Sharing knowledge is the key to success in a patient-physician relationship: how to produce a patient information leaflet on COPD

Background. Chronic Obstructive Pulmonary Disease (COPD) is a leading cause of morbidity and mortality worldwide, and its prevalence is rising. In Italy, respiratory diseases are the third most common cause of death. The aim of the study is to produce a patient information leaflet (PIL) designed to educate patients about COPD in accordance with the best recommendations based on evidence and guidelines for the production of good quality written information, and to evaluate the impact of this intervention on the patients’ knowledge of COPD. Methods. The study was conducted in the Department of Chest Diseases of the Cardarelli Hospital, Naples, Italy. A total of 166 patients admitted with a diagnosis of COPD participated in the study. Patients were asked to answer 10 multiple-choice questions compiled to assess their knowledge of the disease and then to read the leaflet. Two days later they were asked to complete the questionnaire again to assess their post-intervention knowledge. Analysis of the data was performed using SPSS version 15.0. Results. After reading the leaflet, a statistically significant increase in the proportion of correct responses was noted (p<0.001 by Wilcoxon signed rank test). Patients had retained the knowledge gained at the one year followup (p<0.05 by Cochran’s Q test). Conclusions. An educational intervention directed at adults with COPD had a positive impact on the patients’ knowledge of COPD and this effect is long lasting.

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AB135. 176. Feasibility study of the Impact of one preoperative physiotherapy education session and patient information leaflet on patient compliance with physiotherapy after oesophago-gastric cancer resections

Mesentery and Peritoneum ◽

10.21037/map.2019.ab135 ◽

2019 ◽

Vol 3 ◽

pp. AB135-AB135

Author(s):

Rebecca Mahon ◽

Roisin Tully ◽

William Robb

Keyword(s):

Gastric Cancer ◽

Patient Compliance ◽

Feasibility Study ◽

Patient Information ◽

Patient Information Leaflet ◽

Information Leaflet ◽

Education Session ◽

The Impact ◽

Physiotherapy Education

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Are Improvements Maintained After In-home Pulmonary Telerehabilitation for Patients with Chronic Obstructive Pulmonary Disease?

International Journal of Telerehabilitation ◽

10.5195/ijt.2014.6156 ◽

2015 ◽

Vol 6 (2) ◽

pp. 21-30 ◽

Cited By ~ 5

Author(s):

Nicole Marquis ◽

Pierre Larivée ◽

Marie-France Dubois ◽

Michel Tousignant

Keyword(s):

Chronic Obstructive Pulmonary Disease ◽

Pulmonary Disease ◽

Management Education ◽

Positive Impact ◽

Self Management ◽

Chronic Obstructive ◽

Post Intervention ◽

Obstructive Pulmonary Disease ◽

6 Minute Walk Test ◽

Severe Copd

This study investigated if improvements can be maintained over 24 weeks when in-home pulmonary telerehabilitation is combined with asynchronous self-management education for Chronic Obstructive Pulmonary Disease (COPD). Twenty-three community-living elders with moderate to very severe COPD participated in a pre/post-intervention study. Over 8 weeks, they had access to self-learning capsules on self-management, received 15 in-home teletreatment sessions and were encouraged to gradually engage in unsupervised sessions. Participants were assessed before the intervention (T1), immediately after the intervention (T2), and 6 months later (T3). Outcome measures were 1) exercise tolerance (6-minute walk test [6MWT]), Cycle Endurance Test [CET]), and 2) quality of life (Chronic Respiratory Questionnaire [CRQ]). Although there were significant improvements after 8 weeks of pulmonary telerehabilitation on the 6MWT, CET and three of four CRQ domains, none of these improvements were maintained after 6 months and scores returned to their baseline values (all p values > 0.05 when comparing T3 with T1). While pulmonary telerehabilitation is possible and has a positive impact on patients with moderate to very severe COPD, improvements were not maintained in the long-term even when physical therapy was accompanied by self-management education.

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A comparative analysis of the lay-friendliness of Danish EU patient information leaflets from 2000 to 2012

Communication & Medicine ◽

10.1558/cam.v11i3.20700 ◽

2014 ◽

Vol 11 (3) ◽

Cited By ~ 2

Author(s):

Inger Askehave ◽

Karen Korning Zethsen

Keyword(s):

Comparative Analysis ◽

Patient Information ◽

Patient Information Leaflet ◽

General Interest ◽

Information Leaflet ◽

Empirical Results ◽

Patient Information Leaflets ◽

Information Leaflets ◽

The Subject ◽

The Eu

Since becoming mandatory in the EU in 1992, the patient information leaflet (PIL) has been the subject of an on-going discussion regarding its ability to provide easily understandable information. This study examines whether the lay-friendliness of Danish PILs has improved from 2000 to 2012 according to the Danish consumers. A reproduction of a questionnaire study from 2000 was carried out. The responses of the 2012 survey were compared to those of the 2000 survey and the analysis showed that Danes are less inclined to read the PIL in 2012 compared to 2000 and that the general interest in PILs has decreased. The number of respondents who deem the PIL easy to read has gone down. According to Danish consumers, the lay-friendliness of PILs has not improved from 2000 to 2012 and a very likely explanation could be that the PIL as a genre has become far too regulated and complex to live up to its original intentions. On the basis of the empirical results the article furthermore offers suggestions for practice changes.

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The role of clinical pharmacist in enhancing the health-related quality of life in patients with pulmonary tuberculosis

International Journal of Review in Life Sciences ◽

10.26452/ijrls.v10i4.1326 ◽

2020 ◽

Vol 10 (4) ◽

Author(s):

Eldhose Varghese ◽

Irrin Poulose ◽

Chaitanya Sagar G ◽

Jennifer Ann Jose ◽

Mintu Mathew Ms

Keyword(s):

Quality Of Life ◽

Pulmonary Tuberculosis ◽

Patient Information ◽

Patient Information Leaflet ◽

Information Leaflet ◽

Patient Counselling ◽

Sf 36 ◽

Related Quality ◽

Health Related

Tuberculosis (TB) is potentially airborne severe infectious disease which requires long term treatment. It considerably affects the physical and mental health quality of the patient’s life. Appropriate patient counselling with the help of Patient Information Leaflet will help to improve the patient’s quality of life and overall treatment outcome. To enhance the health related quality of life in pulmonary tuberculosis patients by providing patient counselling with the aid of patient information leaflet. An interventional study was carried out for six months in 80 patients diagnosed with pulmonary tuberculosis from the OP & IP of Tuberculosis and Chest Department of a medical college hospital. The HRQoL was assessed using the SF-36 questionnaire. Appropriate patient counselling was provided with the help of Patient Information Leaflet. In our study, a total of 80 patients were enrolled, out of which 49[61%] were Out-patients, and 31[39%] were In-patients. All the 8 sub domains of the SF-36 survey show statistical significance with improvement in 2nd Visit (after counselling) when compared with the baseline visit. The demographic variables like smoking, low socioeconomic status, allergies, family history show statistically significant association with overall HRQoL. The HRQOL of the pulmonary tuberculosis patients were initially low before the start of Anti-TB therapy, after providing proper patient counselling using patient information leaflet the HRQoL scores were found to be increased on the subsequent re-visits, which implies the need of proper patient counselling and follow-up in PTB for the better quality of life.

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Hazards for Construction Workers

10.1093/oso/9780190662677.003.0036 ◽

2017 ◽

Author(s):

Gavin H. West ◽

Laura S. Welch

Keyword(s):

Heavy Metals ◽

Prevention And Control ◽

Respiratory Diseases ◽

Noise Exposure ◽

Engineered Nanomaterials ◽

Construction Workers ◽

Chronic Obstructive ◽

Obstructive Pulmonary Disease ◽

And Control ◽

The Impact

This chapter describes the hazards for construction workers, with a particular focus on injuries as well as exposures to hazardous chemicals and dusts. A section describes hazardous exposures to lead and other heavy metals. Another section describes noise exposure. The impact of musculoskeletal disorders among construction workers is then discussed. A section on respiratory diseases focuses on asbestosis, silicosis, chronic obstructive pulmonary disease, and asthma. Exposures known to cause dermatitis and cancer are reviewed. There is a discussion of engineered nanomaterials as a potential emerging hazard. Various approaches to prevention and control, including regulations and health services, are described.

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The Impact of the COVID-19 Pandemic on Self-Reported Management of Chronic Conditions

Journal of Patient Experience ◽

10.1177/23743735211007693 ◽

2021 ◽

Vol 8 ◽

pp. 237437352110076

Author(s):

Hyllore Imeri ◽

Erin Holmes ◽

Shane Desselle ◽

Meagen Rosenthal ◽

Marie Barnard

Keyword(s):

Locus Of Control ◽

Chronic Conditions ◽

Online Survey ◽

Health Locus Of Control ◽

Patient Activation ◽

Survey Study ◽

Chronic Obstructive ◽

Cross Sectional ◽

Obstructive Pulmonary Disease ◽

The Impact

Chronic conditions (CCs) management during the COVID-19 pandemic and the impact of the pandemic on patient activation (PA) and health locus of control (HLOC) remain unknown. This cross-sectional online survey study examined the role of COVID-19 pandemic-related worry or fear in PA and HLOC among patients with CCs. Individuals with CCs (n = 300) were recruited through MTurk Amazon. The questionnaire included sociodemographic questions, the Patient Activation Measure, and the Multidimensional Health Locus of Control–Form B. Out of the 300 participants, 9.7% were diagnosed with COVID-19, and 7.3% were hospitalized. Patients with cancer, chronic kidney disease, chronic obstructive pulmonary disease, drug abuse/substance abuse, and stroke reported significant difficulties in managing their CCs due to worry or fear because of COVID-19. More than half of the sample (45.7%) reported COVID-19-related worry or fear about managing their CCs, and these patients had lower PA and lower external HLOC compared to patients not affected by COVID-19-related worry or fear. Health professionals should provide more support for patients facing difficulties in managing their CCs during the COVID-19 pandemic.

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‘I’m fine!’: Assertions of lack of support need among patients with chronic obstructive pulmonary disease: A mixed-methods study

Chronic Illness ◽

10.1177/17423953211000386 ◽

2021 ◽

pp. 174239532110003

Author(s):

A Carole Gardener ◽

Caroline Moore ◽

Morag Farquhar ◽

Gail Ewing ◽

Efthalia Massou ◽

...

Keyword(s):

Chronic Obstructive Pulmonary Disease ◽

Pulmonary Disease ◽

Mixed Method ◽

Self Report ◽

Design Stage ◽

Chronic Obstructive ◽

Support Needs ◽

Obstructive Pulmonary Disease ◽

Stage 1 ◽

The Impact

Objectives To understand how people with Chronic Obstructive Pulmonary Disease (COPD) disavow their support needs and the impact on care. Methods Two stage mixed-method design. Stage 1 involved sub-analyses of data from a mixed-method population-based longitudinal study exploring the needs of patients with advanced COPD. Using adapted criteria from mental health research, we identified 21 patients who disavowed their needs from the 235 patient cohort. Qualitative interview transcripts and self-report measures were analysed to compare these patients with the remaining cohort. In stage 2 focus groups (n = 2) with primary healthcare practitioners (n = 9) explored the implications of Stage 1 findings. Results Patients who disavowed their support needs described non-compliance with symptom management and avoidance of future care planning (qualitative data). Analysis of self-report measures of mental and physical health found this group reported fewer needs than the remaining sample yet wanted more GP contact. The link between risk factors and healthcare professional involvement present in the rest of the sample was missing for these patients. Focus group data suggested practitioners found these patients challenging. Discussion This study identified patients with COPD who disavow their support needs, but who also desire more GP contact. GPs report finding these patients challenging to engage.

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