scholarly journals Active Parents–Active Children—A Study among Families with Children and Adolescents with Down Syndrome

2021 ◽  
Vol 18 (2) ◽  
pp. 660
Author(s):  
Ann-Christin Sollerhed ◽  
Gerth Hedov
Keyword(s):  
Public Health ◽  
Down Syndrome ◽  
Children And Adolescents ◽  
Multiple Logistic Regression ◽  
Public Health Perspective ◽  
Physically Active ◽  
Children With Down Syndrome ◽  
The Family ◽  
Chi Squared ◽  
Families With Children

From a public health perspective, it is important that children with Down syndrome (DS) lay the foundations of physical activity (PA) early in life to keep active in school, as teenagers and as adults. The aims were to investigate PA patterns in children and adolescents with DS, as well as their parents’ and siblings’ PA patterns. Methods: A survey was performed among 310 families with children with DS (54% boys and 46% girls) aged 8–18 years (mean 14.04, SD 3.18) in Sweden. Chi-squared tests and multiple logistic regression were carried out. Results: Nineteen percent of children and adolescents with DS and 34% of the parents were active three or more times per week. The child’s PA level was significantly associated with parents’ PA (OR = 5.5), siblings’ PA (OR = 5.1) and the child’s locomotion ability (OR = 3.5). Physically active parents had active children to a greater extent than inactive parents (59% vs. 29%; p < 0.001). Conclusions: Physically active parents have active children. To promote PA among children and adolescents with DS, it is important to promote and pay attention to the parents’ and siblings’ PA behavior, as children with DS are dependent on support from the family.

Orthodontic Aspects on the Chronological and Dental Age in Children with Down Syndrome

2018 ◽  
Vol 69 (1) ◽  
pp. 208-213
Author(s):  
Mariana Pacurar ◽  
Bogdan Dragomir ◽  
Alina Silvana Szalontay ◽  
Cristian Romanec
Keyword(s):  
Down Syndrome ◽  
Emotional Disorders ◽  
Metabolic Diseases ◽  
Genetic Disorder ◽  
Signs And Symptoms ◽  
Deciduous Teeth ◽  
Healthy Children ◽  
Dental Maturation ◽  
Children With Down Syndrome ◽  
The Family

Genetics is a key discipline in medicine, but also a clinical discipline with medical and social implications. The interest in reducing the number of genetic disorders and recognizing the risk of them repeating when a family confronts itself with a genetic anomaly becomes more and more important in the hierarchy of prophylactic emergencies. Presenting themselves as metabolic diseases (monogenic mutations) or malformations (polygenic and multifactorial heredity) because of their frequency, these disorders position themselves on an ascendant curve. They become difficult to deal with for the society, for the family and for the interested individual and cause emotional disorders. The Down syndrome is the most frequent type of genetic disorder. It is characterized by a specific set of signs and symptoms. People with Down syndrome require special medical care that, apart from the family, must include a team of doctors of various specializations and also a dentist. They are predisposed to hearing and sight disorders and thyroid problems as well. In 50% of the cases there are also anomalies of the heart, and the risk of leukaemia is 20 times higher. Some of them even develop an Alzheimer type dementia during their life. The people with Down syndrome can have an average IQ up to a moderate form of handicap. In particular, the studies on Down syndrome in dentistry are quite frequent, but they focus more on cavities, periodontal disease and hypodontia. In spite of this, the connection of Down syndrome and dental eruption is less studied. Consequently, the present study is intended to fill this missing part from the specialized literature, focusing on the relation between the Down syndrome and the chronological and dental ages in children. The health of the oral cavity is neglected in these patients, their parents focusing more on the treatment of the other systemic disorders of their children; the lack of interest is reflected in their poor oral hygiene.The trial group included 94 children with mixt dentition, aged between 6 and 12, divided as follows: 36 children with Down syndrome enrolled at the Educational Centre for Inclusive Education no. 1 of Tg. Mures and Alpha Transilvana Foundation. The chronology and the eruption sequences are subjected to certain variations and they are influenced by the presence of cavities, the premature loss or, on the contrary, the prolonged retention of deciduous teeth as well as dental anchylosis. Dental maturation is less subjected to variations, as it is a progressive, continuous and cumulative process. The presence of Down syndrome in children generates a delay in teeth eruption by 1.27 years compared to the data identified in the specialized literature and to the information obtained on the healthy children included in the study.

scholarly journals Observational Assessment and Maternal Reports of Motivation in Children and Adolescents With Down Syndrome

2011 ◽  
Vol 116 (2) ◽  
pp. 153-164 ◽  
Author(s):  
Linda Gilmore ◽  
Monica Cuskelly
Keyword(s):  
Down Syndrome ◽  
Intellectual Disability ◽  
Children And Adolescents ◽  
Group Differences ◽  
Typically Developing ◽  
Observational Assessment ◽  
Typically Developing Children ◽  
Significant Group ◽  
Children With Down Syndrome ◽  
Maternal Reports

Abstract Despite a lack of consistent empirical evidence, there has been an ongoing assumption that intellectual disability is associated with reduced levels of motivation. The participants in this study were 33 children with Down syndrome ages 10–15 years and 33 typically developing 3–8-year-old children. Motivation was measured through observational assessments of curiosity, preference for challenge, and persistence, as well as maternal reports. There were no significant group differences on motivation tasks, but mothers of children with Down syndrome rated their children significantly lower on motivation than did parents of typically developing children. There were some intriguing group differences in the pattern of correlations among observations and parent reports. The findings challenge long-held views that individuals with intellectual disability are invariably deficient in motivation.

scholarly journals Cuidado à criança e ao adolescente com diabetes mellitus tipo 1

2019 ◽  
Vol 13 (1) ◽  
pp. 111
Author(s):  
Camila Magroski Goulart Nobre ◽  
Aline Rodrigues Costa ◽  
Alex Sandra Minasi ◽  
Silvana Medeiros Possani ◽  
Marina Soares Mota ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Children And Adolescents ◽  
Family Quality Of Life ◽  
Structured Interviews ◽  
Effective Strategies ◽  
Calidad De Vida ◽  
Educational Role ◽  
Analysis Technique ◽  
The Family ◽  
Families With Children

ABSTRACTObjective: to learn about the strategies used by the family for the care of children and adolescents with Type 1 Diabetes Mellitus. Method: this is a qualitative, exploratory and descriptive study developed with 12 family caregivers. The data was collected through semi-structured interviews, subjecting them to the Content Analysis technique. Results: it is related to the main strategy used by the family to care for food adaptation of the child and the adolescent; children and adolescents are encouraged to coexist with others who have diabetes; other families with children with the same condition are sought for the exchange of experience about care. Other strategies are also considered the possibility of family adaptation to care for the child and adolescent and the fact that the adolescents themselves perform their self-care. Conclusion: the educational role of nurses in families is important in helping them to develop effective strategies for the care of children and adolescents with diabetes. Descriptors: Diabetes Mellitus; Child; Adolescent; Family; Quality of life; Nursing.RESUMO Objetivo: conhecer as estratégias utilizadas pela família para o cuidado à criança e ao adolescente com Diabetes Mellitus tipo 1. Método: trata-se de um estudo qualitativo, exploratório e descritivo desenvolvido com 12 familiares cuidadores. Coletaram-se os dados por meio de entrevistas semiestruturadas submetendo-os à técnica de Análise de Conteúdo. Resultados: relaciona-se a principal estratégia utilizada pela família para o cuidado à adaptação alimentar da criança e do adolescente; propicia-se a convivência da criança e do adolescente com outros que tenham diabetes; procuram-se outras famílias com filhos com a mesma condição para se realizar a troca de experiência acerca do cuidado. Consideram-se, também, outras estratégias a possibilidade da adaptação da família ao cuidado à criança e ao adolescente e o fato dos próprios adolescentes realizarem seu autocuidado. Conclusão: conclui-se como importante o papel educativo do enfermeiro junto às famílias no sentido de auxiliá-las no desenvolvimento de estratégias efetivas de cuidado à criança e ao adolescente com diabetes. Descritores: Diabetes Mellitus; Criança; Adolescente; Família; Qualidade de Vida; Enfermagem.RESUMEN Objetivo: conocer las estrategias utilizadas por la familia para el cuidado al niño y al adolescente con Diabetes Mellitus tipo 1. Método: se trata de un estudio cualitativo, exploratorio y descriptivo desarrollado con 12 familiares cuidadores. Se recogen los datos por medio de entrevistas semiestructuradas sometiéndolos a la técnica de Análisis de Contenido. Resultados: se relaciona la principal estrategia utilizada por la familia para el cuidado a la adaptación alimentaria del niño y del adolescente; se propicia la convivencia del niño y del adolescente con otros que tengan diabetes; se buscan otras familias con hijos con la misma condición para realizar el intercambio de experiencia acerca del cuidado. Se considera, también, otras estrategias la posibilidad de la adaptación de la familia al cuidado al niño y al adolescente y el hecho de los propios adolescentes realizar su autocuidado. Conclusión: se concluye como importante el papel educativo del enfermero junto a las familias en el sentido de auxiliarlas en el desarrollo de estrategias efectivas de cuidado al niño y al adolescente con diabetes. Descriptores: Diabetes Mellitus; Niño; Adolescente; Familia; Calidad de Vida; Enfermería.

scholarly journals Features of lesion of ENT-organs in children with Down syndrome

2020 ◽  
pp. 15-18
Author(s):  
A.L. Kosakovskyi ◽  
◽  
Iu. Gavrylenko ◽  
M. Kyianytsia ◽  
◽  
...  
Keyword(s):  
Down Syndrome ◽  
Otitis Media ◽  
Primary Care Physicians ◽  
Significant Proportion ◽  
Acute Otitis Media ◽  
Educational Work ◽  
Children With Down Syndrome ◽  
Obstructive Sleep ◽  
Hearing Test ◽  
Families With Children

Objective: сlinical relevance and prevalence of ENT diseases in children with Down syndrome (DS) of Ukrainian, according to a survey of their parents. Analyze educational work among primary care physicians. Materials and methods. During 2019, 137 respondents, who were parents of children with Down syndrome, were surveyed. Аge varied from 3 months to 18 years. Results. Scheduled medical examinations in ENT doctors have the ability to conduct 81% of families with children with DS. 72.3% of the interviewed had their hearing assessed, of whom 19% had their hearing checked annually. 27.7% of children with DS do not have a hearing test. A significant proportion (81%) of parents of children with DS did not offer to assess the child's hearing. Acute otitis media is more commonly recorded at the age of 1 to 5 years. Surgical treatment for otitis media was performed in 7.2% of patients (tympano puncture/tympanocentesisin 5.1%; performed more than 2 times in 0.7%; middle ear bypass grafting in 1.5%). Acute bacterial rhinosinusitis was noted in 40.9% of children with DS, of which 82.1% had more than 3 episodes of acute rhinosinusitis during their lifetime. Allergies were reported in 34.3%. Obstructive sleep apnea is noted by 26.3%. 70.8% of parents observe their baby's shortness of breath, snoring. As for surgery: adenotomy was performed in 20.5%, of which 1.5% of children performed more than 1 time. Adenotomy is planned in 30% of the respondents. Tonsillectomy was performed in 1.5%, with 0.7% planned for the near future. The research was carried out in accordance with the principles of the Helsinki Declaration. The study protocol was approved by the Local Ethics Committee of participating institution. The informed consent of the parents and patients was obtained for conducting the studies. No conflict of interest was declared by the authors. Keywords: Down syndrome, ENT pathology, ENT organs, children, adolescents.

Promoting participation in physical activity among children and adolescents with Down syndrome

2021 ◽  
Author(s):  
Erin E Wentz ◽  
Julia Looper ◽  
Kristi S Menear ◽  
Dipika Rohadia ◽  
Nora Shields
Keyword(s):  
Physical Activity ◽  
Down Syndrome ◽  
Physical Therapy ◽  
Children And Adolescents ◽  
Physical Therapists ◽  
Treatment Plan ◽  
The United States ◽  
Childhood And Adolescence ◽  
Activity Levels ◽  
Children With Down Syndrome

Abstract Children with Down syndrome often have lower physical activity levels compared to their peers with typical development and face challenges such as medical co-morbidities, access issues and societal stigma, to being physically active. Physical therapists are experts in exercise prescription and physical activity and are thus uniquely qualified to successfully promote participation among children with Down syndrome in spite of inherent challenges. Our perspective is that a shift in physical therapy service delivery is needed. We suggest that physical therapists change the focus of their interventions for children with Down syndrome from underlying impairments such as low tone or joint laxity, or from developing motor skills in isolation and ‘correct’ movement patterns. Instead, physical therapists should allow the physical activity preferences and the environmental contexts of the children and adolescents they are working with to direct the treatment plan. In this way, physical therapy intervention becomes more child centered by concentrating on developing the specific skills and strategies required for success in the child’s preferred physical activity. In this paper, we consider the role of pediatric physical therapists in the United States, as well as in low- and middle- income countries, in promoting and monitoring physical activity in children with Down syndrome from infancy through adolescence. Examples of physical therapist interventions such as tummy time, movement exploration, treadmill training, bicycle riding and strength training are discussed, across infancy, childhood and adolescence, with a focus on how to successfully promote lifelong participation in physical activity.

scholarly journals KOMUNIKASI ORANGTUA UNTUK ANAK PENDERITA DOWN SYNDROME

2019 ◽  
Vol 13 (1) ◽  
pp. 20-33
Author(s):  
Isnawijayani Isnawijayani
Keyword(s):  
Down Syndrome ◽  
Mental Retardation ◽  
Deviant Behavior ◽  
Normal Person ◽  
Children With Down Syndrome ◽  
Daily Life Activities ◽  
The Family ◽  
Areas Of Interest ◽  
And Behavior ◽  
Syndrome Child

The purpose of this study illustrate the Children who are born with disabilities or mental retardation. Has characteristics that are easily recognizable as mental retardation (mental obstacles), visual impairment (visual barriers), hearing impairment (hearing barriers), physical impairment (disability). Seen as a useless person. Not many people know that they can also be self-sufficient and achievement. Communication with parents to see children with Down Syndrome. With descriptive qualitative methods, this study using the Theory of Applied Behaviour Analysis (ABA) on Ivar O.Lavass to change deviant behavior to control the behavior of children with Down syndrome. organize a matter of habit and teaching capabilities required to accept the way of communication and behavior in the family. The author has observed a child with Down syndrome by interviewing parents plus a look at the achievements that can be achieved Down syndrome children. It turned out that the success of Down syndrome children participate in daily life activities, introduced like a normal person, respond to and appreciated. Communication with mercy and patience and practice areas of interest, can make a Down syndrome child independently, achieving even be the name of the nation. Tujuan penelitian ini menggambarkan Anak yang dilahirkan dengan berkebutuhan khusus atau down syndrome. Memilik karakteristik yang mudah dikenali dengan sebutan tunagrahita (hambatan mental), tunanetra (hambatan penglihatan), tunarungu (hambatan pendengaran), tunadaksa (cacat tubuh). Dipandang sebagai orang yang tidak berguna. Belum banyak yang mengetahui bahwa mereka ini juga dapat mandiri dan berprestasi. Dengan melihat Komunikasi orangtua terhadap anak penderita down Syndrom. Dengan metode deskriptif kualitatif, penelitian ini menggunakan Teori Applied BehaviourAnalysis (ABA) dari Ivar O.Lavass yangdapat mengubah perilaku menyimpang untuk mengontrol perilaku anak down syndrome. mengatur masalah kebiasaan dan mengajarkan kemampuan yang diperlukan dengan menerima cara komunikasi dan perilaku dalam keluarganya. Penulis mengamati seorang anak down syndrome dengan mewawancarai orangtuanya ditambah dengan melihat prestasi-prestasi yang dapat diraih anak-anak down syndrom. Ternyata keberhasilan anak down syndrome kesehariannya diikutsertakan dalam aktivitas kehidupan, dikenalkan layaknya orang normal, direspon dan dihargai. Dengan komunikasi kasihsayang dan kesabaran serta latihan bidang yang diminati, dapat menjadikan anak down syndrome mandiri, berprestasi bahkan dapat mengharumkan nama bangsa

scholarly journals “Life Goes On” – everyday life of children with Down syndrome and their families – selected aspects.

2020 ◽  
Author(s):  
Jolanta Lipińska-Lokś
Keyword(s):  
Down Syndrome ◽  
Family Life ◽  
Complex Nature ◽  
Major Event ◽  
Children With Down Syndrome ◽  
Interview Technique ◽  
Need Support ◽  
The Family ◽  
Qualitative Methodologies

The birth of a child is a major event in family life, which makes parents take on an important role in their lives, characterised by new tasks, chief among which are the care and upbringing of their offspring. Unfortunately, in many families, some factors emerge that may affect their functioning, disrupt the course of family life, and leave a permanent mark on the family’s history. Such a situation can be difficult for many –and many parents find the process of accepting a child with a disability (Down syndrome) and themselves as parents of a child with Down syndrome a long and arduous journey, since taking care of a child, upbringing and supporting their development is an issue in itself, but also a challenge for parents. In many cases, both the child and their parents need support in their daily life, ensuring their high quality of life. The objective of this study is to outline the functioning of families of children with Down syndrome. Due to the complex nature of the issue at hand, only selected aspects of the functioning of families were diagnosed, showcasing the changes in the family life and its functioning as a result of the birth of children with Down syndrome. The study was based on qualitative methodologies, by analysing individual cases using interview technique and interview dispositions. The research group comprised 10 families of children with intellectual disabilities, and the interviewed group was made up of 10 mothers and 3 fathers in Zielona Góra.

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