scholarly journals Family members’ lived experiences of non-compliance to psychiatric medication given to female adults living with depression

Curationis ◽  
2021 ◽  
Vol 44 (1) ◽  
Author(s):  
Jeanne M. Du Plessis ◽  
Marie Poggenpoel ◽  
Chris Myburgh ◽  
Annie Temane
Keyword(s):  
Health Care Professionals ◽  
Lived Experiences ◽  
Information Needs ◽  
Service Providers ◽  
Family Members ◽  
Psychiatric Medication ◽  
Adult Females ◽  
Improve Compliance ◽  
Field Notes ◽  
Contextual Study

Background: Family members face the burden of adult females living with depression who do not comply with psychiatric medication. Discomfort, tension, anxiety, frustration, and related feelings of hopelessness and dysfunction were identified by family members. There have also been records of financial problems, physical ill-health, limitations on social and recreational opportunities and a general deterioration in their quality of life. There is a shortage of published literature and information on the reasons for non-compliance to psychiatric medications. The existing body of information needs to be strengthened and future approaches encouraged. The study aimed to improve compliance of adult females dealing with depression to psychiatric medical treatment and the effect it has on family members caring for adult females living with depression.Objectives: To describe family members’ lived experiences of non-compliance to psychiatric medication by adult females living with depression.Method: A qualitative, exploratory, descriptive and contextual study design was used. A purposive sample of family members aged between 20 and 45 years was made. Data were collected by conducting eight in-depth, phenomenological interviews, and field notes were taken. The interviews focused on the central question: ‘Tell me your experiences of living with your wife, mother, sister and daughter living with depression and not taking their medication as ordered by the doctor?’ Tesch’s method for data analysis was used, and an independent coder analysed the data and met with the researcher for a consensus discussion of the results. Measures to ensure trustworthiness were applied and ethical principles were adhered to.Results: The three themes identified were: experienced psycho-social effects, experienced treatment refusal and experienced challenges in caring for adult females living with depression who are non-compliant to psychiatric medication. As a result, the absence of social help, disturbance of family working, shame, separation and troublesome conduct of the adult females who are non-compliant to psychiatric medication developed as principal subjects.Conclusions: The results demonstrated that family members experienced debilitation because they needed information about their relatives living with depression who are non-compliant to psychiatric medication. More information about the management of non-compliance of psychiatric medication was needed; a comprehensive awareness of the ramifications of the findings, treatment and care are required from mental health care professionals and service providers.

scholarly journals Family members’ lived experiences of non-compliance to psychiatric medication given to female adults living with depression

Curationis ◽  
2020 ◽  
Vol 43 (1) ◽  
Author(s):  
Jeanne M. du Plessis ◽  
Marie Poggenpoel ◽  
Chris Myburgh ◽  
Annie Temane
Keyword(s):  
Lived Experiences ◽  
Family Members ◽  
Psychiatric Medication

Lived Experiences of Family Members Caring for Individuals Living with Bipolar Disorder

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Ramatsobane Granny Lekoadi ◽  
Mmasethunya Annie Temane ◽  
Marie Poggenpoel ◽  
Chris Myburgh
Keyword(s):  
Bipolar Disorder ◽  
Family Relationships ◽  
Lived Experiences ◽  
Adult Population ◽  
Family Members ◽  
Chronic Mental Illness ◽  
Qualitative Research Design ◽  
Field Notes ◽  
The Individual ◽  
Purposive Sample

Globally, around a third of the adult population suffers from a mental disorder such as depression, anxiety, schizophrenia and bipolar disorder. Bipolar disorder (BD) is a chronic mental illness which adversely impacts the lives of the affected individuals and their family members. BD has a strong influence on family functioning. The main objective of this study was to explore and describe the lived experiences of family members who care for individuals living with BD. A qualitative research design, which is exploratory, descriptive and contextual in nature, was used in this study. A purposive sample was utilised to select family members who care for individuals living with BD to participate in the study. In-depth phenomenological interviews were conducted to collect data and observations in the form of field notes were documented. The data analysis was done using a thematic analysis. Four themes emerged from the analysis of the transcribed in-depth phenomenological interviews, namely caring for an individual living with BD was exhausting, strenuous and a continuous unasked responsibility; family members experienced their own routines being disrupted by the individual living with BD’s unpredictable behaviour and having to accompany them to appointments; family members experienced family relationships as being strained and challenged; and family members experienced the need for assistance to cope with the individuals living with BD. Strategies to facilitate the lived experiences of family members who care for individuals living with BD should be developed. The suggested strategies are facilitation of exploration of challenges by family members, self-empowerment, empowerment in relationships, and empowerment in mobilising resources.

Lived Experiences of Young People who Live with Mental Healthcare Users in Limpopo, South Africa

2020 ◽  
Vol 22 (2) ◽  
Author(s):  
Mamakota Maggie Molepo ◽  
Faniswa Honest Mfidi
Keyword(s):  
South Africa ◽  
Mental Illness ◽  
Young People ◽  
Lived Experiences ◽  
Daily Living ◽  
Support Systems ◽  
Family Members ◽  
Mental Healthcare ◽  
Limpopo Province ◽  
Burden Sharing

Mental illness is more than just the diagnosis to an individual – it also has an impact on the social functioning of the family at large. When a parent or relative has a mental illness, all other family members are affected, even the children. The purpose of the study was to provide insight into the lived experiences of young people who live with mental healthcare users and the way in which their daily coping can be maximised. A qualitative, descriptive, phenomenological research was undertaken to explore and describe the lived experiences of young people who live with mental healthcare users in the Limpopo province, South Africa. Audiotaped, unstructured in-depth interviews were conducted with 10 young people who grew up and lived with a family member who is a mental healthcare user in their homes, until data saturation was reached. A content analysis was used to derive themes from the collected qualitative data. Four major themes emerged as features reflective of the young people’s daily living with mental healthcare user, namely psychological effects, added responsibilities, effects on school performances, and support systems. This study recommends that support networks for young people be established through multidisciplinary team involvement and collaboration and the provision of burden-sharing or a relief system during times of need. With the availability of healthy coping mechanisms and support systems, the daily living situations and coping of young people could be maximised, thereby improving their quality of life while living with their family members with mental illness.

Information Practices of Baby Boomers as Caregivers

2013 ◽  
Author(s):  
Khuan Seow ◽  
Nadia Caidi
Keyword(s):  
Social Policy ◽  
Baby Boomers ◽  
Information Needs ◽  
Family Members ◽  
Age Groups ◽  
Maladie D’Alzheimer ◽  
Policy Makers ◽  
Age Related ◽  
The Family ◽  
Growing Age

Canada has an aging population with the fastest growing age groups (80 and 45-64 years old) vulnerable to age-related diseases such as Alzheimer’s disease. Caregiving responsibilities often fall to the family members of the afflicted without much attention and consideration being placed on the information needs of these caregivers. We call for a better understanding of these caregivers' information needs and uses by social policy makers as well as information providers.La population du Canada a tendance à vieillir considérablement, avec la hausse la plus rapide dans les groupes d’âge (80 et 45 à 64 ans). Les personnes âges sont très vulnérables à toute sorte de maladies, telles que la maladie d’Alzheimer. La responsabilité revient souvent aux membres de la famille qui doivent prendre soin des personnes atteintes de cette maladie. Or, nous ne connaissons que peu de chose sur les besoins en information des personnes qui prennent soin de ces malades de l’Alzheimer : qui sont-ils ? Quelles sont leurs sources... 

Users’ experiences of an evidence-informed health information website for spinal cord injury: A prospective qualitative study across the hospital and community setting (Preprint)

2020 ◽  
Author(s):  
Christina Cassady ◽  
William Ben Mortenson ◽  
Andrea F Townson ◽  
Shannon Sproule ◽  
Janice Jennifer Eng
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Information ◽  
Information Needs ◽  
Information Source ◽  
Family Members ◽  
Hospital Setting ◽  
Community Setting ◽  
Therapeutic Education ◽  
Cord Injury

BACKGROUND Access to quality health information is essential for self-management after serious injuries such as spinal cord injury (SCI). OBJECTIVE The goal of this study was to evaluate the role of a consumer website in addressing the information needs of persons and families with SCI, as well as its impact on their knowledge and behaviour. METHODS Persons with SCI and family members were recruited from 3 settings: an acute hospital, a rehabilitation hospital, and an SCI community organization to acquire perspectives from early after injury to the chronic stage. Participants were introduced to the Spinal Cord Injury Research Evidence (SCIRE) Community website, which was an internet site developed to provide evidence-informed health information about SCI in everyday language. After using the SCIRE Community website for 4 weeks, semi-structured individual interviews were conducted to explore purposes of use, user experience, and impact on knowledge and behaviour. Interview transcripts were analyzed using qualitative thematic analysis. RESULTS The participants were 24 individuals (18 persons with SCI and 6 family members). Thirteen participants completed the study in a hospital setting and 11 participants in a community setting. We identified 3 main themes in the data: (1) ‘An internet tool to support and empower persons and families’ described the empowering nature of access to an independent information source which enabled persons and families with SCI to take a more active role in their care; (2) ‘an accessible source of credible information’ described how users valued easy to access content with oversight by experts (i.e., perceived to be trustworthy); and (3) ‘Opportunities to increase impact’ outlined suggestions on creating opportunities to engage with content through active learning strategies and community connections. CONCLUSIONS Persons and families with SCI valued having access to an independent online health information website, especially early after injury, as it helped to empower autonomy and facilitated better communication between persons and families and healthcare providers. Our study provides support for the value of internet-based health information as a supplementary tool for therapeutic education for persons and families with serious health conditions such as SCI.

The Social Networks of Older Schizophrenia Patients

1997 ◽  
Vol 9 (1) ◽  
pp. 81-94 ◽  
Author(s):  
◽  
Shirley J. Semple ◽  
Thomas L. Patterson ◽  
William S. Shaw ◽  
Igor Grant ◽  
...  
Keyword(s):  
Service Providers ◽  
Family Relationship ◽  
Family Members ◽  
Treatment Compliance ◽  
Normal Subjects ◽  
Instrumental Support ◽  
Formal Service ◽  
Frequency Of Contact ◽  
Interpersonal Difficulties

There is a paucity of research that examines the role of family members and friends in the lives of older schizophrenia patients. This study compared 66 middle-aged and elderly outpatients with 31 normal comparison subjects. Five dimensions of social network were assessed: (a) family composition, geographic proximity, and frequency of contact; (b) instrumental support; (c) emotional support and interpersonal difficulties; (d) role of friends; and (e) use of formal service providers as sources of support and assistance. As compared with normal subjects, the schizophrenia patients were less likely to be married, less likely to have children, more likely to live alone, and had fewer friendships. The patients were, however, similar to comparison subjects on the following family-relationship variables: frequency of contact, instrumental support received, presence of a family confidant, and extent of interpersonal difficulties. These findings do not support the stereotype of older schizophrenia patients as being estranged from family members. The need for developing interventions that use key family members to interface with service providers and to monitor treatment compliance and continuity of care is discussed.

scholarly journals Information Needs of Health Care Professionals in an Aids Outpatient Clinic as Determined by Chart Review

1994 ◽  
Vol 1 (5) ◽  
pp. 395-403 ◽  
Author(s):  
N. B. Giuse ◽  
J. T. Huber ◽  
D. A. Giuse ◽  
C. W. Brown ◽  
R. A. Bankowitz ◽  
...  
Keyword(s):  
Health Care ◽  
Outpatient Clinic ◽  
Health Care Professionals ◽  
Information Needs ◽  
Chart Review

Efektifitas Sistem Informasi Manajemen Bagi Pengguna Internal (Studi Kasus Pada PT Bank Lampung)

2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Alhibarsyah Alhibarsyah ◽  
Keyword(s):  
Information Technology ◽  
Structural Equation ◽  
Information Needs ◽  
Information Quality ◽  
Service Providers ◽  
Statistical Technique ◽  
Population Based ◽  
Equation Modeling ◽  
Observation Data ◽  
Technology System

Abstract To fulfill information needs that are relevant, fast, and accurate, the application of information technology, especially computer-based is inseparable from the role of the three basic components of a computer. The success model of the information technology system developed by DeLone & McLean quickly received a response. PT. Bank Lampung as one of the banking service providers in Lampung, is the object of research to determine how variables affect the level of Quality System, Information Quality, Service Quality, Use and Satisfaction and Use of Benefits, to determine the level of effectiveness in PT Bank Lampung's internal customer management information system. SEM (Structural Equation Modeling) is a multivariate statistical technique that is a combination of factor analysis and regression analysis (correlation), which aims to examine the relationship between variables in the model. To explain the overall relationship that exists between the variables in this study using AMOS software (Moment Structure Analysis). This shows that the sample variance-covariance matrix (observation data) I s the same as the estimated matrix of variance-covariance (population) based on the model built, it is expected that the results of this study KI significantly influence P, KI significantly affects KP, KS influences significant impact on P, significantly affecting KS KP, KL significantly affected P, KL significantly affected KP, P significantly affected KP, P significantly affected M, KP significantly affected M.

The Physical Activity Support Needs and Strategies Scale: Its Development and Use

2016 ◽  
Vol 54 (1) ◽  
pp. 32-44
Author(s):  
Maria Carbó-Carreté ◽  
Joan Guàrdia-Olmos ◽  
Climent Giné
Keyword(s):  
Physical Activity ◽  
Intellectual Disability ◽  
Construct Validity ◽  
Information Sources ◽  
Service Providers ◽  
Family Members ◽  
Support Needs ◽  
Insufficient Physical Activity ◽  
Present Conception ◽  
Adequate Reliability

Abstract People with intellectual disability (ID) engage in insufficient physical activity which negatively affects their health. In accordance with the present conception of ID and the supports paradigm, the current study aimed to develop and psychometrically assess an instrument examining the support needs and strategies regarding physical activity by using individuals with ID (n = 529), service providers (n = 522), and family members (n = 462) as information sources. The analysis revealed adequate reliability for the proposed instrument, with α values between .70 and .80, and adequate construct validity for the versions of the scale for the 3 information sources, particularly for service providers. The assessment information can be included in Individualized Support Plans and could be used to design and implement the strategies for facilitating a person's physical activity in their community.

Sign in / Sign up

Export Citation Format

Share Document