scholarly journals Brainwave Controlled, Robotic Intelligent Assistive Device for People with Spinal Injuries, Cerebral Palsy, Amputation, and Muscular Dystrophy

Author(s):  
Aryansh Shrivastava

People with spinal injuries, cerebral palsy, amputation, muscular dystrophy, etc. have little to no control of their hands or feet, and many times they cannot even speak to express their thoughts. Individuals with such impairments encounter extreme physical, social, and environmental challenges in their daily lives, which, in turn, create impediments to self-supported living and to opportunities to take part in economic and social aspects of life. To help these people, there is a need of a neuro bio signal-controlled, machine learning based system that can interpret their thoughts in a meaningful way, helping people with disabilities conduct daily activities, enabling them to improve their quality of life and live independently.

1988 ◽  
Vol 19 (2) ◽  
pp. 21-30 ◽  
Author(s):  
Marcia J. Scherer

A preliminary assessment of assistive device (AD) utilization by adults with cerebral palsy (CP) and spinal cord injuries (SCI) was conducted during the winter, 1986. A qualitative research approach was selected over a quantitative one so that pre-selected themes would not be imposed upon the data but, rather, would emerge from the data obtained. Five males with SCI and five females with CP, all subjects having a four-quadrant involvement, were interviewed about their AD use and quality-of-life. The findings indicate that female AD users with CP emphasize the capability to do things for the first time in their lives because of their ADs. They speak in terms of gains. In contrast, male AD non-users with SCI interpret ADs as poor replacements for their own functioning and see them as reminders of loss. AD users of both disabilities see their quality-of-life as being within their control whereas non-users believe otherwise. It was concluded that increased functional capabilities gained through AD utilization and the attainment of a “normalized” quality-of-life may present users with generalized “high functioning” expectations and frustrations for which their prior socialization did not prepare them. This, coupled with little peer contact, was discussed as contributing to participants' feelings of nervousness, depression, emotional inhibition and a sense of identity confusion.


2017 ◽  
Vol 26 (2) ◽  
Author(s):  
Keite Helen dos Santos ◽  
Dalvani Marques ◽  
Ândrea Cardoso de Souza

ABSTRACT Objective: to analyze the longitudinality of care perceived by caregivers of children and adolescents with cerebral palsy. Method: qualitative and descriptive investigation, performed with 27 caregivers, through interviews, analyzed using the thematic analysis technique based on Care Longitudinality. Results: the need of extreme dedication of the caregivers to the care of their children and adolescents with cerebral palsy was highlighted, with the need to abandon their free time, daily activities and the abandonment of the professional activities. As the child grows, the complexity of daily activities increases and, consequently, the pronouncement of the difficulties experienced by the families. The statements demonstrate the absence / lack of formal responses from the State to the needs of care of the studied population, a condition that helps to naturalize this support as family responsibility. They indicate the inexistence of articulated care network for this population, implying the discontinuity of care among services which impacts on the quality of life of children and their families. Conclusion: the lack of articulation between services implies discontinuity of health care, deteriorating the quality of life of children and their families and negatively impacting on the health outcomes of the health care system, since there is an inefficient use of resources. The establishment of care and the way it given is an inseparable component of care services management responsible for guaranteeing equity and integrality of the research.


1990 ◽  
Vol 21 (4) ◽  
pp. 36-44 ◽  
Author(s):  
Marcia J. Scherer

A study was done in 1986 that compared assistive device (AD) users and non-users on their functioning, temperament, and perceived quality of life. A follow-up study was conducted in 1988 with all of the original study participants in order to assess changes over time in the above mentioned areas. The original methodology was repeated with five female adults with cerebral palsy (CP) and five male adults with spinal cord Injuries (SCI). Additionally, two individuals with recent spinal cord injuries were added to the sample. The findings indicate that the functional capacities and temperament of participants with CP both tended to improve over time whereas most SCI participants seemed to become less well-adjusted in several areas. While the SCI users of ADs continued to display the best overall functioning of all participant groups, the SCI non-users reported the most functional declines over time with the gaps between them and the SCI users widening.


Author(s):  
Marielle Cristina Gonçalves Ferreira ◽  
Luiz Fernando Rangel Tura ◽  
Rafael Celestino da Silva ◽  
Márcia de Assunção Ferreira

Abstract Objective: to identify the activities performed by older adults as part of the Rio Health Gym Program in their daily lives, and analyze the contributions of these practices to their health and quality of life. Method: a qualitative, exploratory and descriptive study was conducted using interviews with 30 older adults who attended a health center in the city of Rio de Janeiro (RJ). Lexicographic analysis was performed using the Alceste software program. Results: five lexical classes were generated. Physical and leisure activities comprised classes 2 and 3. The statements that made up the lexical classes showed that older adults carried out their daily activities with autonomy and independence. According to their assessment, the activities promote the integration of participants, increase social participation and benefit health and quality of life. They attribute their proactivity to participation in the social group. Conclusion: the activities bring diversity to daily living, increase socialization and leisure opportunities, and consequently improve the health of older people by facilitating social relationships.


Author(s):  
Aušra Jasaitytė ◽  
Daiva Petruševičienė ◽  
Eglė Lendraitienė

Reseach background. Cerebral palsy is a disorder of movement or position resulting from the immature encephalon defect or damage. Level of independence, behavioural and emotional skills of children with cerebral palsy are some of the main parameters of social development. Psychological factor is very important, too. Independent movement disorders and lack of professional help cause a lot of psychological problems in adolescence – depression, nervous excitement, at the time when they begin to understand that they are different from their peers. On the other hand, diffculties which they experience are not short-term, which can be overcome by mobilization of forces and the available internal resources, therefore child’s adequacy also highly depends on the parents’ quality of life. The goal of research was to evaluate behavioural and emotional impact on children’s with cerebral palsy skills of daily activities as well as their parents’ quality of life. Methods. The survey was conducted from May 2014 till April 2015 in Kaunas medical institutions which provided rehabilitation services for children. 30 children with cerebral palsy and their parents participated in the study. Average age of children who participated in the study did not differ signifcantly depending on gender and was 11.6 ± 2.1 years. Results. After the assessment of behavioural and emotional functions of children with cerebral palsy it became clear that they were the most successful in not talking back and swearing near adults. After the assessment of daily activity skills for children with cerebral palsy, it was obtained that the task which was performed the best by the children was communication, and the worst – cooking, bathing and taking the shower, as well as housework. Assessment of parents’ quality of life showed that the best evaluated by parents was their ability to perform what, in their opinion, was necessary in everyday activities, the worst – favourable physical environment for their health. Assessing the impact of behaviour and emotions on children’s with cerebral palsy skills of daily activities, statistically signifcant association was obtained (p < 0.05) between the scales of emotional and behavioural functions and parents’ quality of life among children with cerebral palsy. The study did not show statistically signifcant difference between children’s gender, age, and form of the disease. Conclusions. Children’s with cerebral palsy behaviour and emotions had signifcant influence on their daily living skills (p < 0.005). Children’s with cerebral palsy behaviour and emotions were mostly connected to their ability to use the toilet; the least connection was related to preparation / dressing skills. Children’s with cerebral palsy behaviour and emotions had a signifcant influence on their parent’s quality of life (p < 0.005). Children’s with cerebral palsy behaviour and emotions affected their parent’s environment and health the most, and the least they affected parent’s negative emotions.Keywords: cerebral palsy, behaviour, emotions, quality of life.


2017 ◽  
Vol 63 (3) ◽  
pp. 368-374
Author(s):  
Olga Churuksaeva ◽  
Larisa Kolomiets

Due to improvements in short- and long-term clinical outcomes a study of quality of life is one of the most promising trends in oncology today. This review analyzes the published literature on problems dealing with quality of life of patients with gynecological cancer. Data on quality of life with respect to the extent of anticancer treatment as well as psychological and social aspects are presented. The relationship between quality of life and survival has been estimated.


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