scholarly journals Dukungan Keluarga Dalam Peningkatan Kualitas Hidup Pasien Dengan Gagal Ginjal Kronik Di Rsud dr. Doris Sylvanus Palangka Raya

2019 ◽  
Vol 10 (2) ◽  
pp. 795-808
Author(s):  
Putria Carolina ◽  
Zia Abdul Aziz
Keyword(s):  
Quality Of Life ◽  
Family Support ◽  
Support System ◽  
Kidney Failure ◽  
Family Members ◽  
Chronic Kidney Failure ◽  
Kidney Damage ◽  
Electrolyte Balance ◽  
The Family

Latar Belakang: Gagal ginjal kronis (GGK) adalah kerusakan ginjal yang bersifat progresif dan ireversibel sehingga fungsi ginjal menghilang serta terjadi kerusakan ginjal progresif yang berakibat fatal dan ditandai dengan uremia (urea dan limbah nitrogen lainnya) yang beredar dalam darah serta komplikasinya jika tidak dilakukan dialisis atau transplantasi ginjal. GGK atau penyakit ginjal tahap akhir merupakan gangguan fungsi ginjal yang progresif dan ireversibel dimana kemampuan tubuh gagal untuk mempertahankan metabolisme dan keseimbangan cairan dan elektrolit, menyebabkan uremia (retensi urea dan sampah nitrogen lainnya dalam darah. Peran keluarga sangat penting bagi setiap aspek perawatan kesehatan anggota keluarga. Dukungan keluarga pada pasien dengan gagal ginjal kronik berupa dukungan instrumental, dukungan informasional, dukungan emosional, dukungan penghargaan dan dukungan harga diri. Dukungan keluarga ini diberikan sepajang hidup pasien yang menunjang untuk penyembuhan pasien. Kualitas hidup adalah ukuran konseptual atau operasional yang sering digunakan dalam situasi penyakit kronik sebagai cara untuk menilai dampak terapi pada pasien. Pengukuran konseptual mencakup kesejahteraan, kualitas kelangsungan hidup, kemampuan seseorang untuk secara mandiri melakukan kegiatan sehari-hari. Kualitas merupakan sasaran utama yang ingin dicapai di bidang pembangunan sehingga kualitas hidup ini sejalan dengan tingkat kesejahteraan. Diharapkan semakin sejahtera maka kualitas hidup semakin tinggi. Kualitas hidup ini salah satunya dipengaruhi oleh derajat kesehatan. Semakin tinggi derajat kesehatan seseorang maka kualitas hidup juga semakin tinggiTujuan: Penelitian ini bertujuan untuk memperoleh gambaran dukungan keluarga dalam meningkatkan kualitas hidup pasien dengan gagal ginjal kronik di RSUD Dr. Doris Sylvanus Palangka Raya.Metode: Pengumpulan data dilakukan dengan wawancara mendalam pada sembilan orang partisipan yaitu keluarga yang anggota keluarganya menjalani Hemodialisa di Unit Hemodialisa RSUD Dr. Doris Sylvanus Palangka Raya. Analisis data yang digunakan menggunakan teknik Collaizi.Hasil: Terdapat lima tema yang teridentifikasi dalam penelitian ini yaitu respon berduka; respon menerima; dampak psikososial; dampak spiritual dan dukungan keluarga. Simpulan: Berdasarkan hasil penelitian ini diharapkan perawat meningkatkan peran dan fungsinya dengan baik dalam melaksanakan asuhan keperawatan professional dengan melibatkan keluarga sebagai support system sehingga dapat dicapai kualitas hidup pasien dengan optimal.Kata Kunci: dukungan keluarga, GGK, kualitas hidup Background: Chronic kidney failure (CKD) is kidney damage that is progressive and irreversible so that kidney function disappears and progressive kidney damage occurs which is fatal and is characterized by uremia (urea and other nitrogen wastes) circulating in the blood and its complications if no dialysis is performed or kidney transplant. CKD or end-stage kidney disease is a progressive and irreversible renal function disorder where the body's ability to fail to maintain metabolism and fluid and electrolyte balance, causes uremia (retention of urea and other nitrogenous wastes in the blood. The role of the family is very important for every aspect of health care for family members Family support for patients with chronic kidney failure in the form of instrumental support, informational support, emotional support, appreciation support and self-esteem support This family support is given as long as a patient's life that supports patient recovery.Quality of life is a conceptual or operational measure that is often used in chronic disease situation as a way to assess the impact of therapy on patients Conceptual measurements include well-being, quality of survival, ability of a person to independently carry out daily activities Quality is the main target to be achieved in development so that the quality of life is in line with the level of welfare. It is hoped that the more prosperous the higher the quality of life. Quality of life is one of them influenced by the degree of health. The higher the degree of one's health, the higher the quality of life.Objective: This study aims to obtain a picture of family support in improving the quality of life of patients with chronic kidney failure at RSUD Dr. Doris Sylvanus Palangka Raya.Method: Data collection was carried out by in-depth interviews with nine participants, namely families whose family members underwent Hemodialysis in the Hemodialysis Unit of RSUD Dr. Doris Sylvanus Palangka Raya. Analysis of the data used using the Collaizi technique.Results: There were five themes identified in this study, namely the grieving response; response received; psychosocial impact; spiritual impact and family support.Conclusion: Based on the results of this study nurses are expected to increase their role and function properly in implementing professional nursing care by involving the family as a support system so that optimal quality of life of patients can be achieved.Keywords: family support, CRF, quality of life.

RELATIONSHIP OF FAMILY SUPPORT WITH QUALITY OF LIFE OF HEMODIALIZED PATIENTS USING STUDY LITERATURE REVIEW METHOD

2021 ◽  
Vol 2 (2) ◽  
pp. 132
Author(s):  
Hulu Titusman ◽  
Nanang Prasetyo Budi ◽  
Rina Puspita Sari
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Family Support ◽  
Kidney Failure ◽  
Chronic Kidney Failure ◽  
Hemodialysis Patients ◽  
Original Research ◽  
Relationship Of ◽  
The Relationship

Background : Hemodialysis is one of the therapies for Chronic Kidney Failure (CKD) patients. This process takes place on an ongoing basis which is closely related to the quality of life. Quality of life is strongly influenced by family support. One form of family support is emotional support which includes forms of affection, trust, attention, assistance during therapy. With this support, it affects patient compliance with therapy programs and medical treatment programs so that it will improve the patient's quality of life. Objective: To determine the relationship between family support and quality of life of hemodialysis patients. Based on journals that have been analyzed by researchers using a literature review research design or literature review study literature review Methods: search for this research article through four databases, namely Google Scholar, ProQuest, EBSCO, and PubMed using keywords and inclusion criteria, namely 21 journal using Indonesian and English, the type of article publication is full-text articles, original research articles, articles that have ISSN and DOI, the theme of the article is the relationship of family support with the quality of life of hemodialysis patients, in the 2016-2021 period with the literature review method. Results: The results of this study showed a significant relationship between family support and quality of life of hemodialysis patients with p-value=0,001 <a=0.05 with a positive correlation direction with low correlation strength. Conclusion: The higher the support from the family, the better the quality of life for chronic kidney failure patients undergoing hemodialysis.

DOZ047.05: The flip side of the coin

2019 ◽  
Vol 32 (Supplement_1) ◽  
Author(s):  
C de Vos ◽  
W de Vos ◽  
D Sidler
Keyword(s):  
Quality Of Life ◽  
Esophageal Atresia ◽  
Support System ◽  
Emotional Support ◽  
Personal Experience ◽  
Treatment Plan ◽  
Family Practitioner ◽  
Rare Type ◽  
The Family

Abstract Background Being two medical doctors (family practitioner and pediatric surgeon) with a son born with a rare type of esophageal atresia we felt the need to explore the nonmedical side of this disease. Aim The aim of this study was to emphasize the role of emotional support for parents with children born with all types of esophageal atresia and to realize the importance of the nonsurgical side—the flip side of the coin, to explore the need for support not only for the patient but also the family. Literature Review and Personal Experience The epidemiology, surgical management, and biological outcome of esophageal atresia with/without trachea-esophageal fistula are well known. The softer, more humane side of this condition, the flipside of the coin, being the cause of PTSD children with OA (mothers > fathers).2 Severe anxiety also seems to be present in some of these parents. A meta-analysis done in 2013 concluded that psychological morbidity associated with esophageal atresia has important implications for clinical practise3; namely, if psychological support is being offered to parents during the neonatal period and continues as part of the long-term follow-up for both parents and the patients, the overall outcome is improved and the biopsychosocial morbidity of the parents decreases. Personal experience has taught us that a good support system is a critical part of a child's clinical treatment plan. Parents need good emotional support in order to be there for their child when he or she needs them. Conclusion Surgeons look at diseases from a technical point of view. They ask how they can surgically fix the problem and improve the patient's quality of life. They often forget the other side that parents need emotional support, someone to be there for them and to listen to their experience in hospital and at home. The family as another patient needs to be treated and included in the overall treatment plan if the intention is to improve the quality of life for both the patients and their families. There is a need to develop a multidisciplinary support system in South Africa to aid patients born with OA and their caring families. This includes the entire family and is not limited to the mothers but also includes fathers and other siblings often overlooked.

scholarly journals Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities

2020 ◽  
Vol 17 (23) ◽  
pp. 9007
Author(s):  
Cristina Jenaro ◽  
Noelia Flores ◽  
Belén Gutiérrez-Bermejo ◽  
Vanessa Vega ◽  
Carmen Pérez ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Parenting Stress ◽  
Parental Stress ◽  
Family Members ◽  
Family Quality Of Life ◽  
Quality Of Life Scale ◽  
The Family ◽  
The Impact

(1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed.

scholarly journals Family perceptions of intellectual disability: Understanding and support in Dar es Salaam

2012 ◽  
Vol 1 (1) ◽  
Author(s):  
Heather M. Aldersey
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Family Support ◽  
Family Members ◽  
Dar Es Salaam ◽  
Family Quality Of Life ◽  
Adults With Intellectual Disabilities ◽  
Family Perceptions ◽  
The Individual

When attempting to understand the construct of intellectual disability in different contexts, speaking to family members in addition to the individual with the disability may provide new insight about understandings of and responses to intellectual disability in society and may help to identify the forms of support that are available or needed to ensure the quality of life of people with disabilities. This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam. Understanding family experiences will help researchers, policy makers, non-governmental organisations, and others to identify family strengths and family support needs which can ultimately improve family quality of life and the quality of life of the member with a disability.

scholarly journals Transactional Analysis as a Method to Test the Quality of Life of a Family

2015 ◽  
Vol 5 (1) ◽  
pp. 27-38
Author(s):  
Dorota Strzelczyk
Keyword(s):  
Quality Of Life ◽  
Complex System ◽  
Interpersonal Communication ◽  
Interpersonal Relationships ◽  
Family Environment ◽  
Family Members ◽  
Transactional Analysis ◽  
Open Disclosure ◽  
The Family

Abstract One of the actions that affect the quality of life of the family as a complex system of relationships is interpersonal communication that takes place between the members of the family. In line with the transactional analysis, the trend in psychology founded by E. Berne, relationships between individuals should be based on honest and open disclosure of one’s desires and attitudes, i.e. variety of transactions. Otherwise, there are specific game leading to maintain and increase the distance between family members, weaken the ties between them and leading to a reduction in the quality of interpersonal relationships. The paper below aims to make closer the problems of transactional analysis, beginning from the explanation of the structure of “Ego” according to Berne and the terms “transactions”, “reinforcement” and “life scripts”. There will be presented also games played in family environment and their consequences for the proper functioning of the family.

scholarly journals Meningkatkan Kualitas Hidup Penderita HIV/AIDS Melalui Penggunaan Antiretroviral (ARV) dan Dukungan Keluarga

2020 ◽  
Vol 2 (2) ◽  
pp. 52-59
Author(s):  
Saiful Batubara ◽  
Adhi Marfitra
Keyword(s):  
Quality Of Life ◽  
Family Support ◽  
Sampling Method ◽  
Medical Checkup ◽  
Descriptive Research ◽  
The Family ◽  
Quantitative Descriptive ◽  
The Relationship ◽  
Hiv Aids

The damage to the immune system in people with HIV infection resulted in them being easily attacked by other diseases, especially the decrease in the quality of life of HIV-AIDS sufferers. Therefore, the purpose of this research is to know the relationship between compliance with antiretroviral use and family support in improving the quality of life of people with HIV-AIDS. For that, quantitative descriptive research with the population is the entire patient with HIV-AIDS. They undergo medical checkup at Budi Kemuliaan hospital-Batam aged between 20-35 years which amounted to 76 people and samples as many as 60 people selected using the Purposive sampling method. The results showed a significant link between compliance with the use of antiretroviral and quality of life and the relationship between the quality of life with the support of the family in HIV/AIDS patients at the Budi Kemuliaan hospital-Batam.  

scholarly journals Faktor-Faktor yang Mempengaruhi Kualitas Hidup Pasien Chronic Kidney Disease yang Menjalani Hemodialisa di Ruang Hemodialisa

2018 ◽  
Vol 1 (2) ◽  
pp. 32-46
Author(s):  
Handi Rustandi ◽  
Hengky Tranado ◽  
Tinalia Pransasti
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Family Support ◽  
Sampling Technique ◽  
High Quality ◽  
The Public ◽  
The Family ◽  
Provide Health Education

This study aimed to describe the factors that affect the quality of life of patients with CRF who undergo hemodialysis in dr. M. Yunushospital in Bengkulu 2016. The population of study is 205 people, the sampling technique used was an accidental sampling with a sample of 67 respondents.The results showed nearly all respondents aged smaller than 20 and greather than 35 years, more than the majority of respondents were female, more than the majority of respondents had pretty income or more, almost half of respondents had high levels of depression, more than the majority of respondents had either the family support, more than the majority of respondents had a high quality of life, there was a correlation between age, gender, producer, depression, and family support with quality of life, there was a relationship between sex with the quality of life for CRF patients undergoing hemodialysis in dr. M. Yunus Hospital in Bengkulu 2016.It is advisable for the public to provide health education for families of patients with CRF who undergo hemodialysis therapy on the importance of family support in improving the quality of life of family members. Keywords: Accidental Sampling, Chronic Kidney Disease, Hemodialysis, Quality of Life.    

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