport on health research priorities for developing countries because of improper material, methods quality. Many factors play role in the paucity of inclusion of research papers from developing countries. Lack of resources like funding, proper man power and less access to scientific literature in similar setting leading to poor research output, faulty manuscript preparation and language proficiency may be the common problems. Inadequate laboratory facilities and training may be the other cause. Hence, researchers in developing countries should be supported and encouraged to produce material of the quality by proper guidance and required trainings. Open access journal is the window to the research world. It is one of the tools to increase publications. These journals facilitate the publication of local research output and may play defining role in helping researcher to improve their publication records, and make it accessible to other researchers. This type of open access journal is an important entity in national publishing that will hopefully gain broader prominence as awareness increases and the above efforts are implemented. To make our journal an index and of international stature is strenuous but with the help from our fraternity, we will surely reach the goal soon. Our journal will surely serve as a medium to access information, updated knowledge and a symbol of ideal journal in Nepal.  This journal is the result of hard work, dedication and sacrifice. We apologize for taking this extra long time to publish but as they say ‘good things come to those who wait’ we proudly present you our journal, our masterpiece. No one is to be blamed for the delay of this process. Working with teachers, selecting experts for review, suggesting authors, verifying manuscripts, editing and proof reading was an arduous job but was done meticulously. We run out of words to express our gratitude to the reviewers who reviewed and upgraded the journal’s contents. It is very hard to imagine this journal with their crucial help and guidance. We apologize for not being able to incorporate all the articles due to some academic standards and expectations.  I would also like to take this opportunity to thank Dr. Angel Magar, without whom this journal would be impossible. His valuable guidence help us shape the journal. We shall forever the indebted to him for his support. Dr. Bibek Rajbhandari is another individual we need to thank. His hard work and dedication can be seen in our journal. We are grateful for his help and support. We appreciate everything he has done selflessly and for the betterment of the journal.  We would like to acknowledge Dr. Krishna Rana (JNMA Assistant Editor) and JNMA Trainees (Asmita Neupane, Rakshya Pandey, Suzit Bhusal, Suraj Shrestha, Nabin Sundas, Prastuti Shrestha, Riyaz Shrestha, Prabha Bhandari, Nita Lohala, Samiksha Lamichhane, Sushmita Bhattarai, Laxman Aryal, Barsha Karki and Kajol Ghimire, Sushil Dahal, Shraddha Bhattarai) for the consistent support during the phase of publication.  REFERENCES  Inis C. The WHO Strategy on research for Health. France:WHO,2012.  Santosa A, Wall S,Fottrell E,Hogberg U, Byass P.The Deveopment and experience of epidemological transition theory over four decades: a systematic review. Glob Health Action.2014;7:10.  Mohmoud F, Mohamed F. A practical guide for health researchers. Eastern Mediteranean:WHO Regional Publications, 2004.  Clauset A, Arbesmans, Larremore D. Systematic inequtiy and hierarcy i faculty hiring networks. Sci.Adv.2015;1:e 1400005.  Koul B, Kanwar A (ed.). Toward a Culture of Quality. Vancouver:Common Wealth of Learning, 2006.


2018 ◽  
Vol 36 (4_suppl) ◽  
pp. 242-242
Author(s):  
Allyson J. Ocean ◽  
Niraj Jaysukh Gusani ◽  
Muhammad Shaalan Beg ◽  
Anirban Maitra ◽  
Julissa Viana ◽  
...  

242 Background: Twitter provides a platform for health care stakeholders to disseminate information about diseases to patients, caregivers, and doctors. Chats are especially effective because participants can interact directly with experts. Pancreatic cancer (PC) conversations on Twitter previously were sporadic and inconsistent. The authors report the creation of #PancChat, a first-of-its-kind Tweet Chat developed to provide relevant, credible, and timely information to the PC community. A collaboration between leading PC organizations, a pharmaceutical company, and an academic oncologist, PancChat is an example of successful outreach using an accessible communications tool. Methods: Launched in April 2016, the hour-long monthly chat is a live event publicized and promoted through multiple social media channels and major news outlets. It is moderated and focused around a pre-selected topic. The hashtag #PancChat is used to filter specific chatter into a single conversation. Participants include patients, caregivers, physicians, researchers, top ASCO social media influencers, AACR members, and advocacy organizations. Moderators and participants are drawn from 23 academic institutions. The PancChat team corresponds with participants and replies to tweets that are not addressed during the chat. Results: Since its inception, PancChat has had a total of 28 million impressions (the total number of times each tweet is seen) from 16 chats, averaging 1.75 million per chat. Popular topics include clinical trials (1.4 million), familial/hereditary PC (2.9 million), and early detection (2.2 million). The average engagement rate is 72% which measures how much people interact with a tweet by clicking or sharing links. From April 2016-August 2017 there were 8,502 tweets using #PancChat. Conclusions: Impression and engagement numbers show that this novel PancChat platform fulfills a need for the PC community. The narrow focus of each chat provides an opportunity to learn about the disease, research, and clinical trials. Participants return knowing that they will interact with PC experts. The popularity of PancChat among patients and doctors confirms the power of social media to reach a specific community.


2020 ◽  
Author(s):  
Deema Farsi

BACKGROUND As the world continues to advance technologically, social media (SM) is becoming an essential part of billions of people’s lives worldwide and is affecting almost every industry imaginable. As the world is becoming more digitally oriented, the health care industry is increasingly visualizing SM as an important channel for health care promotion, employment, recruiting new patients, marketing for health care providers (HCPs), building a better brand name, etc. HCPs are bound to ethical principles toward their colleagues, patients, and the public in the digital world as much as in the real world. OBJECTIVE This review aims to shed light on SM use worldwide and to discuss how it has been used as an essential tool in the health care industry from the perspective of HCPs. METHODS A literature review was conducted between March and April 2020 using MEDLINE, PubMed, Google Scholar, and Web of Science for all English-language medical studies that were published since 2007 and discussed SM use in any form for health care. Studies that were not in English, whose full text was not accessible, or that investigated patients’ perspectives were excluded from this part, as were reviews pertaining to ethical and legal considerations in SM use. RESULTS The initial search yielded 83 studies. More studies were included from article references, and a total of 158 studies were reviewed. SM uses were best categorized as health promotion, career development or practice promotion, recruitment, professional networking or destressing, medical education, telemedicine, scientific research, influencing health behavior, and public health care issues. CONCLUSIONS Multidimensional health care, including the pairing of health care with SM and other forms of communication, has been shown to be very successful. Striking the right balance between digital and traditional health care is important.


2017 ◽  
Vol 69 (1) ◽  
pp. 61
Author(s):  
Suhail I. Sayed ◽  
Kapila Manikantan ◽  
Shailesh Khode ◽  
Rehan A. Kazi ◽  
Mohan Jagade ◽  
...  

<span>India is considered as a preferred site for conducting global clinical trials taking into consideration its abundant clinical material, available highly skilled English-speaking medical fraternity. India holds its elite position for being the most preferred medical tourist destination in the world. Clinical trials hold importance in strengthening the country’s economy as it’s expected to generate business worth over US $ 1.5-2 billion.</span>


Author(s):  
Carlos H. Barrios ◽  
Tomás Reinert ◽  
Gustavo Werutsky

Breast cancer is a major global health problem and major cause of mortality. Although mortality trends are declining in high-income countries, trends are increasing in low- and middle-income countries (LMICs). Addressing global breast cancer research is a challenging endeavor, as notable disparities and extremely heterogeneous realities exist in different regions across the world. Basic global cancer health care needs have been addressed by the World Health Organization’s (WHO) proposed list of essential medicines and by resource-stratified guidelines for screening and treatment. However, specific strategies are needed to address disparities in access to health care, particularly access to new therapies. Discussions about global research in breast cancer should take into account the ongoing globalization of clinical trials. Collaboration fostered by well-established research organizations in North America and Europe is essential for the development of infrastructure and human resources in LMICs so that researchers in these countries can begin to address regional questions. Specific challenges that impact the future of global breast cancer research include increasing the availability of trials in LMICs, developing strategies to increase patient participation in clinical trials, and creation of clear guidelines for the development of real-world evidence-based research. The main objective of this review is to encourage the discussion of challenges in global breast cancer research with the hope that collectively we will be able to generate workable proposals to advance the field.


2019 ◽  
Vol 8 (2S11) ◽  
pp. 3527-3530

In the digital age high-end computers are used for storing an increased amount of data, which might not be possible a decade ago. These computers run on sophisticated software algorithms producing fast insights needed to make fact-based decisions. By implementing the science of numbers, data and analytical discovery to work together, it has been found that what we think or believe; produce answers to questions we never thought to ask. That’s the power of analytics. Information has been scrutinize as a powerful weapon, and analytics is the forge that creates it. Analytics changes everything, not just in the world of business, but also in science, sports, health care and in few field where enormous data are collected. The combination of analytics and connectors into social media gives an immense accuracy and popularity throughout different forms of business. This paper is the preliminary analysis of few areas considered from social media like Face book, Twitter etc, where data is gathered and analytics is drawn with the help of connectors through Qlik.


2019 ◽  
Vol 15 (2) ◽  
pp. 133
Author(s):  
Hery Poerwosusanta ◽  
Zairin Noor ◽  
Karyono Mintaroem ◽  
Edi Widjajanto ◽  
Mulyohadi Ali

Abstract: Indonesia has the second largest tropical forest and the richest in flora biodiversity in the world. Based on the Basic Health Research 2010, 59.29% of Indonesian had consumed herbal medicine, noted that Indonesian had consumed herb since the VIII century. Dayak onion (Eleutherine sp) widely used as traditional medicine, as a bahimang /wound healing agent. Dayak onion is not reassured as a medical treatment and lacked scientific evidence. Until 2018, thousands of herbs consumed by Indonesian, only 85 ingredients clinically tested. Sixty-four herbs have been pre-clinically tested and designated as Scientific based Herbal Medicines/Obat Herbal Terstandar (OHT) and 21 herbs have been tested clinically and determined as Phytopharmaca by the Badan Pengawasan Obat dan Makanan Republik Indonesia (BPOM-RI). Based on the data, the Dayak onion appointed as a Scientific based Herbal medicine (OHT) based on pre-clinical and phase 0 clinical research.  Potential and promising for the treatment of metabolic, degenerative, catastrophic, neoplasmic, genetic and infectious diseases, Dayak onions can be developed into phytopharmaca in the future. The study aim is to make guidelines for the standardized herbal medicines development according to the rules and regulations. Keywords: Dayak Onion, Eleutherine sp, Scientific based Herbal Medicines, Phytopharmaca, Pre Clinic and Clinical Trials phases


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