scholarly journals “What We Want Is More Access…”: Experiences of Supportive Cancer Care and Strategies for Advancement in a Canadian Provincial Cancer Care Organization

2021 ◽  
Vol 28 (3) ◽  
pp. 2227-2238
Author(s):  
Jonathan Avery ◽  
Hannah K. Schulte ◽  
Kristin L. Campbell ◽  
Alan Bates ◽  
Lisa McCune ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Care ◽  
Relevant Information ◽  
Care Organization ◽  
Physical And Mental Health ◽  
Supportive Cancer Care ◽  
Social Challenges ◽  
Barriers To Access ◽  
Qualitative Descriptive ◽  
Caregiver Experiences

Objectives: Despite calls for better supportive care, patients and families still commonly bear significant responsibility for managing the physical and mental health and social challenges of being diagnosed with and treated for cancer. As such, there is increased advocacy for integrated supportive care to ease the burden of this responsibility. The purpose of this study was to understand patient and caregiver experiences with supportive care to advance its delivery at a large provincial cancer care organization in Canada. Method: We used a qualitative descriptive approach to analyze focus groups with patients and caregivers from seven sites across the large provincial cancer care organization. Results: Focus group participants (n = 69) included cancer patients (n = 57) and caregivers (n = 12). Participants highlighted positive and negative aspects of their experience and strategies for improvement. These are depicted in three themes: (1) improving patient and provider awareness of services; (2) increasing access; (3) enhancing coordination and integration. Participants’ specific suggestions included centralizing relevant information about services, implementing a coach or navigator to help advocate for access, and delivering care virtually. Conclusions: Participants highlighted barriers to access and made suggestions for improving supportive care that they believed would reduce the burden associated with trying to manage their cancer journey.

Supportive care interventions for people with cancer assisted by digital technology: A systematic review (Preprint)

2020 ◽  
Author(s):  
Michael Marthick ◽  
Deborah McGregor ◽  
Jennier A. Alison ◽  
Birinder Cheema ◽  
Haryana Dhillon ◽  
...  
Keyword(s):  
Systematic Review ◽  
Supportive Care ◽  
Randomized Controlled Trials ◽  
Outcome Measures ◽  
Cancer Care ◽  
Digital Health ◽  
Health Interventions ◽  
Controlled Trials ◽  
Supportive Cancer Care ◽  
Randomized Controlled

BACKGROUND While relatively new, digital health interventions are demonstrating rapid growth due to their ability to facilitate access and overcome issues of location, time, health status, and most recently, the impact of a major pandemic. With the increased uptake of digital technologies, digital health has the potential to improve the provision of supportive cancer care. OBJECTIVE The purpose of this systematic review was to evaluate digital health interventions in supportive cancer care. METHODS Published literature between 2000 and 2020 was systematically searched in Medline, PubMed, Embase, PsycINFO, Cochrane Central Register of Controlled Trials and Scopus. Eligible publications were randomized controlled trials (RCTs) of clinician led digital health interventions to support adult cancer patients. Included interventions were determined by applying a digital health conceptual model. Studies were appraised for quality using the revised Cochrane risk of bias tool. RESULTS Twenty randomized controlled trials met the inclusion criteria for analysis. Interventions varied by duration, frequency, degree of technology use and applied outcome measures. Interventions targeting a single tumour stream, predominantly breast cancer, and studies involving the implementation of remote symptom monitoring dominated results. In most studies the digital intervention resulted in significant positive outcomes in patient reported symptoms, levels of fatigue and pain, health-related quality of life, functional capacity, and/or depression levels compared to control. CONCLUSIONS Digital health interventions are helpful and effective for the supportive care of patients with cancer. There is a need for higher quality research. Future endeavours could focus on use of valid, standardised outcome measures, maintenance of methodological rigour, and strategies to improve patient and health professional engagement in the design and delivery of supportive digital health interventions. CLINICALTRIAL

Supportive cancer care in-patient unit: A 3-year experience.

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 185-185
Author(s):  
Florian Scotte ◽  
Karine Legeay ◽  
Thyphaine Maupoint de Vandeul ◽  
Pauline Leroy ◽  
Christophe Aubaret ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Care ◽  
Early Stage ◽  
Average Length ◽  
Specific Treatment ◽  
Emergency Admission ◽  
Improve Patient Care ◽  
Primary Objective ◽  
Early Screening ◽  
Supportive Cancer Care

185 Background: An in-patient unit for supportive care in oncology (USSO) was created in 2011 in the Georges Pompidou European Hospital. Its primary objective is to improve patient care and manage the complications of cancer as well as their specific treatment. Patients are previously screened by a cross disciplinary team at an early stage before complication. Methods: A prospective observational study was performed through a yearly evaluation of the unit’s activity from January 1st, 2011 to December 31st, 2013. Results: 594 patients were admitted in the unit during the three years period of study. Most of them (64.3%) came directly from home, with an increase of this rate along this period (59.4% to 67.6%). The early screening thereby rendered emergency admission from 17.7% (2011) to 6.5% (2013). The predominant diseases observed were head and neck cancer (42.4%) and lung cancer (23%), followed by breast (7.2%) and ovarian cancer (7.2%). The main grounds for hospitalization were state of health impairment 32%, pain 12.8%, and invasive procedures 11.8%, increasing from 2011 to 2013. Therefore, an interdisciplinary approach is the cornerstone of the unit with the daily collaboration of dieticians (for 90% of inpatients), social workers, psychologists, physiotherapists and pain specialists (34%, 46%, 56% and 50% of inpatients respectively). The average length of stay decreased from 2011 (10.2 days) to 2013 (8.3 days) and 58.4% of the patients were home discharged. With the help of a social worker, 12% of the patients were transferred to a recovery unit and 9.7% to a palliative care unit while 9% died in the unit. Conclusions: With the opening of the in-patient USSO, and the development of its interdisciplinary strategy, most of the patients recover faster and regain better health. Preventive care can accommodate a majority of patients coming from home and allows for ambulatory secured discharge. These positive results conducted to enhance the USSO’s beds capacity and supportive care development in order to improve cancer care organisation in the hospital as well as patient’s quality of life.

Intelligent Processing of Loosely Structured Documents as a Strategy for Organizing Electronic Health Care Records

1993 ◽  
Vol 32 (04) ◽  
pp. 265-268 ◽  
Author(s):  
D. J. Essin
Keyword(s):  
Health Care ◽  
Health Care Organization ◽  
Database Systems ◽  
Relevant Information ◽  
Full Potential ◽  
Care Organization ◽  
Intelligent Processing ◽  
Data Interchange ◽  
Structured Documents ◽  
Health Care Records

AbstractLoosely structured documents can capture more relevant information about medical events than is possible using today’s popular databases. In order to realize the full potential of this increased information content, techniques will be required that go beyond the static mapping of stored data into a single, rigid data model. Through intelligent processing, loosely structured documents can become a rich source of detailed data about actual events that can support the wide variety of applications needed to run a health-care organization, document medical care or conduct research. Abstraction and indirection are the means by which dynamic data models and intelligent processing are introduced into database systems. A system designed around loosely structured documents can evolve gracefully while preserving the integrity of the stored data. The ability to identify and locate the information contained within documents offers new opportunities to exchange data that can replace more rigid standards of data interchange.

Socio Demographic and Clinical Profile of Indoor Female Patients of RINPAS

2017 ◽  
Vol 8 (1) ◽  
pp. 33
Author(s):  
Rajni Suri ◽  
Anshu Suri ◽  
Neelam Kumari ◽  
Amool R. Singh ◽  
Manisha Kiran
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Mentally Ill ◽  
Mental Health Problems ◽  
Demographic Data ◽  
Relevant Information ◽  
Health Problems ◽  
High Rate ◽  
Physical And Mental Health ◽  
Cross Sectional

The role of women is very crucial in our society. She cares for her parents, partner, children and other relatives. She performs all types of duties in family and also in the society without any expectations. Because of playing many roles, women often face many challenges in their life including both physical and mental. Mental health problems affect women and men equally, but some problems are more common among women including both physical and mental health problems. Aim of the study - The present study is aimed to describe and compare the clinical and socio-demographic correlates of female mentally ill patients. Methods and Materials: The study includes 180 female mentally ill patients based on cross sectional design and the sample for the study was drawn purposively. A semi structured socio-demographic data sheet was prepared to collect relevant information as per the need of the study. Result: The present study reveals that the socio-demographic factors contribute a vital role in mental illness. Findings also showed that majority of patients had mental problems in the age range of 20-30 have high rate. Illiterate and primary level of education and daily wage working women as well as low and middle socio-economic status women are more prone to have mental illness. Other factors like marital status, type of family and religion etc also important factors for mental illness. Keywords: Socio demographic profile, female, psychiatric patient

scholarly journals An Innovative Tai Chi and Qigong Telehealth Service in Supportive Cancer Care During the COVID-19 Pandemic and Beyond

2020 ◽  
pp. 155982762098376
Author(s):  
Byeongsang Oh ◽  
Diana Van Der Saag ◽  
Morita Morgia ◽  
Susan Carroll ◽  
Frances Boyle ◽  
...  
Keyword(s):  
Cancer Care ◽  
Standard Care ◽  
Tai Chi ◽  
Improve Quality ◽  
Supportive Cancer Care ◽  
Cancer Symptoms ◽  
Face To Face ◽  
Care Services ◽  
Telehealth Service

Supportive cancer care services, including acupuncture and Tai Chi and Qigong (TQ), are offered to cancer patients to manage cancer symptoms and/or treatment-related adverse effects and improve quality of life during and after standard care. Normal face-to-face acupuncture and TQ group services were suspended during the coronavirus (COVID-19) pandemic to reduce the risk of transmission of infection and meet social distancing restriction guidelines. This led to a sudden shift from face-to-face sessions to telehealth sessions in the health care system. We report patients’ experiences of TQ telehealth services as a new initiative developed for cancer care. We found that delivery of TQ telehealth is feasible and resulted in increased overall patient satisfaction with cancer care services during the lockdown. The delivery of TQ telehealth experiences and challenges are discussed.

The Curcumin and Gingerol Combination as an Immune Regulator and Anti-Inflammatory Agent of SARS-CoV Infection According to a Nutrigenomic Approach: A Mini-Review

2021 ◽  
Vol 11 ◽  
Author(s):  
Ketut Agus Adrianta ◽  
I Gede Bayu Somantara
Keyword(s):  
Healing Process ◽  
Relevant Information ◽  
Synergistic Activity ◽  
Literature Study ◽  
Necrosis Factor Alpha ◽  
Inflammatory Agent ◽  
Qualitative Descriptive ◽  
Anti Inflammatory ◽  
Endogenous Antioxidant ◽  
Online Library

Introduction: The COVID-19 pathophysiology caused by SARS-Cov-2 is closely related to immunoregulation and process of inflammation. There are therapeutic targets in both, which are ideal for the healing process of infected patients. Phytonutrients are closely related to nutrigenomics. Curcumin and gingerol are two types of phytonutrients that have been studied, researched, and developed as therapeutic agents for diseases. Objective: This study aimed to examine the potential of curcumin and gingerol as immune regulators and anti-inflammatory agents in SARS-CoV-2 infections using a nutrigenomic approach. Methods: This article uses the literature study method. Relevant information was gathered from scientific engines and databases (Google Scholar, Elsevier, Science Direct, Scopus, Wiley Online Library, PubMed) published 2010-2021, the data were analyzed by deductive qualitative descriptive technique. Result and Discussion: Curcumin in turmeric and gingerol in ginger has the potential to be used as a therapy for COVID-19 as it could be an immune regulator and anti-inflammatory agent for SARS-CoV-2 infection. Curcumin and gingerol can act as primary and secondary antioxidants that can activate endogenous antioxidant enzymes, regulate cell signaling related to immunity such as interferons, nuclear factor-kappa beta, nitric oxide, and tumor necrosis factor-alpha, as well as stimulate anti-inflammatory and pro-inflammatory cytokine homeostasis, especially interleukins (IL-1β, IL-6, IL-17, IL-8). In silico, these two compounds were also proven to have potential as SARS-CoV-2 antivirals by acting as viral protease inhibitors. Conlclusion: The combination of curcumin and gingerol showed synergistic activity with increasing antioxidant and anti-inflammatory capacities. Thus, it has great potential for use in COVID-19 therapy.

scholarly journals Psychometric validation of a Patient-Centred Quality of Cancer Care Questionnaire in Mexico

BMJ Open ◽  
2020 ◽  
Vol 10 (3) ◽  
pp. e033114 ◽  
Author(s):  
Svetlana V Doubova ◽  
Ingrid Patricia Martinez-Vega ◽  
Marcos Gutiérrez-De-la-Barrera ◽  
Claudia Infante-Castañeda ◽  
Carlos E Aranda-Flores ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Care ◽  
Convergent Validity ◽  
Supportive Care Needs ◽  
Psychometric Validation ◽  
Cronbach’S Alpha ◽  
Care Needs ◽  
Cronbach's Alpha ◽  
Quality Of Life Scale

ObjectivesTo develop and validate a Patient-Centred Quality of Cancer Care Questionnaire in Spanish (PCQCCQ-S) appropriate to the Mexican context.DesignPsychometric validation of a questionnaire.SettingTwo public oncology hospitals in Mexico City.Participants1809 patients with cancer aged ≥18 years.Source of informationCross-sectional survey.MethodsThe validation procedures comprised (1) content validity through a group of experts and patients; (2) item reduction and evaluation of the factor structure, through an exploratory factor analysis based on the polychoric correlation matrix; (3) internal consistency using Cronbach’s alpha; (4) convergent validity between the PCQCCQ-S and supportive care needs scale; (5) correlation analysis between the PCQCCQ-S and quality of life scale by calculating Spearman’s rank-correlation coefficient; and (6) differentiation by ‘known groups’ through the Wilcoxon rank-sum test.ResultsThe PCQCCQ-S has 30 items with the following five factors accounting for 96.5% of the total variance: (1) timely care; (2) clarity of the information; (3) information for treatment decision-making; (4) activities to address biopsychosocial needs; and (5) respectful and coordinated care. Cronbach’s alpha values ranged from 0.73 to 0.90 among the factors. PCQCCQ-S has moderate convergent validity with supportive care needs scale, revealing that higher quality is correlated with lower patient needs. PCQCCQ-S has acceptable ability to differentiate by ‘known groups’, showing that older patients and those with low levels of education perceived lower total quality of care as compared with their counterparts.ConclusionPCQCCQ-S has acceptable psychometric properties and can be used to measure quality of patient-centred cancer care in Mexico and serve as a reference to develop PCQCCQ-S in other Spanish-speaking countries.

scholarly journals Activo distribution and paraphernalia among “street children”

Salud Mental ◽  
2017 ◽  
Vol 40 (4) ◽  
pp. 165-170
Author(s):  
Arturo Ortiz Castro ◽  
◽  
Mario J Domínguez García ◽  
Gabriela Palomares Calderón ◽  
María Elena Medina-Mora ◽  
...  
Keyword(s):  
Mexico City ◽  
Street Children ◽  
Social Characteristics ◽  
Physical And Mental Health ◽  
Men And Women ◽  
Ethnographic Observation ◽  
Qualitative Descriptive ◽  
User Groups ◽  
And Storage ◽  
Consumption Dynamics

Introduction. The use of solvent inhalants has been documented in Mexico since the 1970s. Nevertheless, very little is known about the distribution and use dynamics among “street children”. Few have ventured to study this issue because of the difficulties involved in working with marginalized, relatively inaccessible populations. Objective. To analyze the distribution and consumption dynamics of activo, as it is known among street children in downtown Mexico City, and to document the paraphernalia and argot associated with these practices. Method. This is a qualitative, descriptive, and interpretative study guided by the “Meeting Place” approach used by Hughes (1977), which has been adapted to Mexican population by Ortiz (1979). We also used ethnographic observation techniques and a social and immersion mapping of street spaces that allowed us to contact and relate to both informants and users. Results. We identified activo distributors and storage areas; user groups were made up of men and women in a 7-3 ratio; physical and psycho-social characteristics of sellers and users, and some street argot and paraphernalia that allowed us to understand the dynamics of distribution and consumption. Discussion and conclusion. The activo market is both captive and hidden; it is detrimental to the physical and mental health of street children, and is fostered by social exclusion and the lack of legislation.

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