scholarly journals Parents’ Perceptions Regarding Readiness for Their Infant’s Discharge from the NICU

2013 ◽  
Vol 32 (5) ◽  
pp. 324-334 ◽  
Author(s):  
Natasha Burnham ◽  
Nancy Feeley ◽  
Kathyrn Sherrard
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Qualitative Content Analysis ◽  
Hands On ◽  
Need For Information

Purpose: To identify what parents need to feel ready for the discharge of their infant from the neonatal intensive care unit (NICU).Design: Qualitative.Sample: 20 parents of infants admitted to a Canadian Level III NICU were interviewed (2011–2012) and asked to identify what they require to feel ready for discharge. Interview transcripts underwent qualitative content analysis to produce a descriptive summary of parents’ perceptions of their needs.Results: Parents indicated a need for information and hands-on experience to enhance their readiness for discharge. Observations of their infant and of the NICU environment impacted parents’ perceptions of their infant’s readiness for discharge, which influenced perceptions of their own readiness for discharge. Finally, parents require tailoring of information and experiences to meet the unique needs of their family.

A Mixed Methods Analysis of Parental Perspectives on Diagnosis and Prognosis of Neonatal Intensive Care Unit Graduates With Cerebral Palsy

2020 ◽  
Vol 35 (5) ◽  
pp. 336-343
Author(s):  
Katherine Guttmann ◽  
John Flibotte ◽  
Sara B. DeMauro ◽  
Holli Seitz
Keyword(s):  
Intensive Care Unit ◽  
Cerebral Palsy ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Free Text ◽  
Word Count ◽  
Linguistic Inquiry

This study aimed to evaluate how parents of former neonatal intensive care unit patients with cerebral palsy perceive prognostic discussions following neuroimaging. Parent members of a cerebral palsy support network described memories of prognostic discussions after neuroimaging in the neonatal intensive care unit. We analyzed responses using Linguistic Inquiry and Word Count, manual content analysis, and thematic analysis. In 2015, a total of 463 parents met eligibility criteria and 266 provided free-text responses. Linguistic Inquiry and Word Count analysis showed that responses following neuroimaging contained negative emotion. The most common components identified through the content analysis included outcome, uncertainty, hope/hopelessness, and weakness in communication. Thematic analysis revealed 3 themes: (1) Information, (2) Communication, and (3) Impact. Parents of children with cerebral palsy report weakness in communication relating to prognosis, which persists in parents’ memories. Prospective work to develop interventions to improve communication between parents and providers in the neonatal intensive care unit is necessary.

scholarly journals Erfaringer fra lærings- og mestringskurs for foreldre til premature barn

2016 ◽  
Vol 12 (2) ◽  
Author(s):  
Nina Bøhle Cheetham ◽  
Tove Aminda Hanssen
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Parent Education ◽  
Neonatal Intensive Care ◽  
Transition To School ◽  
Future Challenges ◽  
Evaluation Survey

Experiences with parent education for parents of premature childrenThe Neonatal Intensive Care Unit and the Learning and mastery center (LMS)/UNN has since 2004 offered parent education on topics as interaction, play, communication and feeding challenges as well as exchange of experience. The aim of this study is to systemize and analyze feedback from parents who have attended the courses. The study has a descriptive design. The selection are course attenders at LMS courses from 2006–2012. An evaluation survey was distributed through Quest back. Data were analyzed through SPSS. Open answers were analyzed through content analysis. A total of 56 persons participated. The majority (86%) reported satisfaction with the themes and 46% reported change in lifestyle. Meeting other parents was reported as useful. Some wished for an increased focus on topics like transition to school and daycare and on future challenges. Some suggested parent education as standard follow up. Parent education seems to meet expectations and the adjustments of the courses seem to have been successful. Feedback from parents suggests a need for more follow up.

scholarly journals Prerequisites for provision of spiritual care in the neonatal intensive care unit in Iran: a qualitative study

2020 ◽  
Author(s):  
Haideh Heidari ◽  
Nasrin Mehrnoush ◽  
Mansoureh Karimollahi
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Health Care Providers ◽  
Spiritual Care ◽  
Neonatal Intensive Care ◽  
Nurse Managers ◽  
Qualitative Content Analysis ◽  
Care Providers ◽  
Families With Children

Abstract Background: Spiritual care in line with the holistic and comprehensive care is the important need for families with children who are hospitalized in an intensive care unit. Objectives: This study aimed to explore perceptions of health care providers' regarding the spiritual care of parents with a newborn in the neonatal intensive care unit in Iran.Materials/Patients and Methods: This study was conducted using qualitative content analysis which includes open coding, creating classification, and abstraction. Eight nurses and one doctor were chosen to be interviewed by a purposeful sampling method.Results: Based on data analysis three categories of nurses' support need for spiritual care and the necessity of changes in structural conditions were identified.Conclusions: Hospital administrators must adopt measures to change the neonatal intensive care unit circumstances. Also, it is mandated that nurse managers plan training about the importance of providing spiritual care to patients and families.

scholarly journals Impact of hands-on care on infant sleep in the neonatal intensive care unit

2016 ◽  
Vol 52 (1) ◽  
pp. 84-90 ◽  
Author(s):  
Jennifer Levy ◽  
Fauziya Hassan ◽  
Melissa A. Plegue ◽  
Max D. Sokoloff ◽  
Juhi S. Kushwaha ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Infant Sleep ◽  
Hands On

Giving “Moral Distress” a Voice: Ethical Concerns among Neonatal Intensive Care Unit Personnel

1999 ◽  
Vol 8 (2) ◽  
pp. 173-178 ◽  
Author(s):  
PAM HEFFERMAN ◽  
STEVE HEILIG
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Moral Distress ◽  
Ethical Concerns ◽  
Gray Area ◽  
Hands On ◽  
Emotional Component ◽  
High Level

Advances in life-sustaining medical technology as applied to neonatal cases frequently present ethical concerns with a strong emotional component. Neonates delivered in the “gray area” gestation period of approximately 23–25 weeks may result in situations where various people involved in such cases may feel “held hostage” to technological imperatives. Legal decisions and standards have evolved that are discordant with the views of many clinicians most familiar with the treatment of such patients. Increasing concerns regarding such scenarios have fueled much academic and professional debate about the need for consensus about ethical limits to clinical interventions with high probability of nonbeneficial impact. While at least some clinicians and ethicists may be inching toward consensus regarding limits to such treatment, the voices of some bedside personnel, particularly neonatal intensive care unit (NICU) nurses, have been relatively muted in this debate. At least one previous survey of clinicians, which included nurses, indicated that many nurses experienced a high level of “moral distress” regarding aggressive courses of treatment for some patients. Some of this distress results from a feeling of powerlessness regarding treatment decisions, coupled with a high intensity of hands-on contact with the patients and family. Lack of authority coupled with high responsibility may itself be a recipe for a different kind of futility.

scholarly journals A experiência do pai na unidade de tratamento intensivo neonatal/ The experience of the father in the Neonatal Intensive Care Unit

2019 ◽  
Vol 3 (2) ◽  
pp. 230-246
Author(s):  
Rerinton Peres Dos Santos ◽  
Nicole Ruas Guarany
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Qualitative Descriptive

ResumoDurante a gestação, os pais idealizam a imagem de um filho perfeito, mas por complicações alguns são internados na Unidade de Tratamento Intensivo Neonatal (UTIN). As causas são variadas, podendo ser decorrentes de complicações pré, peri e pós-natal. O objetivo deste estudo foi compreender a participação do pai no cuidado e no acompanhamento de bebês internados na UTIN. Trata-se de um estudo de caráter qualitativo, descritivo e exploratório, para investigar a participação do pai no cuidado e acompanhamento das crianças internadas. Foi utilizado um questionário aberto com sete questões. As entrevistas foram gravadas e transcritas na íntegra. Os resultados foram analisados segundo análise de conteúdo de Bardin. Os resultados evidenciaram que os pais vivenciam fortemente os efeitos da internação do filho, com sentimentos complexos como frustração, impotência, medo do desconhecido e preocupação com a mãe. Contrariando a hipótese do estudo, os pais se sentiram acolhidos pela equipe da UTIN e foram participantes ativos nas decisões e cuidados com o bebê. Os resultados indicam que os pais têm consciência e buscam realizar seus papéis de cuidador da criança e como cônjuge de forma participativa. Concluiu-se que o processo de humanização dos hospitais que acolhem as famílias nas UTIN tem sido muito importante para que os pais consigam superar as dificuldades relacionadas à internação do bebê, ainda mais quando há apoio e suporte da equipe. Abstract During the pregnancy the parents idealize the image of a perfect child, but due to complications some of them are hospitalized in the Neonatal Intensive Care Unit (NICU). The causes are varied, stemming from pre, peri and postnatal complications. The goal of this study was to comprehend the father’s participation in the care and monitoring of babies interned in the NICU. It is a study of qualitative, descriptive and exploratory nature, to investigate the participation of the father in the care and monitoring of interned babies. An open questionnaire with seven questions was utilized for the interviews, which were recorded and transcribed; the results were analyzed according to Bardin’s content analysis. The results made evident that the fathers experience intensely the effects of the child’s hospitalization with complex feelings ranging from frustration, impotence, fear of the unknown and concern with the mother. In contrast to the hypothesis of the study, the fathers felt welcomed by the NICU team and active participants in the decisions and cares regarding the baby. Results indicate that the fathers are aware and aim to fulfill their roles as the baby’s caretaker and of partner in active fashion. It was concluded that the humanization process of the hospitals that foster the families into the NICU has been important for the fathers to overcome the difficulties related to the baby’s hospitalization, seeing help and support in the team.Keywords: Humanization; Paternity; Neonatal Intensive Care Unit.

scholarly journals O conhecimento do enfermeiro sobre cateter central de inserção periférica: estudo descritivo

2016 ◽  
Vol 15 (1) ◽  
pp. 21
Author(s):  
Renata Rangel Birindiba de Souza ◽  
Valdecyr Herdy Alves ◽  
Diego Pereira Rodrigues ◽  
Louise José Pereira Dames ◽  
Flávia do Valle Andrade Medeiros ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Professional Training ◽  
University Hospital ◽  
Care Process ◽  
Peripherally Inserted Central Catheter ◽  
Central Catheter

Aim: to  analyze  the knowledge  of  nurses  in the  Neonatal  Intensive Care  Unit  on  the  entry,  handling,  maintenance  and  withdrawal  of  the  peripherally inserted  central  catheter.  Method:  This  is  a  descriptive,  exploratory,  and  qualitative study involving nine  nurses from  the  Neonatal intensive care  unit  of  the  Antonio  Pedro University  Hospital,  Fluminense  Federal  University,  interviewed  based  on  a  semi-structured  script.  The  data  submitted  to  content  analysis  have  originated  thematic categories.   Results:   knowledge   of   nurses   regarding   the   statement,   insertion, maintenance  and  removal  of  the  catheter,  standards  and  protocols  and  professional training  for  the  care  process  are  decisive  for  the  safety  of  care  to  the  newborn. Conclusion: The use of the peripherally inserted central catheter (PICC) is important in neonatology  for  its  benefits  to  the  infant.  However,  nurses  need  to  deepen  their knowledge so that the care process in the NICU is guided by ethics and based on nursing protocols aiming to base and legitimize such assistance. 

scholarly journals Percepção da enfermagem em relação às mães no cuidado de recém-nascidos na unidade de terapia intensiva neonatal

2013 ◽  
Vol 4 (1) ◽  
pp. 45-48 ◽  
Author(s):  
Silvana Santiago Da Rocha ◽  
Dean Douglas Ferreira De Olivindo ◽  
Caroline Neves De Sá ◽  
Luara Freitas Fonseca
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Integrated Care ◽  
Neonatal Intensive Care ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Nursing Team ◽  
Terapia Intensiva

Objetivou-se descrever a percepção da equipe de enfermagem em relação às mães no cuidado de recém-nascidos na unidade de terapia intensiva neonatal. Estudo do tipo exploratório-descritivo, com abordagem qualitativa. A entrevista foi o instrumento utilizado para a coleta dos dados, obedecendo aos critérios da resolução CNS 196/96. Os dados foram analisados utilizando-se a análise de conteúdo, originando três categorias: problemas vivenciados pela equipe de enfermagem; a recuperação do recém-nascido: o cuidado integrado mãe-equipe de enfermagem; desconhecimento das mães percebido pela equipe de enfermagem, que proporcionaram a compreensão que a equipe de enfermagem tem em relação às mães.Descritores: Equipe de Enfermagem, Mães, UTI Neonatal.Nursing team's view of mothers in the care of newborns in the neonatal intensive care unitThis work aimed to describe the nursing team's view of mothers in the care of newborns in the neonatal intensive care unit. An exploratory, descriptive study, with qualitative approach. The interview was the instrument used to collect the data, in accordance with the criteria of resolution CNS 196/1996. The data were analyzed through content analysis, which originated three categories: problems experienced by the nursing team; the recovery of the newborn: the mother-nursing team integrated care; lack of knowledge of the mothers perceived by the nursing team, which provided the understanding that the nursing team has in relation to the mothers.Descriptors: Nursing Team, Mothers, Neonatal ICU.Percepción de la enfermería con relación a las madres en el cuidado a los recién nacidos en la unidad de terapia intensiva neonatal.Se buscó describir la percepción del equipo de enfermería con relación a las madres en el cuidado a los recién nacidos en la unidad de terapia intensiva neonatal. Estudio del tipo exploratorio – descriptivo, con abordaje cualitativo. La entrevista fue el instrumento utilizado para la colecta de datos, obedeciendo a los criterios de la resolución CNS 196/1996. Los datos fueron analizados valiéndose del análisis de contenido, originando tres categorías: problemas vividos por el equipo de enfermería; la recuperación del recién nacido: el cuidado integrado madre – equipo de enfermería; desconocimiento de las madres percibido por el equipo de enfermería, que proporcionaron la comprensión que el equipo de enfermería tiene con relación a las madres.Descriptores: Equipo de Enfermería, Madres, CTI Neonatal.

The Psychosocial Aspects of Feeding in the Neonatal Intensive Care Unit and Beyond

2019 ◽  
Vol 4 (6) ◽  
pp. 1507-1515
Author(s):  
Lauren L. Madhoun ◽  
Robert Dempster
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Hospital Discharge ◽  
Neonatal Intensive Care ◽  
Oral Feeding ◽  
Medical Attention ◽  
Primary Role ◽  
Speech Language Pathologists ◽  
The Family

Purpose Feeding challenges are common for infants in the neonatal intensive care unit (NICU). While sufficient oral feeding is typically a goal during NICU admission, this can be a long and complicated process for both the infant and the family. Many of the stressors related to feeding persist long after hospital discharge, which results in the parents taking the primary role of navigating the infant's course to ensure continued feeding success. This is in addition to dealing with the psychological impact of having a child requiring increased medical attention and the need to continue to fulfill the demands at home. In this clinical focus article, we examine 3 main areas that impact psychosocial stress among parents with infants in the NICU and following discharge: parenting, feeding, and supports. Implications for speech-language pathologists working with these infants and their families are discussed. A case example is also included to describe the treatment course of an infant and her parents in the NICU and after graduation to demonstrate these points further. Conclusion Speech-language pathologists working with infants in the NICU and following hospital discharge must realize the family context and psychosocial considerations that impact feeding progression. Understanding these factors may improve parental engagement to more effectively tailor treatment approaches to meet the needs of the child and family.

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