scholarly journals Life stories of families with a terminally ill child

Curationis ◽  
2001 ◽  
Vol 24 (2) ◽  
Author(s):  
S Hechter ◽  
M Poggenpoel ◽  
C Myburgh

Family units with a terminally ill child have a tendency to withdraw and this isolation may lead to problems in their mental health. A tendency with psychologists, clergy and helpers from other professions is to act as ideal experts on the lives of saddened people. From painful personal experience, this does not seem to enable acquiescence. Therefore, the aim of research on families with terminally ill children, was to explore and describe their lives and to develop an approach to facilitate their families to obtain acquiescence. In this article however, attention will be given to the life-world of families with terminally ill children. The research consists of two phases. In phase one the experiences of four families with terminally ill children are explored and described by means of phenomenological, unstructured, in-depth interviews. In phase two an acquiescence approach, which was designed for educational psychologists to facilitate families with terminally ill children to achieve acquiscence, is described. This approach is based on results from phase one. This article focuses on phase one. In this phase four families were interviewed individually, in the privacy of their homes. The interviews were audiotaped, and were transcribed for the purpose of data gathering. The data was analysed according to Tesch’s method and a literature control was performed to verify the results. Guba’s model for the validity of qualitative research was used.

Author(s):  
Michael Bennett

AbstractThis chapter draws on the author’s personal experience together with the findings from his qualitative research, to explore the cultural values driving problems of mental health and well-being among professional footballers. The study makes explicit the way in which players are expected to hide their experiences of being objectified—of being subject to gendered, racialised and other forms of dehumanisation—and denied a legitimate lived experience, an authentic heard voice. The chapter illustrates the importance in values-based practice of knowledge of values gained as in this instance by way of qualitative methods from the social sciences being used to fill out knowledge derived from individual personal experience.


2007 ◽  
Vol 191 (3) ◽  
pp. 206-211 ◽  
Author(s):  
Nagina Khan ◽  
Peter Bower ◽  
Anne Rogers

BackgroundThere is a gap between the supply of trained cognitive – behavioural therapists to treat depression and demand for care in the community. There is interest in the potential of self-help interventions, which require less input from a therapist. However, the design of effective self-help interventions is complex. Qualitative research can help to explore some of this complexity Aims The study aimed to identify qualitative studies of patient experience of depression management in primary care, synthesise these studies to develop an explanatory framework, and then apply this framework to the development of a guided self-help intervention for depression.MethodA meta-synthesis was conducted of published qualitative research.ResultsThe synthesis revealed a number of themes, including the nature of personal experience in depression; help-seeking in primary care; control and helplessness in engagement with treatment; stigma associated with treatment; and patients' understandings of self-help interventions.ConclusionsThis meta-synthesis of qualitative studies provided a useful explanatory framework for the development of effective and acceptable guided self-help interventions for depression.


2017 ◽  
Vol 17 (4) ◽  
pp. 408-423 ◽  
Author(s):  
Galia Sabar ◽  
Naama Sabar Ben-Yehoshua

This article addresses ethical dilemmas linked to using in-depth interviews while researching blended families in Israel, mainly during the analysis phase and while getting interviewees’ final written approval, prior to publication. Amongst the dilemmas presented are: should we publish statements that we thought might harm the interviewee even though we got their approval? Or those including pejorative statements on members of the interviewee’s extended family who weren’t asked for consent as they weren’t interviewed? We bring several types of changes our interviewees requested and demonstrate how we responded, not always successfully. Finally, we re-think dilemmas related to the complex issues of confidentiality and consent and raise questions – still open – these dilemmas generate. We discuss our own frustrations vis-à-vis the power vested with our interviewees that might affect the quality of any research when too many requests for substantial changes are done as a precondition for a written approval.


1989 ◽  
Vol 19 (2) ◽  
pp. 65-74 ◽  
Author(s):  
Rex J. van Vuuren

From a phenomenological point of view psychology as a human science is a descriptive science. Psychology as a descriptive science and psychology as an explanatory science are two distinct types of science and should not be viewed as two phases of science. The major arguments of Amedeo Giorgi's theoretical justification of descriptive science are presented. His arguments are the grounds on which two leading questions are explicated: What is description and what is the role of description in qualitative research? In reflecting on the context of gathering, creating and analysing descriptions, a distinction between description1 (concrete life-world descriptions) and description2 (psychological description of a phenomenon) is made. Descriptions are placed in the context of the researcher's interest; the researcher's request for a description by a subject; the subject as a narrator; the meaning of a description as a text; the researcher as a reader of descriptions and the researcher as author of description2. The conclusion consists of what might be ‘good’ descriptions.


2016 ◽  
Vol 8 (4) ◽  
pp. 945
Author(s):  
Ivan Kovačević ◽  
Dragana Antonijević ◽  
Žarko Trebješanin

Nostalgic narratives occur in two major forms – as historical nostalgia and as personal nostalgia. Personal contents and historical stories can be registered in the free form of life stories, a well-known genre in folkloristics, as well as in narratives obtained through two forms of interview. The first form of interview is generated from anthropological tradition, or rather, ethnographic data gathering and refers to descriptions of social, economic and all other elements of the past, while the other form of interview, generated in psychology, similar to an in-depth interview, refers to personal experiences from an earlier time. When nostalgic narratives are collected using either of these two approaches, it is possible to a) conduct an analysis of each narrative on its own, or b) compare them in order to determine similarities and differences. Based on this it is possible to determine where and how descriptions of the past which do not coincide with personal experience are generated, which is the main characteristic of both yugonostalgia and other similar ways of remembering the past.


1994 ◽  
Vol 38 (3) ◽  
pp. 279-291 ◽  
Author(s):  
T. L. Brink

This article contends that purely quantitative measures of Hispanic aged mental health have been insufficiently sensitive to cultural factors. It describes the uses and limitations of qualitative methods, especially in-depth interviews and life histories, and suggests that researchers should include the use of psychometric tests in these interviews, in order to improve the interpretations of the data. In this article the Adlerian perspective is developed along with several relevant dimensions for evaluating cases. Finally, seven cases illustrating the diversity of Hispanic elders are presented.


2021 ◽  
Vol 9 (2) ◽  
pp. 29-47
Author(s):  
Tamires Martins Bastos ◽  
Carolina Stopinski Padoan ◽  
Vanina Lima Monteiro ◽  
Márcia Mocellin Raymundo ◽  
Cristina Plentz Pessi ◽  
...  

Background: Medical students are a population at higher risk for psychological distress and mental health disorders when compared to the general population. Evidence-based interventions to promote well-being are available, but the rates of anxiety, burnout, depression, and suicide are not decreasing as expected. This scenario can lead to poor academic outcomes and lower assistance capability. Students are frequently targeted in interventions, but the academic environment itself is seldomly a target. Qualitative research is an insightful approach in deriving a deeper understanding of phenomena that are suitable to culture-sensitive interventions. Objective: To explore student’s perception of medical school and their understanding of which factors underly the path from well-being to impaired mental health. Methods: A qualitative exploratory study was performed. Focus groups and in-depth interviews were conducted, comprising students from all medical school years. Grounded theory was used to analyze data, and Consolidated Criteria for Reporting Qualitative Research were followed. Feedback from participants and through external supervision were conducted in ensuring saturation, reliability, and coherence. Results: Five main categories were identified: socioeconomic aspects, university environment (including culture, institutional functioning, and relationships), training issues, career demands, and mental health. Both personal and environmental factors were highlighted as contributors and stressors. Conclusion: A medical career appears to be related to a culture of omnipotence where excellence is frequently misconstrued as perfection. The complex relations between personal and environmental factors demand comprehensive strategies. Institutional rules could be adapted to avoid enhancing excessive competition. In some cases, individual assistance is needed. Inclusion of the academic community’s perspective and targeting the negative aspects of the medical culture seem essential to move forward in the field of mental health and person-centered learning.


2021 ◽  
Vol 24 (3) ◽  
pp. 205
Author(s):  
Ridho Al-Hamdi

This article examines the ideological position of Indonesia’s political parties in addressing the 2019 presidential threshold under the open-list proportional representation system. The article aims to determine the political cleavage among Indonesian political parties, whether classified into the ideological spectrum or the organisational degree. From a methodological standpoint, it is qualitative research by employing in-depth interviews and online news collection as a data gathering technique. The study’s finding depicts that the ideological cleavage is no longer relevant under the open-list proportional representation system because political parties eventually have pragmatical orientations rather than ideological onsiderations. It can be proven that the position of nationalist secular parties is not merely in the approval side but also in the denial and dilemma sides. Likewise, the position of nationalist Islamist parties can be found on two sides: denial and dilemma. This finding verifies that Indonesia’s ideological contestation is waning and inactive when political parties cope with power issues. On the contrary, the ideology is revived when it deals with religious and tribal affairs.


2019 ◽  
Vol 20 (1) ◽  
pp. 30-35
Author(s):  
Agus Prasetya

This article is motivated by the fact that the existence of the Street Vendor (PKL) profession is a manifestation of the difficulty of work and the lack of jobs. The scarcity of employment due to the consideration of the number of jobs with unbalanced workforce, economically this has an impact on the number of street vendors (PKL) exploding ... The purpose of being a street vendor is, as a livelihood, making a living, looking for a bite of rice for family, because of the lack of employment, this caused the number of traders to increase. The scarcity of jobs, causes informal sector migration job seekers to create an independent spirit, entrepreneurship, entrepreneurship, with capital, managed by traders who are true populist economic actors. The problems in street vendors are: (1) how to organize, regulate, empower street vendors in the cities (2) how to foster, educate street vendors, and (3) how to help, find capital for street vendors (4) ) how to describe grief as a Five-Foot Trader. This paper aims to find a solution to the problem of street vendors, so that cases of conflict, cases of disputes, clashes of street vendors with Satpol PP can be avoided. For this reason, the following solutions must be sought: (1) understanding the causes of the explosions of street vendors (2) understanding the problems of street vendors. (3) what is the solution to solving street vendors in big cities. (4) describe Street Vendors as actors of the people's economy. This article is qualitative research, the social paradigm is the definition of social, the method of retrieving observational data, in-depth interviews, documentation. Data analysis uses Interactive Miles and Huberman theory, with stages, Collection Data, Display Data, Data Reduction and Vervying or conclusions.


2018 ◽  
Vol 17 (1) ◽  
pp. 160940691879160 ◽  
Author(s):  
Andrew Stuart Lane ◽  
Chris Roberts

The interview is an important data-gathering tool in qualitative research, since it allows researchers to gain insight into a person’s knowledge, understandings, perceptions, interpretations, and experiences. There are many definitions of reflexivity in qualitative research, one such definition being “Reflexivity is an attitude of attending systematically to the context of knowledge construction, especially to the effect of the researcher, at every step of the research processes.” The learning pathways grid (LPG) is a visual template used to assist analysis and interpretation of conversations, allowing educators, learners, and researchers, to discover links from cognition to action, usually in a retrospective manner. It is often used in simulation educational research, with a focus on understanding how learners access their cognitive frames and underlying beliefs. In this article, we describe the use of the LPG as a prospective adjunct to data collection for interviews and focus groups. We contextualize it within a study among medical interns and medical students who were engaged in high-fidelity simulation exploring open disclosure after a medication error. The LPG allowed future optimization of data collection and interpretation by ensuring reflexivity within the researchers, a vital part of research conduct. We conclude by suggesting the use of the LPG has a reasonable fit when taking a social constructivist approach and using qualitative analysis methods that make reflexivity explicit and visible, therefore ensuring it is truly considered, understood, and demonstrated by researchers.


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