Effect of the Burden of Care on the Relationship between Patient with Dementia and Main Caregiver

2021 ◽  
Vol 15 (2) ◽  
pp. 137-148
Author(s):  
Jung-Eun Choi ◽  
Yeon-Hwa Lee
Keyword(s):  
Burden Of Care ◽  
The Relationship

scholarly journals Socioeconomic Status and Long-Term Care Provision to Parents in Japan

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 725-725
Author(s):  
Yoko Ibuka ◽  
Yui Ohtsu
Keyword(s):  
Socioeconomic Status ◽  
Long Term Care ◽  
Living Condition ◽  
Care Provision ◽  
Burden Of Care ◽  
Care Needs ◽  
Term Care ◽  
Japanese Adults ◽  
The Relationship

Abstract Socioeconomic status (SES) is generating considerable interest in terms of health of individuals, but how it is associated with long-term care has not been established yet. We study the relationship between SES and long-term care provision to parents among the Japanese adults using JSTAR. We use the following six measures of SES for the analysis: income, asset, expenditure, living condition, housing condition and education. We find a greater probability of care provision to parents among those in higher SES categories for some SES measures, compared to the lowest category. However, after considering the survival probability of parents, the relationship is reversed and the probability of care provision is found to be greater among lower SES individuals. The association is more pronounced among males. The association is likely to be partly mediated by care needs of parents. These results suggest a higher burden of care disproportionately falls in low SES individuals.

Burden of Care and Quality of Life in Home Caregivers of Patients With Stroke in Iran

2019 ◽  
Vol 31 (4) ◽  
pp. 213-218 ◽  
Author(s):  
Nooshin Masoudian ◽  
Mohammad Sarmadi ◽  
Rasool Najafi ◽  
Fereshteh Najafi ◽  
Shirin Maleki
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Outpatient Unit ◽  
Sf 36 ◽  
Neurology Clinic ◽  
Bivariate Regression ◽  
The Relationship

The purpose of this study was to investigate the relationship between Burden of Care and Quality of Life in informal home caregivers of stroke patients in Iran. Also we were trying to explore the factors that affect the burden of care. In this cross-sectional study, we have selected 62 informal home caregivers of the patients admitted to “the stroke outpatient unit of the neurology clinic” of the central hospital in Semnan province, Iran, to take part in the investigation. We interviewed them using the Caregiver Burden Inventory and SF-36 Questionnaire for assessing their quality of life. There was a negative and significant correlation between different aspects of quality of life and burden of care. In the bivariate regression model, being married and having lower levels of education (minimum years of schooling) were associated with higher levels of the burden. Our study shows that increasing burden of care in informal home caregivers reduces the quality of life in all domains. Thus, the results of this study indicate that an increase in the burden of caregiving on caregivers lowers their quality of life in all aspects; especially, caregivers who provide care to their spouses encountered more burden. Therefore, these caregivers must be in the center of interest while planning to reduce the burden of care.

scholarly journals Burden among Caregivers of Person with Schizophrenia and Schizoaffective Disorder: A Comparative Study

2015 ◽  
Vol 2 (4) ◽  
Author(s):  
Jaya Bharti
Keyword(s):  
Comparative Study ◽  
Schizoaffective Disorder ◽  
Demographic Variables ◽  
Burden Of Care ◽  
Physical And Mental Health ◽  
Chi Square ◽  
Cross Sectional ◽  
Chi Square Test ◽  
Patient Groups ◽  
The Relationship

This is a cross-sectional comparative study with the aim to compare two patient groups of schizophrenia and schizoaffective disorder and their respective caregivers with the objectives to quantify and compare the burden in caregivers of person with schizophrenia and schizoaffective disorder and to study the relationship between them. In this study, 40 patients schizophrenia, 40 patients of schizoaffective disorder, along with their 80 respective caregivers were taken on the basis of inclusion and exclusion criteria. Subjects were assessed using Socio-demographic and clinical sheet &BAS. Appropriate statistics such as mean, standard deviation, chi-square test, unpaired t test, Pearson’s correlation were applied to analyze the data. The results of the study revealed considerable burden of care in families of the patients and a significantly greater burden of care in caregivers of patients with schizoaffective especially in the following domains: spouse related, caregivers’ routine, physical and mental health, taking responsibility, patient’s behaviour and caregiver’s strategy. Some of the demographic variables like age and education etc. were also found to have significant correlation with burden of care.

scholarly journals Family Caregiver’s Quality of Life of Elderly Parent with Alzheimer’s Disease

2019 ◽  
Vol 34 (2) ◽  
Author(s):  
Michael Dirk Roelof Maitimoe ◽  
Magdalena S. Halim
Keyword(s):  
Quality Of Life ◽  
Regression Analysis ◽  
Family Caregivers ◽  
Burden Of Care ◽  
Current Health ◽  
History Of ◽  
Care Health ◽  
The Mean ◽  
The Relationship

This research explores the relationship between burden of care, health perception, and demographic as aspects that affecting the quality of life of 50 family caregivers with the mean of age is 46.68 years old and SD = 12.97. Each subject has been given QoL-AD, HPQ, and ZBI-22, then being analyzed with Pearson Correlational Analysis and Multiple Regression Analysis with the stepwise method. The result showed that burden of care (r = - .454, p < .01), current health (r = .660, p < .01) and history of AD (r = .339, p < .05) significantly related to quality of life, while regression analysis shows that current health and AD history as a significant contributor (R2 = .496, p < .01) Furthermore, it is necessary to test the model with more diverse variables that significantly contributed to family caregivers’ quality of life.

Links Between Expressed Emotion and Burden of Care in Relatives of Patients with Schizophrenia

1996 ◽  
Vol 168 (5) ◽  
pp. 580-587 ◽  
Author(s):  
Marcia Scazufca ◽  
Elizabeth Kuipers
Keyword(s):  
Employment Status ◽  
Negative Symptoms ◽  
Expressed Emotion ◽  
Demographic Characteristic ◽  
Social Role ◽  
Close Contact ◽  
Burden Of Care ◽  
Role Performance ◽  
The Relationship ◽  
Positive And Negative Symptoms

BackgroundFindings that the EE level of a relative may change over time support the idea that EE may represent the circumstances of the relationship between patient and caregiver. The present study examines to what extent EE levels in relatives are related to relatives' burden of care and their perceptions of patients' deficits in social role performance.MethodFifty patients recently admitted to hospital with DSM–III–R diagnoses of schizophrenia or schizophreniform disorder were assessed for positive and negative symptoms. Fifty relatives who were living or were in close contact with these patients were interviewed for the assessment of EE and burden of care, and to provide information about patients' social role performance and social and behaviour problems.ResultsHigh-EE relatives had considerably higher mean scores for burden of care than low-EE relatives (12.5 v. 6.8, respectively, P=0.002), and perceived more deficits in patients' social functioning than low-EE relatives (means: 16.2 v. 6.9, respectively, P=0.004). The employment status of relatives was the only socio-demographic characteristic of relatives and patients associated with EE levels, those who were working being less likely to be high EE. Patients' psychopathology was not associated with EE levels and burden of care.ConclusionsThis study shows that EE and the burden of care are related. EE and burden both measure aspects of the relationship between relatives and patients. These findings suggest that EE and burden of care are more dependent on relatives' appraisal of the patient condition than on patients' actual deficits.

Burden for Caregivers of Children with Attention-deficit/Hyperactivity Disorder in Oman

2017 ◽  
Vol 41 (S1) ◽  
pp. S120-S121 ◽  
Author(s):  
N. Al Balushi ◽  
M. Al Shukaili ◽  
S. AL Adawi
Keyword(s):  
Rating Scale ◽  
Teacher Rating ◽  
Tertiary Hospital ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Psychological Burden ◽  
Children With Adhd ◽  
Demographic Background ◽  
The Relationship

IntroductionNurturing children with neurodevelopmental disorders such as ADHD is associated with psychological burden to the caregivers. Oman has a pyramidal population structure with the bulk of the population are in the pediatric age group. Previous studies have indicated that ADHD is common in Oman.ObjectivesTo measure level of burden of care among caregivers of children with ADHD and the relationship between the degree of burden, subtypes of ADHD and socio-demographic factors.MethodsA cross sectional study conducted in a tertiary hospital in Oman. Arabic-version of the Zarit Burden Interview (ZBI) was used to evaluate the level of burden among the caregivers. The severity and subtypes of ADHD were quantified using Vanderbilt ADHD Parent/Teacher Rating Scale. Socio-demographic background and clinical data were gathered from medical records.ResultsThe study included caregivers of 100 children with ADHD. The mean ZBI score was significantly high for the parents of children with ADHD. As for the relationship with socio-demographic background, mothers of children with ADHD reported a higher mean ZBI score compared to fathers. Factors such as income, number of siblings, and severity/subtypes of ADHD played significant roles.ConclusionTo our knowledge, this is the first study of Arab/Islamic population exploring the burden of care for children with ADHD. Some of the risk factors appear to have direct effects. If this study will withstand further scrutiny, concerted effort is needed in emerging economies such as Oman to address the issue of burden among the caregivers of children with ADHD.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals Predictors of Family Stress in Taking Care of Patients with Schizophrenia

Jurnal NERS ◽  
2018 ◽  
Vol 13 (1) ◽  
pp. 72
Author(s):  
Rizki Fitryasari ◽  
Nursalam Nursalam ◽  
Ah Yusuf ◽  
Rachmat Hargono ◽  
Chong-Mei Chan
Keyword(s):  
Family Stress ◽  
Care Plan ◽  
Burden Of Care ◽  
Stress Theory ◽  
Correlational Design ◽  
The Family ◽  
Assessment Format ◽  
Relationship Of ◽  
The Relationship ◽  
Taking Care

Introduction: Taking care of schizophrenia patients is challenging and causes stress for the family involved. The study was conducted to identify the predictors of family stress present when taking care of a patient with schizophrenia. The ABCX Stress Theory of Hill was used as the theoretical framework.Methods: This study used a correlational design. The sample was 137 families who were caring for patients with schizophrenia at the Menur Mental Hospital, Surabaya, Indonesia. The sample was obtained by way of purposive sampling. The data was collected by a questionnaire and analysed by multiple regression to determine the relationship of the family’s structure, family knowledge, the burden of care, stigma, social support, the patient's illness duration, the patient’s frequency of relapse and the patient's severity level with family stress.Results: The results showed that the family’s stress was predicted by the family’s structure (p=0.029), stigma (p=0.000), the burden of care (p=0.000), and the patient’s frequency of relapse (p=0.005). The burden of care was the strongest predictor of family stress (Beta= 0.619).Conclusion: The patient's frequency of relapse and stigma were other kinds of family stressor. The stressors stimulated a negative perception, called the care burden. Limited adequacy of the family structure-function will inhibit the family in using other resources, creating family stress. Nurses may develop an assessment format that consists of the family stress predictors in order to create a nursing care plan specific to reframing the techniques of family stress management.

A systematic review of the association between the Behavioral and Psychological Symptoms of Dementia and burden of care

2004 ◽  
Vol 16 (3) ◽  
pp. 295-315 ◽  
Author(s):  
Warwick Black ◽  
Osvaldo P. Almeida
Keyword(s):  
Systematic Review ◽  
Psychological Distress ◽  
Longitudinal Data ◽  
Psychological Symptoms ◽  
Case Series ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Caregiver Depression ◽  
The Relationship ◽  
Behavioral And Psychological Symptoms

Background: Several reports have indicated that the Behavioral and Psychological Symptoms of Dementia (BPSD) are associated with increased burden of care, carer depression and increased rates of institutionalization of patients. The present study aims to review the association between these variables in cross-sectional as well as longitudinal studies.Methods: Systematic review and meta-analysis of all available information published in English between January 1990 and December 2001 was made. Case-reports, case-series and studies with 20 or fewer subjects were excluded from the analyses.Results: Thirty articles are included in the review of cross-sectional data and 12 in the systematic review of longitudinal data. Pooled correlation coefficients were generated for the relationship between BPSD and caregiver burden (rpooled=0.57; 95% CI=0.52 to 0.62), caregiver psychological distress (rpooled=0.41; 95% CI=0.32 to 0.49) and caregiver depression (rpooled=0.30; 95% CI=0.21 to 0.39), suggesting that these concepts have a moderately strong association. Multivariate data, on the whole, further supported the notion that BPSD are a predictor of burden of care and of psychological distress and depression. Limited longitudinal data made clarifying the temporal relationahip between BPSD and the psychological sequelae of care (PSC) difficult. The limited data pertaining to the relationship between BPSD and institutionalization suggest that caregiver variables may be more important in predicting institutionalization than BPSD. Methodological issues and limitations associated with this type of investigation were also considered.Conclusion: The results of this review support, but do not conclusively establish, the association between BPSD and PSC. We propose that the concept of burden of care be abandoned in favor of more clinically relevant outcomes such as caregiver depression.

scholarly journals The Moderating Effects of Personal Resources on Caregiver Burden in Carers of Alzheimer's Patients

2021 ◽  
Vol 12 ◽  
Author(s):  
Anna Sołtys ◽  
Mariola Bidzan ◽  
Ernest Tyburski
Keyword(s):  
Psychosocial Functioning ◽  
Structural Equation ◽  
Equation Modeling ◽  
Personal Resources ◽  
Personality Profiles ◽  
Burden Of Care ◽  
Latent Growth ◽  
Dementia Patients ◽  
The Relationship

Caring for persons with Alzheimer's disease can be an extremely difficult experience. To date, there has been a lack of research into the role of intermediary variables in the relationship between caregiver personality and psychosocial functioning. The growing numbers of dementia patients worldwide mean that more people are involved in their care, making research into this area a pressing concern. Both a caregiver's personality and personal resources play a key role in their capacity to cope with stressful situations. In order to determine how personal resources moderate the relationship between personality and burden of care, a total of 100 caregivers of Alzheimer's patients (78 women and 22 men) were asked to complete a set of questionnaires to assess personality, personal resources (sense of coherence, generalized self-efficacy, and perceived social support), as well as their levels of stress, depression, and commitment to care. Structural equation modeling and latent growth analysis suggest that personal resources explain the mechanisms underlying burden of care and moderate its relationship with personality. Our findings indicate that personal resources are a critical predictor of burden of care. Therefore, caregivers must be provided with appropriate support, taking into account their resources and personality profiles.

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