scholarly journals Maternal Perception of Breastfeeding in Children with Unilateral Cleft Lip and Palate: A Qualitative Research Work

2021 ◽  
Author(s):  
Ana María Cerón-Zapata ◽  
María Cecilia Martínez-Delgado ◽  
Gloria Emilia Calderón-Higuita
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Research Work ◽  
Clinical Results ◽  
Bottle Feeding ◽  
Framework Analysis ◽  
Maternal Perception ◽  
Advantages And Disadvantages ◽  
Mother And Child ◽  
First Contact

Abstract Background : Unilateral cleft lip and / or palate (UCLP) is one of the most common congenital craniofacial difference. The objective of this study was to describe maternal perception of breastfeeding in children with unilateral cleft lip and palate and to assess the role of breastfeeding counseling. Methods : Qualitative descriptive method and phenomenological analysis were used to analyze the narratives. 28 mothers of patients with nonsyndromic UCLP treated with nasoalveolar molding (NAM) between April 2015 and April 2018 were strategically selected and interviewed after NAM treatment. Framework analysis was conducted for qualitative data. The CES University ethical committee approved the study. Results : The findings resulted in six main categories: First contact with the CLP program, access to early diagnosis and timely treatment, perceptions of parents about health personnel on breastfeeding of CLP patients, perceptions of mothers toward breastfeeding, perception of advantages and disadvantages of the NAM technique regarding breastfeeding and assessment of the CLP program. The interviewed mothers, both prenatally and postnatally, stated the advantages of initiating the process prenatally. There are still difficulties for reaching a timely diagnosis. Several mothers stated that health professionals and assistants determined the hospitalization, installation of a nasogastric tube or feeding through a baby bottle or syringe, which prevented the first contact between mother and child. Even though the breastfeeding process is difficult for these mothers, they acknowledged its immense advantages. Interviewed mothers considered the use of the NAM advantageous as the obturator allowed a better bottle-feeding process. The program generates satisfaction, motivation, expectations and happiness to the mothers who initiated this therapy with their children. Conclusion : The participants related difficulties with breastfeeding. Mothers acknowledged the clinical results when using the NAM obturator, as well as the support provided by the breastfeeding consultant.

scholarly journals Maternal perception of breastfeeding in children with unilateral cleft lip and palate: a qualitative research work

2020 ◽  
Author(s):  
Ana María María Cerón-Zapata ◽  
Cecilia María Martínez-Delgado ◽  
Gloria Emilia Calderón-Higuita
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Research Work ◽  
Clinical Results ◽  
Framework Analysis ◽  
Maternal Perception ◽  
Advantages And Disadvantages ◽  
Treatment Perceptions ◽  
Nasoalveolar Molding ◽  
First Contact

Abstract BackgroundUnilateral cleft lip and / or palate (UCLP) is one of the most common congenital craniofacial abnormalities. The objective of this study was to describe maternal perception of breastfeeding in children with unilateral cleft lip and palate and to assess the role of breastfeeding counseling. MethodsQualitative descriptive method and phenomenological analysis were used to analyze the narratives. 28 mothers of patients with nonsyndromic UCLP treated with Nasoalveolar molding (NAM) between April 2015 and April 2017 were strategically selected and interviewed. Framework analysis was conducted for qualitative data. The CES University ethical committee approved the study. ResultsThe findings resulted in six main categories. First, contact with the CLP program, access to early diagnosis and timely treatment, perceptions of parents about health personnel on breastfeeding of CLP patients, perceptions of mothers toward breastfeeding, perception of advantages and disadvantages of the NAM technique regarding breastfeeding and assessment of the CLP program. ConclusionThe participants related difficulties with breastfeeding. Mothers acknowledged the clinical results when using the NAM obturator, as well as the support provided by the breastfeeding consultant.

Breast Feeding for Cleft Lip and Palate Patients, Using the Hotz-Type Plate

1997 ◽  
Vol 34 (4) ◽  
pp. 351-353 ◽  
Author(s):  
Mikihiko Kogo ◽  
Gen Okada ◽  
Shouichirou Ishii ◽  
Megumi Shikata ◽  
Seiji Iida ◽  
...  
Keyword(s):  
Oral Cavity ◽  
Outcome Measures ◽  
Breast Feeding ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Lateral View ◽  
Bottle Feeding ◽  
Oral Airway

Objective: Oral-cavity feeding movements were analyzed during sucking and used to modify a Hotz-type plate to facilitate sucking in infants with cleft lip and palate. Design: Sucking movements were analyzed using lateral view cine radiography as three adults fed from a bottle. A Hotz-type plate was then modified to better isolate the oral cavity and to occlude the oral airway. The plate was then utilized indirect breast feeding by 10 babies. Outcome Measures: Sucking rate, amount of milk taken, and duration of use of the plate were assessed. Results: Wearing this plate, four babies with cleft lip and palate could suck their mother's breast, drinking about 22 g/trial. Conclusions: Although supplemental bottle feeding was required to provide enough nourishment, this is the first step to reaching ideal breast feeding situation for these patients.

Dental Arch Relationship in Children with Complete Unilateral Cleft Lip and Palate following Warsaw (One-Stage Repair) and Oslo Protocols

2009 ◽  
Vol 46 (6) ◽  
pp. 648-653 ◽  
Author(s):  
Piotr Fudalej ◽  
Maria Hortis-Dzierzbicka ◽  
Zofia Dudkiewicz ◽  
Gunvor Semb
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Weighted Kappa ◽  
Dental Arch ◽  
Kappa Statistics ◽  
Consecutive Series ◽  
One Stage ◽  
Mother And Child ◽  
The Difference ◽  
Dental Arch Relationship

Objective: To compare the dental arch relationship following one-stage repair of unilateral cleft lip and palate (UCLP) in Warsaw with a matched sample of patients treated by the Oslo Cleft Team. Material: Study models of 61 children (mean age, 11.2; SD, 1.7) with a nonsyndromic complete UCLP consecutively treated with one-stage closure of the cleft at 9.2 months (range, 6.0 to 15.8 months; SD, 2.0) by the Warsaw Cleft Team at the Institute of Mother and Child, Poland, were compared with a sample drawn from a consecutive series of patients with UCLP treated by the Oslo Cleft Team and matched for age, gender, and soft tissue band. Methods: The study models were given random numbers to blind their origin. Four examiners rated the dental arch relationship using the GOSLON Yardstick. The strength of agreement of rating was assessed with weighted Kappa statistics. An independent t-test was carried out to compare the GOSLON scores between Warsaw and Oslo samples, and Fisher's exact tests were performed to evaluate the difference of distribution of the GOSLON scores. Results: The intrarater and interrater agreements were high (K ≥ .800). No difference in dental arch relationship between Warsaw and Oslo groups was found (mean GOSLON score  =  2.68 and 2.65 for Warsaw and Oslo samples, respectively). The distribution of the GOSLON grades was similar in both groups. Conclusions: The dental arch relationship following one-stage repair (Warsaw protocol) was comparable with the outcome of the Oslo Cleft Team's protocol.

Sucking Performance of Babies with Cleft Conditions

2007 ◽  
Vol 44 (3) ◽  
pp. 312-320 ◽  
Author(s):  
Julie Reid ◽  
Sheena Reilly ◽  
Nicky Kilpatrick
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Management Strategies ◽  
Bottle Feeding ◽  
Group Differences ◽  
Feeding Management ◽  
Ability Groups ◽  
Pressure Changes ◽  
Changes Over Time ◽  
Over Time

Objective: To describe the sucking performance of bottle-fed babies with cleft conditions. Participants: Forty 2-week-old-babies with cleft lip (CL; n = 8), cleft palate (CP; n = 22), and cleft lip and palate (CLP; n = 10) were examined. Methods: Suction, compression, and other sucking parameters were measured during bottle-feeding and compared to determine if they varied with cleft condition or feeding ability. Results: All babies with CL and one with CLP demonstrated suction. Thirteen of 22 babies with CP demonstrated suction but only three maintained regular pressure changes over time. Between-group differences in the amplitude of suction and compression were associated with cleft condition. Cleft lip participants demonstrated the greatest amplitude of suction followed by those with CP and CLP. Cleft lip and CP participants generated similar amplitudes of compression. This was greater than their counterparts with CLP. Good feeders (n = 15) generated high levels of suction, while satisfactory (n = 15) and poor feeders (n = 10) did not generate any during bottle-feeding. Conclusion: Between-group differences in intra-oral pressures were confirmed when babies were examined by cleft condition. Babies with smaller clefts (i.e., CL or minor soft palate clefts) were more likely to generate normal levels of suction and compression compared to their counterparts with larger clefts. Since good feeders were more likely to have smaller clefts it was not surprising that they demonstrated higher suction pressures than babies with satisfactory or poor feeding ability. Compression values were not significantly different across the feeding ability groups. These data may inform feeding management strategies.

Infant Orthopedics in UCLP: Effect on Feeding, Weight, and Length: A Randomized Clinical Trial (Dutchcleft)

2005 ◽  
Vol 42 (2) ◽  
pp. 171-177 ◽  
Author(s):  
Charlotte Prahl ◽  
Anne M. Kuijpers-Jagtman ◽  
Martin A. Van't Hof ◽  
Birte Prahl-Andersen
Keyword(s):  
The Netherlands ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Controlled Trial ◽  
Bottle Feeding ◽  
Mean Values ◽  
Z Scores ◽  
Infant Orthopedics ◽  
Weight For Age

Objective To study the effects of infant orthopedics (IO) on feeding, weight, and length. Design Prospective two-arm randomized controlled trial in three academic Cleft Palate Centers. Treatment allocation was concealed and performed by means of a computerized balanced allocation method. Setting Cleft Palate Centers of Amsterdam, Nijmegen, and Rotterdam, the Netherlands. Patients Infants with complete unilateral cleft lip and palate (UCLP), no other malformations. Interventions One group (IO+) wore passive maxillary plates during the first year of life, but the other group (IO−) did not. All other interventions were the same for both groups. Main Outcome Measures Bottle feeding velocity (mL/min) at intake, 3, 6, 15, and 24 weeks (T0 to T24); weight-for-age, length-for-age, and weight-for-length using z scores; reference values from the Netherlands’ third nationwide survey on growth. Results Feeding velocity increased with time from 2.9 to 13.2 mL/min in the IO− group and from 2.6 to 13.8 mL/min in the IO+ group; no significant differences were found between groups. Weight-for-age, length-for-age, and weight-for-length (z scores) did not differ significantly between groups, but overall the infants with unilateral cleft lip and palate in both groups had significantly lower mean z scores for weight-for-age and height-for-age than the reference during the first 14 months, and had lower mean values for weight-for-length after soft palate closure. Conclusion Infant orthopedics with the aim of improving feeding and consequent nutritional status in infants with unilateral cleft lip and palate can be abandoned.

scholarly journals The impact of demographic factors on the possibility of cleft lip and palate occurrence

2007 ◽  
Vol 54 (1) ◽  
pp. 34-43 ◽  
Author(s):  
Julija Radojicic ◽  
Tatjana Tanic
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Demographic Factors ◽  
First Trimester ◽  
Control Group ◽  
Healthy Children ◽  
Military Medical Academy ◽  
Education Of Women ◽  
Mother And Child ◽  
The Impact

Introduction: Lip and palate clefts (cheilognathopal atoschisis) are very severe congenital anomalies. Aim: To examine the impact of demographic factors in the first pregnancy trimester on the occurrence of lip and palate cleft. Subjects and Methods: Children born in the period between March 1999 to December 2003, as well as their parents were included in the study. The study group consisted of 96 children with cleft lip and palate treated at the Gynecology - Obstetrics clinics of the Clinical Center in Nis (Neonatology ward), VMA (Military Medical Academy) Belgrade (Institute for plastic surgery), Mother and Child Institute - Novi Beograd and University children's Clinic, Belgrade. The control group comprised 142 healthy children. The examination was carried out using two questionnaires. One was for mothers and consisted of 41 questions related to the first pregnancy trimester. The other questionnaire was filled in by fathers and had 16 questions also related to the period of the first trimester of their wives' pregnancies. Results: The results showed that unilateral lip and palate cleft occurred in the same percentage in boys and girls (53.1%). Isolated palate cleft was more frequently found in boys, and unilateral lip cleft in girls. Statistically higher possibility for lip and palate cleft was found in the third child. The age of mothers in the time of conception does not represent risk factor for the cleft occurrence. Mothers who gave birth to children with clefts were younger (26.4 years old) than mothers in control group (28.4 years old). Conclusion: There is a need for constant education of women on risk factors that they can be exposed to during pregnancy. .

Comparison of Positive Screening for Obstructive Sleep Apnea in Patients With and Without Cleft Lip and Palate

2019 ◽  
Vol 57 (3) ◽  
pp. 364-370
Author(s):  
Hande Gorucu-Coskuner ◽  
Banu Saglam-Aydinatay ◽  
Muge Aksu ◽  
Fatma Figen Ozgur ◽  
Tulin Taner
Keyword(s):  
Obstructive Sleep Apnea ◽  
Sleep Apnea ◽  
Breast Feeding ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Bottle Feeding ◽  
Control Group ◽  
Feeding Duration ◽  
Obstructive Sleep ◽  
Cleft Lip Palate

Objective: To compare the prevalence of increased risk of obstructive sleep apnea (OSA) in children with and without cleft lip and/or palate using a previously validated questionnaire and to examine the clinical and demographic variables that may lead to increased OSA risk. Design: Prospective, cross-sectional study. Participants: One hundred fifty-five cleft lip palate and 155 noncleft children between 2 and 18 years old. Interventions: The Pediatric Sleep Questionnaire (PSQ): Sleep Related Breathing Disorder Scale was used for screening of increased OSA risk. Age, body mass index (BMI), gender, breast-feeding, and bottle-feeding durations were recorded for all patients. Cleft type, lip and palate operation times, nasoalveolar molding, or nutrition plaque usage was documented for the cleft lip palate group. Pearson χ2 or Fisher exact test was used for the evaluation of the qualitative variables and independent samples t test or Mann Whitney U test for quantitative variables. P < .05 was accepted as statistically significant. Results: The mean ages were 7.52 ± 3.91 and 7.50 ± 3.89 years for cleft lip palate and control groups, respectively. No significant differences were observed between the groups for age, gender, or BMI. Breast-feeding duration was significantly higher, and bottle-feeding duration was lower in the control group ( P < .05). Mean PSQ score was significantly higher in cleft lip palate group (0.18 ± 0.12) than in control group (0.13 ± 0.1, P < .001); and prevalence of increased OSA risk was significantly higher in patients with both cleft lip and palate ( P = .020). Conclusions: Positive OSA screening ratio of children with cleft lip and palate (12.2%) was significantly higher than the controls (4.5%).

Breast-Feeding and Sugar Intake in Babies with Cleft Lip and Palate

2003 ◽  
Vol 40 (1) ◽  
pp. 84-87 ◽  
Author(s):  
Gisele Da Silva Dalben ◽  
Beatriz Costa ◽  
Marcia Ribeiro Gomide ◽  
Lucimara Teixeira Das Neves
Keyword(s):  
Breast Feeding ◽  
Cleft Lip ◽  
Dietary Habits ◽  
Cleft Lip And Palate ◽  
Nutritional Supplement ◽  
Sugar Intake ◽  
Baby Bottle ◽  
Low Prevalence ◽  
First Contact

Objective To investigate the pattern of breast-feeding and sugar intake among babies with cleft lip and palate. Participants Caretakers of 200 babies with cleft lip and palate enrolled at the Hospital for Rehabilitation of Craniofacial Anomalies, University of São Paulo, Bauru, Brazil. Results A low prevalence of breast-feeding was found. The most reported reason was the sucking inability of the baby. Complete cleft lip and palate was the primary cause affecting sucking. The first contact with sugar occurred mainly through the baby bottle with milk during the first month of life. For nutritional supplement, the children were given sugar and fruit juices in the bottle. Conclusions It was observed that dietary habits in babies with cleft lip and palate are more risky. This highlights the role played by early education and constant oral hygiene follow-up for prevention in these patients.

scholarly journals Evaluation of a Digital Protocol for Pre-Surgical Orthopedic Treatment of Cleft Lip and Palate in Newborn Patients: A Pilot Study

2019 ◽  
Vol 7 (4) ◽  
pp. 111
Author(s):  
Domenico Dalessandri ◽  
Ingrid Tonni ◽  
Laura Laffranchi ◽  
Marco Migliorati ◽  
Gaetano Isola ◽  
...  
Keyword(s):  
Adverse Event ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Surgical Repair ◽  
Clinical Results ◽  
Digital Impression ◽  
Intraoral Scanner ◽  
Orthopedic Treatment ◽  
Study Results ◽  
Accuracy Level

The aim of this study was to evaluate the accuracy, invasiveness and impact on clinical results of a digital oral impression protocol in the pre-surgical orthopedic treatment (PSOT) of newborn cleft lip and palate (CLP) patients undergoing primary alveolar surgical repair. Six patients were divided, according to impression technique used, into a digital (intraoral scanner (IOS)) and a non-digital (tray and putty (T&P)) group. Parents considered IOS impressions to be less invasive, compared to T&P impressions. The clinician that took all the impressions considered the IOS to be less stressful compared to the T&P method. In two T&P patients, the impression was repeated because some important anatomical details were missing, in one case due to patient regurgitation during the first attempt. No impression was repeated, and any adverse event was reported in the IOS group. There were no significant differences between these two protocols in pre-surgical alveolar gap reduction and surgical challenge. The study results indicate that this digital protocol can accelerate the production process of the passive molding plate with an instantaneous transmission of the digital impression to the dental lab, maintaining the same accuracy level and clinical outcomes of classical techniques and reducing the invasiveness of impression taking, avoiding any risk of impression material ingestion or inhalation.

scholarly journals Aleitamento materno em lactentes com fissura labiopalatina

2018 ◽  
Vol 12 (5) ◽  
pp. 1390
Author(s):  
Armando Dos Santos Trettene ◽  
Thais De Oliveira Maximiano ◽  
Carolina Cantatore Beraldo ◽  
Juliana Campanati Mendonça ◽  
Aline Godoi Luiz ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Cross Sectional Study ◽  
Bottle Feeding ◽  
Chi Square ◽  
Cross Sectional ◽  
Prenatal Health ◽  
Factors Associated ◽  
Nursing Visit ◽  
Chi Square Test

RESUMOObjetivo: identificar fatores associados à adesão ao aleitamento materno em lactentes com fissura de lábio e/ou palato. Método: estudo quantitativo, transversal, com 121 cuidadores de crianças com fissura de lábio e/ou palato. A coleta de dados foi realizada durante a consulta de Enfermagem pré-operatória de queiloplastia e/ou palatoplastia. Os pais/responsáveis responderam a um questionário referente ao recebimento de informações sobre o aleitamento materno recebidas no pré e pós-natal. Para a análise estatística, utilizou-se o teste Qui-quadrado, com significância de 5%. Resultados: o aleitamento materno exclusivo foi observado em 31% (n=38) dos lactentes. Desses, 63% (n=24) foram amamentados por um mês. Entre os fatores para a não adesão ao aleitamento materno prevaleceu a sucção ineficaz (n=45, 37%). Possuir fissura de lábio e palato influenciou negativamente a prática do aleitamento materno (p<0,001), enquanto receber orientações no pré-natal favoreceu a sua adesão (p=0,042). Conclusão: poucos lactentes foram amamentados exclusivamente e por tempo aquém do recomendado. A complexidade da fissura, evidenciada pelo déficit de sucção, influenciou negativamente a adesão ao aleitamento materno, enquanto o recebimento de informações por profissionais de saúde no pré-natal influenciou positivamente. Descritores: Aleitamento Materno; Cuidados de Enfermagem; Fissura Labial; Fissura Palatina; Alimentação Artificial; Enfermagem.ABSTRACTObjective: to identify factors associated with adherence to breastfeeding in infants with cleft lip and / or palate. Method: quantitative, cross-sectional study with 121 caregivers of children with cleft lip and / or palate. Data collection was carried out during the preoperative nursing visit of queiloplasty and / or palatoplasty. The parents / guardians answered a questionnaire regarding the receipt of information about breastfeeding received in the pre- and postnatal care. For the statistical analysis, the chi-square test was used, with significance of 5%. Results: exclusive breastfeeding was observed in 31% (n = 38) of infants. Of these, 63% (n = 24) were breastfed for one month. Among the factors for non-adherence to breastfeeding, ineffective sucking (n = 45, 37%) prevailed. Posterior cleft lip and palate negatively influenced the practice of breastfeeding (p <0.001), while receiving prenatal guidelines favored its adherence (p = 0.042). Conclusion: few infants were breastfed exclusively and for shorter time than recommended. The complexity of the cleft, evidenced by sucking deficit, negatively influenced adherence to breastfeeding, while the receipt of information by prenatal health professionals influenced positively. Descritores: Breast Feeding; Nursing Care; Cleft Lip; Cleft Palate; Bottle Feeding; Nursing.RESUMENObjetivo: identificar factores asociados a la adhesión a la lactancia materna en lactantes con fisura de labio y / o paladar. Método: estudio cuantitativo, transversal, con 121 cuidadores de niños con fisura de labio y / o paladar. La recolección de datos fue realizada durante la consulta de Enfermería preoperatoria de queiloplastia y / o palatoplastia. Los padres / responsables respondieron un cuestionario referente a la recepción de informaciones referentes a la lactancia materna, recibidas en el pre y post-natal. Para el análisis estadístico, se utilizó el testeo Qui-cuadrado, con significancia de 5%. Resultados: la lactancia materna exclusiva se observó en un 31% (n = 38) de los lactantes. De ellos, 63% (n = 24) fueron amamantados por un mes. Entre los factores para la no adhesión a la lactancia materna prevaleció la succión ineficaz (n = 45, 37%). La posesión de fisura de labio y paladar influenció negativamente la práctica de la lactancia materna (p <0,001), mientras que recibir orientaciones en el prenatal favoreció la su adhesión (p = 0,042). Conclusión: pocos lactantes fueron amamantados exclusivamente y por tiempo por debajo de lo recomendado. La complejidad de la fisura evidenciada por el déficit de succión, influenció negativamente la adhesión a la lactancia materna, mientras que la recepción de informaciones por profesionales de salud en el prenatal influenció positivamente. Descritores: Lactancia Materna; Atención de Enfermaría; Labio Leporino; Fisura del Paladar; Alimentación Artificial; Enfermaría.

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