scholarly journals Romani Women and Health. The Need for a Cultural Safety-Based Approach

2021 ◽  
Author(s):  
Fernando Jesús Plaza del Pino ◽  
Oscar Arrogante ◽  
Juana Inés Gallego-Gómez ◽  
Agustín Javier Simonelli-Muñoz ◽  
Gracia M. Castro de Luna ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health System ◽  
Health Beliefs ◽  
Health Professionals ◽  
Social Vulnerability ◽  
Health Indicators ◽  
Cultural Safety ◽  
Intercultural Training ◽  
The Social ◽  
Health And Disease

The Romani are the main European ethnic minority. The Romani people’s situation of social vulnerability and their difficulties in accessing the health system, make their health indicators worse than those of the non-Romani population. The present study will delve into the health beliefs and experiences with health services and their professionals through the perspectives of Romani women. In this qualitative study, 16 women of different ages were interviewed in a city located in the South of Spain. Four themes emerged from the analysis of data: the construction of the identity of Romani women, difficulties in life, health and disease beliefs and barriers in the access to the health system. We conclude that every project for the improvement of the health of the Romani community must take into account the active participation of Romani women and must consider the principles of Cultural Safety, by delving into the intercultural training of health professionals and addressing the social determinants of health which affect the Romani collective.

scholarly journals Experience of adults with cystic fibrosis: a perspective based on social phenomenology

2018 ◽  
Vol 71 (6) ◽  
pp. 2891-2898
Author(s):  
Samara Macedo Cordeiro ◽  
Maria Cristina Pinto de Jesus ◽  
Renata Evangelista Tavares ◽  
Deise Moura de Oliveira ◽  
Miriam Aparecida Barbosa Merighi
Keyword(s):  
Cystic Fibrosis ◽  
Life History ◽  
Qualitative Study ◽  
Health Professionals ◽  
Daily Life ◽  
The Social ◽  
The World ◽  
Social Prejudice ◽  
The Relationship ◽  
Social Phenomenology

ABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.

scholarly journals Perceptions of health professionals regarding minimally invasive tissue sampling (MITS) to identify the cause of death in stillbirths and neonates: results from a qualitative study

2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Anam Feroz ◽  
Anum Shiraz Ali ◽  
Mohsina Noor Ibrahim ◽  
Elizabeth M. McClure ◽  
Shiyam Sunder Tikmani ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Minimally Invasive ◽  
Health System ◽  
Cause Of Death ◽  
Health Professionals ◽  
Positive Development ◽  
Successful Implementation ◽  
Tissue Sampling ◽  
Healthcare Facilities ◽  
Fast Procedure

Abstract Background Pakistan is considered to be one of the riskiest places in the world for childbirth as measured by its high stillbirth and neonatal mortality rates. Complete diagnostic autopsy remains the gold standard to determine the cause of death (CoD); however, it is not routinely implemented due to religious objections, sociocultural beliefs, limited resources and low demand from physicians and families. Recently, minimally invasive tissue sampling (MITS) using needle biopsies of multiple tissues to obtain tissue for histological examination and organism identification with PCR has been developed and promoted to determine CoD in low-resource areas. To ensure successful implementation of MITS, it is important to understand health professionals’ attitudes and perceptions related to MITS. Methods A qualitative study was conducted at the National Institute of Child Health (NICH), Karachi, Pakistan. Focus group discussions (FGDs) and Key-informant interviews (KIIs) were conducted with health professionals including doctors, nurses, trainees, clinicians, bioethics experts and public health experts to explore their perceptions and views on acceptability of MITS. Data were analyzed using NVivo 10 software. Results A total of 12 interviews (FGDs = 4; KIIs = 8) were conducted. Four overarching themes were identified: (I) acceptability of MITS; (II) perceived benefits of the MITS procedure; (III) factors facilitating the implementation of MITS; and (IV) health system requirements for implementing the MITS procedure. Generally, MITS was considered as a positive development for the health system. Diagnostic accuracy and identification of less common causes of death were highlighted as two main benefits of the MITS procedure. The study highlighted a number of facilitators for the acceptability of MITS including effective counseling, building trust with parents, fast procedure time, and approaching families within a few hours of death. In addition, lack of skilled staff, poorly equipped healthcare facilities and the potential high cost to conduct MITS were identified as challenges for the implementation of MITS. Conclusions This formative research provided a unique opportunity to explore health professionals’ views and attitudes towards the MITS procedure. Such insights are crucial to ensure successful implementation and integration of a new technique into the existing health system. The research identified the factors influencing the acceptability of MITS among health professionals in Pakistan. The study also informed factors that could help facilitate the implementation of the MITS procedures in the context of Pakistan and similar settings.

Factors influencing decision making for kidney transplantation among Black and Latino patients on dialysis: A qualitative study applying the social ecological model

2020 ◽  
pp. 174239532095941
Author(s):  
Diandra Wong ◽  
Tina Adjei-Bosompem ◽  
Lakia Maxwell ◽  
Jennifer Melendez-Suarez ◽  
Barry Smith ◽  
...  
Keyword(s):  
Decision Making ◽  
Social Networks ◽  
Kidney Transplantation ◽  
Qualitative Study ◽  
Health System ◽  
Ecological Model ◽  
Social Ecological Model ◽  
Decision Making Process ◽  
Social Ecological ◽  
The Social

Objectives This qualitative study explored factors that may influence decisions regarding kidney transplantation among African-American and Latino adults on dialysis. Methods Qualitative interviews were audio-recorded and transcribed. Open-coding techniques were used to identify concepts, categories, and themes. The Social Ecological Model (SEM) was used to organize themes and identify potential solutions across multiple levels (individual, interpersonal, community, and policy/health system). Results Thirty-six patients were interviewed. Their mean age was 53 SD 12 years; 50% were female; and their duration on dialysis was 4.9 SD 6 years. Five themes emerged and were organized according to the levels of the SEM: 1) Fear about the outcomes of transplantation and 2) faith in God (individual level); 3) Family dynamics and reluctance to involve family in the decision making process (interpersonal level); 4) The experiences of friends and social networks (community level); and 5) Concerns about the social and economic impact of transplantation (policy and health system). Discussion The application of a Social Ecological model in this study helped to illuminate the complex and multilevel factors that may influence the decisions for kidney transplantation. Future studies are needed to further explore how family members, social networks, faith communities, and policies/health systems influence the decision making process.

scholarly journals Congenital Zika Virus Syndrome: care in light of the Brazilian Unified Health System principles

2022 ◽  
Vol 75 (2) ◽  
Author(s):  
Gleice Kelli Santana de Andrade ◽  
Elen Ferraz Teston ◽  
Sonia Silva Marcon ◽  
Bianca Cristina Ciccone Giacon-Arruda ◽  
Milena Dalariva Amorim ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health System ◽  
Prior Knowledge ◽  
Health Professionals ◽  
Zika Virus ◽  
Therapeutic Interventions ◽  
Family Experiences ◽  
Unified Health System ◽  
Continuous Care ◽  
Specialized Service

ABSTRACT Objective: to know health professionals’ perceptions about care actions provided to children with Congenital Zika Virus Syndrome and their families. Methods: this is a qualitative study, carried out in a capital of center-western Brazil, based on the Unified Health System theoretical precepts. Data were collected in September and October 2020, through audio-recorded interviews with 12 health professionals from a specialized service and submitted to analysis of content, thematic modality. Results: the implementation of care actions with these children occurs through multidimensional assessment of children and their families, use of the Unique Therapeutic Project, therapeutic interventions for the development of children and the communication and exchange of interprofessional and family experiences, in addition to considering professionals’ prior knowledge and their search for it. Final considerations: children with CZS and their families need individualized, frequent, integrated and continuous care.

scholarly journals Investigation of Health Socialization Status in Iran: A Qualitative Study in 2020

2020 ◽  
Author(s):  
Rahim Khodayari ◽  
Hassan Jafari ◽  
Leila Torkzadeh ◽  
Solmaz Azimzadeh
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Social Issues ◽  
Health Indicators ◽  
Structured Interviews ◽  
Ministry Of Health ◽  
Health Goals ◽  
Content Analysis Method ◽  
The Social ◽  
The Status

Background: There are significant differences in the health status of different social groups, despite governments' commitment to improving health indicators, which can be avoided by intervening appropriately. In this regard, it can be mentioned that the formation of the social deputy in the Ministry of Health of Iran in 2016, which was dissolved in 1998, and the socialization of health were ignored. Due to the ambiguity in the new process of socialization of health, this study aimed to investigate the status of health socialization in the current structure of the country. Method: The present study as a qualitative study carried out through documentation analysis and two in-depth semi-structured interviews with social deputies of two medical universities of Iran. Data were analyzed using the contractual content analysis method. Two in-depth semi-structured interviews were conducted with the social deputies of the universities of Tehran and Ilam, who were selected using convenience sampling to complete the findings. Result: According to the results of content analysis and 23 extracted codes, the socialization of health in Iran is debatable in two main areas, namely strategies and pillars of socializing health which consisted of three and five sub-themes, respectively. At present, the structure and pillars of socializing health and coordination among these pillars are vague and uncertain due to the distribution of responsibilities of the social deputy in other departments of the Ministry of Health and universities. Conclusion: For achieving equity in the socialization of health goals, it is better to clarify the socialization of health stewardship, strategies, and policies in the whole country concerning social issues and dimensions of the health system.

scholarly journals “Very busy”: daily reorganization of mothers to care of children with Congenital Zika Syndrome

2020 ◽  
Vol 41 ◽  
Author(s):  
Paulo Roberto Lima Falcão do Vale ◽  
Deisyane Vitória Alves ◽  
Evanilda Souza de Santana Carvalho
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Health Professionals ◽  
Family Members ◽  
Social Representation ◽  
Thematic Content Analysis ◽  
The Social ◽  
Congenital Zika Syndrome ◽  
Care Practices ◽  
Depth Interviews

ABSTRACT Objective: To understand the experiences and care practices of mothers of children with congenital Zika syndrome. Methods: A qualitative study with collection held in Feira de Santana - Bahia, between September and November 2017, from in-depth interviews and Story-Drawing with 11 family members of children, using thematic content analysis. Results: Mothers take care from experiences with health professionals and groups of mothers. They reorganize themselves in order to optimize time, streamline domestic activities, teach family members, and navigate care spaces. They experience the routine organizing the home, taking care of the children and, specifically, the child with syndrome, referring to: bedtime; giving a shower; changing diapers; feeding; playing; and, stimulating, actions mediated by intense crying and environmental preparation. Conclusion: The experiences are unique and exceptional, conforming the social representation of the mothers as a group, the “mothers of micro”, an aspect that differs from other experiences.

scholarly journals Social and Cultural Dimensions of Genetic Blood Diseases An Anthropological study in the Omani Society

2016 ◽  
Vol 7 (3) ◽  
pp. 31
Author(s):  
Aida Fouad Al Niblaoi ◽  
Sultan Mohammed Al Hashemi
Keyword(s):  
Dietary Habits ◽  
Health Indicators ◽  
Cultural Dimensions ◽  
Theoretical Frameworks ◽  
Blood Diseases ◽  
Blood Disease ◽  
The Social ◽  
Health And Disease ◽  
Social And Cultural Factors ◽  
Health Situation

This study attempts to monitor the most important impacts of social and cultural variables on the health situation in the Omani society in general, and the incidence of hereditary blood disease in particular. The study aims to identify the social and cultural dimensions of health and disease in terms of concept and theoretical perspectives; the most important health indicators; the magnitude and spread of hereditary blood diseases in the Sultanate of Oman; and the disclosure of some of the social and cultural factors, and the difficulties facing the health pattern. The study relied on some Theoretical frameworks that provided scientific explanations about addressing the social and cultural dimensions of health and disease. Methodologically, the study was based on both quantitative and qualitative techniques. The study concluded that there are many social and cultural dimensions that shaped some of the factors that caused the incidence of hereditary blood disease in the Omani society. The study concluded that there are many reasons behind genetic blood diseases such as: endogamy and dietary habits, and some popular perceptions about health and disease. It could be argued that there is a gap between the foundations of knowledge in the health system, and the health situation indicators of social and cultural implications. 

Cuidando de quem cuida: um estudo qualitativo baseado na metodologia participativa

2019 ◽  
Vol 17 (2) ◽  
Author(s):  
Martins Corrêa da Silva ◽  
Claudia Feio da Maia Lima ◽  
Miriam Da Costa Lindolpho ◽  
Thiara Joanna Peçanha da Cruz ◽  
Célia Pereira Caldas
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Health System ◽  
Family Caregivers ◽  
Health Professionals ◽  
The Elderly ◽  
Group Activities ◽  
Team Meetings ◽  
Unified Health System ◽  
The Relationship

Aim: present the results of activities conducted by nurses to improve support to family caregivers of the elderly. Method: This is a qualitative study based on participatory methodology. Meetings were held with twelve family caregivers and team meetings with 8 nurses from July to March 2016. The records of the speeches were submitted to content analysis. Results: the caregivers exposed their difficulties, their dilemmas and the contradiction between public policies and reality. In response to caregivers, the nurses constructed a plan of action. Discussion: the problematization of the relationship between services, health professionals and population increased the network of support to caregivers accompanied in the Unified Health System. Conclusion: group activities are more than a moment of catharsis; they produce interaction, the strengthening of the service, and contribute to the promotion of health.

Perspective from health professionals on delivery of sub-acute care in Hong Kong: A qualitative study in a health system

Health Policy ◽  
2011 ◽  
Vol 100 (2-3) ◽  
pp. 211-218 ◽  
Author(s):  
Eliza L.Y. Wong ◽  
Carrie H.K. Yam ◽  
Frank W.K. Chan ◽  
Annie W.L. Cheung ◽  
Fiona Y.Y. Wong ◽  
...  
Keyword(s):  
Hong Kong ◽  
Qualitative Study ◽  
Health System ◽  
Acute Care ◽  
Health Professionals

Managing the effectiveness of the regional health system

2020 ◽  
Vol 26 (3) ◽  
pp. 698-720
Author(s):  
E.V. Lobkova ◽  
A.S. Petrichenko
Keyword(s):  
Public Health ◽  
Health System ◽  
System Analysis ◽  
Health Indicators ◽  
Krasnoyarsk Krai ◽  
Regional Health ◽  
Luenberger Observer ◽  
Efficiency Assessment ◽  
Public Health Indicators

Subject. This article studies the mechanism of State health regulation and methods of management of efficiency of regional healthcare institutions. Objectives. The article aims to analyze the territorial health system in the context of the urgent need to optimize budget expenditures and address public health problems, as well as develop directions to improve the effectiveness of the regional health system of the Krasnoyarsk Krai. Methods. For the study, we used the method of index numbers and calculation of dynamics indicators using official statistics data. Results. We have developed and now present a system of indicators of regional health efficiency assessment, focused mainly on public health indicators and quality of medical services. We also offer our own version of the Luenberger observer modification adapted to the objectives of the regional health system analysis. Conclusions and Relevance. The article concludes that it is necessary to optimize the regional health system using the parameters of medical and social efficiency of the system. The proposed approach to assessing the effectiveness of regional health system can be used as a mechanism to develop recommendations for the management of the network of medical and prophylactic institutions of the region.

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