scholarly journals KOMUNIKASI ORANGTUA UNTUK ANAK PENDERITA DOWN SYNDROME

2019 ◽  
Vol 13 (1) ◽  
pp. 20-33
Author(s):  
Isnawijayani Isnawijayani
Keyword(s):  
Down Syndrome ◽  
Mental Retardation ◽  
Deviant Behavior ◽  
Normal Person ◽  
Children With Down Syndrome ◽  
Daily Life Activities ◽  
The Family ◽  
Areas Of Interest ◽  
And Behavior ◽  
Syndrome Child

The purpose of this study illustrate the Children who are born with disabilities or mental retardation. Has characteristics that are easily recognizable as mental retardation (mental obstacles), visual impairment (visual barriers), hearing impairment (hearing barriers), physical impairment (disability). Seen as a useless person. Not many people know that they can also be self-sufficient and achievement. Communication with parents to see children with Down Syndrome. With descriptive qualitative methods, this study using the Theory of Applied Behaviour Analysis (ABA) on Ivar O.Lavass to change deviant behavior to control the behavior of children with Down syndrome. organize a matter of habit and teaching capabilities required to accept the way of communication and behavior in the family. The author has observed a child with Down syndrome by interviewing parents plus a look at the achievements that can be achieved Down syndrome children. It turned out that the success of Down syndrome children participate in daily life activities, introduced like a normal person, respond to and appreciated. Communication with mercy and patience and practice areas of interest, can make a Down syndrome child independently, achieving even be the name of the nation. Tujuan penelitian ini menggambarkan Anak yang dilahirkan dengan berkebutuhan khusus atau down syndrome. Memilik karakteristik yang mudah dikenali dengan sebutan tunagrahita (hambatan mental), tunanetra (hambatan penglihatan), tunarungu (hambatan pendengaran), tunadaksa (cacat tubuh). Dipandang sebagai orang yang tidak berguna. Belum banyak yang mengetahui bahwa mereka ini juga dapat mandiri dan berprestasi. Dengan melihat Komunikasi orangtua terhadap anak penderita down Syndrom. Dengan metode deskriptif kualitatif, penelitian ini menggunakan Teori Applied BehaviourAnalysis (ABA) dari Ivar O.Lavass yangdapat mengubah perilaku menyimpang untuk mengontrol perilaku anak down syndrome. mengatur masalah kebiasaan dan mengajarkan kemampuan yang diperlukan dengan menerima cara komunikasi dan perilaku dalam keluarganya. Penulis mengamati seorang anak down syndrome dengan mewawancarai orangtuanya ditambah dengan melihat prestasi-prestasi yang dapat diraih anak-anak down syndrom. Ternyata keberhasilan anak down syndrome kesehariannya diikutsertakan dalam aktivitas kehidupan, dikenalkan layaknya orang normal, direspon dan dihargai. Dengan komunikasi kasihsayang dan kesabaran serta latihan bidang yang diminati, dapat menjadikan anak down syndrome mandiri, berprestasi bahkan dapat mengharumkan nama bangsa

scholarly journals TRADISI TAHLIL SEBAGAI TRADISI KULTURAL FENOMENA KEBERTERIMAAN TAHLIL DALAM MASYARAKAT MULTIKULTURAL

2019 ◽  
Vol 13 (2) ◽  
pp. 59-72
Author(s):  
Rudy Kurniawan
Keyword(s):  
Down Syndrome ◽  
Mental Retardation ◽  
Visual Impairment ◽  
Hearing Impairment ◽  
Deviant Behavior ◽  
Normal Person ◽  
Daily Lives ◽  
Children With Down Syndrome ◽  
Areas Of Interest ◽  
And Behavior

The purpose of this study describes children born with special needs or Down syndrome. Having characteristics that are easily recognized as mental retardation (mental retardation), visual impairment (visual impairment), hearing impairment (hearing impairment), hearing impairment (disability). Seen as a useless person. Not many people know that they can also be independent and excel. By looking at the communication of parents of children with Down syndrome. With a qualitative descriptive method, this study uses the Applied Behavior Analysis (ABA) Theory from Ivar O. Lavav which can change deviant behavior to control the behavior of children with Down syndrome. manage habitual problems and teach the skills needed by accepting communication and behavior in the family. The author observes a child with Down syndrome by interviewing his parents coupled with seeing the achievements that can be achieved by children with Down Syndrome. It turns out that the success of a child with Down syndrome in their daily lives is included in life activities, is introduced like a normal person, is responded to and respected. With love and patience communication and training in areas of interest, can make children with Down syndrome independent, achievers and can even make the nation proud. Tujuan penelitian ini menggambarkan Anak yang dilahirkan dengan berkebutuhan khusus atau down syndrome. Memilik karakteristik yang mudah dikenali dengan sebutan tunagrahita (hambatan mental), tunanetra (hambatan penglihatan), tunarungu (hambatan pendengaran), tunadaksa (cacat tubuh). Dipandang sebagai orang yang tidak berguna. Belum banyak yang mengetahui bahwa mereka ini juga dapat mandiri dan berprestasi. Dengan melihat Komunikasi orangtua terhadap anak penderita down Syndrom. Dengan metode deskriptif kualitatif, penelitian ini menggunakan Teori Applied BehaviourAnalysis (ABA) dari Ivar O.Lavass yangdapat mengubah perilaku menyimpang untuk mengontrol perilaku anak down syndrome. mengatur masalah kebiasaan dan mengajarkan kemampuan yang diperlukan dengan menerima cara komunikasi dan perilaku dalam keluarganya. Penulis mengamati seorang anak down syndrome dengan mewawancarai orangtuanya ditambah dengan melihat prestasi-prestasi yang dapat diraih anak-anak down syndrom. Ternyata keberhasilan anak down syndrome kesehariannya diikutsertakan dalam aktivitas kehidupan, dikenalkan layaknya orang normal, direspon dan dihargai. Dengan komunikasi kasihsayang dan kesabaran serta latihan bidang yang diminati, dapat menjadikan anak down syndrome mandiri, berprestasi bahkan dapat mengharumkan nama bangsa

Orthodontic Aspects on the Chronological and Dental Age in Children with Down Syndrome

2018 ◽  
Vol 69 (1) ◽  
pp. 208-213
Author(s):  
Mariana Pacurar ◽  
Bogdan Dragomir ◽  
Alina Silvana Szalontay ◽  
Cristian Romanec
Keyword(s):  
Down Syndrome ◽  
Emotional Disorders ◽  
Metabolic Diseases ◽  
Genetic Disorder ◽  
Signs And Symptoms ◽  
Deciduous Teeth ◽  
Healthy Children ◽  
Dental Maturation ◽  
Children With Down Syndrome ◽  
The Family

Genetics is a key discipline in medicine, but also a clinical discipline with medical and social implications. The interest in reducing the number of genetic disorders and recognizing the risk of them repeating when a family confronts itself with a genetic anomaly becomes more and more important in the hierarchy of prophylactic emergencies. Presenting themselves as metabolic diseases (monogenic mutations) or malformations (polygenic and multifactorial heredity) because of their frequency, these disorders position themselves on an ascendant curve. They become difficult to deal with for the society, for the family and for the interested individual and cause emotional disorders. The Down syndrome is the most frequent type of genetic disorder. It is characterized by a specific set of signs and symptoms. People with Down syndrome require special medical care that, apart from the family, must include a team of doctors of various specializations and also a dentist. They are predisposed to hearing and sight disorders and thyroid problems as well. In 50% of the cases there are also anomalies of the heart, and the risk of leukaemia is 20 times higher. Some of them even develop an Alzheimer type dementia during their life. The people with Down syndrome can have an average IQ up to a moderate form of handicap. In particular, the studies on Down syndrome in dentistry are quite frequent, but they focus more on cavities, periodontal disease and hypodontia. In spite of this, the connection of Down syndrome and dental eruption is less studied. Consequently, the present study is intended to fill this missing part from the specialized literature, focusing on the relation between the Down syndrome and the chronological and dental ages in children. The health of the oral cavity is neglected in these patients, their parents focusing more on the treatment of the other systemic disorders of their children; the lack of interest is reflected in their poor oral hygiene.The trial group included 94 children with mixt dentition, aged between 6 and 12, divided as follows: 36 children with Down syndrome enrolled at the Educational Centre for Inclusive Education no. 1 of Tg. Mures and Alpha Transilvana Foundation. The chronology and the eruption sequences are subjected to certain variations and they are influenced by the presence of cavities, the premature loss or, on the contrary, the prolonged retention of deciduous teeth as well as dental anchylosis. Dental maturation is less subjected to variations, as it is a progressive, continuous and cumulative process. The presence of Down syndrome in children generates a delay in teeth eruption by 1.27 years compared to the data identified in the specialized literature and to the information obtained on the healthy children included in the study.

scholarly journals The Role of Sensorial Integration in Motor Development in Children with Down Syndrome

GYMNASIUM ◽  
2019 ◽  
Vol XIX (1) ◽  
pp. 42
Author(s):  
Mihaela Anghel
Keyword(s):  
Down Syndrome ◽  
Motor Development ◽  
Sensory Stimulation ◽  
Sensory Stimuli ◽  
Children With Down Syndrome ◽  
Combination Strategies ◽  
Sensory Motor ◽  
Syndrome Child

One of the reasons behind the choice of the topic is that this problem of sensory-motor development in children with physical and mental deficiencies, especially in children with Down syndrome, is not sufficiently known and studied, sensory-motor development representing an important factor in their physical and social development. The reason I chose this theme and the theoretical basis from which I started was to improve the psychomotor behaviors through sensory stimulation. The assumptions we went into the research were: 1. If we use different sensory combination strategies, the Down Syndrome will be able to compensate for the psycho-motor disorders; 2. If we apply sensory stimuli to the Down Syndrome child, then there will be ameliorations of the underlying motor conduction. The research presents a case study of a 6 year and six mouth old child diagnosed with Down syndrome. The location of the study was carried out at the "Delfinul" day center of the Betania Association.

Comparison of Postural Control of Children with down Syndrome and Those with other Forms of Mental Retardation

1997 ◽  
Vol 84 (2) ◽  
pp. 499-504 ◽  
Author(s):  
Mitsuru Kokubun ◽  
Takashi Shinmyo ◽  
Mizue Ogita ◽  
Keiichi Morita ◽  
Masaki Furuta ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Mental Retardation ◽  
Postural Control ◽  
Foot Pressure ◽  
Children With Down Syndrome ◽  
Center Of Foot Pressure ◽  
The Mean

To confirm the 1994 findings of Okuzumi, Haishi, and Kokubun, the displacement of the center of foot pressure, one-foot balance and bead sway were measured in children with Down syndrome ( n = 11) compared to those with other types of mental retardation ( n = 17). The magnitudes of the displacement of the center of foot pressure and head sway were not significantly different between the Down group and other forms of mental retardation, whereas the performance of one-foot balance was significantly lower in the Down group. The mean frequencies of sway waves were generally higher in the Down group, and the differences between the two groups were significant except for sagittal head sway. The results generally supported the prior findings. We proposed that it was not the magnitude of the displacement of the center of foot pressure but rather the manner of the whole body's sway which might be related to postural control.

scholarly journals Active Parents–Active Children—A Study among Families with Children and Adolescents with Down Syndrome

2021 ◽  
Vol 18 (2) ◽  
pp. 660
Author(s):  
Ann-Christin Sollerhed ◽  
Gerth Hedov
Keyword(s):  
Public Health ◽  
Down Syndrome ◽  
Children And Adolescents ◽  
Multiple Logistic Regression ◽  
Public Health Perspective ◽  
Physically Active ◽  
Children With Down Syndrome ◽  
The Family ◽  
Chi Squared ◽  
Families With Children

From a public health perspective, it is important that children with Down syndrome (DS) lay the foundations of physical activity (PA) early in life to keep active in school, as teenagers and as adults. The aims were to investigate PA patterns in children and adolescents with DS, as well as their parents’ and siblings’ PA patterns. Methods: A survey was performed among 310 families with children with DS (54% boys and 46% girls) aged 8–18 years (mean 14.04, SD 3.18) in Sweden. Chi-squared tests and multiple logistic regression were carried out. Results: Nineteen percent of children and adolescents with DS and 34% of the parents were active three or more times per week. The child’s PA level was significantly associated with parents’ PA (OR = 5.5), siblings’ PA (OR = 5.1) and the child’s locomotion ability (OR = 3.5). Physically active parents had active children to a greater extent than inactive parents (59% vs. 29%; p < 0.001). Conclusions: Physically active parents have active children. To promote PA among children and adolescents with DS, it is important to promote and pay attention to the parents’ and siblings’ PA behavior, as children with DS are dependent on support from the family.

scholarly journals “Life Goes On” – everyday life of children with Down syndrome and their families – selected aspects.

2020 ◽  
Author(s):  
Jolanta Lipińska-Lokś
Keyword(s):  
Down Syndrome ◽  
Family Life ◽  
Complex Nature ◽  
Major Event ◽  
Children With Down Syndrome ◽  
Interview Technique ◽  
Need Support ◽  
The Family ◽  
Qualitative Methodologies

The birth of a child is a major event in family life, which makes parents take on an important role in their lives, characterised by new tasks, chief among which are the care and upbringing of their offspring. Unfortunately, in many families, some factors emerge that may affect their functioning, disrupt the course of family life, and leave a permanent mark on the family’s history. Such a situation can be difficult for many –and many parents find the process of accepting a child with a disability (Down syndrome) and themselves as parents of a child with Down syndrome a long and arduous journey, since taking care of a child, upbringing and supporting their development is an issue in itself, but also a challenge for parents. In many cases, both the child and their parents need support in their daily life, ensuring their high quality of life. The objective of this study is to outline the functioning of families of children with Down syndrome. Due to the complex nature of the issue at hand, only selected aspects of the functioning of families were diagnosed, showcasing the changes in the family life and its functioning as a result of the birth of children with Down syndrome. The study was based on qualitative methodologies, by analysing individual cases using interview technique and interview dispositions. The research group comprised 10 families of children with intellectual disabilities, and the interviewed group was made up of 10 mothers and 3 fathers in Zielona Góra.

scholarly journals Serum S100B and intelligence in children with Down syndrome

2019 ◽  
Vol 59 (3) ◽  
pp. 125-9
Author(s):  
Nurul Noviarisa ◽  
Eva Chundrayetti ◽  
Gustina Lubis
Keyword(s):  
Down Syndrome ◽  
Mental Retardation ◽  
Chromosome Analysis ◽  
Chromosome 21 ◽  
Enzyme Linked Immunosorbent Assay ◽  
Severe Mental Retardation ◽  
Mild Mental Retardation ◽  
Cross Sectional ◽  
Children With Down Syndrome ◽  
The Mean

Background Down syndrome is characterized by physical and mental retardation and caused by chromosome 21 (Hsa21) abnormalities. The S100B is a protein that is overproduced in Down syndrome due to overexpression of chromosome 21 genes. Comorbidities caused by S100B in Down syndrome are cognitive deterioration and early onset of dementia. Objective To assess for a possible association between S100B protein and intelligence levels in children with Down syndrome. Method This cross-sectional study included students in a special needs school in Padang, West Sumatera, who had the characteristic clinical features of Down syndrome and trisomy 21 by chromosome analysis. Examination of S100B levels was carried out using an enzyme-linked immunosorbent assay (ELISA) method. Intelligence quotient (IQ) was measured using the 4th edition of the Wechlser Intelligence Scale for Children (WISC-IV) method. Results A total of 39 children with Down syndrome participated in the study. There were 25 children with mild mental retardation and 15 children with moderate-severe mental retardation. The mean S100B levels were not significantly different between groups [479.1 (SD 204) pg/mL in the mild mental retardation group and 458.7 (SD 158) pg/mL in the moderate-severe mental retardation group; P > 0.05]. The mean S100B level was significantly higher in subjects aged ≤ 10 years than in those aged > 10 years [566.9 (SD 210.0) pg/mL and 434.4 (SD 167.2) pg/mL, respectively (P<0.05)]. Conclusion There is no association between S100B and intelligence levels in children with Down syndrome. There is a significant association between higher S100B levels and younger age in children with Down syndrome.

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