A Mixed Methods Analysis of Parental Perspectives on Diagnosis and Prognosis of Neonatal Intensive Care Unit Graduates With Cerebral Palsy

2020 ◽  
Vol 35 (5) ◽  
pp. 336-343
Author(s):  
Katherine Guttmann ◽  
John Flibotte ◽  
Sara B. DeMauro ◽  
Holli Seitz
Keyword(s):  
Intensive Care Unit ◽  
Cerebral Palsy ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Free Text ◽  
Word Count ◽  
Linguistic Inquiry

This study aimed to evaluate how parents of former neonatal intensive care unit patients with cerebral palsy perceive prognostic discussions following neuroimaging. Parent members of a cerebral palsy support network described memories of prognostic discussions after neuroimaging in the neonatal intensive care unit. We analyzed responses using Linguistic Inquiry and Word Count, manual content analysis, and thematic analysis. In 2015, a total of 463 parents met eligibility criteria and 266 provided free-text responses. Linguistic Inquiry and Word Count analysis showed that responses following neuroimaging contained negative emotion. The most common components identified through the content analysis included outcome, uncertainty, hope/hopelessness, and weakness in communication. Thematic analysis revealed 3 themes: (1) Information, (2) Communication, and (3) Impact. Parents of children with cerebral palsy report weakness in communication relating to prognosis, which persists in parents’ memories. Prospective work to develop interventions to improve communication between parents and providers in the neonatal intensive care unit is necessary.

scholarly journals Parents’ Perceptions Regarding Readiness for Their Infant’s Discharge from the NICU

2013 ◽  
Vol 32 (5) ◽  
pp. 324-334 ◽  
Author(s):  
Natasha Burnham ◽  
Nancy Feeley ◽  
Kathyrn Sherrard
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Qualitative Content Analysis ◽  
Hands On ◽  
Need For Information

Purpose: To identify what parents need to feel ready for the discharge of their infant from the neonatal intensive care unit (NICU).Design: Qualitative.Sample: 20 parents of infants admitted to a Canadian Level III NICU were interviewed (2011–2012) and asked to identify what they require to feel ready for discharge. Interview transcripts underwent qualitative content analysis to produce a descriptive summary of parents’ perceptions of their needs.Results: Parents indicated a need for information and hands-on experience to enhance their readiness for discharge. Observations of their infant and of the NICU environment impacted parents’ perceptions of their infant’s readiness for discharge, which influenced perceptions of their own readiness for discharge. Finally, parents require tailoring of information and experiences to meet the unique needs of their family.

scholarly journals Erfaringer fra lærings- og mestringskurs for foreldre til premature barn

2016 ◽  
Vol 12 (2) ◽  
Author(s):  
Nina Bøhle Cheetham ◽  
Tove Aminda Hanssen
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Parent Education ◽  
Neonatal Intensive Care ◽  
Transition To School ◽  
Future Challenges ◽  
Evaluation Survey

Experiences with parent education for parents of premature childrenThe Neonatal Intensive Care Unit and the Learning and mastery center (LMS)/UNN has since 2004 offered parent education on topics as interaction, play, communication and feeding challenges as well as exchange of experience. The aim of this study is to systemize and analyze feedback from parents who have attended the courses. The study has a descriptive design. The selection are course attenders at LMS courses from 2006–2012. An evaluation survey was distributed through Quest back. Data were analyzed through SPSS. Open answers were analyzed through content analysis. A total of 56 persons participated. The majority (86%) reported satisfaction with the themes and 46% reported change in lifestyle. Meeting other parents was reported as useful. Some wished for an increased focus on topics like transition to school and daycare and on future challenges. Some suggested parent education as standard follow up. Parent education seems to meet expectations and the adjustments of the courses seem to have been successful. Feedback from parents suggests a need for more follow up.

Cerebral Palsy and the NICU Graduate

2002 ◽  
Vol 21 (1) ◽  
pp. 53-57 ◽  
Author(s):  
Jennifer McMurray ◽  
Martha Wilson Jones ◽  
Jamil Khan
Keyword(s):  
Intensive Care Unit ◽  
Cerebral Palsy ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Nursing School ◽  
Made In

PUT YOURSELF IN THIS SITUAtion. You have three drips to remix, your oscillator patient is starting to crash, and you have just been asked to work a double shift because the hospital is short staffed. The unit secretary informs you that the mother of one of your former primary patients is on the telephone and is hysterical. A physician at the neonatal follow-up clinic has just told her that her baby has cerebral palsy (CP). She wants reassurance, information, and input from you because you established a rapport with her when her infant was in the neonatal intensive care unit and she trusts you. You remember cerebral palsy from your pediatric rotation in nursing school, but you don’t see many actual diagnoses made in the NICU, and your recollection is foggy.

scholarly journals A experiência do pai na unidade de tratamento intensivo neonatal/ The experience of the father in the Neonatal Intensive Care Unit

2019 ◽  
Vol 3 (2) ◽  
pp. 230-246
Author(s):  
Rerinton Peres Dos Santos ◽  
Nicole Ruas Guarany
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Qualitative Descriptive

ResumoDurante a gestação, os pais idealizam a imagem de um filho perfeito, mas por complicações alguns são internados na Unidade de Tratamento Intensivo Neonatal (UTIN). As causas são variadas, podendo ser decorrentes de complicações pré, peri e pós-natal. O objetivo deste estudo foi compreender a participação do pai no cuidado e no acompanhamento de bebês internados na UTIN. Trata-se de um estudo de caráter qualitativo, descritivo e exploratório, para investigar a participação do pai no cuidado e acompanhamento das crianças internadas. Foi utilizado um questionário aberto com sete questões. As entrevistas foram gravadas e transcritas na íntegra. Os resultados foram analisados segundo análise de conteúdo de Bardin. Os resultados evidenciaram que os pais vivenciam fortemente os efeitos da internação do filho, com sentimentos complexos como frustração, impotência, medo do desconhecido e preocupação com a mãe. Contrariando a hipótese do estudo, os pais se sentiram acolhidos pela equipe da UTIN e foram participantes ativos nas decisões e cuidados com o bebê. Os resultados indicam que os pais têm consciência e buscam realizar seus papéis de cuidador da criança e como cônjuge de forma participativa. Concluiu-se que o processo de humanização dos hospitais que acolhem as famílias nas UTIN tem sido muito importante para que os pais consigam superar as dificuldades relacionadas à internação do bebê, ainda mais quando há apoio e suporte da equipe. Abstract During the pregnancy the parents idealize the image of a perfect child, but due to complications some of them are hospitalized in the Neonatal Intensive Care Unit (NICU). The causes are varied, stemming from pre, peri and postnatal complications. The goal of this study was to comprehend the father’s participation in the care and monitoring of babies interned in the NICU. It is a study of qualitative, descriptive and exploratory nature, to investigate the participation of the father in the care and monitoring of interned babies. An open questionnaire with seven questions was utilized for the interviews, which were recorded and transcribed; the results were analyzed according to Bardin’s content analysis. The results made evident that the fathers experience intensely the effects of the child’s hospitalization with complex feelings ranging from frustration, impotence, fear of the unknown and concern with the mother. In contrast to the hypothesis of the study, the fathers felt welcomed by the NICU team and active participants in the decisions and cares regarding the baby. Results indicate that the fathers are aware and aim to fulfill their roles as the baby’s caretaker and of partner in active fashion. It was concluded that the humanization process of the hospitals that foster the families into the NICU has been important for the fathers to overcome the difficulties related to the baby’s hospitalization, seeing help and support in the team.Keywords: Humanization; Paternity; Neonatal Intensive Care Unit.

scholarly journals THE MEANINGS OF CARING FOR PRE-TERM CHILDREN IN THE VISION OF MALE PARENTS

2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Rachel Leite de Souza Ferreira Soares ◽  
Marialda Moreira Christoffel ◽  
Elisa da Conceição Rodrigues ◽  
Maria Estela Diniz Machado ◽  
Adriana Loureiro da Cunha
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Gender Equity ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Paternal Care ◽  
Structured Interviews ◽  
Term Infants ◽  
Ethnographic Approach

ABSTRACT The purposes of the study was to analyze the meanings assigned by the father to the assistance of pre-term infants in a Neonatal Intensive Care Unit and to discuss how these meanings influence paternal care. It is a qualitative study with an ethnographic approach, carried out in a neonatal unit in Rio de Janeiro. Twenty-two fathers whose pre-term infants were hospitalized have been interviewed. Data were collected by means of a field logbook, participative observation and semi-structured interviews. Through thematic analysis, the inferred categories were a) father-child proximity and the permanence at the Neonatal Intensive Care Unit: overcoming obstacles and revealing motivations, b) the inclusion of fathers in caring for pre-term children: limits and possibilities. Nurses should favor the proximity of fathers and newborns to strengthen their relationship. The intensivist care neonatal practice should include strategies to support male parenting in pre-term birth considering the perspective of gender equity.

scholarly journals O conhecimento do enfermeiro sobre cateter central de inserção periférica: estudo descritivo

2016 ◽  
Vol 15 (1) ◽  
pp. 21
Author(s):  
Renata Rangel Birindiba de Souza ◽  
Valdecyr Herdy Alves ◽  
Diego Pereira Rodrigues ◽  
Louise José Pereira Dames ◽  
Flávia do Valle Andrade Medeiros ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Professional Training ◽  
University Hospital ◽  
Care Process ◽  
Peripherally Inserted Central Catheter ◽  
Central Catheter

Aim: to  analyze  the knowledge  of  nurses  in the  Neonatal  Intensive Care  Unit  on  the  entry,  handling,  maintenance  and  withdrawal  of  the  peripherally inserted  central  catheter.  Method:  This  is  a  descriptive,  exploratory,  and  qualitative study involving nine  nurses from  the  Neonatal intensive care  unit  of  the  Antonio  Pedro University  Hospital,  Fluminense  Federal  University,  interviewed  based  on  a  semi-structured  script.  The  data  submitted  to  content  analysis  have  originated  thematic categories.   Results:   knowledge   of   nurses   regarding   the   statement,   insertion, maintenance  and  removal  of  the  catheter,  standards  and  protocols  and  professional training  for  the  care  process  are  decisive  for  the  safety  of  care  to  the  newborn. Conclusion: The use of the peripherally inserted central catheter (PICC) is important in neonatology  for  its  benefits  to  the  infant.  However,  nurses  need  to  deepen  their knowledge so that the care process in the NICU is guided by ethics and based on nursing protocols aiming to base and legitimize such assistance. 

Infants of Less Than 1250 Grams Birth Weight at Groote Schuur Hospital: Outcome at 1 and 2 Years of Age

PEDIATRICS ◽  
1993 ◽  
Vol 91 (5) ◽  
pp. 961-968
Author(s):  
Clare M. Thompson ◽  
Sandro S. Buccimazza ◽  
Joanne Webster ◽  
Atties F. Malan ◽  
Christopher D. Molteno
Keyword(s):  
Intensive Care Unit ◽  
Cerebral Palsy ◽  
Intensive Care ◽  
Birth Weight ◽  
Neonatal Intensive Care Unit ◽  
Gestational Age ◽  
Neonatal Intensive Care ◽  
Neurodevelopmental Outcome ◽  
Study Cohort ◽  
Motor Delay

A prospective 2-year follow-up study of infants with birth weights of less than 1250 g was undertaken at Groote Schuur Hospital Neonatal Intensive Care Unit. For a 12-month period beginning July 1988, all live infants born at Groote Schuur Hospital or referred to the Neonatal Intensive Care Unit were included in the study cohort. The aim of the study was to document the morbidity, mortality, and neurodevelopmental outcome of these infants to 2 years of age. Of 235 liveborn infants, 143 (61%) survived to discharge. One hundred twenty-six infants were born weighing less than 1000 g; 42% survived to discharge. One hundred nine infants weighed 1000 g or more at birth, and 83% survived to discharge. Better survival was documented for infants whose mothers attended antenatal care, who weighed more than 900 g, and who were of greater than 30 weeks' gestation. Eleven infants died in the first 6 months after discharge. One hundred six infants (83% of survivors) underwent Griffiths developmental testing and clinical assessment at 1 year of age. Ninety-six (91%) of these survivors were seen and tested at 2 years of age. Of the 106 infants assessed at 1 year of age, 6 infants had cerebral palsy, 6 were globally developmentally delayed without signs of cerebral palsy, and 1 infant showed significant motor delay with a normal developmental quotient. At 2 years of age 1 additional infant had cerebral palsy and 9 more infants are likely to be mentally retarded. At 2 years of age the major handicap rate was, therefore, 22% . Sixty-nine percent of surviving infants, and all but 1 of the infants with cerebral palsy, were underweight for gestational age at birth. There was a tendency for these underweight-for-gestational-age infants to score less well at 2 years of age. Infants who received ventilation and infants with a birth weight of less than 1000 g were not found to score less well than other infants in the cohort.

scholarly journals Percepção da enfermagem em relação às mães no cuidado de recém-nascidos na unidade de terapia intensiva neonatal

2013 ◽  
Vol 4 (1) ◽  
pp. 45-48 ◽  
Author(s):  
Silvana Santiago Da Rocha ◽  
Dean Douglas Ferreira De Olivindo ◽  
Caroline Neves De Sá ◽  
Luara Freitas Fonseca
Keyword(s):  
Intensive Care Unit ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Integrated Care ◽  
Neonatal Intensive Care ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Nursing Team ◽  
Terapia Intensiva

Objetivou-se descrever a percepção da equipe de enfermagem em relação às mães no cuidado de recém-nascidos na unidade de terapia intensiva neonatal. Estudo do tipo exploratório-descritivo, com abordagem qualitativa. A entrevista foi o instrumento utilizado para a coleta dos dados, obedecendo aos critérios da resolução CNS 196/96. Os dados foram analisados utilizando-se a análise de conteúdo, originando três categorias: problemas vivenciados pela equipe de enfermagem; a recuperação do recém-nascido: o cuidado integrado mãe-equipe de enfermagem; desconhecimento das mães percebido pela equipe de enfermagem, que proporcionaram a compreensão que a equipe de enfermagem tem em relação às mães.Descritores: Equipe de Enfermagem, Mães, UTI Neonatal.Nursing team's view of mothers in the care of newborns in the neonatal intensive care unitThis work aimed to describe the nursing team's view of mothers in the care of newborns in the neonatal intensive care unit. An exploratory, descriptive study, with qualitative approach. The interview was the instrument used to collect the data, in accordance with the criteria of resolution CNS 196/1996. The data were analyzed through content analysis, which originated three categories: problems experienced by the nursing team; the recovery of the newborn: the mother-nursing team integrated care; lack of knowledge of the mothers perceived by the nursing team, which provided the understanding that the nursing team has in relation to the mothers.Descriptors: Nursing Team, Mothers, Neonatal ICU.Percepción de la enfermería con relación a las madres en el cuidado a los recién nacidos en la unidad de terapia intensiva neonatal.Se buscó describir la percepción del equipo de enfermería con relación a las madres en el cuidado a los recién nacidos en la unidad de terapia intensiva neonatal. Estudio del tipo exploratorio – descriptivo, con abordaje cualitativo. La entrevista fue el instrumento utilizado para la colecta de datos, obedeciendo a los criterios de la resolución CNS 196/1996. Los datos fueron analizados valiéndose del análisis de contenido, originando tres categorías: problemas vividos por el equipo de enfermería; la recuperación del recién nacido: el cuidado integrado madre – equipo de enfermería; desconocimiento de las madres percibido por el equipo de enfermería, que proporcionaron la comprensión que el equipo de enfermería tiene con relación a las madres.Descriptores: Equipo de Enfermería, Madres, CTI Neonatal.

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