scholarly journals CARING FOR WHO CARES - THE FAMILY CAREGIVER BURDEN

2019 ◽  
Author(s):  
Mariana Lázaro ◽  
Luísa Carvalhão Gil ◽  
Ana Margarida Mota ◽  
Filomena Bacelar
Keyword(s):  
Caregiver Burden ◽  
Family Caregiver ◽  
The Family ◽  
Family Caregiver Burden

scholarly journals Defining the concept of family caregiver burden in patients with schizophrenia: a systematic review protocol

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Zahra Tamizi ◽  
Masoud Fallahi-Khoshknab ◽  
Asghar Dalvandi ◽  
Farahnaz Mohammadi-Shahboulaghi ◽  
Eesa Mohammadi ◽  
...  
Keyword(s):  
Systematic Review ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Psychiatric Hospitals ◽  
Reference List ◽  
Evolutionary Trend ◽  
Study Selection ◽  
The Family ◽  
Definition Of ◽  
Family Caregiver Burden

Abstract Background Since the deinstitutionalization policy, in psychiatric hospitals, the care of patients with schizophrenia was left to their families which has been imposing a heavy burden on them. Family caregiver burden could have consequences for caregivers, patients, and the society. There is very little consensus on the definition and dimensions of the caregiver burden, which leads to a lack of consistency in the results of research. Thus, the present study was aimed to redefine the family caregiver burden of patients with schizophrenia. Methods The databases PubMed, Scopus, Web of Science, MEDLINE (Via Ovid), ProQuest, SCI, Magiran, SID, and IranDoc will be searched from 1940 to 2018 using subject headings and appropriate terms in both Farsi and English languages. Also, gray literature and the reference list of included articles will be used to offer an appropriate definition of the family caregiver burden in patients with schizophrenia. Two independent reviewers will participate in study selection, data collection, and quality assessment steps. The result will be presented in tabular form, and meta-synthesis will be performed. Discussion The result of this systematic review will help present the comprehensive definition of the family caregiver burden in patients with schizophrenia according to its evolutionary trend. Systematic review registration PROSPERO CRD42018099372

scholarly journals Beban pengasuahan Caregiver keluarga klien dengan Skizofrenia di Rumah Sakit Jiwa Naimata Kupang

2020 ◽  
Vol 11 (2) ◽  
pp. 183
Author(s):  
A. Nenobais ◽  
Ah. Yusuf ◽  
S.R.D Andayani
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Mental Hospital ◽  
Descriptive Study ◽  
Important Indicator ◽  
Zarit Burden Interview ◽  
It Impacts ◽  
The Family ◽  
Family Caregiver Burden

The primary caregiver of schizophrenia patients is a family member. Caring for schizophrenia patients with other routine activities makes the family as caregivers experiences substantive stress or burden. The aims of this study is to describe the burden of the family caregivers of patiens with schizophrenia. This study was a descriptive study with a sample of 104 family nurse patients with schizophrenia, who visited the outpatient and inpatient care of Naimata Mental Hospital in Kupang, East Nusa Tenggara. The burden of family caregivers was measured using The Zarit Burden Interview. The results showed mild to moderate burden was 23.1%, moderate to severe burden 49%, severe burden 22.1% and little or no burden 5.8%. Family caregiver burden is an important indicator for the provision of mental health services because it impacts on the ability of families to maintain their caregiving role. Keywords: family; caregiver; burden; schizophrenia ABSTRAK Pengasuh utama pasien Skizofrenia adalah anggota keluarga. Merawat pasien skizofrenia dengan kegiatan rutin lainnya menjadikan keluarga sebagai pengasuh mengalami stres atau beban yang substansial. Tujuan dari penelitian ini adalah untuk menggambarkan beban pengasuh keluarga pasien skizofrenia. Penelitian ini adalah penelitian deskriptis dengan sampel penelitian 104 perawat keluarga pasien dengan skizofrenia, yang berkunjung di rawat jalan dan rawat inap Rumah Sakit Jiwa Naimata di Kupang Nusa Tenggara Timur. Beban pengasuh keluarga diukur menggunakan The Zarit Burden Interview. Hasil penelitian menunjukkan beban ringan sampai sedang adalah 23,1%, beban sedang hingga berat 49%, beban berat 22,1% dan sedikit atau tidak ada beban 5,8%. Beban pengasuh keluarga merupakan indikator penting untuk penyediaan layanan kesehatan mental karena berdampak pada kemampuan keluarga untuk mempertahankan peran pengasuhan mereka. Kata kunci: keluarga; caregiver; beban; skizofrenia

scholarly journals Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

2020 ◽  
Vol 17 (8) ◽  
pp. 2772 ◽  
Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Affiliate Stigma ◽  
People With Dementia ◽  
The Family ◽  
Male Caregivers ◽  
Family Caregiver Burden

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

scholarly journals The Association between Family Caregiver Burden and Subjective Well-Being and the Moderating Effect of Social Participation among Japanese Adults: A Cross-Sectional Study

Healthcare ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 87
Author(s):  
Taiji Noguchi ◽  
Hiroko Nakagawa-Senda ◽  
Yuya Tamai ◽  
Takeshi Nishiyama ◽  
Miki Watanabe ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Social Participation ◽  
Family Caregiver ◽  
Linear Regression Analysis ◽  
Well Being ◽  
Moderating Effect ◽  
Subjective Well Being ◽  
Cross Sectional ◽  
Japanese Adults ◽  
Family Caregiver Burden

We examined the association between family caregiver burden and subjective well-being with social participation’s moderating effect among Japanese adults. Data were obtained from a cross-sectional survey by the Japan Multi-Institutional Collaborative Cohort Study in the Okazaki area between 2013 and 2017. Study participants included 5321 adults who visited the Public Health Center for annual health check-ups and answered a questionnaire regarding health status and lifestyle. Subjective well-being was assessed by a single item, out of 10 points, and analyzed with multivariable linear regression analysis models by subjective family caregiver burden (“none”, “mild”, “severe”), stratified by gender. Ultimately, 2857 men and 2223 women were included. Mean participant age (standard deviation) in years was 64.7 (10.4) for men and 61.3 (10.0) for women. Multivariable analysis revealed that, among women, higher caregiver burden was inversely associated with subjective well-being (p for trend < 0.001), and the interaction of severe caregiver burden and social participation on subjective well-being was positive and significant (p for interaction < 0.05). High family caregiver burden was inversely associated with subjective well-being among Japanese women, but moderated by the caregiver’s social participation, suggesting the importance of community development that enables family caregivers’ social participation to protect their subjective well-being.

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