scholarly journals How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia

2010 ◽  
Vol 90 (3) ◽  
pp. 450-460 ◽  
Author(s):  
Ingvild Kjeken ◽  
Connie Ziegler ◽  
Jack Skrolsvik ◽  
Jan Bagge ◽  
Geir Smedslund ◽  
...  

Patient-centered research addresses the research agenda of patients and captures aspects of health and functioning that they consider important. Yet, those who live with a disease or condition have limited influence when it comes to setting the research agenda, and we know little about how they experience being participants in research studies. Furthermore, knowledge is limited concerning factors enhancing or hindering patients' participation in trials and the format that people with rheumatic diseases and their families prefer for dissemination of the results from clinical research. This perspective article describes the research priorities of people with rheumatic diseases in Scandinavia, their experiences and attitudes concerning participation in research projects, and which format for research information they prefer. Based on results from 3 surveys organized by the Scandinavian Rheumatism Associations and on related research literature, the possible implications for future research also are discussed.

Author(s):  
Ross A. Thompson

Attachment theory has long been at the forefront of research efforts to understand the origins and enduring impact of early parent–child relationships. It has also expanded into a theory of lifespan implications with relevance to problems in developmental psychopathology, early intervention, and mental representation. This review of the expanding research literature on attachment is organized around eight questions: (a) To whom do attachments develop? (b) What are the biological foundations of attachment? (c) How does culture influence attachment and its consequences? (d) What contributes to attachments becoming secure or insecure? (e) How does attachment security change over time? (f) What are the later outcomes of secure or insecure attachments? (g) How does attachment influence thinking and social representations? (h) What are the clinical implications of attachment research? The answers to these questions summarize what has been learned about the importance of early parent–child relationships and identify future research priorities.


2016 ◽  
Vol 6 (1) ◽  
pp. 5-18 ◽  
Author(s):  
Hora Soltani ◽  
Lisa Kane Low ◽  
Alexandra Duxbury ◽  
Kerri D. Schuiling

PURPOSE: This exploratory project aimed to provide an up-to-date list of global midwifery research priorities to inform the International Confederation of Midwives’ (ICM) research strategy for development of its research agenda.DESIGN: An online survey conducted in 2014 asked ICM Research Advisory Networking members (who then disseminated it to a wider midwifery research interest group) to grade the importance of research priorities and provide further suggestions. Research priorities listed were based on those identified in previous scoping exercises and a recent literature review.FINDINGS: Two hundred seventy-one respondents from 37 countries completed the questionnaire including midwifery practitioners, researchers, lecturers, and service providers. Promotion of normal birth, prevention of maternal and fetal/neonatal morbidity and mortality, and psychosocial aspects of maternity care were identified by the respondents as the top three important themes. Subanalysis by country, region, and continent found promotion of normal birth the greatest priority in more resourced regions, whereas prevention of maternal and fetal/neonatal morbidity and mortality was the most important research priority in less resourced locations.CONCLUSION: This study provides a systematic global mapping of research priorities from midwives’ perspectives which will inform the ICM research agenda. Geographical variation in key research priorities reflect midwives working in very different settings with specific local health and resource related challenges such as staff shortages, human immunodeficiency virus, or obesity. Future research should aim to address these priorities to improve maternal and infant health. Limited number of respondents from some geographical areas should be borne in mind when interpreting the global implications and further research with an optimized scoping for inclusion is required to ensure adequate representativeness from all countries.


2018 ◽  
Vol 2 (1) ◽  
Author(s):  
Chien Chiang Lin ◽  
Hsing-Hung Lin ◽  
Kun-Chih Huang

In last 70 years TRIZ(Theory of Inventive Problem Solving) has been developed prosperously,  including the establishment of associations, training centers, consulting companies, and software suppliers; research projects as well as related outcomes from various domains did enrich the accumulation of the literature. Actually, a plethora of studies could be discovered from different databases extensively tackling related issues of TRIZ from theoretical perspectives, methodological concerns and the combination of TRIZ and other tools. Practically speaking, manufacturing as well as service industries were the major playground for utilizing TRIZ to improve operational performance for achieving excellence. It is, therefore, about the right time to understand the progress of applying TRIZ methodology from various fields in the world and to set a research agenda for future research and application. The authors conducted a systematic review of previous studies selected from several databases. Based on statistical analysis and the results of text/data mining, the current study concluded that the most adopted tools in TRIZ are contradiction and patent analysis; furthermore, quality function deployment (QFD) and green design are the most popular methods used in combination with TRIZ.


2020 ◽  
pp. 095042222096963
Author(s):  
Nils Magne Killingberg ◽  
Elin Kubberød ◽  
Per Blenker

Although most students of entrepreneurship education find employment in established organizations after graduation, the employability of entrepreneurship education graduates remains largely overlooked in the education research literature. In this conceptual paper, the authors address this gap to motivate a future research agenda. The paper describes how entrepreneurship education may enable or impede the graduates’ entrance, development and transition in the labour market. To develop the theoretical arguments, the authors build on a processual conceptualization of employability. Seven propositions are presented to conceptually explore how competencies that are obtained through entrepreneurship education may influence the employability of graduates in a dynamic labour market. The propositions lay the groundwork for future studies on entrepreneurship education graduates’ employability and set a research agenda for how the employability of these graduates could be studied.


2017 ◽  
Vol 7 (1) ◽  
pp. 169 ◽  
Author(s):  
Stephen D. Risavy

The resume remains a common selection method used by organizations; however, much of the resume research literature is dated and there is a lack of an organizing framework regarding future resume-related research. Thus, the purpose of the current paper is to provide: (1) a synthesis of the historical empirical research literature through the lens of the advice that has accumulated to date; and (2) an organizing framework containing future research questions that need to be investigated in order to continue moving the literature forward. The current paper will be of use to job applicants, business communication instructors, and researchers.


2021 ◽  
Vol 108 (Supplement_7) ◽  
Author(s):  
Elizabeth Vaughan ◽  
Robert Pearson ◽  
Jared Wohlgemut ◽  
Stephen Knight ◽  
Michael Wilson

Abstract Aims Delphi methodology can be used to achieve consensus opinion amongst experts in a particular field. This study used a modified Delphi approach to identify research priorities in emergency general surgery (EGS). The aim was to establish a research agenda using a formal consensus-based approach in an effort to identify questions relevant to EGS that have been prioritised by relevant stakeholders with an equal voice. Methods Three rounds were conducted using an electronic questionnaire and involved health care professionals, research personnel, patients and their relatives. In the first round stakeholders were invited to submit clinical research questions that they felt were priorities for future research. In rounds two and three, participants were asked to score individual questions in order of priority using a 5-point Linkert scale. Between rounds an expert panel were asked to analyse results before forwarding questions to subsequent rounds. Results Ninety-two EGS research questions were proposed in Phase 1. Following the first round of prioritisation, 47 questions progressed to the final phase. A final list of 17 research questions were identified from the final round of prioritisation. These included questions on peri-operative strategies, EGS outcomes in elderly and frail patients as well as non-technical and technical influences on EGS outcomes. Conclusion Our study provides a consensus delivered framework that should determine the research agenda for future EGS projects. It may also assist setting priorities for research funding and multi-centre collaborative strategies within the surgical subspecialty of EGS.


2009 ◽  
Vol 36 (8) ◽  
pp. 1829-1832 ◽  
Author(s):  
MARIA-ANTONIETTA D’AGOSTINO ◽  
PHILIP G. CONAGHAN ◽  
ESPERANZA NAREDO ◽  
PHILIPPE AEGERTER ◽  
ANNAMARIA IAGNOCCO ◽  
...  

This article reports the most recent work of the OMERACT Ultrasound Task Force (post OMERACT 8) and highlights of future research priorities discussed at the OMERACT 9 meeting, Kananaskis, Canada, May 2008. Results of 3 studies were presented: (1) assessing intermachine reliability; (2) applying the scoring system developed in the hand to other joints most commonly affected in rheumatoid arthritis (RA); and (3) assessing interobserver reliability on a deep target joint (shoulder). Results demonstrated good intermachine reliability between multiple examiners, and good applicability of the scoring system for the hand on other joints (including shoulder). Study conclusions were discussed and a future research agenda was generated, notably the further development of a Global OMERACT Sonography Scoring (GLOSS) system in RA, emphasizing the importance of testing feasibility and added value over standard clinical variables. Future disease areas of importance to develop include a scoring system for enthesitis and osteoarthritis.


Author(s):  
Jorge Leon Bello ◽  
Emilio Gonzalez Viosca

Europe’s prosperity relies on effective transport systems. Any attacks and disturbances to land freight and passenger transport would have significant impact on economic growth, territorial cohesion, social development and the environment. Unfortunately, there are weaknesses in the land transport security.The objective of CARONTE project is define a future research agenda for security in land transport that focuses on core gaps caused by emerging risks while avoiding any doubling-up of research elsewhere. Its research agenda will cover all threats, including cyber-crime, and security aspects across all modes of land transportation. At the same time, it will respect the fundamental human rights and privacy of European citizens. The step-by-step method of CARONTE’s consortium has analyzed the state of the art and emerging risks; has identified gaps, analyses and assessments of potential solutions; and has produced an overall research agenda for the future. CARONTE’s results will answer the following questions among others: Which existing research projects merit a follow up and extension?Where are the combinations or synergy effects to be attended?Which themes and topics should be elaborated in new research projects?Who should be involved and integrated in future research projects (stakeholders, authorities, etc.)? The CARONTE consortium includes universities and research institutes, companies, and end-users providing with experience in research and consultancy in transportation, logistics, infrastructure management, security and communications. ITENE - Instituto Tecnológico del Embalaje, Transporte y Logística-  has been one of the Project partners among a total of 11 members from eight different countries in the European Union which have also been supported via a High Level Advisory Board.DOI: http://dx.doi.org/10.4995/CIT2016.2016.3272


2014 ◽  
Vol 22 (1) ◽  
Author(s):  
Sidney M Rubinstein ◽  
Jenni Bolton ◽  
Alexandra L Webb ◽  
Jan Hartvigsen

Abstract Background Research involving chiropractors is evolving and expanding in Europe while resources are limited. Therefore, we considered it timely to initiate a research agenda for the chiropractic profession in Europe. The aim was to identify and suggest priorities for future research in order to best channel the available resources and facilitate advancement of the profession. Methods In total, 60 academics and clinicians working in a chiropractic setting, and who had attended any of the annual European Chiropractors’ Union/European Academy of Chiropractic (ECU/EAC) Researchers’ Day meetings since their inception in 2008, were invited to participate. Data collection consisted of the following phases: phase 1 identification of themes; phase 2 consensus, which employed a Delphi process and allowed us to distill the list of research priorities; and phase 3 presentation of the results during both the Researchers’ Day and a plenary session of the annual ECU Convention in May 2013. In addition, results were distributed to all ECU member countries. Results The response rate was 42% from phase 1 and 68% from phase 2. In general, participants were middle-aged, male and had been awarded a Doctor of Philosophy (PhD) as well as chiropractic degree. Approximately equal numbers of participants had obtained their chiropractic degree from the UK/Europe and North America. The majority of participants worked primarily in an academic/research environment and approximately half worked in an independent institution. In total, 58% of the participants were from the UK and Denmark, collectively representing 44% of the chiropractors working in Europe. In total, 70 research priorities were identified, of which 19 reached consensus as priorities for future research. The following three items were thought to be most important: 1) cost-effectiveness/economic evaluations, 2) identification of subgroups likely to respond to treatment, and 3) initiation and promotion of collaborative research activities. Conclusions This is the first formal and systematic attempt to develop a research agenda for the chiropractic profession in Europe. Future discussion and study is necessary to determine whether the themes identified in this survey should be broadly implemented.


2020 ◽  
Vol 34 (3) ◽  
pp. 347-361 ◽  
Author(s):  
Nadia Zainuddin ◽  
Ross Gordon

Purpose This paper aims to provide a review of the extant literature on value creation and destruction in social marketing services for social change, for the purposes of developing a research agenda for future research in this area. Creating value in social marketing services is now identified as a key focus for social marketing (Russell-Bennett et al., 2009; Domegan et al., 2013), yet work in this area is nascent and conceptual, methodological, and empirical work is needed to advance the research agenda (Zainuddin et al., 2013; 2016). Design/methodology/approach To help shape the future of research on value in social marketing services, this paper appraises the contributions of the current research literature, and identifies gaps in the current knowledge. A systematic literature review was conducted, following the PRISMA protocol for conducting and reporting systematic reviews (Moher et al., 2009). The review covers the areas of value creation in social marketing, value destruction in social marketing, dimensions of value in social marketing, and from value-in-exchange, to value-in-use, to value-in-behaviour in social change. Findings A research agenda for further work in this area is provided within the themes of 1. conceptual development, 2. broadening ontological, epistemological, and methodological foundations, 3. research contexts, and 4. measuring and evaluating value in social marketing services. Within each of these themes, a series of research questions are provided to guide further work in the four identified themes. Originality/value This paper is the first to offer a review of the extant literature on value creation and destruction in social marketing and social marketing services, and offer a research agenda for future work in this area. This paper contributes to services marketing and the development of service thinking as key component of social marketing, and the role that value creation plays in this (Russell-Bennett et al., 2013).


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