scholarly journals Oncology on FHIR: A Data Model for Distributed Cancer Research

Author(s):  
Mohamed Lambarki ◽  
Jori Kern ◽  
David Croft ◽  
Cäcilia Engels ◽  
Noemi Deppenwiese ◽  
...  

In the field of oncology, a close integration of cancer research and patient care is indispensable. Although an exchange of data between health care providers and other institutions such as cancer registries has already been established in Germany, it does not take advantage of internationally coordinated health data standards. Translational cancer research would also benefit from such standards in the context of secondary data use. This paper employs use cases from the German Cancer Consortium (DKTK) to show how this gap can be closed using a harmonised FHIR-based data model, and how to apply it to an existing federated data platform.

2018 ◽  
Vol 1 (2) ◽  
Author(s):  
Satriya Wijaya

Abstrak Pelaksanaan JKN di Indonesia menghadapi berbagai tantangan, dari sisi pemberi layanan kesehatan, pengelola jaminan kesehatan, masyarakat sebagai pengguna, serta pemerintah sebagai regulator program. Berbagai studi telah dilakukan untuk menelaah dampak JKN pada pelayanan kesehatan di Indonesia, namun pemanfaatan hasil studi tersebut untuk menyempurnakan kebijakan masih terbatas. Jenis penelitian ini adalah penelitian deskriptif eksploratif, yang menggunakan metode deskriptif kualitatif serta penelaahan dokumen. Desain penelitian adalah cross-sectional dengan pendekatan retrospektif. Sampel penelitian ini adalah seluruh stakeholder kunci yang berada di wilayah kerja Puskesmas Wiyung yang terkait erat dengan pelaksanaan JKN. Analisa dan pengumpulan data dilakukan untuk memvalidasi: informasi dari institusi responden, indepth interview dengan stake holder kebijakan dan pelaksana program, kemudian cek silang oleh enumerator lapangan ke beberapa responden untuk temuan yang memerlukan, dan refleksi tim dalam bentuk pertemuan validasi data. Informasi yang diperoleh dari hasil indepth interview stake holder kebijakan dan pelaksana program, informasi cek silang dari enumerator lapangan maupun data sekunder akan diintegrasikan dengan informasi kualitatif yang terkumpul. Hasil analisis menunjukkan tidak semua pengunjung Puskesmas Wiyung telah menjadi peserta BPJS. Sistem administrasi dianggap rumit untuk dipahami dengan mudah oleh masyarakat.  Perlu sosialisasi kepada masyarakat tentang kepesertaan BPJS dan penguatan koordinasi dengan pihak BPJS apabila ada masalah anggota kepesertaan pasien BPJS.   Kata kunci: implementasi JKN, program JKN, kepesertaan BPJS Abstract   Implementation of National Health Insurance (JKN) in Indonesia faces various challenges, from the side of health care providers, health insurance managers, the community as users, and the government as the program regulator. Various studies have been conducted to examine the impact of JKN on health services in Indonesia, but the use of the results of these studies to improve policies is still limited. This type of research is explorative descriptive research, which uses qualitative descriptive methods and document review. The study design was cross-sectional with a retrospective approach. The sample of this study is all key stakeholders in the Wiyung Health Center working area which are closely related to JKN implementation. Analysis and data collection were carried out to validate: information from the respondent's institution, in-depth interviews with policy stakeholders and program implementers, then cross-check by field enumerators to several respondents for findings that needed, and team reflection in the form of data validation meetings. Information obtained from the results of an in-depth interview of policy stakeholders and program implementers, cross check information from field enumerators and secondary data will be integrated with qualitative information collected. The results of the analysis showed that not all visitors to the Wiyung Health Center had become BPJS participants. The administrative system is considered complicated to be easily understood by the community. Need to disseminate information to the public about BPJS membership and strengthening coordination with BPJS if there are problems with membership of BPJS patients.  Keywords: implementation of JKN, JKN program, BPJS membership


10.2196/23951 ◽  
2021 ◽  
Vol 9 (3) ◽  
pp. e23951
Author(s):  
Shuma G Kanfe ◽  
Berhanu F Endehabtu ◽  
Mohammedjud H Ahmed ◽  
Nebyu D Mengestie ◽  
Binyam Tilahun

Background Changing the culture of information use, which is one of the transformation agendas of the Ministry of Health of Ethiopia, cannot become real unless health care providers are committed to using locally collected data for evidence-based decision making. The commitment of health care providers has paramount influence on district health information system 2 (DHIS2) data utilization for decision making. Evidence is limited on health care providers’ level of commitment to using DHIS2 data in Ethiopia. Therefore, this study aims to fill this evidence gap. Objective This study aimed to assess the levels of commitment of health care providers and the factors influencing their commitment levels in using DHIS2 data for decision making at public health care facilities in the Ilu Aba Bora zone of the Oromia national regional state, Ethiopia in 2020. Methods The cross-sectional quantitative study supplemented by qualitative methods was conducted from February 26, 2020 to April 17, 2020. A total of 264 participants were approached. SPSS version 20 software was used for data entry and analysis. Descriptive and analytical statistics, including bivariable and multivariable analyses, were performed. Thematic analysis was conducted for the qualitative data. Results Of the 264 respondents, 121 (45.8%, 95% CI 40.0%-52.8%) respondents showed high commitment levels to use DHIS2 data. The variables associated with the level of commitment to use DHIS2 data were found to be provision of feedback for DHIS2 data use (adjusted odds ratio [AOR] 1.85, 95% CI 1.02-3.33), regular supervision and managerial support (AOR 2.84, 95% CI 1.50-5.37), information use culture (AOR 1.92, 95% CI 1.03-3.59), motivation to use DHIS2 data (AOR 1.80, 95% CI 1.00-3.25), health needs (AOR 3.96, 95% CI 2.11-7.41), and competency in DHIS2 tasks (AOR 2.41, 95% CI 1.27-4.55). Conclusions In general, less than half of the study participants showed high commitment levels to use DHIS2 data for decision making in health care. Providing regular supportive supervision and feedback and increasing the motivation and competency of the health care providers in performing DHIS2 data tasks will help in promoting their levels of commitment that can result in the cultural transformation of data use for evidence-based decision making in health care.


2016 ◽  
Vol 2016 ◽  
pp. 1-6 ◽  
Author(s):  
Melanie May ◽  
Sebastian Hahn ◽  
Claudia Tonn ◽  
Gerald Engels ◽  
Dirk Hochlenert

Aim. In two German regions with 11.1 million inhabitants, 6 networks for specialized treatment of DFS were implemented until 2008. Data provided for accounting purposes was analysed in order to determine changes in the rate of diabetics requiring amputations in the years before and after the implementation.Method. Data covering 2.9 million people insured by the largest insurance company between 2007 and 2013 was analysed by the use of log-linear Poisson regression adjusted for age, gender and region.Results. The rate of diabetics needing major amputations fell significantly by 9.5% per year (p<0.0001) from 217 to 126 of 100,000 patients per year. The rate of diabetics needing amputations of any kind fell from 504 to 419 of 100,000 patients per year (p=0.0038).Discussion. The networks integrate health care providers in an organised system of shared care. They educate members of the medical community and the general public. At the same time, a more general disease management program for people with diabetes was implemented, which may also have contributed to this decrease. At the end of the observation period, the rate of diabetics requiring amputations was still high. For this reason, further expansion of organised specialized care is urgently needed.


2017 ◽  
Vol 57 (6) ◽  
pp. 689-693
Author(s):  
Michelle McKean ◽  
Aaron B. Caughey ◽  
Melanie A. Yuracko McKean ◽  
Michael D. Cabana ◽  
Valerie J. Flaherman

Maternal postpartum depression (PPD) has an impact on mothers and infants. The American Academy of Pediatrics recommends screening for PPD at well-child visits during the first 6 months. We conducted a secondary data analysis of depression screening data collected each month during months 1 to 12 postpartum for 152 mothers with an infant participating in a randomized controlled trial. We used descriptive statistics to describe the incidence and the cumulative incidence of a positive PPD screen during months 1 to 12 postpartum. The results indicate that the initial positive screen for PPD can occur any time during the first 12 months postpartum and 15% had their first positive screen between months 6 and 12. Additionally, positive PPD screens are consistently high throughout the first year postpartum with the highest rate of positive screens at 12 months postpartum (23%). Our data suggest that PPD screening through 12 months may be most beneficial for families.


2022 ◽  
Vol 12 (1) ◽  
pp. 8-16
Author(s):  
Hyun-Ok Jung ◽  
Seung-Woo Han

Introduction: The purpose of this study was to understand the differences in variables related to health and safety according to the employment type of Korean workers, specifically to identify the differences by employment type on in health status, the likelihood of wearing protective gear when working, access to manuals on emotional expression, and access to information on risk factors related to health and safety. Methods: The secondary data of four items on employment type, health type of workers and safety among the 5th Korean Working Condition Survey conducted in 2017 in Korea was used in this study. The data of workers were processed by using SPSS/WIN 23.0 Program and R 3.1.2, and demographic characteristics were quantified as frequency and percentage.  Results: A total of 30,300 employed people were surveyed. The result shows that part-time workers have poorer health than full-time workers (c2 = 540.7155, p < 0.05), insufficiently wore protective gear (c2 = 24.8702, p < 0.05), had insufficient access to manuals on emotional expression (c2 = 27.7612, p < 0.05) and lacked information about risk factors (c2 = 185.0082, p < 0.05). Conclusion: Health and safety manager will need to have education and consultation, development of manual and perform an early intervention to improve safety environment as primary health care providers by understanding factors related to health and safety of part-time workers.


Author(s):  
Kira Scheel ◽  
Thomas Franke ◽  
Alisha Weikert ◽  
Melanie Dick ◽  
Anna Walter ◽  
...  

In cancer registries, record linkage procedures are used to link records of the same patient from different health care providers. In the Clinical Cancer Registry of Lower Saxony, a multi-level combination of exact assignment using the statutory health insurance number and a probabilistic procedure with control numbers and address data is applied. The procedure implemented in the register application assigns the incoming messages in this way as far as possible automatically. The aim of the observation carried out was to check the efficiency of the match variables and threshold values used, above which manual assignment is required. Weak points were identified and approaches to solutions were developed.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 165-165
Author(s):  
Eunkyung Kim ◽  
TaeWha Lee ◽  
Yoonjung Ji

Abstract Multimorbidity has become a global concern for an aging society. It has been reported to be associated with increased health service utilization, leading to poor health outcomes including quality of life. However, the incidence of multimorbidity and its related factors are poorly understood. The aim of this study was to determine the socioeconomic and health-related factors predicting the incidence of multimorbidity in Korean older adults using longitudinal secondary data from the Korean Longitudinal Study of Aging (KLoSA) dataset from 2008 to 2018. The KLoSA aimed to collect basic data to be used for developing socioeconomic policy for the aging society in Korea. The sample included 3,019 older adults aged 65 years and over who had 0-2 chronic diseases at baseline in 2008. Multimorbidity was measured with the incidence of co-existence of three or more chronic diseases using Cox’s proportional-hazards model. Among 3,019 respondents (female 57.6%, mean age 73.07±6.30 years), 586 (19.4%) incidents of multimorbidity were reported after 10 years of follow-up. Low participation in social activities, being overweight or obesity, more depressive symptoms, current or past drinkers, and lower life satisfaction were identified as significant predictors of multimorbidity among Korean older adults. This study identified high risk groups with overlapping senility and multimorbidity, who require more attention from health care providers in the course of chronic disease monitoring and management. This longitudinal approach will contribute to the development of preventive strategies to reduce the incidence of multimorbidity among older adults.


2019 ◽  
Vol 39 (11) ◽  
pp. 1203-1212
Author(s):  
Mijung Lee ◽  
Ji Hoon Ryoo ◽  
Cathy Campbell ◽  
Patricia J. Hollen ◽  
Ishan C. Williams

Caregiving for older adults with cognitive impairment can be more difficult as caregivers are required to perform medical/nursing tasks at home. Little is known about medical/nursing tasks and their relationship to caregivers’ characteristics and their effects on caregiver burden. Secondary data analyses were conducted with 423 caregivers of individuals with cognitive impairment from the 2015 National Alliance for Caregiving (NAC) and American Association of Retired Persons (AARP) data. In terms of the caregiving context, caregivers who performed medical/nursing tasks lived with the care recipients and provided longer hours of care than caregivers who did not perform medical/nursing tasks. When caregivers delivered medical/nursing tasks, they were 2 times more likely to experience higher levels of caregiver burden. Medical/nursing tasks can exacerbate caregiver burden. Health care providers’ explanations of the needs and the benefits of performing medical/nursing tasks, as well as education and training for the tasks, are needed to reduce caregiver burden.


2015 ◽  
Vol 33 (27) ◽  
pp. 3065-3073 ◽  
Author(s):  
Carlos Rodriguez-Galindo ◽  
Paola Friedrich ◽  
Patricia Alcasabas ◽  
Federico Antillon ◽  
Shripad Banavali ◽  
...  

Advances in the treatment of childhood cancers have resulted in part from the development of national and international collaborative initiatives that have defined biologic determinants and generated risk-adapted therapies that maximize cure while minimizing acute and long-term effects. Currently, more than 80% of children with cancer who are treated with modern multidisciplinary treatments in developed countries are cured; however, of the approximately 160,000 children and adolescents who are diagnosed with cancer every year worldwide, 80% live in low- and middle-income countries (LMICs), where access to quality care is limited and chances of cure are low. In addition, the disease burden is not fully known because of the lack of population-based cancer registries in low-resource countries. Regional and ethnic variations in the incidence of the different childhood cancers suggest unique interactions between genetic and environmental factors that could provide opportunities for etiologic research. Regional collaborative initiatives have been developed in Central and South America and the Caribbean, Africa, the Middle East, Asia, and Oceania. These initiatives integrate regional capacity building, education of health care providers, implementation of intensity-graduated treatments, and establishment of research programs that are adjusted to local capacity and local needs. Together, the existing consortia and regional networks operating in LMICs have the potential to reach out to almost 60% of all children with cancer worldwide. In summary, childhood cancer burden has been shifted toward LMICs and, for that reason, global initiatives directed at pediatric cancer care and control are needed. Regional networks aiming to build capacity while incorporating research on epidemiology, health services, and outcomes should be supported.


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