scholarly journals Burden and Depression among Jordanian Caregivers of Hemodialysis Patients: A Cross-sectional Study

2021 ◽  
Vol 15 (1) ◽  
pp. 29-37
Author(s):  
Eman Khamis Alnazly
Keyword(s):  
Travel Time ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Multinomial Logistic Regression ◽  
Cross Sectional Study ◽  
Patient Age ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Patient Âgé ◽  
The Family

Introduction: Caring for patients receiving hemodialysis places a burden on caregivers. Objectives: To examine caregiving burden and depression in the family caregivers of patients receiving hemodialysis and associated factors. Methods: A cross-sectional design was used. Participants were 204 adult caregivers of patients receiving hemodialysis. Questionnaires included sociodemographic characteristics, the Oberst Caregiving Burden Scale-Difficulty (OCBS-D) subscale, Bakas Caregiving Outcomes Scale (BCOS), and the Patient Health Questionnaire-9 to measure the burden and depression of caregivers. Descriptive statistics, two linear regression analyses, and multinomial logistic regression were used in data analysis. Results: The majority (59.0%, n = 120) of caregivers had a moderate level of depression with scores ranging from 11 to 16. The analysis showed that the mean score of OCBS-D was 42.0 (SD = 4.7) with scores ranging from 26.9 to 58.9 (range = 32.0), while the caregivers' mean score of BCOS was 52.1 (SD = 9.3) with scores ranging from 38.0 to 82.5 (range = 44.5). Given that the expected score of OCBS-D and BCOS ranged from 15 to 75 and 15 to 105, respectively, the analysis indicated a moderate to a high level of burden among caregivers. Age and travel time were associated with a higher likelihood of negative outcomes in the family caregivers, while higher patient age was associated with a greater caregiver burden. Relevance to Clinical Practice: It is important to assess and address the practical issues that caregivers experience, such as employment-related responsibilities, financial difficulties, and the need to learn specific skills related to patients’ chronic illnesses. Conclusion: Caregivers of patients receiving hemodialysis are likely to experience moderate depression and burden. Caregiver burden increases with patient age and travel time to the hemodialysis units.

scholarly journals Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

2020 ◽  
Vol 17 (8) ◽  
pp. 2772 ◽  
Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Affiliate Stigma ◽  
People With Dementia ◽  
The Family ◽  
Male Caregivers ◽  
Family Caregiver Burden

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

scholarly journals The Burden and Perceived Stress on Family Caregivers of Patients With Orofacial Cleft Deformities in The Perioperative Period of Cleft Repair

2020 ◽  
Vol 7 (6) ◽  
pp. 1602-1609
Author(s):  
Olalere Omoyosola Gbolahan ◽  
Ogunmuyiwa Stella Amiede ◽  
Olowookere Anu Samuel
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Perceived Stress ◽  
Perioperative Period ◽  
Contributing Factors ◽  
Cross Sectional ◽  
Interview Score ◽  
The Family ◽  
Cross Sectional Design ◽  
Family Caregiver Burden

Different stages along the trajectory of cleft care may present with different and peculiar challenges that may negatively impact family caregivers, leading to considerable stress and burden. This study aims to evaluate the family caregiver burden and perceived stress of caring for patients with cleft deformities. Contributing factors to family caregivers’ burden in the perioperative period of cleft repair was also identified. A cross-sectional design that included 90 adult caregiver–patient pairs was employed. Semi-structured questionnaire was used to collect necessary information. The level of caregiver’s burden was assessed using the Zarit burden interview score. The results demonstrated the levels of caregiver burden as severe (4.4%), moderate to severe (21.1%), mild to moderate (40%), and little or none (34.5%). The only significant and independent predictor of caregiver burden was earning less than US$50/month (odds ratio = 2.30, 95% CI = 0.95-5.61, P = .066). Coping strategy was mainly family support (98.9%), while the greatest need expressed was financial assistance (66.7%). Our findings suggests that efforts geared at reducing direct and indirect cost of cleft care may help in reducing caregivers’ burden.

scholarly journals Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

2020 ◽  
Vol 10 (3) ◽  
pp. 339-349
Author(s):  
Ike Wuri Winahyu Sari ◽  
Novita Nirmalasari
Keyword(s):  
Family Caregivers ◽  
Essential Element ◽  
Sampling Technique ◽  
Cross Sectional Study ◽  
Communicable Diseases ◽  
Cross Sectional ◽  
Non Communicable Diseases ◽  
The Family ◽  
Patients With Diabetes

Background: Family caregivers spend 24 hours a day looking after and assisting patients. However, they are not always adequately prepared for all the problems they face. There is a lack of evidence exploring caregivers’ preparedness among family caregivers of patients with non-communicable diseases in Indonesia.Purpose: This study aimed to identify caregivers’ preparedness among family caregivers of patients with non-communicable diseases.Methods: This was a cross-sectional study conducted on 120 Indonesian family caregivers for patients with non-communicable diseases, who were selected using a purposive sampling technique. Data were collected using the Indonesian version of the Preparedness for Caregiving Scale (PCS) which had been validated before its use. The possible scores of this tool ranged from 0.00 to 4.00. The higher the score, the more prepared the family caregivers were. Data were analyzed using one way ANOVA .Results: Family caregivers reported feeling of moderately prepared for caregiving. The score of family caregiver preparedness for patients with diabetes, cancer, and chronic kidney disease were 2.97±0.42; 2.83±0.40; 2.89±0.49, respectively with possible range from 0.00 to 4.00. There were no differences on the caregivers’ preparedness among family caregivers of patients with non-communicable diseases (p=0.387).Conclusion: Caregivers’ preparedness is an essential element of patient care. Nurses have to be proactive in assessing each family caregiver’s preparedness to enhance the quality of life of both the family caregivers and the patients themselves, so that they can be empowered as a source of nursing care.

scholarly journals How cancer of oral cavity affects the family caregivers? – A cross-sectional study in Wardha, India, using the Caregiver Quality of Life Index – Cancer questionnaire

2020 ◽  
Vol 09 (01) ◽  
pp. 62-65
Author(s):  
Sourav Goswami ◽  
Subodh Saran Gupta
Keyword(s):  
Oral Cancer ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Psychosocial Impact ◽  
Cross Sectional ◽  
The Family ◽  
Caregiver Quality ◽  
Quality Of Life Index ◽  
Index Cancer ◽  
Study Participants

Abstract Introduction: Oral cancer is now a major public health problem in India. It does not only affect the patient, but also has a deep psychosocial impact on the family caregivers who are deeply involved with the cancer patient for nursing, timely medication, and consulting the doctor. Studies have found that the caregivers often suffer from depression, anxiety, and fear of losing their near and dear ones. This study aims to capture the psychosocial impact of oral cancer on the family caregivers. Materials and Methods: This was a cross-sectional study carried out in a tertiary care hospital with the primary caregivers of those oral cancer patients who completed their treatment and came for follow-up after 2–3 months of treatment completion. The study participants were recruited till a sample size of 100 was reached. This was adequate to report proportions with an error of 10%. We have used “The Caregiver Quality of Life Index – Cancer” scale to capture the psychosocial impact of oral cancer on primary caregiver of the patient. The study was initiated after obtaining approval from the Institutional Ethics Committee. Informed written consents were obtained from all the study participants before beginning the interviews. Results: Caregivers played an important role in the recovery of the patients. However, the strain of caregiving resulted in increased emotional stress among them. We found 56% of the family caregivers were female and 41% were male. Majority of the caregivers who accompanied the patients to hospital were the spouses. For the caregivers, the mean score for burden of the disease was found to be 60.0 (±20.2), that for disruption was 50.4 (±21.7), and for positive adaptation was 61.4 (±20.7). Conclusion: Caregivers, who are usually invisible to the health-care team, should be recognized and their mental and physical well-being should also be given attention.

scholarly journals The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Filiberto Toledano-Toledano ◽  
David Luna
Keyword(s):  
Family Support ◽  
Family Caregivers ◽  
Chronic Diseases ◽  
Caregiver Burden ◽  
Parental Stress ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Psychosocial Profile ◽  
Anxiety Depression

Abstract Background A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person. The objectives of this study were to identify the psychosocial profiles of family caregivers of children with chronic diseases and to establish the relationship between these profiles and sociodemographic variables. Methods A cross-sectional study was conducted involving 401 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease and a battery of 7 instruments that examined anxiety, caregiver burden, family support, depression, resilience, parental stress, and the World Health Organization Well-Being Index. Results A hierarchical cluster analysis and its confirmation through a nonhierarchical cluster analysis confirmed two profiles of caregivers of pediatric patients with chronic diseases. Profile 1, called Vulnerability of family caregivers, is characterized by high levels of anxiety, depression, parental stress and caregiver burden, accompanied by low levels of family support, resilience, and well-being. Profile 2, called Adversity of family caregivers, shows an inverse pattern, with high levels of family support, resilience, and well-being and low levels of anxiety, depression, parental stress and caregiver burden. The sociodemographic characteristics are similar for both profiles, with the exception of the caregiver’s family type. Profile 1 shows more single-parent caregivers, while profile 2 includes more caregivers with a nuclear family. However, the type of family did not reach significance for predicting the caregiver’s profile in a bivariate logistic regression model. Conclusions The psychosocial profile of family caregivers of children with chronic diseases can be structured according to their psychosocial characteristics. Although no causal factors were detected that define criteria for belonging to one or another profile, the characteristics identified for each indicate the need for specific and differentiated intervention strategies for families facing adversity, risk and vulnerability during a child’s disease.

Caregiver Burden and Compassion Fatigue Among Arab Family Caregivers of Older Relatives

2020 ◽  
pp. 073346482092010
Author(s):  
Rabia Khalaila
Keyword(s):  
Family Caregivers ◽  
Compassion Fatigue ◽  
Caregiver Burden ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Face To Face ◽  
Stress Scale ◽  
Factors Associated ◽  
Multiple Mediator Model

Objectives: To examine the associations and the mechanisms between caregiver burden and compassion fatigue among family caregivers. Method: A cross-sectional study comprising 300 family caregivers of older relatives in Arab communities in Israel was conducted. Data were collected via face-to-face interviews in Arabic using structured questionnaires to identify factors associated with compassion fatigue (using a secondary traumatization stress scale). Bootstrapping with resampling strategies tested the multiple mediator model. Main findings: The results show a significant total effect of caregiver burden on compassion fatigue ( b = 3.79, t(300) = 3.47, p < .001; R2 =.50). This association was found to be partially mediated by family support ( B = .81, 95% confidence interval [CI] = 0.23, 1.85) and disengagement coping ( B = .97, 95% CI = 0.19, 2.14), but was not mediated by engagement coping strategies. Conclusion: Compassion fatigue is prevalent among family caregivers and requires more attention from professionals and policymakers.

scholarly journals Caregiver Burden and Sleep Quality in Dependent People’s Family Caregivers

2019 ◽  
Vol 8 (7) ◽  
pp. 1072 ◽  
Author(s):  
Miguel A. Simón ◽  
Ana M. Bueno ◽  
Patricia Otero ◽  
Vanessa Blanco ◽  
Fernando L. Vázquez
Keyword(s):  
Sleep Quality ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Sleep Disturbances ◽  
Ad Hoc ◽  
Cross Sectional Study ◽  
Subjective Sleep Quality ◽  
Cross Sectional ◽  
Perceived Burden ◽  
The Relationship

This study examined the relationship between caregiver burden and sleep quality in dependent people’s family caregivers. A cross-sectional study was carried out with 201 dependent people’s family caregivers and 92 non-caregivers controls. Participants completed the Pittsburgh Sleep Quality Index (PSQI), the Caregiver Burden Inventory (CBI), and an ad-hoc questionnaire to collect sociodemographic data. Based on CBI scores, subjects were categorized into three groups: family caregivers with high levels of perceived burden, family caregivers with low and medium levels of perceived burden and non-caregiver controls. There were significant differences among the groups in the PSQI total (F = 40.39; p < 0.001), subjective sleep quality (F = 25.55; p < 0.001), sleep latency (F = 16.99; p < 0.001), sleep disturbances (F = 14.90; p < 0.001), use of sleep medications (F = 6.94; p < 0.01) and daytime dysfunction (F = 20.12; p < 0.001). These differences were found only between the caregivers with high levels of perceived burden and the other two groups (p < 0.05). There were also significant differences between the groups in sleep duration (F = 18.34; p < 0.001) and habitual sleep efficiency (F = 24.24; p < 0.001). In these dependent measures, the differences were found in all the pairs examined (p < 0.05). These results suggest that caregiver burden is related to sleep quality, so that caregivers with greater perceived burden have a worse sleep quality.

scholarly journals Decision-Making in Implantology—A Cross-Sectional Vignette-Based Study to Determine Clinical Treatment Routines for the Edentulous Atrophic Mandible

2021 ◽  
Vol 18 (4) ◽  
pp. 1596
Author(s):  
Michael Korsch ◽  
Winfried Walther ◽  
Bernt-Peter Robra ◽  
Aynur Sahin ◽  
Matthias Hannig ◽  
...  
Keyword(s):  
Decision Making ◽  
Cross Sectional Study ◽  
Bone Block ◽  
Bone Resection ◽  
Patient Age ◽  
Cross Sectional ◽  
Therapy Decision ◽  
Patient Âgé ◽  
Edentulous Mandible ◽  
Radiation Area

This cross-sectional study aimed to investigate the influence of possible factors in the patient history on decision making in the therapy for a severely atrophied edentulous mandible. A vignette-based survey among 250 maxillofacial and oral surgeons was conducted. Determinants that could influence the therapy decision were patient age, smoking, fear of surgery, and radiotherapy in the head and neck area (the implant region is not in the direct radiation area). To achieve a suitable implant site, the options offered to the surgeons were bone split, bone block, augmentation with bone substitute material, and bone resection. There also was the option of rejecting any therapy. The response rate was 47%. Patient age, radiotherapy, and fear of surgery did not influence the approval of a therapy. Smoking was associated with a significantly lower endorsement of a treatment. Resection was preferred by a large majority to all other forms of therapy, regardless of the four determinants. Surgeons tend to refrain from bone block transplants in older patients. In summary, it can be said that, of the four determinants, only smoking influenced treatment refusal. Bone resection is the preferred therapy independent of all determinants.

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