scholarly journals The family as a member of palliative care assistance

2018 ◽  
Vol 12 (9) ◽  
pp. 2399
Author(s):  
Johnata Da Cruz Matos ◽  
Moema Da Silva Borges
Keyword(s):  
Palliative Care ◽  
Descriptive Study ◽  
Care Process ◽  
Active Member ◽  
Structured Interviews ◽  
The Family ◽  
Nursing Team ◽  
Care Assistance ◽  
Care Nursing ◽  
Therapeutic Possibilities

ABSTRACT Objective: to analyze the nurses' perception about the participation of family members in palliative care. Method: qualitative, exploratory, descriptive study, with the participation of ten nurses. Semi-structured interviews were conducted and the reports were submitted to thematic and content analysis procedures. Results: the importance of welcoming the family, and their inclusion in the care process represent one of the structuring axes of palliative care. The participants' discourse refers to the participation of the family in palliative care assistance either as an active member of the team, or as a passive one, as the object of care of the team. Conclusion: the family is one of the structuring axes of the care of patients outside therapeutic possibilities of healing, occupying the place of a protagonist and being integrated with the care team. While its collaborative attitude favors patient care, it also helps to keep it as an object of care. It can also be understood that the humanized approach to palliative care allows the Nursing team to encourage activities that were once part of the routine of the patient. Descriptors: Palliative Care; Nursing care; Humanization of Assistance; Family; Terminal Patient; Family Health.RESUMO Objetivo: analisar a percepção dos enfermeiros acerca da participação do familiar na assistência em cuidados paliativos. Método: estudo qualitativo, exploratório, descritivo, com a participação de dez enfermeiros. Realizaram-se entrevistas semiestruturadas e os relatos foram submetidos aos procedimentos de análise temática e de conteúdo. Resultados: a importância do acolhimento da família e a sua inclusão no processo de cuidar representam-se como um dos eixos estruturantes da assistência paliativista. O discurso dos participantes faz referência à participação da família na assistência em cuidados paliativos seja de forma ativa, como integrante da equipe, seja de forma passiva, como objeto de cuidado da equipe. Conclusão: a família é um dos eixos estruturantes da assistência a pacientes fora de possibilidades terapêuticas de cura ocupando um lugar de protagonista e sendo, ainda, integrada à equipe de cuidados. Enquanto a sua atitude colaborativa favorece o cuidado do paciente, também ajuda a mantê-la como objeto de cuidado. Pode-se, ainda, apreender que a abordagem humanizada dos cuidados paliativos permite que a equipe de Enfermagem incentive a realização de atividades que outrora integravam a rotina do paciente. Descritores: Cuidados Paliativos; Cuidados de Enfermagem; Humanização da Assistência; Família; Doente Terminal; Saúde da Família.  RESUMENObjetivo: analizar la percepción de los enfermeros acerca de la participación del familiar en la asistencia en cuidados paliativos. Método: estudio cualitativo, exploratorio, descriptivo, con la participación de diez enfermeros. Se realizaron entrevistas semiestructuradas y los relatos fueron sometidos a los procedimientos de análisis temático y de contenido. Resultados: la importancia de la acogida de la familia y su inclusión en el proceso de cuidar se representan como uno de los ejes estructurantes de la asistencia paliativista. El discurso de los participantes hace referencia a la participación de la familia en la asistencia en cuidados paliativos sea de forma activa, como integrante del equipo, sea de forma pasiva, como objeto de cuidado del equipo. Conclusión: la familia es uno de los ejes estructurantes de la asistencia a pacientes fuera de posibilidades terapéuticas de cura ocupando un lugar de protagonista y siendo, además, integrada al equipo de cuidados. Mientras su actitud colaborativa favorece el cuidado del paciente, también ayuda a mantenerla como objeto de cuidado. Se puede, además, aprehender que el abordaje humanizado de los cuidados paliativos permite que el equipo de Enfermería incentive la realización de actividades que otrora integraban la rutina del paciente. Descriptores: Cuidados Paliativos; Atención de Enfermería; Humanización de la Atención; Familia; Enfermo Terminal; Salud de la Familia.

Abstract NS3: The Influence of Chinese Culture on Caregiving Role Perceptions Among Stroke Caregivers

Stroke ◽  
2016 ◽  
Vol 47 (suppl_1) ◽  
Author(s):  
Xichenhui Qiu ◽  
Janet W SIT ◽  
Haixia Feng
Keyword(s):  
Filial Piety ◽  
Chinese Culture ◽  
Qualitative Content Analysis ◽  
Descriptive Study ◽  
Structured Interviews ◽  
Day Range ◽  
Analysis Process ◽  
The Family ◽  
Qualitative Descriptive ◽  
Spouse Caregivers

Introduction: Among the estimated 22.5 million stroke survivors in China, 78% of them require home care. Previous research has indicated that culture can have a significant impact on caregivers’ perceptions of the caregiving role. There is a dearth of research on stroke caregivers’ perceptions within the Chinese culture. Objective: To explore how Chinese culture influences the perceptions of the caregiving role among stroke caregivers. Methods: In this qualitative descriptive study, 14 stroke caregivers were recruited from a 1800-bed regional hospital in China. Caregivers were on average 58 years old (range 46-74), 78% female, 50% spouse-caregivers and 50% children-caregivers. Caregivers spent on average 14 hours per day (range 5-24) providing care. All were 1st time caregivers who had provided stroke caregiving < 12 months. Individual, semi-structured interviews were conducted. Qualitative content analysis was performed. Strategies to achieve trustworthiness include triangulation of the data in the analysis process, member checking and peer debriefing. Results: Three themes emerged from the interviews. (1) Caregiving is a natural expected part of life. All caregivers accepted caregiving for the sick family member as an expected part of life. This perception is deeply rooted in Chinese culture. (2) Caregiving is a culturally prescribed obligation. Spouse caregivers believe that it is their moral obligation to take care of their sick life partner. Female caregivers emphasized their position and role in the family to take up caregiving for sick relative. (3) Caregiving is an expression of reciprocal love within the immediate family. Tangible caregiving and support during adversity are viewed as expression of reciprocal love among family members. Particularly, the children-caregivers believed in the virtue of filial piety and perceived stroke caregiving as a means of repaying their parents. Conclusions: Our findings highlight an underlying acceptance and devotion of undertaking stroke caregiving within the Chinese culture. Researchers and clinicians that plan to develop an intervention to support Chinese stroke caregivers need to consider integrating these findings.

scholarly journals Violence against adolescents: an analysis based on the categories gender and generation

2014 ◽  
Vol 48 (spe) ◽  
pp. 102-108 ◽  
Author(s):  
Rafaela Gessner ◽  
Rosa Maria Godoy Serpa da Fonseca ◽  
Rebeca Nunes Guedes de Oliveira
Keyword(s):  
Family Environment ◽  
Qualitative Data ◽  
Descriptive Study ◽  
Gender Violence ◽  
Structured Interviews ◽  
The Family ◽  
Data Source ◽  
Spss Software ◽  
Victims Of Violence ◽  
Quantitative And Qualitative Methods

Exploratory and descriptive study based on quantitative and qualitative methods that analyze the phenomenon of violence against adolescents based on gender and generational categories. The data source was reports of violence from the Curitiba Protection Network from 2010 to 2012 and semi-structured interviews with 16 sheltered adolescents. Quantitative data were analyzed using SPSS software version 20.0 and the qualitative data were subjected to content analysis. The adolescents were victims of violence in the household and outside of the family environment, as victims or viewers of violence. The violence was experienced at home, mostly toward girls, with marked overtones of gender violence. More than indicating the magnitude of the issue, this study can give information to help qualify the assistance given to victimized people and address how to face this issue.

scholarly journals Social support network of nurses for the care of their own children

2014 ◽  
Vol 23 (2) ◽  
pp. 460-468 ◽  
Author(s):  
Bruna Caroline Rodrigues ◽  
Verônica de Azevedo Mazza ◽  
Ieda Harumi Higarashi
Keyword(s):  
Social Support ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Support Network ◽  
Social Support Network ◽  
Structured Interviews ◽  
The Social ◽  
Need Support ◽  
The Family ◽  
Returning To Work

This exploratory descriptive study, using a qualitative approach, aimed to characterize the social support of nurses in the care of their own children. The participants were ten nurses who were mothers, selected through a snowball method. Data collection occurred from November 2011 to January 2012 through semi-structured interviews and construction of families' genograms and ecomaps. Data were analyzed through Bardin content analysis, leading to the establishment of two categories: (1) Returning to work: the importance of family support and (2) The family and their interactive contexts: types of bonds. The social support network of the family is essential to the lives of these women, who need support, assistance and guidance in directing their activities in everyday overload.

scholarly journals At-home care : interactions between nurses and the elderly/family

2012 ◽  
Vol 25 (spe1) ◽  
pp. 74-80
Author(s):  
Esperança Alves Gago ◽  
Manuel José Lopes
Keyword(s):  
Home Care ◽  
Nursing Practice ◽  
The Elderly ◽  
Diagnostic Assessment ◽  
Care Process ◽  
Structured Interviews ◽  
The Family ◽  
Home Context ◽  
The Relationship ◽  
At Home

OBJECTIVE: To understand the interaction process between the elderly and the family and the nurses during home care. METHODS: Grounded theory qualitative study in a community where 40% of the population is aged 65 or above. The collection of data was made via the non-participating observation of nursing practice during 41 home visits and semi-structured interviews to nurses, the elderly and the family. RESULTS: the following categories emerged - structural organization of at-home care, diagnostic assessment in context and therapeutic intervention in context. CONCLUSION: the central category was "Building the relationship in an at-home context", due to the fact that the relationship between the nurse, the elderly and the family is central across the entire care process. The relation is, simultaneously, the context for all the care and a therapeutic instrument.

scholarly journals Humanização da assistência neonatal na ótica dos profissionais da enfermagem

2019 ◽  
Vol 13 ◽  
Author(s):  
Clara Fróes de Oliveira Sanfelice ◽  
Juliana Vanessa da Silva Costa ◽  
Elenice Valentim Carmona
Keyword(s):  
Intensive Care ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Structured Interviews ◽  
Team Culture ◽  
The Family ◽  
De Se ◽  
Nursing Team ◽  
Qualitative Descriptive ◽  
Terapia Intensiva

Objetivo: identificar a percepção da equipe de Enfermagem sobre a humanização da assistência prestada em uma Unidade de Terapia Intensiva Neonatal. Método: trata-se de um estudo qualitativo, descritivo, exploratório. Entrevistaram-se 22 profissionais, dos quais um enfermeiro e 21 técnicos de enfermagem. Coletaram-se os dados por meio de entrevistas semiestruturadas, gravadas em áudio, transcritas e analisadas seguindo a técnica de Análise de Conteúdo na modalidade Análise Temática. Resultados: revelaram-se quatro categorias: a) Humanização enquanto segurança para os pais, profissionais e neonatos; b) Cuidado que abrange o recém-nascido e a família; c) Humanização como cultura da equipe e política institucional e d) Contradições do cuidado humanizado. Conclusão: evidencia-se a necessidade de se promover atividades educativas para que a abordagem humanizada seja melhor compreendida e implementada no cuidado neonatal. Descritores: Humanização da Assistência; Recém-Nascido; Unidades de Terapia Intensiva Neonatal; Enfermagem Neonatal; Equipe de Enfermagem; Pesquisa Qualitativa.AbstractObjective: to identify the perception of the Nursing team about the humanization of care provided in a Neonatal Intensive Care Unit. Method: this is a qualitative, descriptive, exploratory study. 22 professionals were interviewed, including one nurse and 21 nursing technicians. Data was collected through semi-structured interviews, audio recorded, transcribed and analyzed following the technique of Content Analysis in the Thematic Analysis modality. Results: four categories were revealed: a) Humanization as safety for parents, professionals and newborns; b) Care that covers the newborn and the family; c) Humanization as a team culture and institutional policy; and d) Contradictions of humanized care. Conclusion: there is a need to promote educational activities so that the humanized approach is better understood and implemented in neonatal care. Descriptors: Humanization of Assistance; Newborn; Neonatal Intensive Care Units; Neonatal Nursing; Nursing, Team; Qualitative Research.ResumenObjetivo: identificar la percepción del equipo de Enfermería sobre la humanización de la atención brindada en una Unidad de Cuidados Intensivos Neonatales. Método: este es un estudio cualitativo, descriptivo, exploratorio. Se entrevistaron 22 profesionales, entre ellos un enfermero y 21 técnicos de enfermería. Los datos fueron recolectados a través de entrevistas semiestructuradas, audio grabado, transcrito y analizado siguiendo la técnica de Análisis de Contenido en la modalidad de Análisis Temático. Resultados: se revelaron cuatro categorías: a) Humanización como seguridad para los padres, profesionales y recién nacidos; b) Cuidado que cubre al recién nacido y la familia; c) La humanización como cultura de equipo y política institucional, y d) Contradicciones de la atención humanizada. Conclusión: es necesario promover actividades educativas para que el enfoque humanizado se entienda mejor y se implemente en la atención neonatal. Descriptores: Humanización de la Atención; Recién Nacido; Unidades de Cuidado Intensivo Neonatal; Enfermería Neonatal; Grupo de Enfermería; Investigación Cualitativa.

scholarly journals Productivity of subjectivity and autonomy of nursing professionals in Pediatrics

2019 ◽  
Vol 72 (suppl 1) ◽  
pp. 41-48 ◽  
Author(s):  
Juliane Portella Ribeiro ◽  
Giovana Calcagno Gomes ◽  
Marina Soares Mota ◽  
Camila Daiane Silva ◽  
Paulo Roberto Boeira Fuculo Junior
Keyword(s):  
Work Environment ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Nursing Profession ◽  
University Hospitals ◽  
Structured Interviews ◽  
Pediatric Hospitalization ◽  
Nursing Managers ◽  
Nursing Team ◽  
Nursing Professionals

ABSTRACT Objective: To know the aspects involved in the production of subjectivity and autonomy of nursing professionals working in Pediatric Units. Method: An exploratory and descriptive study, with a qualitative approach, performed with users, professionals and nursing managers, totaling 44 participants. Data collection took place in the pediatric hospitalization units of two University Hospitals through semi-structured interviews, organized and treated by Nvivo 10 software and then submitted to content analysis. Results: The production of subjectivity and autonomy in nursing workers involves both the conditions of the work environment as the relation of the nursing team, the relation of hierarchy and the profile of the professional that works in the Pediatric Unit. Final considerations: The valorization path of the nursing profession emerges, whose knowledge and competence in the area of work contribute to the construction of autonomous subjectivities.

scholarly journals The no-care of patients with spinal cord injuries in primary care: bioethical challenges for health policies

2012 ◽  
Vol 65 (2) ◽  
pp. 236-243
Author(s):  
Inácia Sátiro Xavier de França ◽  
Rosilene Santos Baptista ◽  
Fatima Maria da Silva Abrão ◽  
Alexsandro Silva Coura ◽  
Eurípedes Gil de França ◽  
...  
Keyword(s):  
Primary Care ◽  
Spinal Cord ◽  
Spinal Cord Injuries ◽  
Descriptive Study ◽  
Health Policies ◽  
Structured Interviews ◽  
Cord Injury ◽  
The Family ◽  
Basic Health Units ◽  
Analyze Data

It was aimed to investigate what actions taken in Basic Health Units of the Family-(BHUF) to meet the demands of adults with spinal cord injury (SCI) post-rehabilitation, list facilities/difficulties to meet the demands of users. Descriptive study conducted in twenty BHUF. Twenty doctors and twenty nurses, randomly selected, participated in the study. To collect and analyze data, it was used semi-structured interviews and analysis of content. The categories were based on the integrality, universality, charity and justice principles. It was found: professional disqualification to assist people with SCI, fragmented care, difficult to schedule consultations and examinations, difficulties in the reference and counter reference system, and lack of ongoing actions to take care of individuals with SCI. The BHUF not ensure the protection of all citizens, there are challenges to the construction practices of health solidarity, warm and consequently more effective and decisive for individuals with SCI.

scholarly journals Assistance to children in palliative care in the Brazilian scientific literature

2014 ◽  
Vol 32 (1) ◽  
pp. 99-106 ◽  
Author(s):  
Nathalia Rodrigues Garcia-Schinzari ◽  
Franklin Santana Santos
Keyword(s):  
Palliative Care ◽  
Terminal Illness ◽  
Scientific Literature ◽  
Target Population ◽  
Study Data ◽  
Pediatric Palliative Care ◽  
Structured Interviews ◽  
Publication Type ◽  
The Family ◽  
Number Of Publications

Objective: To describe what has been published in Brazilian scientific literature regarding pediatric palliative care. Data sources: Bibliographic review with a descriptive approach. In LILACS and SciELO databases, the descriptors "palliative care", "child", "pediatrics", "terminal illness" and "death" were sought, from January 2002 to December 2011. The eight selected articles were analyzed according to year of publication, type of study, data collected, target population, pathology, professionals involved, types of care and main findings. Data synthesis: Regarding the year of publication, there was an increase in the number of publications related to pediatric palliative care. Regarding the type of study, four articles were literature reviews and four were qualitative researches. Data was collected mainly by semi-structured interviews. The participants of the majority of the studies were children's relatives and health professionals. The main pathology addressed was cancer and the nurses were the most frequently cited professionals. The types of care provided were related to physical aspects, general care and psychological, social and spiritual aspects (less emphasis). The main findings were: little emphasis on the children's needs, the importance of including the family in the care provided and the lack of preparation of the health team. Conclusions: Despite the difficulties and the challenges in establishing pediatric palliative care, many articles brought important considerations for the development of this practice in the country.

scholarly journals Social Networking Family of Caregivers during Hospitalization of Children

2016 ◽  
Vol 50 (spe) ◽  
pp. 107-113 ◽  
Author(s):  
Marina Menezes ◽  
Carmen Leontina Ojeda Ocampo Moré ◽  
Luísa Barros
Keyword(s):  
Social Networks ◽  
Social Networking ◽  
Emotional Support ◽  
Hospital Setting ◽  
Descriptive Study ◽  
Health Care Team ◽  
Hospitalized Children ◽  
Southern Brazil ◽  
Structured Interviews ◽  
The Family

Objective To identify and analyze the significant networks of family, social and hospital support described by the family caregivers of hospitalized children 5-12 years during the hospital stay. Method Descriptive study, exploratory and qualitative study conducted with 20 caregivers of children hospitalized in a hospital in a city in southern Brazil, through semi-structured interviews and significant social networks maps, tailored to the hospital setting. Results Data analysis showed that the most active social network was comprised of families through emotional support, material aid and services. Relations with hospital health care team and the hospital context were cited as providing support to the caregivers of the hospitalized child. Conclusions The identification of social networks in the child’s hospitalization course enables equip professionals working in the institution aiming at better targeting of actions and care for the family and hospitalized children.

scholarly journals Knowledge and practices of nursing professionals in caring for ostomates

2020 ◽  
Vol 73 (suppl 5) ◽  
Author(s):  
Angélica Dalmolin ◽  
Nara Marilene Oliveira Girardon-Perlini ◽  
Margrid Beuter ◽  
Eduardo da Silva Gomes ◽  
Juliano Teixeira Moraes ◽  
...  
Keyword(s):  
Data Collection ◽  
Nursing Care ◽  
Participant Observation ◽  
Descriptive Study ◽  
Care Process ◽  
Work Experiences ◽  
Structured Interviews ◽  
Daily Work ◽  
Nursing Professionals ◽  
Intervening Factors

ABSTRACT Objective: to analyze the knowledge and practices of nursing professionals in caring for people with colostomy bag. Method: a qualitative and descriptive study conducted with 21 nursing professionals from a General Surgery Unit. Data collection used triangulation of techniques, based on non-participant observation, analysis of nursing records, and semi-structured interviews. Analysis followed the spiral technique assumptions. Results: it was possible to comprehend the theoretical and scientific knowledge that subsidize practice; identify contradictions related to statement and care in the profession’s daily work and the intervening factors, which can facilitate and/or make the nursing care process difficult. Final Considerations: knowledge and practices of professionals in caring for ostomates occur within work experiences, in which socialization of knowledge makes it possible to expand the perspectives of care.

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