scholarly journals The Quality of Life of Adolescents with Type 1 Diabetes in Malang

2019 ◽  
Vol 6 (1) ◽  
pp. 001-005
Author(s):  
Aloysia Ispriantari ◽  
Dian Pitaloka Priasmoro ◽  
Musthika Wida Mashitah
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Disease Duration ◽  
Healthcare Providers ◽  
Sampling Technique ◽  
Cross Sectional ◽  
Cross Sectional Design ◽  
The Impact

Type 1 diabetes is a disease that can’t be cured but the quality of life of the patients can be maintained as much as possible. This study aimed to analyze the quality of life of adolescents with type 1 diabetes in Malang.  This study used cross sectional design. The sampling technique used total sampling by taking all adolescents (10-19 years) with type 1 diabetes who are still active in IKADAR Malang which were 24 adolescents. The quality of life of adolescents with type 1 diabetes was measured by the quality of life for youth questionnaire.  The result showed that the total score of the quality of life of adolescents with type 1 diabetes was 74.4±11.4 with the highest score was the impact on activities (92.3±12.4) and the lowest score was the parent issues (57.3±29.2). Higher score quality of life was in boys (75.5±12.9), age 10-14 years (75.3±11.7), disease duration  1-5 years (83.0±3.5) and last HbA1c was <7.5% (83.3±4.2). Healthcare providers especially nurse are expected to keep monitoring and improving the quality of life of adolescents with type 1 diabetes.

scholarly journals Poorer Quality of Life and Treatment Satisfaction is Associated with Diabetic Retinopathy in Patients with Type 1 Diabetes without Other Advanced Late Complications

2019 ◽  
Vol 8 (3) ◽  
pp. 377 ◽  
Author(s):  
Minerva Granado-Casas ◽  
Esmeralda Castelblanco ◽  
Anna Ramírez-Morros ◽  
Mariona Martín ◽  
Nuria Alcubierre ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Diabetic Retinopathy ◽  
Treatment Satisfaction ◽  
Vision Loss ◽  
Multivariable Analysis ◽  
Work Life ◽  
The Impact

Diabetic retinopathy (DR) may potentially cause vision loss and affect the patient’s quality of life (QoL) and treatment satisfaction (TS). Using specific tools, we aimed to assess the impact of DR and clinical factors on the QoL and TS in patients with type 1 diabetes. This was a cross-sectional, two-centre study. A sample of 102 patients with DR and 140 non-DR patients were compared. The Audit of Diabetes-Dependent Quality of Life (ADDQoL-19) and Diabetes Treatment Satisfaction Questionnaire (DTSQ-s) were administered. Data analysis included bivariate and multivariable analysis. Patients with DR showed a poorer perception of present QoL (p = 0.039), work life (p = 0.037), dependence (p = 0.010), and had a lower average weighted impact (AWI) score (p = 0.045). The multivariable analysis showed that DR was associated with a lower present QoL (p = 0.040), work life (p = 0.036) and dependence (p = 0.016). With regards to TS, DR was associated with a higher perceived frequency of hypoglycaemia (p = 0.019). In patients with type 1 diabetes, the presence of DR is associated with a poorer perception of their QoL. With regard to TS, these subjects also show a higher perceived frequency of hypoglycaemia.

scholarly journals Quality of Life in Romanian Children with Type 1 Diabetes: A Cross-Sectional Survey Using an Interdisciplinary Healthcare Intervention

Healthcare ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 382
Author(s):  
Constanta Urzeală ◽  
Aura Bota ◽  
Silvia Teodorescu ◽  
Mihaela Vlăiculescu ◽  
Julien S Baker ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Well Being ◽  
Healthcare Intervention ◽  
Type I ◽  
Cross Sectional ◽  
Significant Difference ◽  
Interdisciplinary Healthcare

Background: The purpose of this study was to assess the quality of life in Romanian type 1 diabetes mellitus (T1DM) children attending an early interdisciplinary healthcare intervention. Hypothesis: engaging T1DM children in leisure sports leads to a better quality of life. Methods: This research embeds a cross-sectional observational study, incorporating some clinical characteristics relevant for diabetes management. The Kidscreen 27 questionnaire was issued to 100 T1DM children aged between 7 and 17 years. Parents completed the questionnaire. All subjects received interdisciplinary healthcare in the previous year. Statistics were performed using SPSS, v20. The required sample size of 100 subjects was obtained with a confidence interval of 95% and a sampling error of 0.009. The tests were two-sided, with a type I error set at 0.05. Results: Subjects reached an increased level of physical well-being, psychological well-being, autonomy, parent relationships, peer and social support, and school inclusion. There was a significant difference (p < 0.05) between children who practice leisure activities and children who only participated in physical education (PE) classes, regarding their physical well-being (t = 2.123). ANOVA demonstrated significant differences between age groups regarding physical well-being. Conclusion: The interdisciplinary healthcare intervention increased the efficiency of T1DM management with positive effects on life quality.

Family functioning and quality of life in adolescents with type 1 diabetes: The role of dissimilarity in illness representations and school support

2019 ◽  
Vol 25 (2) ◽  
pp. 494-506
Author(s):  
Ana C Almeida ◽  
M Engrácia Leandro ◽  
M Graça Pereira
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Family Functioning ◽  
Illness Perceptions ◽  
Illness Perception ◽  
Negative Relationship ◽  
School Support ◽  
The Impact

This study analyzed the impact of dissimilarities in illness perceptions between parents and adolescents, school support, and family functioning on quality of life of adolescents with type 1 diabetes (T1D). A total of 100 adolescents diagnosed with T1D for at least 1 year and a primary caregiver participated in the study (N=200). Adolescents answered the Diabetes Quality of Life and the School Support Questionnaire, and parents answered the general functioning subscale of the Family Assessment Device. Both answered the Brief-Illness Perception Questionnaire, regarding the adolescents’ diabetes. The interception effect of dissimilarities regarding identity and concerns perceptions toward diabetes, between parents and adolescents, and school support in the relationship between family functioning and quality of life was significant and explained 27% and 32% of the variance, respectively. The results showed a negative relationship between family functioning and quality of life when school support was low and dissimilarities in identity and concerns perceptions were high. Therefore, to increase quality of life of adolescents with T1D, intervention programs should include family, teachers, school staff, and peers to improve their knowledge of diabetes and support to adolescents.

scholarly journals Child Perception Questionnaire for Oral Symptoms of Hypodontia Children

2021 ◽  
Vol 11 (1) ◽  
pp. 14-17
Author(s):  
Qurrat-Ul-Ain Fatima ◽  
Muhammed Mujtaba ◽  
Wali Dad ◽  
WaqasLatif
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Gender Discrimination ◽  
Sampling Technique ◽  
Permanent Teeth ◽  
Cross Sectional ◽  
Dental Abnormality ◽  
Health Quality ◽  
The Impact

Background: The congenital absence of one or more deciduous or permanent teeth is called hypodontia. It is the most prevalentcongenital dental abnormality. Hypodontia could be caused by a number of genetic and environmental factors.Objectives: The aim of the current study was to find out the impact of hypodontia on oral health and quality of life of children.Material and Methods: A cross sectional comparative study was carried out on 40 patients suffering from hypodontia and 40healthy controls in the outpatient department of Nishtar institute of dentistry, Multan. Patients and healthy controls were selected bynon-probability convenient sampling technique without any gender discrimination. Age of the selected patients and controls was11-14 years. Oral health was checked by using dental examination instruments. Urdu Proformas were used for betterunderstanding of children.Results: Mean age of the study subjects was 11.9 (± 0.94) years with range of 11 to 14 years. There was 36 (45%) male and 44(55%) female. In our study, maxillary lateral incisor was the most commonly missing tooth. Out of 40 patients suffering fromhypodontia, about 37 (92.5%) patients presented with poor oral health, 38 (95%) patients were affected by their condition and31(77.5%) patients were dissatisfied from their appearance.Conclusion: Hypodontia had great impact on the quality of life of the children. Patients presented with poor oral health and werehighly dissatisfied from their condition.Keywords: Hypodontia, oral health, quality of life

scholarly journals ‘Never again will I be carefree’: a qualitative study of the impact of hypoglycemia on quality of life among adults with type 1 diabetes

2021 ◽  
Vol 9 (1) ◽  
pp. e002322
Author(s):  
Hannah Chatwin ◽  
Melanie Broadley ◽  
Mette Valdersdorf Jensen ◽  
Christel Hendrieckx ◽  
Jill Carlton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Social Life ◽  
Limited Participation ◽  
Personal Impact ◽  
Fear Of Hypoglycemia ◽  
The Uk ◽  
The Impact

IntroductionAchieving glycemic targets and optimizing quality of life (QoL) are important goals of type 1 diabetes care. Hypoglycemia is a common barrier to achieving targets and can be associated with significant distress. However, the impact of hypoglycemia on QoL is not fully understood. The aim of this study was to explore how adults with type 1 diabetes are impacted by hypoglycemia in areas of life that are important to their overall QoL.Research design and methodsParticipants responded to a web-based qualitative survey involving a novel ‘Wheel of Life’ activity. Responses were analyzed using reflexive thematic analysis.ResultsThe final sample included 219 adults with type 1 diabetes from Denmark, Germany, the Netherlands, and the UK. They had a mean±SD age of 39±13 years and diabetes duration of 20±14 years. Participants identified eight areas of life important to their overall QoL, including relationships and social life, work and studies, leisure and physical activity, everyday life, sleep, sex life, physical health, and mental health. Participants reported emotional, behavioral, cognitive, and social impacts of hypoglycemia within domains. Across domains, participants described interruptions, limited participation in activities, exhaustion, fear of hypoglycemia, compensatory strategies to prevent hypoglycemia, and reduced spontaneity.ConclusionsThe findings emphasize the profound impact of hypoglycemia on QoL and diabetes self-care behaviors. Diabetes services should be aware of and address the burden of hypoglycemia to provide person-centered care. Clinicians could ask individuals how hypoglycemia affects important areas of their lives to better understand the personal impact and develop tailored management plans.

AB0336 IMPACT OF SUBJECTIVE INTOLERANCE TO METHOTREXATE ON THE QUALITY OF LIFE OF PATIENTS WITH RHEUMATOID ARTHRITIS: SIDE EFFECTS AND AVOIDANCE COPING STRATEGIES THROUGH SELF-ADMINISTRATION IN THE EVENING OR DURING THE WEEKEND

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1466.1-1467
Author(s):  
G. Cavalli ◽  
M. Biggioggero ◽  
A. Cariddi ◽  
G. De Luca ◽  
E. Agape ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Side Effects ◽  
Social Participation ◽  
Disease Duration ◽  
P Value ◽  
Self Administration ◽  
Cross Sectional ◽  
The Impact

Background:Methotrexate (MTX) represents theanchor drugfor the treatment of rheumatoid arthritis (RA), as well as other rheumatological diseases such as psoriatic arthritis (PsA) and spondyloarthritides (SpA). Despite consolidated clinical efficacy, the use of MTX suffers from relevant limitations. Common issues include subjective intolerance, nausea, malaise, and fatigue, which negatively impact on quality of life and work/social participation.Objectives:In this study, we evaluated the frequency with which patients on MTX therapy opt for self-administration over the weekend or in the evening hours, in order to minimize interference with daily activities, work productivity, and social participation.Methods:A cross-sectional, prospective study was performed in two tertiary referral Rheumatology clinics, which included consecutive patients with RA, PsA, or SpA on MTX therapy. Enrolled patients had not previously received instructions by their healthcare provider as to when during the week or day MTX ought to be administered, and were free to choose or change the weekday and time for self-administration. Data on the route and timing of MTX self-administration was collected using dedicated questionnaires, which included queries on the dose and route of administration, day of the week and time of self-administration, reasons for the patient’s choice, use of folic acid supplementation, and concomitant therapies. Statistical analyses were conducted using a chi-square test; a p-value <0.05 was considered significant.Results:A total of 275 consecutive patients treated with MTX were included, mostly with RA (86%). Patients had an average age of 59.8 years (SD 14.0) and an average disease duration of 134.5 months (SD 127.3). The average MTX dose was 15 mg/wk (SD 4.4); MTX was administered subcutaneously in 68.2% of cases, orally in 17.8%, and intramuscularly in 5%. Regarding the timing of MTX self-administration, 157 patients (57.1%) took MTX in the evening and 119 patients (44.3%) took it during the weekend; even among patients taking MTX in the evening, weekend administration was preferred (93/157, 59.2%, p <0.001). The most frequent reasons leading to MTX self-administration during the evening or weekend were gastrointestinal side effects/nausea (85% of cases), fatigue (63%), interference with work activities (36%) and interference with social activities (29%). Patients who opted for MTX self-administration in the evening or over the weekend were significantly younger (p <0.001), with no significant gender differences or disease duration.Conclusion:The majority of patients with inflammatory arthritis opt for self-administration of MTX in the evening (absolute majority) or during the weekend (relative majority). This choice is dictated by the need to avoid side effects and detrimental repercussions on the individual’s social or working life. The adoption of these strategies for minimizing the adverse effects of MTX is more frequent among younger patients, and provides an indirect, yet powerful indicator of the impact of MTX therapy on patients’ quality of life.Disclosure of Interests:Giulio Cavalli Consultant of: SOBI, Pfizer, Sanofi, Novartis, Paid instructor for: SOBI, Novartis, Speakers bureau: SOBI, Novartis, Martina Biggioggero: None declared, adriana cariddi: None declared, Giacomo De Luca Speakers bureau: SOBI, Novartis, Celgene, Pfizer, MSD, Elena Agape: None declared, nicola boffini: None declared, Elena Baldissera Speakers bureau: Novartis, Pfizer, Roche, Alpha Sigma, Sanofi, Lorenzo Dagna: None declared, Ennio Giulio Favalli Consultant of: Consultant and/or speaker for BMS, Eli-Lilly, MSD, UCB, Pfizer, Sanofi-Genzyme, Novartis, and Abbvie, Speakers bureau: Consultant and/or speaker for BMS, Eli-Lilly, MSD, UCB, Pfizer, Sanofi-Genzyme, Novartis, and Abbvie

Assessment quality of life as a factor for the improvement of patient-focused therapy of the preschool children with type 1 diabetes

2021 ◽  
Author(s):  
И.Л. Никитина ◽  
А.О. Плаксина ◽  
А.В. Павлов ◽  
И.А. Кельмансон
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Preschool Children ◽  
Well Being ◽  
Self Report ◽  
Total Quality ◽  
Everyday Functioning ◽  
The Impact

Оценка качества жизни с точки зрения ребенка, больного сахарным диабетом 1 типа, и его родителей имеет важность для планирования терапии, но может существенно различаться. Целью работы было оценить качество жизни детей дошкольного возраста и их матерей для оптимизации пациент-ориентированных схем лечения и улучшения метаболического контроля диабета. Обследованы 35 детей в возрасте 4-6 лет (19 мальчиков и 16 девочек), больных сахарным диабетом 1 типа, находящихся на лечении в клинике Центра. Для оценки качества жизни использовали русифицированную версию опросника KINDL для детей дошкольного возраста и их матерей. Оценка проводилась по шкалам физического и эмоционального благополучия, самооценки, семейных отношений, взаимоотношения с друзьями, ежедневного функционирования, влияния заболевания, а также суммарных показателей качества жизни по 100-балльной шкале. Статистическая обработка данных проведена с использованием прикладной программы JAMOVI 1.6. Статистически значимые различия были выявлены по шкале суммарной оценки качества жизни, а также по шкалам влияния заболевания и эмоционального благополучия на качество жизни. Установлены более низкие оценки суммарного качества жизни, а также влияния на него заболевания, по мнению матерей по сравнению с детьми с сахарным диабетом 1 типа. Напротив, оценка влияния эмоционального благополучия на качество жизни при сахарном диабете 1 типа была более высокой со стороны матерей по сравнению с их детьми. Наиболее значимое модифицирующее влияние на исследуемые показатели было установлено по факторам образования матери, семейного положения, способа введения инсулина и улучшения контроля диабета. Оценка качества жизни может различаться по мнению детей с сахарным диабетом 1 типа и их матерей. Выявленные особенности рекомендуется использовать в планировании пациент-ориентированных программ лечения диабета и в работе школ сахарного диабета. Assessment of Health Related Quality of Life (HRQoL) features frequently assesses both the child and their mothers perspectives in preschool children with diabetes mellitus type 1 (T1DM), but parent-proxy and child self-reports may differ, and knowledge of these differences are not enough. The aim was to investigate HRQoL assessed by preschool children with T1DM and by their mothers, potential differences in the children-maternal estimates and the factors influencing these discrepancies. 35 preschool children (16 girls from 4-to-6-year-old ) with T1DM underwent the self-report KINDL questionnaire for children aged 4-6 years (Kiddy-KINDL for children). Their mothers underwent the parental version (Kiddy-KINDL for parents). Both versions enable measuring child HRQoL in physical, emotional wellbeing, self-esteem, family, friends, everyday functioning, and the disease dimensions, as well as KINDL total on a 0-100 scale. Statistically significant differences were found on the scale of the total assessment of the quality of life, as well as on the scales of the impact of disease and emotional well-being on the quality of life. Lower estimates of the total quality of life, as well as the effect of the disease on it, in the opinion of mothers, compared with children with type 1 diabetes, were established. In contrast, the assessment of the impact of emotional well-being on the quality of life in type 1 diabetes was higher on the part of mothers compared to their children. The most significant modifying effect on the studied parameters was found for the factors of mother's education, marital status, method of insulin administration, and improved diabetes control. The assessment of the quality of life may differ according to the opinion of children with type 1 diabetes and their mothers. The identified features are recommended for use in planning patient-oriented diabetes treatment programs and in the work of «diabetes schools».

The association between hope and quality of life in haemodialysis patients

2020 ◽  
Vol 29 (21) ◽  
pp. 1260-1265
Author(s):  
Ali Alshraifeen ◽  
Sami Al-Rawashdeh ◽  
Kaye Herth ◽  
Karimeh Alnuaimi ◽  
Fatmeh Alzoubi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Healthcare Providers ◽  
World Health ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Cross Sectional Design ◽  
Health Organization ◽  
Stage Renal Disease ◽  
End Stage

Background: Hope is important for patients with end-stage renal disease receiving haemodialysis (HD) and hope is associated with quality of life (QoL). Studies examining hope among the HD population are limited and, as far as the authors know, have not been undertaken in Jordan. Aims: To examine levels of hope and QoL and to examine the association between hope and QoL in HD patients in Jordan. Methods: A cross-sectional design was used. A convenience sample of 202 patients from six different dialysis centres was recruited. The World Health Organization QOL-BREF and the Herth Hope Index were used. Findings: Moderate levels of hope (M=32.3±4.1) were reported. Respondents reported low mean scores for the physical domain of QoL (M=48.3±21.1) but not for the psychological and social relationship domains. Higher hope scores were associated with better QoL. Conclusion: The findings suggest a positive relationship between the level of hope and QoL in people receiving HD. Encouraging hope while caring for HD patients in clinical settings may improve their QoL. Understanding the relationship between hope and QoL may help healthcare providers to improve the quality of care for patients and their families.

scholarly journals Health-Related Quality of Life, Family Conflicts and Fear of Injecting: Perception Differences between Preadolescents and Adolescents with Type 1 Diabetes and Their Mothers

2021 ◽  
Vol 11 (7) ◽  
pp. 98
Author(s):  
Marta Tremolada ◽  
Maria Cusinato ◽  
Sabrina Bonichini ◽  
Arianna Fabris ◽  
Claudia Gabrielli ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Self Regulation ◽  
Type I ◽  
Family Conflicts ◽  
Cross Sectional ◽  
Age Range

Good management of diabetes requires at the same time self-regulation behaviour and a balanced involvement of family components. This cross-sectional study’s aims were: understanding fear of injections and perceptions of family conflicts in preadolescents and adolescents with type 1 diabetes mellitus and their mothers, comparing their perceptions, and identifying the risk factors impacting patients’ quality of life. Eligibility criteria were: treatment for diabetes mellitus type I, currently aged 10–18 years, attending the hospital for annual hospital follow-ups. Exclusion criteria were: intellectual disabilities, inability to complete questionnaires alone and neuropsychiatric illness with active pharmacotherapy. The study design was cross-sectional. Participants were one hundred and two patients (Mean age = 14.6, SD = 2.4; age range = 10–19 years; Females = 52 and Males = 50) and their mothers (Mean age = 46.9, SD = 6.2, age range = 27–63 years), who filled in self and proxy-report questionnaires (N total= 204). The results showed that 20% of patients and 14.7% of their mothers reported clinical scores for fear of self-injection and blood testing. The mothers reported lower fear of injecting and higher family conflicts compared with the patients. Age, fear of injecting and family conflicts were significantly associated with patients’ quality of life perceptions. Clinical considerations and recommendations are given based on the empirical results.

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