Lived Experiences of Family Members Caring for Individuals Living with Bipolar Disorder

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Ramatsobane Granny Lekoadi ◽  
Mmasethunya Annie Temane ◽  
Marie Poggenpoel ◽  
Chris Myburgh
Keyword(s):  
Bipolar Disorder ◽  
Family Relationships ◽  
Lived Experiences ◽  
Adult Population ◽  
Family Members ◽  
Chronic Mental Illness ◽  
Qualitative Research Design ◽  
Field Notes ◽  
The Individual ◽  
Purposive Sample

Globally, around a third of the adult population suffers from a mental disorder such as depression, anxiety, schizophrenia and bipolar disorder. Bipolar disorder (BD) is a chronic mental illness which adversely impacts the lives of the affected individuals and their family members. BD has a strong influence on family functioning. The main objective of this study was to explore and describe the lived experiences of family members who care for individuals living with BD. A qualitative research design, which is exploratory, descriptive and contextual in nature, was used in this study. A purposive sample was utilised to select family members who care for individuals living with BD to participate in the study. In-depth phenomenological interviews were conducted to collect data and observations in the form of field notes were documented. The data analysis was done using a thematic analysis. Four themes emerged from the analysis of the transcribed in-depth phenomenological interviews, namely caring for an individual living with BD was exhausting, strenuous and a continuous unasked responsibility; family members experienced their own routines being disrupted by the individual living with BD’s unpredictable behaviour and having to accompany them to appointments; family members experienced family relationships as being strained and challenged; and family members experienced the need for assistance to cope with the individuals living with BD. Strategies to facilitate the lived experiences of family members who care for individuals living with BD should be developed. The suggested strategies are facilitation of exploration of challenges by family members, self-empowerment, empowerment in relationships, and empowerment in mobilising resources.

Mental Health of Family Members Caring for Individuals Living with Bipolar Disorder

2019 ◽  
Vol 21 (2) ◽  
Author(s):  
Ramatsobane Granny Lekoadi ◽  
Mmasethunya Annie Temane ◽  
Marie Poggenpoel ◽  
Chris Myburgh
Keyword(s):  
Mental Health ◽  
Bipolar Disorder ◽  
Conceptual Framework ◽  
Adult Population ◽  
Family Members ◽  
Mental Health Clinics ◽  
Qualitative Research Design ◽  
Health Clinics ◽  
The Family ◽  
Research Findings

Globally, around a third of the adult population suffers from a mental disorder such as depression, anxiety, schizophrenia and bipolar disorder. Bipolar disorder (BD) is a chronic mental illness which adversely impacts on the lives of the affected individuals and their family members. BD has a strong influence on the family functioning. The burden of care and responsibility makes it challenging for family members to focus on their lives and future. The aim of the study was to develop and describe a conceptual framework to facilitate the empowerment of family members who care for individuals living with BD. A qualitative research design, which is exploratory, descriptive and contextual in nature, was used in this study to explore and describe family members’ mental health when caring for individuals living with BD. The researcher developed and described a conceptual framework based on the research findings of phenomenological interviews with a purposefully selected sample of family members who care for individuals living with BD. The results show that family members were disempowered when caring for individuals living with BD. The central concept of the conceptual framework was identified based on the results as the facilitation of empowerment of family members who care for individuals living with BD. The researcher recommends that the conceptual framework to facilitate the empowerment of family members who care for individuals living with BD be implemented at the mental health clinics. It is also recommended that the conceptual framework be incorporated into the curriculum of psychiatric nursing.

scholarly journals The systems psychodynamic leadership coaching experiences of nursing managers

2010 ◽  
Vol 15 (1) ◽  
Author(s):  
Frans Cilliers ◽  
Landa Terblanche
Keyword(s):  
Learning Experiences ◽  
Role Identity ◽  
Leadership Role ◽  
Leadership Coaching ◽  
Leadership Roles ◽  
General Hypothesis ◽  
Qualitative Research Design ◽  
Nursing Managers ◽  
Field Notes ◽  
The Individual

The mostly linear and mechanistic nature of the nursing manager role is rapidly becoming more dynamic and systemic. The change involves task and people management within a constantly changing organisational identity, taking up multiple leadership roles, having to authorise oneself and others in a complex matrix system, and managing conscious and unconscious psychological boundaries within and between conflicting systems. The aim of this study was to describe the systems psychodynamic learning experiences of nursing managers during leadership coaching. The coaching task was to provide learning opportunities to the individual leader, towards gaining insight into conscious and unconscious leadership dynamics in terms of anxiety, task, role, authorisation, boundaries and identity. A qualitative research design was used. Six nursing managers attended ten leadership coaching sessions over ten weeks. Field notes and reflective essays were analysed using systems psychodynamic discourse analysis. The findings indicated clarity and authorisation in the participants’ primary task and normative roles; anxiety and de-authorisation in their experiential and phenomenal roles; anxiety in boundary management related to the misuse of power by others; and the continuous exploration of their leadership role identity towards achieving integration. Participants’ learning experiences were evaluated in terms of criteria for organisational learning, after which a general hypothesis was formulated.OpsommingDie meestal liniêre en meganistiese aard van die verpleegbestuursrol is vinnig besig om na ’n meer dinamiese en sistemiese rol te verander. Die verandering behels taak- en mensbestuur binne 'n steeds veranderende organisasie-identiteit, waar 'n verskeidenheid rolle opgeneem word, die self en ander in 'n komplekse matrikssisteem bemagtig word, en waartydens bewuste en onbewuste sielkundige grense in en tussen botsende sisteme bestuur word. Die doel van hierdie studie was om die sisteem-psigodinamiese leerervaringe van verpleegbestuurders tydens leierskapafrigting te beskryf. Die afrigtingstaak was om leergeleenthede aan die individuele leier beskikbaar te stel vir die ontwikkeling van insig in bewuste en onbewuste leierskapsdinamika in terme van angs, taak, rol, outoriteit, grense en identiteit. 'n Kwalitatiewe navorsingsontwerp is gebruik. Ses verpleegbestuurders het tien leierskapafrigtingsessies oor tien weke bygewoon. Veldnotas en besinnende opstelle is deur middel van sisteem-psigodinamiese gespreksanalise ontleed. Die bevindinge dui op duidelikheid oor en bemagtiging in hulle primêre taak en normatiewe rol; angs en ontmagtiging in hulle ervarings- en fenomenale rolle; angs in grenshandhawing wat verband hou met magsmisbruik deur andere; en die voortdurende ondersoek en integrasie van leierskapsrolidentiteit. Deelnemers se leerervarings is na aanleiding van kriteria vir organisasieleer geëvalueer, waarna die algemene hipotese geformuleer is.

scholarly journals A Biopsychosocial-Ecological Framework for Family-Framed Dementia Care

2021 ◽  
Vol 12 ◽  
Author(s):  
Carol Ann Podgorski ◽  
Sharon D. Anderson ◽  
Jasneet Parmar
Keyword(s):  
Family Relationships ◽  
Interprofessional Education ◽  
Family System ◽  
Family Members ◽  
Dementia Care ◽  
Ecological Framework ◽  
The Social ◽  
Centered Care ◽  
Potential Risk Factors ◽  
The Individual

The biopsychosocial model has been applied through collaborative care dementia models to the diagnosis, symptom management, and treatment of dementia with a focus specifically on the person with dementia. Because individuals with dementia are increasingly dependent upon others particularly as the illness advances, dementia care requires the involvement and commitment of others, usually family, along with support from community-based resources. Hence, the quality and effectiveness of a person's dementia care are shaped in large part by the foundation of family relationships and the social and community networks in which they are embedded. While most current dementia care models incorporate biopsychosocial principles and recognize the essential role that family members play as caregivers, they fail to consider a patient's family system and relationships as potential risk factors or social determinants for care outcomes. This paper introduces a biopsychosocial-ecological framework to dementia care that is person-centered and “family-framed” in that it targets factors that influence care considerations at both the individual and relational levels of the social ecological networks that the patient and their family members occupy. We use this model to illustrate how current dementia care practices tend to focus exclusively on the individual patient and caregiver levels but fail to identify and address important relational considerations that cut across levels. We call for the need to add assessment of family relational histories of persons with dementia and family members who care for them in order to better meet the needs of the patient and the caregiver and to prevent harm. This model accentuates the need for interprofessional education on family assessments and caregiver-centered care, as well as interdisciplinary, collaborative models of dementia care that assume more accountability for meeting the needs of family caregivers in addition to those of persons with dementia.

scholarly journals Congenital abnormalities: experiences of parents atoshakati intermediate hospital, oshana region, Namibia

2017 ◽  
Vol 5 (2) ◽  
pp. 228
Author(s):  
Marian Sankombo ◽  
Linda Lukolo ◽  
Charles Lukanga Kanga Kimera
Keyword(s):  
Family Relationships ◽  
Congenital Abnormalities ◽  
Family Members ◽  
Health Sector ◽  
Phenomenological Approach ◽  
Formal Services ◽  
Parenting Expectations ◽  
The Individual ◽  
Contextual Study ◽  
The Impact

Background: Congenital abnormality (CA) is one among eminent problems in the society that affects the livelihood of the individual, communities and the health sector. It creates uncertainty among family members as they strive to identify ways and means to assist one another in the upbringing of these children born with an anomaly. The ultimate purpose of this study was to describe and explore the experiences of parents of children with congenital abnormalities and to identify the source of support such as parents employs when dealing with the child born with congenital abnormalities. This study was conducted at Intermediate Hospital Oshakati (IHO) in Namibia‘s Oshana region.Methods: A qualitative, explorative and a contextual study design using a phenomenological approach was utilized throughout this study. In-depth interviews were conducted with twelve “purposefully” selected participants from the population of parents of children born with congenital abnormalities whose children were either admitted in hospital or brought for follow-up. Data analysis was done using a content analytical method.Results: Data were derived from 12 participants interviewed, comprised of parents of children with reversible and irreversible conditions, long hospitalization, more frequent follow ups and those waiting for surgery. The results were categorized in seven categories, including: 1) A child with congenital abnormalities: the impact of disability; 2) Family relationships; 3) Parenting expectations and practices; 4) Altering one’s family daily life- treading a new path; 5) Social support; 6) Formal services; 7) Societal and community acceptance.Conclusion: The expectations parents had for a normal child becomes a nightmare when the child they were expecting is born with the disability. Living with such a child can be stressful for parents and other family members. Therefore, exploring and describing the lived experiences of parents of children born with congenital abnormalities is an important in the process of finding ways to assist or support parents to provide proper care for their children.

The Dominant Matriarch Syndrome

1967 ◽  
Vol 113 (503) ◽  
pp. 1069-1071 ◽  
Author(s):  
A. H. Clarke
Keyword(s):  
Family Relationships ◽  
Family Doctor ◽  
Family Members ◽  
Emotional Problems ◽  
Routine Procedure ◽  
Affected Child ◽  
Child Guidance ◽  
The Family ◽  
Individual Family ◽  
The Individual

This is a clearly recognizable complex of internal family relationships which lies behind, and is an integral part of, the illness presentation pattern of one or more of the individual family members. It may explain many of the emotional problems experienced by children which are noted by either the School Doctors or the Child Guidance Clinics. It is routine procedure in such cases to interview the mother of the affected child, but it is not the practice to see any older generation. Only the family doctor is in a position to see the three generation complex involved.

scholarly journals Family functioning and stroke: Family members’ perspectives

2021 ◽  
Vol 10 ◽  
Author(s):  
Sibulelo Gawulayo ◽  
Charlene J. Erasmus ◽  
Anthea J. Rhoda
Keyword(s):  
Family Functioning ◽  
Family Relationships ◽  
Family Members ◽  
Emotional Engagement ◽  
Stroke Survivors ◽  
Qualitative Research Design ◽  
Functional Patterns ◽  
Point Data ◽  
Caregiving Roles ◽  
Depth Interviews

Background: Stroke survivors often experience permanent or temporal physical and psychological stroke impairments. As a result, stroke survivors are often discharged to recover in their home environments and are cared for mostly by family members. Additionally, caregiving roles are often assumed without any formal training or preparation whatsoever. This can transform the family’s functional patterns due to adjustments that are made to accommodate the caregiving needs.Objectives: To explore the experiences and influence of stroke on families and on family functioning.Method: Explorative descriptive qualitative research design through the use of in-depth interviews were employed as the means of data collection. The sample size was eight (8) family members and was guided by the saturation point. Data was thematically analysed.Results: Four themes emerged from the analysis: 1) reduced interactions with family members due to communication barriers, 2) the influence of stroke on family relationships, 3) emotional engagement in caring for a family member with a stroke and 4) financial implications of stroke on family functioning. This study found that stroke can influence the family functioning negatively as family members may be forced to change their functional patterns. However, some family members reported positive experiences, they developed a supportive structure to accommodate the new life of the stroke survivor.Conclusion: Using the McMaster’s model of family functioning, this study found that stroke is a threat to the six dimensions of family functioning: 1) problem-solving, 2) communication, 3) roles, 4) affective responsiveness, 5) affective involvement, and 6) behaviour control.

scholarly journals The lived experiences of children living on the streets of Hillbrow

Curationis ◽  
2015 ◽  
Vol 38 (1) ◽  
Author(s):  
Chris Myburgh ◽  
Aneesa Moolla ◽  
Marie Poggenpoel
Keyword(s):  
Mental Health ◽  
Emotional Abuse ◽  
Lived Experiences ◽  
Suicide Ideation ◽  
Daily Basis ◽  
Poor Mental Health ◽  
Field Notes ◽  
Positive Feelings ◽  
Street Dwellers ◽  
Purposive Sample

Background: The effects of daily abuse and hardship on the streets lead to poor mental health in children living on the streets, resulting in them choosing ineffective and self-destructive coping strategies that impact their physical health and overall sense of wellbeing. The facilitation of the mental health of children living on the streets who are subjected to daily threats to their survival is thus crucial.Objectives: The aim of this research was to explore and describe the lived experiences of children living on the streets of Hillbrow, Johannesburg.Method: The research design was qualitative, exploratory, descriptive and contextual. A purposive sample was selected through a temporary shelter in Johannesburg, Gauteng, South Africa and consisted of 14 male children living on the streets. Data were collected using drawings, in-depth phenomenological interviews and field notes. The central interview opening statement was: ‘Tell me about your life on the street’.Results: The results obtained indicated that children living on the streets are threatened, exploited and exposed to physical, sexual and emotional abuse on a daily basis by the community, the authorities and other street dwellers. This leads to feelings of sadness, fear, anxiety, misery, despair, hopelessness, helplessness and suicide ideation, which in turn lead to drug abuse and criminal activities. In contrast, positive feelings of sympathy for other children living on the streets emerged and these children also displayed perseverance, resilience and a striving for autonomy.Conclusion: Street life exposes children to a variety of experiences, both positive and negative. A striving after autonomy is clearly depicted by these children, who are able to tap into a range of responses, both on- and off-street.

scholarly journals Pattern of interaction and relationships between family members

2017 ◽  
Vol 5 (1) ◽  
pp. 45
Author(s):  
Manar Alazzam ◽  
Mohammed Albashtawy ◽  
Maen Aljezawi ◽  
Abdul-Monim Batiha ◽  
Mazen Freij ◽  
...  
Keyword(s):  
Family Relationships ◽  
Family Members ◽  
Unit Of Analysis ◽  
Family Unit ◽  
The Family ◽  
Global Understanding ◽  
The Individual ◽  
Primary Unit ◽  
Insight Into ◽  
Significant Data

Studying a family as a unit to describe the relationships in will allow the researcher to investigate the family as the primary unit and as a whole, which means that the family, the individuals as family members and their relationship is in the foreground. The data derived using this approach comes from the family unit functioning as a whole and does not reflect the individual members’ contributions “solely” or in a combined way. Such an approach allows for more global understanding of the issues surrounding family relationships as health and social data can be collected from different aspects and dimensions within the family as a unit and it will add more significant data. Even though studying a family as a unit eliminates the non-independence issue it does raise concerns about ignoring many potentially important details of intra-family relationships. In conclusion, the premise of studying the family as a unit (family as the unit of analysis) is that the researcher can gain greater insight into families in general and a family’s relationships in particular.

scholarly journals Family members’ lived experiences of non-compliance to psychiatric medication given to female adults living with depression

Curationis ◽  
2021 ◽  
Vol 44 (1) ◽  
Author(s):  
Jeanne M. Du Plessis ◽  
Marie Poggenpoel ◽  
Chris Myburgh ◽  
Annie Temane
Keyword(s):  
Health Care Professionals ◽  
Lived Experiences ◽  
Information Needs ◽  
Service Providers ◽  
Family Members ◽  
Psychiatric Medication ◽  
Adult Females ◽  
Improve Compliance ◽  
Field Notes ◽  
Contextual Study

Background: Family members face the burden of adult females living with depression who do not comply with psychiatric medication. Discomfort, tension, anxiety, frustration, and related feelings of hopelessness and dysfunction were identified by family members. There have also been records of financial problems, physical ill-health, limitations on social and recreational opportunities and a general deterioration in their quality of life. There is a shortage of published literature and information on the reasons for non-compliance to psychiatric medications. The existing body of information needs to be strengthened and future approaches encouraged. The study aimed to improve compliance of adult females dealing with depression to psychiatric medical treatment and the effect it has on family members caring for adult females living with depression.Objectives: To describe family members’ lived experiences of non-compliance to psychiatric medication by adult females living with depression.Method: A qualitative, exploratory, descriptive and contextual study design was used. A purposive sample of family members aged between 20 and 45 years was made. Data were collected by conducting eight in-depth, phenomenological interviews, and field notes were taken. The interviews focused on the central question: ‘Tell me your experiences of living with your wife, mother, sister and daughter living with depression and not taking their medication as ordered by the doctor?’ Tesch’s method for data analysis was used, and an independent coder analysed the data and met with the researcher for a consensus discussion of the results. Measures to ensure trustworthiness were applied and ethical principles were adhered to.Results: The three themes identified were: experienced psycho-social effects, experienced treatment refusal and experienced challenges in caring for adult females living with depression who are non-compliant to psychiatric medication. As a result, the absence of social help, disturbance of family working, shame, separation and troublesome conduct of the adult females who are non-compliant to psychiatric medication developed as principal subjects.Conclusions: The results demonstrated that family members experienced debilitation because they needed information about their relatives living with depression who are non-compliant to psychiatric medication. More information about the management of non-compliance of psychiatric medication was needed; a comprehensive awareness of the ramifications of the findings, treatment and care are required from mental health care professionals and service providers.

scholarly journals Avaliação da sobrecarga de familiares cuidadores de indivíduos com esquizofrenia

2019 ◽  
Vol 14 ◽  
Author(s):  
Carla Rodrigues Pereira ◽  
Raissa Caroline De Oliveira ◽  
Diego Dias De Araújo ◽  
Renê Ferreira da Silva Junior ◽  
Ricardo Otávio Maia Gusmão
Keyword(s):  
Mental Health ◽  
Problem Behaviors ◽  
Family Relationships ◽  
Care Center ◽  
Family Members ◽  
Psychosocial Care ◽  
Salud Mental ◽  
Quantitative Descriptive ◽  
The Individual

Objetivo: avaliar a sobrecarga (objetiva e subjetiva) vivenciada pelos familiares cuidadores de indivíduos com esquizofrenia. Método: trata-se de um estudo quantitativo, descritivo, com 15 familiares que cuidavam diretamente ou indiretamente do indivíduo com esquizofrenia em um Centro de Atenção Psicossocial. Analisaram-se os dados por meio da estatística não paramétrica. Resultados: evidenciou-se sobrecarga objetiva dos familiares no preparo das refeições (60%), acompanhamento do paciente no transporte (66,7%), administração do dinheiro do paciente (80%), acompanhamento nas consultas médicas (60%), em relação à supervisão de comportamentos problemáticos (33,3%), comportamento suicida (33,3%) e excesso de cigarros, alimentos e líquidos (33,3%). Conclusão: avaliaram-se as principais sobrecargas objetivas e subjetivas vivenciadas pelos cuidadores de indivíduos com esquizofrenia, possibilitando assim, contribuir para a reflexão dos serviços sobre intervenções necessárias. Descritores: Saúde Mental; Esquizofrenia; Relações Familiares; Cuidadores; Serviços de Saúde Mental; Impacto Psicossocial.AbstractObjective: to evaluate the overload (objective and subjective) experienced by family caregivers of individuals with schizophrenia. Method: this is a quantitative, descriptive study with 15 family members who directly or indirectly cared for the individual with schizophrenia in a Psychosocial Care Center. Data was analyzed using nonparametric statistics. Results: there was objective overload of family members in the preparation of meals (60%), patient follow-up in transportation (66.7%), administration of patient money (80%), follow-up at medical appointments (60%), supervision of problem behaviors (33.3%), suicidal behavior (33.3%) and excess cigarettes, food and liquids (33.3%). Conclusion: the main objective and subjective overloads experienced by caregivers of individuals with schizophrenia were evaluated, thus contributing to the reflection of the services on necessary interventions. Descriptors: Mental Health; Schizophrenia; Family Relationships; Caregivers; Mental Health Services; Psychosocial Impact.ResumenObjetivo: evaluar la sobrecarga (objetiva y subjetiva) experimentada por los cuidadores familiares de personas con esquizofrenia. Método: este es un estudio cuantitativo y descriptivo con 15 miembros de la familia que cuidaron directa o indirectamente al individuo con esquizofrenia en un Centro de Atención Psicosocial. Los datos se analizaron mediante estadísticas no paramétricas. Resultados: hubo sobrecarga objetiva de miembros de la familia en la preparación de comidas (60%), seguimiento del paciente en transporte (66.7%), administración del dinero del paciente (80%), seguimiento en citas médicas (60%), supervisión de conductas problemáticas (33.3%), conductas suicidas (33.3%) y exceso de cigarrillos, alimentos y líquidos (33.3%). Conclusión: se evaluaron las principales sobrecargas objetivas y subjetivas experimentadas por los cuidadores de individuos con esquizofrenia, contribuyendo así a la reflexión de los servicios sobre las intervenciones necesarias. Descriptores: Salud mental; Esquizofrenia; Relaciones Familiares; Cuidadores; Servicios de Salud Mental; Impacto Psicosocial. 

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