Information Practices of Baby Boomers as Caregivers

Author(s):  
Khuan Seow ◽  
Nadia Caidi

Canada has an aging population with the fastest growing age groups (80 and 45-64 years old) vulnerable to age-related diseases such as Alzheimer’s disease. Caregiving responsibilities often fall to the family members of the afflicted without much attention and consideration being placed on the information needs of these caregivers. We call for a better understanding of these caregivers' information needs and uses by social policy makers as well as information providers.La population du Canada a tendance à vieillir considérablement, avec la hausse la plus rapide dans les groupes d’âge (80 et 45 à 64 ans). Les personnes âges sont très vulnérables à toute sorte de maladies, telles que la maladie d’Alzheimer. La responsabilité revient souvent aux membres de la famille qui doivent prendre soin des personnes atteintes de cette maladie. Or, nous ne connaissons que peu de chose sur les besoins en information des personnes qui prennent soin de ces malades de l’Alzheimer : qui sont-ils ? Quelles sont leurs sources... 

1976 ◽  
Vol 57 (9) ◽  
pp. 547-554 ◽  
Author(s):  
Shirley Zimmerman

Benefits from an array of social programs may accrue to family members, but the programs were not designed to ensure the viability of the family as a social system


Author(s):  
Snigdha Sarkar ◽  
Sasmita Samanta ◽  
Arpita Mitra

In new age scenario Prisons are meant not only to punish the convict but also correct the situation and habits of the convicts, who is responsible for inflicting harm on the victim. But family members of the convict are also the victim in the process and situation. Convicts family face the horrific situation during this process. Prisoner’s families are maltreated directly and indirectly by the society. They live in destitution. Imprisonment of family member not only diminishes the earnings of adult men but also reduces familial resources for the basic necessities of life. The family members have to sacrifice their children’s education, ancestor’s property, past savings, in some cases even necessary wants of their life. We always think about the victim on whom the harm has been directly inflicted and completely ignore the harm inflicted on the kin of the convict. The present study is an endeavour to bring to light the economic vulnerability of families of convicts in a prison in Bhubaneswar. After interviewing the family members of prisoners, statistical analysis is done through SPSS. The findings are elaborated in narrative manner so that the findings will be helpful for policy makers in future.


2016 ◽  
Vol 33 (S1) ◽  
pp. S570-S570
Author(s):  
M. Kékes Szabó

Family organization has arguably a determinative role in our healthy social-emotional and cognitive development, although we may have different perceptions of this system. Its background is in connection with the family members’ different experience, knowledge and beliefs about the world. Furthermore, we are also prone to imagine others’ mental representations that can help us to understand them better. Sometimes these meta-representations may be more accurate, while other times they may be incorrect. Although theories of mind tasks are well-known tools to explore (meta-) representations, the use of Gehring's (2010) Family System Test (FAST) in this way is less tested. The aim of this study was to compare the family members’ perceptions of the family with one another. Children's and parents’ family images were explored. In line with Smith, Myron-Wilson and Sutton's (2010) previous findings, my results confirmed the parents’ increased ability to assess the children's perceptions. Finally, growing theory of mind abilities may also be in the background of the results above (Happe, Winner and Bownell, 1998). Subsequent studies have to broaden the focus and involve more methods, age groups in the investigations to know more about human cognitive processes.Disclosure of interestThe author has not supplied his/her declaration of competing interest.


2021 ◽  
Vol 12 (1) ◽  
pp. 42-52
Author(s):  
Uswatun Insani ◽  
Evi Supriatun

Introduction: Preeclampsia is emergencies in obstetrics, where pregnant women experience health conditions that can be life-threatening and can occur during pregnancy, natal and post-natal. If this obstetric emergency is not treated immediately, it can result in death the mother and also the fetus. Understanding care needs of pregnant with preeclampsia is very important for families because most pregnant women and their families lack understanding and information about high-risk pregnancy care for this disease. Objectives: This research aims to explore the needs of families in the care of preeclampsia. Methods: This research used qualitative descriptive to obtain answers related to individual opinions, responses and perceptions with exploring family needs for care pregnant with preeclampsia. Results: The results of this research there are seven themes related to family needs in pregnancy care with preeclampsia, namely: 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort. 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort. 1) Description of family knowledge about pregnant with preeclampsia, 2) Information needs, 3) Comfort needs, 4) Economic / financial needs, 5) Spiritual needs, 6) Needs for support from other family members, 7) Need for support from health workers. Conclusions: The importance of involvement of the family and surrounding environment, as a source of strength for pregnant with preeclampsia allows better care for mothers, their babies and reduces the consequences of advanced preeclampsia. Health workers are expected to be able to involve families in the care of pregnant women with preeclampsia as a promotional, preventive and curative effort.


Blood ◽  
2021 ◽  
Vol 138 (Supplement 1) ◽  
pp. 1929-1929
Author(s):  
Olufunmilayo A Bamigbola ◽  
Lorna E Warwick

Abstract Background Lymphomas can occur in all age groups but most commonly occur in older adults. Despite the shift towards patient- centered care, very little has been done to explore the information needs of patients with lymphoma by age. It is important for information to accessible to patients of all ages, as informed patients are consistently associated with better outcomes and healthcare experiences. In this study, Lymphoma Coalition (LC) describes the age-related differences in the information needs of patients with lymphoma using the 2020 LC Global Patient Survey (GPS). The objectives of this study were to identify: 1) how patients felt about the amount of information they received at diagnosis 2) the content of the information received at diagnosis and the level of understanding, and 3) their informational needs. Methods Globally, 11,878 respondents including 9,179 patients and 2,699 caregivers took part in the 2020 LC GPS. There were 9,078 patients included in this analysis who self-identified their age. These patients were grouped into five age groups for analysis: 18-29 (n=638), 30-39 (n=1,196), 40-59 (n=3,261), 60-69 (n=2,216), and 70+ (n=1,767). Demographics of the five age groups were examined, and descriptive analyses for all questions relating to information needs were performed in IBM SPSS v27. Results The five age groups differed significantly (p< 0.001) in all the demographic categories examined. These categories included lymphoma subtype, sex, area of residence, education level, employment status, and household status. Patients were asked how they felt about the amount of information given to them at diagnosis. The oldest age group (70+) reported the highest prevalence (70%) of having received the right amount of information (Table 1). The younger age groups (18-29; 30-39; and 40-59) reported the highest prevalence of not receiving enough information (38%, 42%, and 41% respectively). Although not many patients reported being given too much information, of those who did, the younger age groups (18-29; 30-39; and 40-59) were the most prevalent (10%; 7%; and 5% respectively) (Table 1). Patients were asked about the type of information given to them at diagnosis, and how well they understood it. Compared to the younger age groups, the older age groups (60-69 and 70+) more frequently reported that they received and understood information given to them on different medical treatment options, the process and stages of their care, and how to manage side effects of treatment (Table 1). Patients were also asked what they needed more information about (Table 1). The top three areas that all patients needed more information about (regardless of age group) were treatment options, side effects from treatment, and their diagnosis and what it means. There was significant difference in the prevalence of how these information needs were reported between the age groups (Table 1). There was also significant difference in the prevalence of reporting a need for more information on support for self care, psychological support/counselling, and fertility across the age categories (Table 1). The lowest prevalence for needing more information in any of these areas was observed in the older age groups (60-69 and 70+), while the highest prevalence was observed in the youngest age groups (18-29 and 30-39) (Table 1). Although few patients reported not needing more information in any of these areas, its reporting was most prevalent in the older age groups (60-69 and 70+) (12% and 19%, respectively) (Table 1). Summary/Conclusions This analysis revealed that patients with lymphoma/CLL experience medical information differently across age groups. Compared to the mid and oldest patient groups, younger patients with lymphoma or CLL reported experiencing medical information differently than older patients do and reported less understanding of the medical information given to them. The younger patients also reported higher informational needs about their disease and treatment that may also be related to their age (e.g. information on fertility and family support). Clinicians should note these differences in age-group experiences and information needs, with the understanding that younger patients with lymphoma or CLL may require additional information, attention, and support. In the future, LC would like to explore how demographic differences may have confounded results. Figure 1 Figure 1. Disclosures No relevant conflicts of interest to declare.


1979 ◽  
Vol 49 (1) ◽  
pp. 20-52 ◽  
Author(s):  
Joseph Featherstone

More than thirty years ago, the Editorial Board committed itself to publishing articles concerned with "the clarification of, and the discovery of solutions to, the problems of education," seeking to give broader scope to the transmission of culture that goes on "less formally but inexorably—in the home, the church, the office and factory, through newspapers, movies, and the radio, and in ordinary social interaction."Over the years, our attention has shifted from one facet of this process to another; recently the family has become a major focus for educators, policy makers,and researchers. Joseph Featherstone's article provides a much-needed perspective on why the family is now at the center of many political and policy debates. He reminds us that this current emphasis is the result of both a long tradition of romanticizing the virtues of the family and the particular constellation of events we now refer to as "the sixties." While the family is emerging as a symbol in the effort to frame a more communal view of social policy, Featherstone warns of the danger inherent in seeking private solutions to problems that are collective in nature.


2019 ◽  
Vol 40 (16) ◽  
pp. 2207-2224
Author(s):  
Jane Ribbens McCarthy ◽  
Val Gillies ◽  
Carol-Ann Hooper

The twin themes of “family troubles” and “troubling families” are closely linked, but they are also each distinct in themselves, and nuanced in particular ways. Rooted particularly (but not solely) in our U.K.-based academic experiences, we offer an account of family studies as siloed between a binary of “the mainstream”, focused on what may be implicitly understood as “ordinary” family lives, and “the problematic”, focused on aspects of family lives that may be of interest to social policy experts, professionals, and practitioners and geared toward interventions of some sort. What has been missing has been sociological attention to the pervasiveness of change and challenges as core for all family lives over time, with such changes sometimes experienced as troubling by family members themselves, and/or seen to be troubling by others such as professionals who saw them as “dysfunctional”, or policy makers who saw them as “social problems”. Practice and policy-oriented research has thus focused on interventions to “make things better”, or to achieve “reforms”, for families that are considered to be “problematic”. Consequently, what may be described as the “normal troubles” of family lives have been largely neglected. In this article, we explore what is brought into view by focusing on “family troubles” and “troubling families”; we argue that these themes offer fertile ground for opening up new dialogue between these contrasting bodies of work, questioning and crossing boundaries, illuminating taken-for-granted assumptions, and encouraging fresh perspectives.


2007 ◽  
Vol 84 (3) ◽  
pp. 495-508 ◽  
Author(s):  
Renita Coleman ◽  
Maxwell McCombs

This study examined agenda-setting differences between those aged 18 to 34 and two older generations. Using two surveys with statewide random samples and content analyses for each, it found that the agenda of issues important to young adults was correlated with the media's issue agenda (rho= .80 and .90). For the heaviest Internet users, who were more likely to be in the two youngest age groups, the correlation was .70. Although the youngest generation used traditional media such as newspapers and television significantly less frequently than older generations, and used the Internet significantly more often, this differential media use did not eliminate the agenda-setting influence.


In the article we analyze the results of the sociological research «The implementation of the needs of the elderly. The study of the opinion of the elderly and their members of family» in the Transcarpathian region. We investigate the needs and problems in the activity of the elderly, and also pay attention to the opinion of the family members, that are taking care about them. It is indicated which public institutions and instruments are involved in providing social assistance to the older generation. We emphasize on the importance of social assistance according to the decision of family members to take care about their relatives. We characterize the notion of the derivational poverty. The specificity of the needs of the elderly people of the Transcarpathian region in terms of derivation is considered. We make the result that satisfaction and taking into account the needs of this category of the population indicates an effective social policy of the state.


2016 ◽  
Vol 13 (6) ◽  
pp. 699-719 ◽  
Author(s):  
Simon Keller

Moral blackmail is a wrongful strategy intended to force a person to perform an act by manipulating her circumstances so as to make it morally wrong for her to do anything else. The idea of moral blackmail can seem paradoxical, but moral blackmail is a coherent and indeed a familiar phenomenon. It has special significance for our intimate personal relationships and is often a force within family dynamics. It is used to enforce power relationships within families, and in particular to uphold expectations that women and girls will do most of the work in caring for vulnerable family members. It is also used as a tool of policy makers, to transfer to families duties of care that would otherwise be discharged by the government or by society at large. It is an important but under-recognized source of ongoing manipulation and exploitation.


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