scholarly journals A Critical Review of Symptom Management Nursing Science on HIV-Related Fatigue and Sleep Disturbance

2021 ◽  
Vol 18 (20) ◽  
pp. 10685
Author(s):  
Joachim G. Voss ◽  
Julie Barroso ◽  
Tongyao Wang
Keyword(s):  
Symptom Management ◽  
Sleep Disturbances ◽  
Behavioral Therapy ◽  
Management Strategies ◽  
Experimental Studies ◽  
People Living With Hiv ◽  
Nursing Science ◽  
Optimal Dosing ◽  
Quasi Experimental ◽  
Living With Hiv

Despite improved antiretroviral treatments, people living with HIV (PLWH) continue to suffer from HIV-related fatigue and sleep disturbances. We first reviewed the definition, etiology, and research breakthroughs of HIV-related fatigue and sleep disturbances, then analyzed nurse-led symptom management studies to describe their efficacy and make recommendations for future symptom research. We searched PubMed, CINAHL, PsycInfo, Psych and Behavioral Sciences Collection, and Scopus to identify nurse-led studies on symptom management for PLWH in the past 20 years. A total of 13 experimental or quasi-experimental studies were identified. The types of interventions included exercise, cognitive behavioral therapy, coaching, and symptom management manualized self-care activities. Currently, we cannot recommend with certainty any of the tested symptom management strategies to reduce fatigue or sleep disturbances. The current findings need to be confirmed and expanded to understand optimal dosing and sustainability.

scholarly journals Exploring the Contribution of General Self-Efficacy to the Use of Self-Care Symptom Management Strategies by People Living with HIV Infection

2012 ◽  
Vol 26 (6) ◽  
pp. 335-343 ◽  
Author(s):  
Inge B. Corless ◽  
Dean Wantland ◽  
Kenn M. Kirksey ◽  
Patrice K. Nicholas ◽  
Sarie Human ◽  
...  
Keyword(s):  
Hiv Infection ◽  
Self Efficacy ◽  
Symptom Management ◽  
Management Strategies ◽  
Self Care ◽  
People Living With Hiv ◽  
Use Of Self ◽  
Living With Hiv ◽  
General Self Efficacy

scholarly journals Sources and types of information on self-care symptom management strategies for HIV and AIDS

Curationis ◽  
2014 ◽  
Vol 37 (1) ◽  
Author(s):  
Regis R. Marie Modeste ◽  
Sisana J. Majeke
Keyword(s):  
Symptom Management ◽  
Management Strategies ◽  
Healthcare Providers ◽  
Self Care ◽  
Hiv And Aids ◽  
People Living With Hiv ◽  
Sources Of Information ◽  
Multiple Sources ◽  
Types Of Information ◽  
Living With Hiv

Background: It has been reported that South Africa has the highest number of people living with HIV worldwide, with more women being infected than men. Women living with HIV have been documented as experiencing various symptoms related to HIV and use various strategies to manage these symptoms.Objective: The objective of this study was to explore the sources and types of information regarding self-care symptom management strategies received by women living with HIV.Method: The study was conducted at an HIV clinic in an urban area of KwaZulu-Natal. Individual in-depth interviews were completed with 11 women who were living with HIV,exploring the sources of information received on how they manage the HIV- (and/or AIDS-) related symptoms they experienced as well as the types of information received. The collecteddata were analysed using qualitative content analysis.Results: The participants identified various sources, which mainly included groups of people who provided them with information on how to manage their HIV-related symptoms, namely healthcare providers, their personal networks and the community. The different sources offered different types of information, including the use of medication, complementary treatments and self-comforting activities.Conclusion: The study highlights that participants used multiple sources to get information about how to manage the experienced symptoms related to HIV, namely, healthcare providers, family and friends as well as themselves. It is to be noted that each source provided a preferred type of information.

scholarly journals Self-care symptom-management strategies Amongst women living with HIV /AIDS in an urban area in KwaZulu-Natal

2010 ◽  
Vol 15 (1) ◽  
Author(s):  
Regis R. Marie Modeste ◽  
Sisana J. Majeke
Keyword(s):  
Urban Area ◽  
Symptom Management ◽  
Management Strategies ◽  
Self Care ◽  
Hiv And Aids ◽  
People Living With Hiv ◽  
Family Responsibilities ◽  
Women Living With Hiv ◽  
Kwazulu Natal ◽  
Living With Hiv

People living with HIV and AIDS experience a number of symptoms such as fatigue, nausea and vomiting, fever and anxiety during the various stages of the illness. This has a negative effect on their quality of life. Women are the most commonly infected group and are at greater risk of acquiring HIV than men. In addition to their vulnerability, women have other responsibilities in society and expectations from society to fulfil. Women’s health-seeking and health practice behaviours are often hindered by a number of factors, including family responsibilities, poverty and fear.This paper presents the findings of a qualitative study aimed at exploring the self-care symptommanagement strategies used by women living with HIV and AIDS in an urban area in KwaZulu-Natal in 2006.Eleven participants were selected through a purposive sampling method until saturation was reached. Individuals were assessed in depth, using the symptom-management strategy interview.Qualitative content analysis was used to examine the transcribed interviews, using a deductive approach based on the categories of self-care symptom-management strategies.Various physical and psychological symptoms and a number of self-care symptom-management strategies were reported by the participants and these included taking medication and seeking help.The study makes recommendations on how to improve women’s ability to employ a self-care strategy in managing their HIV- and AIDS-related symptoms.OpsommingMense wat met MIV en Vigs leef, ervaar verskeie simptome in die verskillende stadiums van die siekte, soos moegheid, naarheid en braking, koors en angstigheid. Dit het ’n negatiewe effek op hul lewensgehalte. Vroue is die groep wat die meeste besmet word, en staan ’n groter risiko om MIV op te doen as mans. Benewens hul vatbaarheid, het vroue ook ander verantwoordelikhede en verwagtinge om in die samelewing te vervul. Vroue se gesondheidsbevorderende en gesondheidspraktykgedrag word dikwels gekniehalter deur ’n aantal faktore, wat familieverantwoordelikhede, armoede en vrees insluit.Hierdie artikel bied die bevindinge aan van ’n kwalitatiewe studie gemik op die verkenning van selfsorg-simptoombeheerstrategieë wat deur vroue met MIV en Vigs in 2006 in ’n stedelike gebiedin KwaZulu-Natal gebruik is.’n Steekproef van 11 respondente is geselekteer deur middel van ’n doelbewuste steekproefmetode totdat versadiging bereik is. Individuele diepte-onderhoude is gevoer deur gebruik te maak van die simptoombeheerstrategie-onderhoud. Kwalitatiewe inhoudelike analise is gebruik om die getranskribeerde onderhoude te analiseer deur middel van ’n deduktiewe metode gegrond op die kategorieë van selfsorg-simptoombeheerstrategieë.Verskeie fisiese en psigologiese simptome asook ’n aantal selfsorg-simptoombeheerstrategieë is deur die respondente gerapporteer. Die selfsorg-simptoombeheerstrategieë wat in die studie identifiseer is, het die neem van medikasie en die soek na hulp ingesluit.Die studie maak aanbevelings oor hoe om vroue se vermoë om ’n selfsorg-strategie om MIV- en Vigs-verwante simptome te beheer, te verbeter.

scholarly journals Community-based model for the delivery of antiretroviral therapy in Cambodia: a quasi-experimental study protocol

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Sovannary Tuot ◽  
Alvin Kuo Jing Teo ◽  
Kiesha Prem ◽  
Pheak Chhoun ◽  
Chamroen Pall ◽  
...  
Keyword(s):  
Experimental Study ◽  
Antiretroviral Therapy ◽  
Scale Up ◽  
Economic Evaluations ◽  
People Living With Hiv ◽  
Cad Model ◽  
Community Based ◽  
Quasi Experimental ◽  
Living With Hiv ◽  
Art Delivery

Abstract Background Multi-month dispensing (MMD) is the mainstay mechanism for clinically stable people living with HIV in Cambodia to refill antiretroviral therapy (ART) every 3-6 months. However, less frequent ART dispensing through the community-based ART delivery (CAD) model could further reduce the clients’ and health facilities’ burden. While community-based services have been recognized as an integral component of HIV response in Cambodia, their role and effectiveness in ART delivery have yet to be systematically assessed. This study aims to evaluate the CAD model’s effectiveness on the continuum of care and treatment outcomes for stable people living with HIV in Cambodia. Methods We will conduct this quasi-experimental study in 20 ART clinics across the capital city and nine provinces between May 2021 and April 2023. Study sites were purposively selected based on the availability of implementing partners, the number of people living with HIV each clinic serves, and the accessibility of the clinics. In the intervention arm, approximately 2000 stable people living with HIV will receive ART and services from the CAD model. Another 2000 stable people living with HIV in the control arm will receive MMD—a standard care model for stable people living with HIV. The primary outcomes will be retention in care, viral load suppression, and adherence to ART. The secondary endpoints will include health providers’ work burden, the model’s cost-effectiveness, quality of life, mental health, social support, stigma, and discrimination. We will compare the outcome indicators within each arm at baseline, midline, and endline using descriptive and inferential statistics. We will evaluate the differences between the intervention and control arms using the difference-in-differences method. We will perform economic evaluations to determine if the intervention is cost-effective. Discussion This study will build the evidence base for future implementation and scale-up of CAD model in Cambodia and other similar settings. Furthermore, it will strengthen engagements with community stakeholders and further improve community mobilization, a vital pillar of the Cambodian HIV response. Trial registration ClinicalTrials.gov, NCT04766710. Registered 23 February 2021, Version 1.

scholarly journals The Development of a Personalized Symptom Management Mobile Health Application for Persons Living with HIV in China

2021 ◽  
Vol 11 (5) ◽  
pp. 346
Author(s):  
Shuyu Han ◽  
Yaolin Pei ◽  
Lina Wang ◽  
Yan Hu ◽  
Xiang Qi ◽  
...  
Keyword(s):  
Mobile Health ◽  
Symptom Management ◽  
Medical Staff ◽  
Quantitative Data ◽  
Research Team ◽  
Management Strategies ◽  
Sufficient Evidence ◽  
Relaxation Techniques ◽  
Persons Living With Hiv ◽  
Living With Hiv

Persons living with HIV (PLWH) continuously experience symptom burdens. Their symptom prevalence and severity are also quite different. Mobile health (mHealth) applications (apps) offer exceptional opportunities for using personalized interventions when and where PLWH are needed. This study aimed to demonstrate the development process of the symptom management (SM) app and the structure and content of it. Our research team systematically searched for evidence-based resources and summarized up-to-date evidence for symptom management and health education. Our multidisciplinary research team that included physicians, nurses, software engineers, and nursing professors, evaluated the structure and content of the drafted app. Both quantitative data and qualitative results were collected at a group discussion meeting. Quantitative data were scores of sufficient evidence, situational suitability, practicability, cost-effectiveness, and understandability (ranged from one to four) for 119 items of the app contents, including the health tracking module, the self-assessment module, coping strategies for 18 symptoms (80 items), medication management, complementary therapy, diet management, exercise, relaxation techniques, and the obtaining support module. The SM app was comprised of eight modules and provided several personalized symptom management functions, including assessing symptoms and receiving different symptom management strategies, tracking health indicators, and communicating with medical staff. The SM app was a promising and flexible tool for HIV symptom management. It provided PLWH with personalized symptom management strategies and facilitated the case management for medical staff. Future studies are needed to further test the app’s usability among PLWH users and its effects on symptom management.

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

2018 ◽  
Vol 28 (6) ◽  
pp. 859-872 ◽  
Author(s):  
Alexander R. Terpstra ◽  
Catherine Worthington ◽  
Francisco Ibáñez-Carrasco ◽  
Kelly K. O’Brien ◽  
Aiko Yamamoto ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Management Strategies ◽  
Well Being ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Cognitive Difficulties ◽  
Hiv Associated Neurocognitive Disorder ◽  
Living With Hiv

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with community members living with HIV, focused on how cognitive difficulties manifested and progressed, impacted well-being, and were discussed with others. We analyzed interview transcripts using a team-based, thematic approach. Participants described concentration, memory, and multitasking difficulties that fluctuated over time, as well as potential risk factors, management strategies, and psychosocial consequences. They reported they seldom discussed cognitive impairment with health care professionals, and that receiving a HAND diagnosis was validating, informative, yet somewhat disconcerting. Conversations between health care professionals and people living with HIV about HAND may provide opportunities for education, assessment, and support.

scholarly journals Creation of Data Repositories to Advance Nursing Science

2017 ◽  
Vol 41 (1) ◽  
pp. 78-95 ◽  
Author(s):  
Joseph Perazzo ◽  
Margaret Rodriguez ◽  
Jackson Currie ◽  
Robert Salata ◽  
Allison R. Webel
Keyword(s):  
Collaborative Research ◽  
Data Repository ◽  
People Living With Hiv ◽  
Cross Sectional ◽  
Data Repositories ◽  
Nursing Science ◽  
Hiv Research ◽  
Systematic Planning ◽  
Living With Hiv ◽  
And Training

Data repositories are a strategy in line with precision medicine and big data initiatives, and are an efficient way to maximize data utility and form collaborative research relationships. Nurse researchers are uniquely positioned to make a valuable contribution using this strategy. The purpose of this article is to present a review of the benefits and challenges associated with developing data repositories, and to describe the process we used to develop and maintain a data repository in HIV research. Systematic planning, data collection, synthesis, and data sharing have enabled us to conduct robust cross-sectional and longitudinal analyses with more than 200 people living with HIV. Our repository building has also led to collaboration and training, both in and out of our organization. We present a pragmatic and affordable way that nurse scientists can build and maintain a data repository, helping us continue to make to our understanding of health phenomena.

Psychosocial Depression Interventions for Dialysis Patients, With Attention to Latinos: A Scoping Review

2019 ◽  
Vol 29 (8) ◽  
pp. 910-923 ◽  
Author(s):  
John E. Sullivan ◽  
Namkee G. Choi ◽  
Christian E. Vazquez ◽  
Margaret A. Neaves
Keyword(s):  
Scoping Review ◽  
Expressive Writing ◽  
Behavioral Therapy ◽  
Grey Literature ◽  
Behavioral Problem ◽  
Experimental Studies ◽  
The United States ◽  
Cognitive Behavioral ◽  
Dialysis Patients ◽  
Quasi Experimental

Purpose: Depression is a common and debilitating condition that often goes undetected and untreated among people with end-stage renal disease (ESRD). We conducted a scoping review to identify psychosocial depression interventions for adult dialysis patients and gaps in depression care, with particular attention to Latinos, a group disproportionately affected by ESRD in the United States. Methods: We searched electronic databases and grey literature sources for studies in English and Spanish. Results: We found 36 studies including cognitive behavioral, problem-solving, hope, psychoeducation, expressive writing, and physical activity interventions. Twelve studies (33%) were U.S.-based, while the rest were conducted elsewhere. U.S.-based studies involved mostly individual-format cognitive behavioral therapy (CBT) interventions carried out during dialysis. CBTs showed the most promising effect on depression in both randomized clinical and quasi-experimental studies. Among 22 randomized trials reviewed, 1 reported participants with Latino/Hispanic ethnicity. Conclusions: More intervention research is needed for depression treatment with ESRD patients, especially Latinos.

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