Changing Perception in Alzheimer's

Author(s):  
G. Allen Power

In this chapter, the author will explain how the predominant models for viewing Alzheimer's and other forms of dementia fail to provide an adequate understanding of the changing perceptions of people who live with these conditions and consequently limit our ability to provide effective support. An alternative “experiential” model will be presented and used to reframe several concepts regarding the changing mind. New insights from this model inform an innovative approach to understanding and supporting people whose perceptual mechanisms and communication abilities differ from those of their care partners, and suggest a strength-based framework for enhancing several aspects of well-being, regardless of one's diagnosis or cognitive ability.

2020 ◽  
Author(s):  
Candace L Kemp

Abstract The public health response to the current Coronavirus pandemic in long-term care communities, including assisted living, encompasses prohibiting visitors. This ban, which includes family members, has been criticized for being unfair, unhealthy, and unsafe. Against this backdrop, I examine the roles family play in residents’ daily lives and care routines. I argue that classifying family as “visitors” rather than essential care partners overlooks their critical contributions and stems from taken-for-granted assumption about gender, families, and care work, and I demonstrate why families are more than visitors. Policies that ban family visits also reflect a narrow understanding of health that focuses on mitigating infection risk, but neglects overall health and well-being. This policy further stems from a limited comprehension of care relations. Research shows that banning family visits has negative consequences for residents, but also families themselves, and direct care workers. I argue that identifying ways to better understand and support family involvement is essential and demonstrate the utility of the Convoys of Care model for guiding the reconceptualization of family in long-term care research, policy, and practice during and beyond the pandemic.


2021 ◽  
Vol 16 (2) ◽  
pp. 46-61
Author(s):  
Pablo Robles-Granda ◽  
Suwen Lin ◽  
Xian Wu ◽  
Gonzalo J. Martinez ◽  
Stephen M. Mattingly ◽  
...  

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S71-S71
Author(s):  
Eleanor S McConnell ◽  
Kirsten Corazzini ◽  
T Robert Konrad

Abstract Although the impact of dementia on the health and well-being of those living with Alzheimer’s Disease and related Disorders (ADRD) and their care partners has been widely studied, less attention has been paid to how the disease impacts individuals within the context of their larger social networks. This symposium presents findings from a series of integrated studies aimed at strengthening measurement of health and well-being among older adults with living with dementia and well-being among members of their social networks. Findings will be presented from five studies: (1) a scoping review of social network measurement in older adults in chronic illness, including dementia, that emphasizes the use of technology in measuring older adults’ social networks; (2) a simulation study to evaluate the feasibility and reliability of sensor technology to measure social interaction among a person living with dementia and others in their immediate surroundings; (3) development of a web-based application that allows older adults to map and activate their social networks; (4) a qualitative analysis of interviews from persons living with dementia, their unpaid caregivers, and paid caregivers from an adult day health program concerning well-being focused outcomes; and (5) a mixed methods analysis of the feasibility of using both traditional and novel measures of health and well-being deployed among networks of people living with dementia. Emerging technologies for measuring social networks health and well-being hold promise for advancing the study of the relationship-based nature of care for people living with dementia.


Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1794-1810
Author(s):  
Helen Hickman ◽  
Chris Clarke ◽  
Emma Wolverson

Humour is a complex social and emotional experience which could constitute a positive resource for people endeavouring to live well with dementia. However, little is currently known about the shared use and value of humour in dyads where one person has dementia. The purpose of this study was therefore to explore how people with dementia and their care-partners experience, use and draw meaning from humour in relation to their shared experiences of dementia and their ongoing relationships. Ten participant dyads (the person with dementia and their spousal partner) took part in joint semi-structured interviews. Interpretative Phenomenological Analysis revealed eight subthemes that were subsumed under three super-ordinate themes: ‘Humour Has Always Been There (and Always Will Be)’; ‘Withstanding Dementia’ and ‘Renewing the Value of Humour in Dementia’. Overall, the findings suggest that humour, in different forms, can represent a salient and enduring relationship strength that helps dyads maintain well-being and couplehood by providing a buffer against stressors associated with dementia. The findings highlight the potential value of integrating a dyadic perspective with strengths-based approaches in future research into how people live well with dementia.


2021 ◽  
pp. 195-209
Author(s):  
Jodie Hunter ◽  
Roberta Hunter ◽  
John Tupouniua ◽  
Generosa Leach

AbstractThe COVID-19 pandemic has caused new ways of doing and being, both in education systems and beyond across the world. In the context of Aotearoa/New Zealand, the widely supported government approach focused on the well-being of the nation with a position that saving lives was more important than maintaining an open economy. As researchers and educators, we supported teachers as they worked with their students in their home settings. This provided us with an opportunity to explore a vision of a reinvented system of mathematics education beyond institutional and formal structures of schools. In this chapter, we present the analysis of the responses from 24 educators mainly from low socioeconomic urban settings as they reflected on how they enacted mathematics teaching and learning during the lockdown while connecting with students and their families as well as their subsequent learning from this experience. Results highlighted that the mathematical learning of students went beyond what was accessed by digital means and included parents drawing on rich everyday opportunities. A key finding was that by supporting and privileging the well-being of students and communities, the connections and relationships between educators and families were enhanced.


Dementia ◽  
2018 ◽  
Vol 19 (3) ◽  
pp. 590-605 ◽  
Author(s):  
Courtney A Polenick ◽  
Laura M Struble ◽  
Barbara Stanislawski ◽  
Molly Turnwald ◽  
Brianna Broderick ◽  
...  

Background and objectives Behavioral and psychological symptoms of dementia are highly prevalent, stressful, and challenging to manage. Caregivers’ approaches for handling these behaviors have implications for both care partners’ well-being. Yet the specific strategies that caregivers use in their daily management of behavioral and psychological symptoms of dementia are relatively unknown. This study used in-depth focus group data to examine family caregivers’ strategies for managing behavioral and psychological symptoms of dementia. Design As part of a larger study (NINR R01NR014200), four focus groups were conducted with a total of 26 family caregivers of older adults with dementia. Caregivers were asked to describe the strategies they use to manage behavioral and psychological symptoms of dementia. Data from audio-recorded sessions were transcribed, coded to identify relevant concepts, and reduced to determine major categories. Results Caregivers managed behavioral and psychological symptoms of dementia through (1) modifying interactions within the care dyad (e.g., simplifying communication); (2) modifying the care environment (e.g., using written prompts); (3) activity engagement; (4) humor; (5) self-care; and (6) social support. Conclusion Family caregivers manage behavioral and psychological symptoms of dementia using strategies to minimize stress and address the needs of both care partners. Caregivers’ own accounts of these approaches reveal a window into their everyday management of difficult behaviors. The present findings generate key information for routine clinical care and targeted interventions to promote caregiver well-being.


Author(s):  
Irma Eloff

Educational psychology in Africa has a rich and colorful history. In sub-Saharan Africa educational psychology, as both a profession and a scientific field, is particularly vibrant. The emergence of educational psychology in sub-Saharan Africa shows how the science and the profession has pirouetted in ways that could support mental health and learning in African contexts in innovative ways. While emanating within Western cultures, educational psychology has been adapted and, perhaps, been deeply enriched in the African context. After the initial establishment of educational psychology in sub-Saharan Africa, three broad eras of theoretical development are evident: (a) the era of ecosystems and community, (b) the era of inclusion, and (c) the era of strength-based and positive approaches. During the era of ecosystems and community, emergent theories challenged the dominance of the individualist paradigms in educational psychology and provided broadened conceptualizations of the factors that impact mental health and effective learning. The role of communities was also given prominence. During the era of inclusion, the medical model was challenged as the primary foundation for legitimizing educational psychological assessments and interventions. Educational psychologists moved toward rights-based approaches that championed the rights of vulnerable populations and the creation of inclusive learning environments. The inclusion of children with disabilities influenced policy development in multiple sub-Saharan countries and expanded the dialogues on how best to support learning for all children. During the era of strength-based and positive approaches, theoretical and pragmatic approaches that forefront strengths, capacities, and possibilities started to develop. This era signified yet another departure from previous hegemonic paradigms in that educational psychology moved beyond the individual level, toward more systemic approaches, but then also used approaches that focused more on strengths and the mobilization of resources within these systems to address challenges and to optimize educational psychological support. These eras in the development of educational psychology in sub-Saharan Africa created optimal opportunities to respond to the United Nation’s Sustainable Development Goals (SDGs). In terms of SDGs, educational psychology responds primarily to Global Goal 3 (health and well-being) and Global Goal 4 (quality education). At the same time it supports the Global Goals of no poverty (1), gender equality (5), decent work and economic growth (8), reduced inequalities (10), sustainable cities and communities (11), and building partnerships for the goals (17).


2019 ◽  
Vol 100 (10) ◽  
pp. e110-e111
Author(s):  
Alexandra Terrill ◽  
Jackie Einerson ◽  
Justin MacKenzie ◽  
Maija Reblin ◽  
Beth Cardell ◽  
...  

1989 ◽  
Vol 10 (2) ◽  
pp. 133-155 ◽  
Author(s):  
Christian R. Lemmon ◽  
Judith P. Goggin

ABSTRACTThe present experiments explored various measures of English and Spanish language ability and compared monolingual and bilingual subjects on tests of cognitive skill. Language ability was assessed in Experiment 1. These measures were found to be highly correlated with each other, with at least two factors needed to describe the associations among the tests in each language. In Experiment 2, subjects were given tests of cognitive skill. To be included in this study, all subjects were required to show adequate understanding of English and were divided into monolingual and bilingual groups on the basis of their Spanish abilities. Monolinguals scored higher than bilinguals on most of the measures of cognitive skill, but subsequent comparisons of the monolinguals with high and low bilingual subgroups suggested that the differences were attributable to those subjects characterized as low bilinguals.


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