scholarly journals Quality of Life in Romanian Children with Type 1 Diabetes: A Cross-Sectional Survey Using an Interdisciplinary Healthcare Intervention

Healthcare ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 382
Author(s):  
Constanta Urzeală ◽  
Aura Bota ◽  
Silvia Teodorescu ◽  
Mihaela Vlăiculescu ◽  
Julien S Baker ◽  
...  

Background: The purpose of this study was to assess the quality of life in Romanian type 1 diabetes mellitus (T1DM) children attending an early interdisciplinary healthcare intervention. Hypothesis: engaging T1DM children in leisure sports leads to a better quality of life. Methods: This research embeds a cross-sectional observational study, incorporating some clinical characteristics relevant for diabetes management. The Kidscreen 27 questionnaire was issued to 100 T1DM children aged between 7 and 17 years. Parents completed the questionnaire. All subjects received interdisciplinary healthcare in the previous year. Statistics were performed using SPSS, v20. The required sample size of 100 subjects was obtained with a confidence interval of 95% and a sampling error of 0.009. The tests were two-sided, with a type I error set at 0.05. Results: Subjects reached an increased level of physical well-being, psychological well-being, autonomy, parent relationships, peer and social support, and school inclusion. There was a significant difference (p < 0.05) between children who practice leisure activities and children who only participated in physical education (PE) classes, regarding their physical well-being (t = 2.123). ANOVA demonstrated significant differences between age groups regarding physical well-being. Conclusion: The interdisciplinary healthcare intervention increased the efficiency of T1DM management with positive effects on life quality.

2021 ◽  
Vol 11 (7) ◽  
pp. 98
Author(s):  
Marta Tremolada ◽  
Maria Cusinato ◽  
Sabrina Bonichini ◽  
Arianna Fabris ◽  
Claudia Gabrielli ◽  
...  

Good management of diabetes requires at the same time self-regulation behaviour and a balanced involvement of family components. This cross-sectional study’s aims were: understanding fear of injections and perceptions of family conflicts in preadolescents and adolescents with type 1 diabetes mellitus and their mothers, comparing their perceptions, and identifying the risk factors impacting patients’ quality of life. Eligibility criteria were: treatment for diabetes mellitus type I, currently aged 10–18 years, attending the hospital for annual hospital follow-ups. Exclusion criteria were: intellectual disabilities, inability to complete questionnaires alone and neuropsychiatric illness with active pharmacotherapy. The study design was cross-sectional. Participants were one hundred and two patients (Mean age = 14.6, SD = 2.4; age range = 10–19 years; Females = 52 and Males = 50) and their mothers (Mean age = 46.9, SD = 6.2, age range = 27–63 years), who filled in self and proxy-report questionnaires (N total= 204). The results showed that 20% of patients and 14.7% of their mothers reported clinical scores for fear of self-injection and blood testing. The mothers reported lower fear of injecting and higher family conflicts compared with the patients. Age, fear of injecting and family conflicts were significantly associated with patients’ quality of life perceptions. Clinical considerations and recommendations are given based on the empirical results.


2020 ◽  
Vol 4 (Supplement_2) ◽  
pp. 1286-1286
Author(s):  
Nouf Altheyabi

Abstract Objectives Aim of the Study: (Instructions: state the goal you need to achieve) Evaluate the quality of life in children with type 1 diabetes. Specific Objectives: (Instructions: state the details of each objective that will finally lead to achievement of the goal) 1. To assess the quality of life in children and adolescents with type 1 diabetes using the HR-QOL questionnaire. 2. To determine the characteristics associated with quality of life in children with type 1 diabetes. Methods A descriptive cross-sectional study done in Pediatric Endocrinology clinic at the King Abdullah Specialist Children Hospital (KASCH). Quality of life was evaluated during a personal interview with each patient using the diabetes- specific quality of life (QOL) tool KINDL-R Diabetes Module (DM). The questionnaire consists of 41 items related to quality of life and diabetes. Demographics, anthropometric measurements, and HbA1c were reviewed from patient records. Results Overall quality of life was good with average score of (67.9%). There was no statistical difference between males and females in sub scale scores such as physical and emotional well-being. Also, there was no significant correlation between HbA1c, BMI and sub scale scores. Conclusions Poor glycemic control, BMI, and sex were not associated with worse QoL. Further studies to determine the optimal cut points for QoL scales are needed to identify T1D patients with poor QoL. Funding Sources in NGHA Riyadh.


2018 ◽  
Vol 103 (9) ◽  
pp. 1314-1319 ◽  
Author(s):  
Eva K Fenwick ◽  
Ryan E K Man ◽  
Alfred Tau Liang Gan ◽  
Neelam Kumari ◽  
Charlene Wong ◽  
...  

Background/aimsTo assess the independent impact of diabetic retinopathy (DR) on three domains of vision-related quality of life (VRQoL) in a Chinese Singapore population.MethodsThe Singapore Chinese Eye Study (n=3353; 2009–2011) was a population-based, prospective, cross-sectional study conducted at the Singapore Eye Research Institute. The study population included 292 adults with diabetes, with and without DR. DR (better eye) was categorised as presence and absence of any DR; severity of DR (no vision-threatening DR (VTDR); severe non-proliferative DR (NPDR); PDR and/or clinically significant macular oedema and VTDR). Our main outcome was VRQoL which was measured using Rasch-calibrated scores from the ‘Reading’, ‘Mobility’ and ‘Emotional’ domains of the Impact of Vision Impairment questionnaire. The relationship between DR and VRQoL was assessed using multiple linear regression models.ResultsOf the 292 individuals (mean age 61.35 ± 9.66 years; 55.8% male), 201 (68.8%), 49 (16.8%), 20 (6.8%), 22 (7.5%) and 27 (9.2%) had no DR, minimal-mild NPDR, moderate-severe NPDR, PDR and VTDR, respectively. Any DR and VTDR were independently associated with 6% and 12% worse Reading scores and 7% and 18% poorer Emotional well-being, respectively, compared with those without DR. These associations persisted after separate adjustment for visual impairment and presenting visual acuity. No significant difference was found in the Mobility domain between persons with and without DR.ConclusionsWe documented that DR, particularly VTDR, was independently associated with restrictions in Reading and Emotional well-being. Understanding factors underlying the detrimental DR-VRQoL relationship may optimise rehabilitation outcomes for individuals with DR.


2020 ◽  
Vol 5 (3) ◽  
pp. 211-216
Author(s):  
Dolly Bansal ◽  
Vijendra Nath Pathak ◽  
J. Pradhan ◽  
Anu Chaudhary

The study aims to highlight the occupation level on occupational stress, psychological well-being, and quality of life of Indian Army Personnel. The study was conducted on one hundred fifty Indian male Army Personnel of different rank belonging to 25 years to 45 years of age group. The cross-sectional design was used. The sample was selected through the purposive sampling technique. The tools measures like the Occupational Stress Index, Psychological Well-Being Scale and WHO Quality of Life-BREF Hindi was individually administered. The data were analysed using descriptive and inferential statistics. One way Analysis of Variance results revealed that there is a significant difference in occupational levels on occupational stress, psychological well-being, and quality of life among Indian Army personnel. Pearson product-moment correlations coefficient showed a significant negative relationship between occupational stress with psychological well-being and quality of life and showed a significant positive relationship between psychological well-being and quality of life among Indian Army Personnel.


2017 ◽  
Vol 7 (10) ◽  
pp. 73 ◽  
Author(s):  
Marzoka A. Gadallah ◽  
Taghreed Abdul-Aziz M. Ismail ◽  
Naglaa Saad Abdel Aty

Objective: Health related quality of life (HRQOL) is a multidimensional construct that includes physical and psychosocial functioning, has emerged as an important outcome in pediatric population with chronic health conditions. The study objectives are to measure the quality of life among children with type I diabetes compared to healthy peers and to determine factors affecting the QOL among children with type I diabetes.Methods: Analytic cross sectional study was conducted in Sidi Galal health insurance outpatient clinic for children with type 1 diabetes mellitus and a comparison group of healthy peers was taken from other outpatient clinics. A total of four hundred and twelve children, aged from 8-18 years with type 1 diabetes and four hundred and twelve healthy peers matched in age and sex were interviewed. Three tools were used for this study: Demographic questionnaire, Socio-economic scale, and Peds QL4.0 Generic Core Scale was used to measure HRQOL.Results: The mean age of studied children was 12.9 ± 3.2. More than 60% of children with diabetes had uncontrolled glycemic level and 60% of them were in low socio-economic level. Children with diabetes had significantly lower HRQOL than healthy children in all domains. Age, glycemic control status and birth order of the diabetic children showed no significance difference regarding the QOL. Disease duration affected only the emotional function of the QOL and females showed significantly higher score regarding school functioning. Social, school and the total QOL scores were significantly higher among children with highly educated mothers while father's education affected the emotional, school and total QOL scores. Children in the middle and high social class showed significantly higher scores regarding social, school and total QOL. Presence of diabetic parent positively affected the social functioning while had negative effect on the school function of children with type I diabetes.Conclusions and recommendations: Diabetes is negatively affecting all the QOL functioning of the children. We recommend that Integrated programs between child's home, school and health insurance clinics for educating and supporting children with diabetes to improve their HRQOL.


2006 ◽  
Vol 22 (1) ◽  
pp. 53-58 ◽  
Author(s):  
Ruth Cheung ◽  
Virginia Young Cureton ◽  
Daryl L. Canham

Quality of life in adolescents with Type 1 diabetes is a growing area of interest in pediatric research. The complex diabetes regimen imposes challenges for an adolescent. Adolescents diagnosed with diabetes are a group that appears to be at risk for having a poor health-related quality of life. Although research supports the positive relationship of social support and well-being in adolescents, there are few studies discussing quality of life in adolescents that are based on the factor of social support. This study compared the quality of life in adolescents with Type 1 diabetes who have attended at least one diabetes camp to the quality of life of those who have never attended diabetes camp. Results provided evidence of the value of social support.


Author(s):  
И.Л. Никитина ◽  
А.О. Плаксина ◽  
А.В. Павлов ◽  
И.А. Кельмансон

Оценка качества жизни с точки зрения ребенка, больного сахарным диабетом 1 типа, и его родителей имеет важность для планирования терапии, но может существенно различаться. Целью работы было оценить качество жизни детей дошкольного возраста и их матерей для оптимизации пациент-ориентированных схем лечения и улучшения метаболического контроля диабета. Обследованы 35 детей в возрасте 4-6 лет (19 мальчиков и 16 девочек), больных сахарным диабетом 1 типа, находящихся на лечении в клинике Центра. Для оценки качества жизни использовали русифицированную версию опросника KINDL для детей дошкольного возраста и их матерей. Оценка проводилась по шкалам физического и эмоционального благополучия, самооценки, семейных отношений, взаимоотношения с друзьями, ежедневного функционирования, влияния заболевания, а также суммарных показателей качества жизни по 100-балльной шкале. Статистическая обработка данных проведена с использованием прикладной программы JAMOVI 1.6. Статистически значимые различия были выявлены по шкале суммарной оценки качества жизни, а также по шкалам влияния заболевания и эмоционального благополучия на качество жизни. Установлены более низкие оценки суммарного качества жизни, а также влияния на него заболевания, по мнению матерей по сравнению с детьми с сахарным диабетом 1 типа. Напротив, оценка влияния эмоционального благополучия на качество жизни при сахарном диабете 1 типа была более высокой со стороны матерей по сравнению с их детьми. Наиболее значимое модифицирующее влияние на исследуемые показатели было установлено по факторам образования матери, семейного положения, способа введения инсулина и улучшения контроля диабета. Оценка качества жизни может различаться по мнению детей с сахарным диабетом 1 типа и их матерей. Выявленные особенности рекомендуется использовать в планировании пациент-ориентированных программ лечения диабета и в работе школ сахарного диабета. Assessment of Health Related Quality of Life (HRQoL) features frequently assesses both the child and their mothers perspectives in preschool children with diabetes mellitus type 1 (T1DM), but parent-proxy and child self-reports may differ, and knowledge of these differences are not enough. The aim was to investigate HRQoL assessed by preschool children with T1DM and by their mothers, potential differences in the children-maternal estimates and the factors influencing these discrepancies. 35 preschool children (16 girls from 4-to-6-year-old ) with T1DM underwent the self-report KINDL questionnaire for children aged 4-6 years (Kiddy-KINDL for children). Their mothers underwent the parental version (Kiddy-KINDL for parents). Both versions enable measuring child HRQoL in physical, emotional wellbeing, self-esteem, family, friends, everyday functioning, and the disease dimensions, as well as KINDL total on a 0-100 scale. Statistically significant differences were found on the scale of the total assessment of the quality of life, as well as on the scales of the impact of disease and emotional well-being on the quality of life. Lower estimates of the total quality of life, as well as the effect of the disease on it, in the opinion of mothers, compared with children with type 1 diabetes, were established. In contrast, the assessment of the impact of emotional well-being on the quality of life in type 1 diabetes was higher on the part of mothers compared to their children. The most significant modifying effect on the studied parameters was found for the factors of mother's education, marital status, method of insulin administration, and improved diabetes control. The assessment of the quality of life may differ according to the opinion of children with type 1 diabetes and their mothers. The identified features are recommended for use in planning patient-oriented diabetes treatment programs and in the work of «diabetes schools».


Author(s):  
Mi-Kyoung Cho ◽  
Mi-Young Kim

This study investigated the association between the quality of life (QOL) and type 1 diabetes mellitus (DM), a lifelong disease that requires constant management. A complex set of factors influence the QOL of people with type 1 DM, and understanding these factors requires further research. This research is a cross-sectional descriptive study. A survey on related variables such as acceptance of disease and efficacy for self-management of diabetes, was conducted among 111 participants with type 1 DM. The collected data were analyzed using PASW Statistics program, and factors influencing participants’ QOL were identified through hierarchical multiple regression. The study followed the Guidelines of Systematic Reporting of Examination in the STROBE checklist. The results showed that four variables exerted a significant effect on QOL (blood glucose level at hypoglycemia and complications in Model 1; efficacy for self-management of diabetes and acceptance and action in Model 2), and all the variables explained a majority of the variance in QOL. The results indicate that management of severe hypoglycemia and prevention of complications is crucial. Interventions should be developed to enhance coping abilities to improve efficacy for self-management for those with diabetes and promote their acceptance of the disease.


2014 ◽  
Vol 60 (1) ◽  
pp. 39-45
Author(s):  
L I Ibragimova ◽  
Yu I Philippov ◽  
A Yu Mayorov

Aim of the study. To estimate the effectiveness of the new program of structured diabetes education for the groups of the patients with type 1 diabetes mellitus (DM1) during their transition to sensor-augmented pump (SAP) therapy in terms of improvement of the glycemic control and quality of life (QL). Material and methods. The study included 35 patients presenting with DM1: 14 men, mean age 26.5 years (24; 36). The patients were divided into two groups. Those in the study group received a structured diabetes education (n=19), those in the control group were given conventional education (n=16). The patients of group 1 were transferred to SAP therapy in the framework of group education based on the specialized structured program. The education of control patients was carried out on an individual basis in the previous period at the places of residence. Quality of life and emotional well-being were estimated with the use of the validated Russian versions of the SF-36, ADDQoL, and WB-Q12 questionnaires. The effectiveness of glycemic control and QL were evaluated within 4 months after the completion of education and transition to SAP. Results. The patients of both groups were not initially different in the HbA1c level: 8.1 (8.0; 9.2) versus 8.8 (7.7; 9.0) (p>0.05). The HbA1c level: decreased in the two groups within 4 months after the initiation of SAP therapy: 7.3 (6.3; 7.8) versus 8.0 (6.3; 8.5) (p>0.05). The decrease was more pronounced in the group of the patients who received the structured diabetes education than in the control group (p=0.036). The patients transferred to SAP in the framework of the structured education program tended to have higher indices of QL and emotional well-being than the patients given the standard education. Conclusion. The use of the specialized structured program for the education for the groups of the patients with type 1 diabetes mellitus during transition to SAP therapy results not only in a more pronounced improvement of glycemic control indices but also in the positive changes of certain QL characteristics.


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