Thalassemia and Asian Americans: Living and Coping with Uncertainty

2006 ◽  
Vol 4 (2) ◽  
pp. 111-134
Author(s):  
Deborah Woo
Keyword(s):  
Asian Americans ◽  
Public Awareness ◽  
Population Groups ◽  
Social Interventions ◽  
Blood Disease ◽  
Life Threatening ◽  
And Coping

Thalassemia is a potentially life-threatening genetic blood disease for which Asians in California are at highest risk, compared to other population groups. Mandatory screening at birth is how most cases are discovered. This paper focuses on chronic forms of thalassemia and what it means for patients and their families to live with the illness. The goal is to increase public awareness about thalassemia and to stimulate discussion about social interventions that might enable individuals to lead healthier lives.

A Look at the Coping Strategies and Styles of Asian Americans

2015 ◽  
Author(s):  
Edward C. Chang
Keyword(s):  
Coping Strategies ◽  
Cultural Differences ◽  
Asian Americans ◽  
Stress And Coping ◽  
Constructive Thinking ◽  
Coping Model ◽  
And Coping ◽  
Rational Coping

This chapter explores cultural differences in coping, and focuses on the coping strategies and styles of Asian Americans by applying various models of coping (including Lazarus and Folkman’s stress and coping model, Epstein’s constructive thinking model, and D’Zurilla’s rational coping model)

Death at the End of the 20th Century: Individual Processes and Developmental Tasks in Old Age

2002 ◽  
Vol 54 (4) ◽  
pp. 315-333 ◽  
Author(s):  
Christina Röcke ◽  
Katie E. Cherry
Keyword(s):  
Life Expectancy ◽  
Old Age ◽  
Personal Experience ◽  
Public Awareness ◽  
Developmental Tasks ◽  
Past Century ◽  
Research Practice ◽  
The Past ◽  
And Coping ◽  
The Impact

In this article, we address the topic of death from historic and contemporary perspectives. In the first section, we describe the changes in life expectancy, personal experience, and public awareness of death that have occurred over the past century. In the next section, we examine the impact these changes have had on the mastery of the two developmental tasks in adulthood, acceptance of one's own mortality and coping with the death of a spouse. We describe select findings from the literature on attitudes, fear or acceptance of death, and grief processes. Implications for research, practice, and social change are considered.

scholarly journals "Can you HEAR my FEAR?" A Korean immigrant with hearing loss reflects on surviving the COVID-19 pandemic in the United States

2021 ◽  
Vol 41 (3) ◽  
Author(s):  
Joo Young Hong
Keyword(s):  
Public Health ◽  
United States ◽  
Hearing Loss ◽  
Asian Americans ◽  
Hard Of Hearing ◽  
Public Awareness ◽  
The United States ◽  
Hate Crimes ◽  
Disability Rights ◽  
Korean Immigrant

This paper presents the perception and associated experiences of a Korean hard-of-hearing immigrant special education researcher as the COVID-19 pandemic unfolded. These experiences include the rise of hate crimes against Asian Americans; increasing evidence that face coverings are a vital public health tool; the knowledge that face coverings can increase the risk of racist violence; and difficulty communicating with people who are wearing most face coverings due to being hard-of-hearing. It provides supportive resources, strategies, and hope for educators, disability rights advocates, and families of individuals who are Deaf or hard-of-hearing, promoting public awareness and embrace of difference.

scholarly journals 204 - Psychological distress and support needs of community residing older adults in urban India – An exploratory study

2021 ◽  
Vol 33 (S1) ◽  
pp. 8-9
Author(s):  
Jayashree Dasgupta ◽  
Meenakshi Chopra
Keyword(s):  
Mental Health ◽  
Older Adults ◽  
Psychological Distress ◽  
Coping Strategies ◽  
Help Seeking ◽  
Public Awareness ◽  
Well Being ◽  
Support Needs ◽  
Urban India ◽  
And Coping

Background:COVID pandemic in India, lockdowns and an unprepared health system has affected wellbeing of older adults. Low public awareness about mental health issues and stigma also contribute to low help seeking. Exploring impact of COVID on mental health of older adults and understanding support needs is essential.Research Objective:To examine mental wellbeing and coping strategies used by urban community residing older adults during the pandemic in India.Method:As part of an ongoing community engagement initiative with older adults and their families, an online survey was conducted during the first wave of the pandemic in April/May 2020. Sociodemographic details and information on coping strategies were gathered. The five-item General Health Questionnaire (GHQ) was used to screen for psychological distress and data were analyzed using descriptive statistics. Respondents were contacted again in May 2021 during the second COVID wave for a telephonic interview to understand current levels of distress and coping strategies. Consent was taken for audio recording and interviews were conducted using a semi-structured interview guide. Interviews were transcribed and analyzed using thematic analysis.Preliminary results of the ongoing study:Respondents (N=54) aged between 40-86 years (Mn = 60; SD = 18.9). Majority were male (61%), retired or homemakers (57%) and widowed/unmarried (52%). Of the sample 70% had one or more pre-existing medical conditions. A score of ≥ 2 on GHQ in 66% respondents indicates psychological distress. Stressors included health and well-being of family (62%), difficulty managing household work (42%) and increase in family conflicts (17%). Although 72% discussed their worries with family/friends, only 25% considered speaking with a mental health professional indicating low help seeking. Of respondents contacted again, 40% citied ill health or being busy as reasons for refusal to participate. Of those who agreed, 33% reported psychological distress. In-depth interviews, showed use of online mental wellness sessions and yoga/meditation to be beneficial coping strategies. Need for more online support groups was also highlighted.Conclusion:Psychological distress is present amongst community residing older adults in urban India. A change in attitude towards tele mental health must be leveraged to provide support for adults experiencing psychological distress.

scholarly journals Antibiotic Resistance. Scale and Relevance of Studies of the Antibiotic-Resistant Isolates Circulation among Children

2021 ◽  
Vol 6 (4) ◽  
pp. 199-207
Author(s):  
I. I. Fohel ◽  
◽  
M. V. Kryvtsova ◽  
Y. Y. Bugir
Keyword(s):  
Antibiotic Resistance ◽  
Resistance Genes ◽  
Bacterial Infections ◽  
Pediatric Population ◽  
Public Awareness ◽  
World Health ◽  
Antibiotic Resistant ◽  
Rapid Acquisition ◽  
The World ◽  
Life Threatening

Over the last decade, the phenomenon of antibiotic resistance of microorganisms has become a global problem for modern medicine around the world. Bacteria quickly acquire genes of resistance to the action of the antibiotics. Bacterial infections that used to be easy to treat, now, in some cases, can even be life-threatening. Resistant microorganisms pose a danger not only among the adult population but also among the pediatric population. According to the World Health Organization, up to 200,000 newborns die each year from infections caused by antibiotic-resistant microorganisms. Premature babies are at particular risk because their immune systems are still underdeveloped. The use of antibiotics in children should be reasonably approached, as recent studies have shown an increase of the spread of bacteria with resistance genes. Infections caused by resistant microorganisms are more difficult to treat and require special methods and approaches, especially for children, where the choice of antibiotics is already limited. The purpose of the study is to analyze the literature for the current state of the problem of antibiotic resistance, prospects for future development, relevance in pediatric practice. Materials and methods. The research materials are publications of national and foreign authors. Analytical methods were used as main research methods. This article considers the problem of antibiotic resistance, general mechanisms of its formation, research data on the prevalence of circulation of resistant strains in the pediatric population and their role in the initiation of resistant bacterial infections. Conclusion. It is concluded that bacteria insensitive to antibiotics are quite common among the pediatric population and in some cases are life-threatening. This phenomenon requires constant monitoring in order to detect and correctly treat persistent bacterial infections. There are many strains resistant to first- and second-generation antibiotics circulating in children. In some cases, the treatment of certain conditions in pediatrics may lead to the use of reserve antibiotics. Systemic coordinated work around the world and an individual approach in determining the sensitivity of microorganisms to antibiotics in each case can prevent the rapid acquisition of resistance genes by bacteria. It is also necessary to spread information about the threat of antibiotic resistance in order to raise public awareness and counteract the empirical use of antibiotics at home without a prescription. There is also an urgent need to invent new chemical compounds with bactericidal properties as soon as possible

scholarly journals Alam Adalah Keluarga: Internalisasi Nilai-Nilai Ekologis Dalam Ritual Nahunan Suku Dayak Ngaju

2021 ◽  
Vol 20 (2) ◽  
pp. 210-218
Author(s):  
Tahan Mentria Cambah
Keyword(s):  
Public Awareness ◽  
Local Area ◽  
Ecological Crisis ◽  
Environmental Preservation ◽  
The World ◽  
Ecological Values ◽  
Life Threatening ◽  
Qualitative Literature

Krisis ekologi sudah sangat mengancam kehidupan. Berbagai bencana dan penderitaan melanda dunia. Namun, krisis ekologi masih terjadi. Oleh sebab itu, krisis ekologi mesti diatasi dengan berbagai cara. Salah satu cara yang dapat dilakukan adalah menggali berbagai potensi kearifan lokal yang ada di wilayah setempat. Tulisan ini bertujuan untuk menunjukkan bahwa dalam ritual nahunan yang biasanya dilakukan oleh suku Dayak Ngaju tidak hanya sekedar upacara rutin, tetapi terdapat nilai-nilai ekologis yang dapat menyadarkan masyarakat, khususnya orang Dayak Ngaju bahwa mereka harus ikut terlibat dalam mengatasi krisis ekologis yang sedang terjadi. Tulisan ini menggunakan metode kualitatif kepustakaan yakni menggali berbagai sumber yang relevan untuk membahas topik dan mendapatkan data yang dibutuhkan, kemudian akan digali internalisasi nilai yang terdapat dalam ritual nahunan tersebut. Dalam ritual nahunan ditemukan nilai-nilai ekologis yang menunjukkan bahwa terdapat internalisasi konsep bahwa alam adalah keluarga. Konsep tersebut dapat mendukung pemeliharaan lingkungan hidup melalui ritual nahunan Suku Dayak Ngaju. Konsep tersebut dapat dikembangkan untuk mendorong kepedulian masyarakat dalam memelihara lingkungan hidup. Konsep tersebut adalah berupa nilai-nilai yang menganggap alam sebagai keluarga bagi manusia.ABSTRACTThe ecological crisis is already very life-threatening. Various disasters and suffering have hit the world. However, the ecological crisis is still occurring. Therefore, the ecological crisis must be overcome in various ways. One way that can be done is to explore the potential of local wisdom in the local area. This paper aims to show that the nahunan ritual, which is usually carried out by the Ngaju Dayak tribe, is not just a routine ceremony. However, ecological values can make people aware, especially the Ngaju Dayak people, that they must be involved in overcoming the ecological crisis. This paper uses a qualitative literature method to explore various relevant sources to discuss the topic and obtain the data needed. Then, the internalization of the values contained in the nahunan ritual will be explored. In the nahunan ritual, ecological values are found, which indicate an internalization of the concept of nature as family and can be encouraged through environmental preservation in the nahunan ritual of the Ngaju Dayak Tribe. This concept can be developed to encourage public awareness of preserving the environment. The concept is expressed in the form of values that involve nature as a family for humans.

Psychosocial Characteristics of Individuals With Non–Stage IV Melanoma

2001 ◽  
Vol 19 (11) ◽  
pp. 2844-2850 ◽  
Author(s):  
Peter C. Trask ◽  
Amber G. Paterson ◽  
Satoru Hayasaka ◽  
Rodney L. Dunn ◽  
Michelle Riba ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Psychological Intervention ◽  
Survival Rates ◽  
Stage Iv ◽  
Stage Iv Disease ◽  
Life Threatening ◽  
Clinically Significant ◽  
And Coping

PURPOSE: Melanoma is the fastest growing solid tumor among men and women and accounts for 79% of skin cancer–related deaths. Research has identified that distress is frequently associated with a diagnosis of cancer and may slow treatment-seeking and recovery, increasing morbidity and even mortality through faster disease course. Given that the 5-year survival rates for individuals with melanoma are determined primarily by the depth and extent of spread, distress that interferes with seeking treatment has the potential to be life-threatening. PATIENTS AND METHODS: The current study was designed to identify levels of distress present in individuals seeking treatment at a large, Midwestern, multidisciplinary melanoma clinic. It also focused on determining the quality of life, level of anxiety, and coping strategies used by individuals with melanoma before treatment. Given that the course of treatment and outcome for patients with stage IV disease is vastly different from that of patients with stages I to III disease, they were excluded from the study. RESULTS: Results indicated that most individuals who are presenting to a melanoma clinic do not report a clinically significant level of distress. However, there is some variability in this, with 29% of patients reporting moderate to high levels of distress. Moreover, analyses suggest that distressed individuals are more likely to use maladaptive coping strategies, such as escape-avoidance coping, and to have poorer quality of life. CONCLUSION: Although most individuals do not present with significant levels of distress, a significant minority are distressed and rely more heavily on coping strategies that do not benefit them. Such individuals would likely benefit most from psychological intervention.

scholarly journals An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia—A Qualitative Study

2020 ◽  
Vol 17 (17) ◽  
pp. 6405 ◽  
Author(s):  
Loujain Sharif ◽  
Shimaa Basri ◽  
Fidaa Alsahafi ◽  
Mashael Altaylouni ◽  
Shihanah Albugumi ◽  
...  
Keyword(s):  
Mental Disorders ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Public Awareness ◽  
Structured Interviews ◽  
Educational Training ◽  
The Public ◽  
Social Media Platforms ◽  
Associative Stigma ◽  
And Coping

Family caregivers of people with mental disorders face a number of burdens and stressors, such as associative stigma and burnout. These burdens are often a result of their caring role coupled with insufficient support or ineffective coping strategies, which can affect their quality of life and biopsychosocial integrity that, in turn, may affect the care they provide. This study aimed to explore the experiences of family caregivers of people with mental disorders, through examining the burdens that they face and the coping strategies that they use. Using a descriptive qualitative approach, 13 semi-structured interviews were conducted with members of the Saudi public, recruited through popular social media platforms and analyzed using thematic analysis. Five main themes were constructed from the data: Type of care, Challenges, Coping and support, Perceptions of public awareness, and Messages to others. The findings emphasize the different types of burdens that caregivers experience, and their needs that require a range of responses such as educational training on effective coping strategies, and psychological support in the form of counseling or group therapy. This study highlights the voice of caregivers and their message to the public, in order to correct the misconceptions surrounding mental disorders and those associated with them.

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