scholarly journals POPULATION REGISTRIES OF NON-COMMUNICABLE DISEASES IN THE RUSSIAN FEDERATION

2019 ◽  
Vol 98 (12) ◽  
pp. 1432-1436
Author(s):  
Tatiana N. Unguryanu

Population registries consolidate information about cases of disease among the geographically limited population at the national, regional or municipal levels. The main tasks of registries are to monitor the levels of prevalence, to study risk factors, and to evaluate effectiveness of therapeutic or preventive measures. Currently, in the Russian Federation there is a lot of federal registries of various such diseases, like diabetes, cancer, congenital malformations, chronic skin diseases, cardiovascular diseases, bronchial asthma, orphan diseases, and others. These registries allow obtaining the necessary information about the prevalence, clinical course of disease, its complications, associated conditions, socio-demographic characteristics of patients, effect of a particular treatment on the course and outcomes of the disease.The article provides information about cancer registry, county birth registry and injury registry in the Arkhangelsk region. The advantages and limitations of population registries for epidemiological studies are given. Using registries in epidemiological studies is based on complete data collection, saving resources, taking into account confounding factors that are accessible to entire population. Register-based research has a large sample size, which makes it possible to study rare exposures and outcomes. The long collection of information in time allows studying diseases with a long latent period after exposure. The limitations of the registry data for epidemiological study include the fact that data is collected by the registrar and not by the researcher. The registries don’t contain information about specific confounding factors, which doesn’t allow correcting them. It is difficult to assess quality of registry data, as there is no “gold standard” for the comparement with the registry database The exchange of data between registries should be promising, as it will combine efforts to achieve common scientific and organizational goals.

2016 ◽  
Vol 54 ◽  
pp. 50-62
Author(s):  
E. L. Nasonov ◽  
D. E. Karateev ◽  
A. M. Satybaldyev ◽  
E. L. Luchikhina ◽  
G. V. Lukina ◽  
...  

2021 ◽  
Vol 99 (12) ◽  
pp. 1398-1406
Author(s):  
Nina V. Zaitseva ◽  
Irina V. May

Introduction. Protecting consumers’ lives and health in a condition when the number of producers and the variety of food products is continually growing is one of the state’s strategic tasks and the goals of the administrative reform in the Russian Federation. Material and methods. The work uses methods of analysis, synthesis, comparison, and generalization of the existing in international practice methodological approaches and criteria to assess product safety in planning control and supervision activities, assessing the risk of harm to human health, applied the comparative legal method, methods of mathematical modeling and other methods used when searching legal and analytical research. Results. A risk-oriented model of control and supervisory activities for food safety is proposed and tested. The model is built under the general principles of the risk assessment methodology and is based on the analysis of the results of previous checks, studies and trials, data from epidemiological studies and relevant scientific literature. The model assumes three successively implemented stages: the categorization (classification) of the economic entity’s activities according to the potential risk of harm to health. Target - to select facilities for the most frequent and in-depth inspections by the supervisory authorities. The second stage is the classification of food products according to the potential risk to consumer health to justify the types of food products subject to priority supervision during scheduled inspections of economic entities. The third stage is constructing “risk profiles” of certain products to optimize laboratory control of food safety. Discussion. The construction of risk-oriented control based on the principle of step-by-step substantiation and clarification of supervision objects was shown to ensure the targeting of authority and an increase in inspection pressure on precisely those objects that are characterized by the most frequent violations of legal requirements with the most severe and large-scale consequences for health. Increasing the control density at the highest risk categories’ facilities does not require additional resources from the regulator. It is still implemented by removing facilities with moderate or low risk from planned supervision and optimizing laboratory support. Conclusion. Work out and implement a risk-based food safety surveillance model corresponds to the strategic vector of development of state control (supervision) in the Russian Federation. The system assumes that “risky” goods are unsafe for the consumer’s health. Accordingly, their producers, distributors, and sellers should be under robust inspection, including laboratory supervision, and precisely according to those indicators for which these risks are most significant. The system is in a dynamic state and development.


2015 ◽  
Vol 53 (5) ◽  
pp. 472-484 ◽  
Author(s):  
E. L. Nasonov ◽  
D. E. Karateev ◽  
A. M. Satybaldyev ◽  
E. L. Luchikhina ◽  
G. V. Lukina ◽  
...  

2011 ◽  
Vol 14 (1) ◽  
pp. 15-19 ◽  
Author(s):  
Yury Ivanovich Suntsov ◽  
Lyubov' Leonidovna Bolotskaya ◽  
Oksana Vladimirovna Maslova ◽  
Igor Vladislavovich Kazakov

The prevalence of diabetes mellitus (DM) in this country as well as throughout the globe has reached epidemic proportions. The register of DM patientsand relevant epidemiological studies are important sources of objective information about epidemiological situation with respect to DM morbidity thatmay be used to predict the prevalence of DM and its complications. The results of a 5-year project and subsequent prospective studies suggest a risein the number of diabetic patients in Russia (3,163,300 as of 01.01.2010). It is expected to increase up to 5.81 mln within the next two decades althoughsome of the patients will never be registered. The actual prevalence of DM complications also exceeds the registered one; they are not diagnosedin 40-55% of the patients. Prospective studies revealed an increased number of DM1 patients with the HbA1c level


2012 ◽  
Vol 16 (1) ◽  
pp. 126-133 ◽  
Author(s):  
Yulia Kovas ◽  
Eduard V. Galajinsky ◽  
Michel Boivin ◽  
Gordon T. Harold ◽  
Alice Jones ◽  
...  

The Russian School Twin Registry (RSTR) was established in 2012, supported by a grant from the Government of the Russian Federation. The main aim of the registry is to contribute to Progress in Education through Gene-Environment Studies (PROGRESS). The formation of the registry is ongoing and it is expected that most schools in the Russian Federation (approximately 50,000 schools) will contribute data to the registry. With a total of 13.7 million students in Grades 1–11 (ages 7–18), the potential number of twin pairs exceeds 100,000. Apart from the large sample size and its representative nature, the RSTR has one unique feature: in collaboration with the International Advisory Committee to the Registry, genetically sensitive cross-cultural investigations are planned, aided by the use of the common assessment instruments. Other strengths of the registry include the assessment of a large sample of non-twin school children, including those studying in the same classes as the twins in the registry. It is hoped that the RSTR will provide an important research platform for national and international educationally relevant research.


2012 ◽  
Vol 9 (4) ◽  
pp. 18-25
Author(s):  
K V Blachentsev ◽  
M V Manzhos ◽  
E S Fedenko ◽  
T I Kaganova

Background. The purpose of this study was to investigate the prevalence and incidence of allergic rhinitis (AR) and bronchial asthma (BA) among different groups of population of Samara region during 2001—2010. Methods. Material for analysis was taken from the statistic forms of municipality hospitals of Samara and the Samara region (form No. 12) during 2001—2010 in comparison with the corresponding indicators of Volga federal region (PFO) and the Russian Federation. Results. Prevalence of BAin all groups of patients in the Samara region in 2009 was revealed. These indicators were more than such indicators in Russian Federation — among children on 25%, in teenagers on 38%, in adult on 50%. Prevalence of AR among children and teenagers exceeded indicators in Russian Federation — among children on 44%, teenagers — on 68%. The incidence of asthma in adults is 2,5 times higher than the incidence of AR (95,8—30,5 per 100 thousand). Conclusion. High prevalence of AR and asthma in the Samara region with a tendency to increase, the discrepancy indices studied data from epidemiological studies that require further implementation of international recommendations for diagnosis, treatment and prevention of AR among general practitioners.


Author(s):  
З.К. Гетоева ◽  
В.В. Кадышев ◽  
М.Ю. Джаджиева ◽  
В.А. Галкина ◽  
А.В. Перепелов ◽  
...  

Представлен нозологический спектр моногенных наследственных болезней (МНБ) в трех районах Республики Северная Осетия Алания (РСОА) - Правобережном, Ардонском и Кировском, общей численностью 119 590 человек. Обследовано все население районов по протоколу генетико-эпидемиологических исследований (разработка ФГБНУ «МГНЦ»), выявлено и диагностировано 600 пациентов (из 418 семей) с различными МНБ. Всего выявлено 135 нозологических форм - 65 с аутосомно-доминантным типом наследования (АД), 57 с аутосомно-рецессивным (АР) и 14 с Х-сцепленным (Х-сц.). Определены распространенность заболеваний, частые и редкие нозологические формы. Проведено сравнение нозологического спектра и распространенности отдельных МНБ с таковыми в ранее обследованных популяциях европейской части России. Выявлены особенности разнообразия МНБ. Более высокие значения распространенности, чем в других популяциях РФ выявлены синдром Элерса-Данло, миотоническая дистрофия, несиндромальная умственная отсталость с различными типами наследования, различные формы пигментного ретинита и др. Ряд заболеваний, частых в обследованных регионах РФ, наоборот, встречались реже - вульгарный ихтиоз, нейрофиброматоз, наследственная моторно-сенсорная нейропатия и ихтиозиформная эритродеремия. In this article we present the nosological spectrum of monogenic hereditary diseases (MHD) in three districts of the Republic of North Ossetia - Alania (RNOA) - Pravoberezhny, Ardonsky and Kirovsky, with a total population of 119,590 people. The entire population of the districts was examined according to the Protocol of genetic and epidemiological studies (developed by the Federal state budgetary Research Centre for Medical Genetics), 600 patients (from 418 families) with various NBS were identified and diagnosed. We identified 136 nosological forms of MHD - 65 with autosomal dominant type of inheritance (AD), 57 with autosomal recessive (AR) and 14 with X-linked (X-lin.). We determine the prevalence of diseases, frequent and rare nosological forms. The nosological spectrum and prevalence of individual MHD were compared with previously surveyed populations in the European part of Russia: Kirov, Kostroma, Arkhangelsk, Tver, Bryansk, Rostov regions, Krasnodar territory and the Republics of Karachay-Cherkessia, Adygea, Tatarstan, Bashkortostan, Mari El, Udmurtia and Chuvashia. Features of the MHD diversity are revealed. With higher prevalence values than in other populations of the Russian Federation, Ehlers-Danlo syndrome, myotonic dystrophy, non - syndromic mental retardation with various types of inheritance and various forms of retinitis pigmentosa, etc. A number of diseases that are frequent in the Russian Federation have shown on the contrary lower prevalence values - vulgar ichthyosis, neurofibromatosis, hereditary motor-sensory neuropathy and ichthyosiform erythroderemia.


Author(s):  
Leonid A. Strizhakov ◽  
Sergey A. Babanov ◽  
Denis V. Vinnikov ◽  
Igor I. Berezin ◽  
Anna S. Agarkova ◽  
...  

We devoted this article to the problem of causation and evaluation of causality associations in the occupational epidemiology, exposure assessment, occupational health, and industrial medicine using methodological approaches of clinical epidemiology, for which the term "evidence-based medicine" is wider used in the Russian Federation. The researchers paid some attention to the historical aspects of causality assessment in occupational medicine in the Russian Federation. The authors discuss the issues of evidence in occupational medicine, planning, and implementation of epidemiological studies in occupational therapy using specialized questionnaires and clinical, functional, molecular, and genetic techniques. We analyzed the concept of the "risk factor" of the disease along with the organizational and methodological bases of assessment and management of occupational risks in industrial medicine. The paper also offers applied examples of the relative risk assessment, highlighting the advantages and perils of selected methods in a comparative analysis. Scientists have affected the contribution of systematic reviews aiming to mine evidence-based rationale in occupational epidemiology. The authors speculate and conclude on the importance of risk assessment in the overall morbidity reduction in occupational medicine through efficient prevention programs, along with the underpinnings to include work-related conditions in the national loss of occupational diseases.


2001 ◽  
Vol 47 (6) ◽  
pp. 3-12 ◽  
Author(s):  
I. I. Dedov ◽  
N. Yu. Sviridenko

There are actually по territories in Russia without risk of iodine deficiency diseases (IDD) for the population. Iodine deficit in nutrition is observed in all heretofore examined areas of the country, from central regions to Sakhalin. Actual mean daily consumption of iodine by a resident of Russia is 40-80 pg (1995-1999), which is 2-3-fold below the recommended norm. Iodine deficiency is particularly pronounced in the rural residents and population with low income. Iodine deficiency of extreme severity was detected in the Republic of Tuva. A threatening tendency to increase in the incidence and prevalence of IDD and unfavorable socioeconomic changes which tell on the nutrition of population make the problem of IDD one of priority problems of public health and necessitate urgent measures aimed at liquidation of conditions for development of these diseases. Today the problem of IDD liquidation in Russia acquired state significance. The Government of the Russian Federation adopted on October 5, 1999, a Decision signed by V. V. Putin "On Measures for Prevention of Iodine Deficiency Diseases". Minister of Health of the Russian Federation, Chief State Sanitary Physician, organs of legislative and administrative power in the Federation determined by their order and decisions the strategic trends in prevention of IDD. The most efficient strategy of liquidation of iodine deficit in Russia is overall iodination of table salt. WHO and UNISEF recommend total salt iodination as a universal highly economic method for global liquidation of IDD. Individual and group iodine prevention should be carried out with drugs containing physiological dose of iodine in accordance with age requirements. The efficiency of various methods of iodine deficiency compensation by different methods (making use of iodinated salt, iodinated bread, and treatment with iodine preparations, such as potassium iodide and lipiodol) was evaluated at Endocrinology Research Center of Russian Academy of Medical Sciences. A method of bread iodination is developed and introduced. Among the priority problems of IDD control are introduction of a system of biological monitoring of iodine supply, epidemiological studies at the population level, drug supply, improvement of higher and vocational medical training and upgrading of physicians with special emphasis on diagnosis, prevention, and treatment of IDD, and education of the population with instructions on measures of iodine deficiency prevention.


2021 ◽  
Vol 67 (2) ◽  
pp. 84-92
Author(s):  
V. A. Avdeeva ◽  
L. A. Suplotova ◽  
E. A. Pigarova ◽  
L. Y. Rozhinskaya ◽  
E. A. Troshina

BACKGROUND. In Russian Federation, there are no large-scale cross-sectional multicenter epidemiological studies assessing the prevalence of vitamin D deficiency and insufficiency in different geographical latitudes. Insufficient solar insolation and inadequate vitamin D content in food dictate the need to study the epidemiological structure of low vitamin D status in Russia.AIM. To assess the incidence of vitamin D deficiency and insufficiency among the population living in the regions of the Russian Federation located at latitudes from 45 ° to 70 °.MATERIALS AND METHODS. The first stage of the Russian multicenter non-interventional registry study using the «crosssectional» method was carried out from March 2020 to May 2020.RESULTS. In regions that represent a geographically representative sample of regions of the Russian Federation with a high risk of developing low levels of vitamin D, it’s deficiency was noted in 55.96%, and the level of deficiency and insufficiency was recorded in 84.01%.CONCLUSION. Close attention to the wide scale of the problem of vitamin D deficiency and insufficiency in the Russian Federation will contribute to the progressive formation of various educational and preventive programs necessary to strengthen health and improve the quality of life of the population.


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