Mothers' perspective on the functioning of a family with a child with special communication needs – preliminary research

2021 ◽  
Vol LXXXII (5) ◽  
pp. 360-369
Author(s):  
Iwona Konieczna

This article presents the results of preliminary research on the mothers’ perspective on the functioning of a family with a child with special communication needs. The goal was to gain an insight into the experiences of mothers of children with special communication needs in different areas of life and to understand the factors that influence their experiences. The following areas of the mothers’ experiences in the functioning of a family were identified: the doing everyday activities, spending free time, relationships between family members and mothers' ideas about the future of a family with a child with special communication needs. The research employed individual case studies and the in-depth interview technique.

2017 ◽  
Vol 25 (1) ◽  
pp. 253
Author(s):  
Cucu Nurjamilah

<p class="ABSTRACT"><span lang="IN">In the context of da</span><span lang="EN">’</span><span lang="IN">wah management, the functions of the </span>mosque <span lang="IN">are not optimal yet. The activities of the masjid are only focused on the center of worship, religious activities, but have not touched the equality yet. In order to answer the problems above, the researcher used fieldwork with the method of case studies. Through an in-depth interview technique, participant observation and study of documentation found that Masjid Mujahidin Pontianak has involved women in the management of masjid, and succeeded in increasing the functions of a mosque. Involving women in the management of mosque will strengthen one dimension that is important in Islam that is Islam seriously upholds the equality of degree in various aspect, including Islam is a religion that highly responsive gender. When the management of </span>mosque <span lang="IN">is filled with a variety of different groups, including giving places to women, then frictions and clashes caused by differences in the understanding in the society will be minimized, and then the role and function of masjid will be able to touch various aspects such as economics, health, and education.</span> </p><p><span>Dalam konteks pengelolaan dakwah, fungsi masjid sebagai media dakwah belum diberdayakan secara optimal. Kegiatan masjid yang ada hanya digunakan sebagai pusat ibadah dan aktivitas keagamaan, selebihnya belum menyentuh pada persoalan gender. Guna menjawab permasalahan di atas, dilakukan studi lapangan dengan metode studi kasus. Melalui teknik wawancara mendalam, observasi partisipan dan dokumentasi, ditemukan bahwa Masjid Raya Mujahidin Pontianak telah melibatkan perempuan dalam kepengurusan masjidnya, dan berhasil dalam peningkatan fungsi masjid. Melibatkan perempuan dalam pengelolaan masjid, akan menguatkan satu dimensi penting dalam Islam yaitu Islam menjunjung tinggi persamaan derajat dalam berbagai segi, termasuk Islam adalah agama yang responsif gender. Ketika kepengurusan masjid diisi dari berbagai golongan, termasuk mengapresiasi kaum perempuan, maka gesekan-gesekan yang disebabkan perbedaan pemahaman di masyarakat akan dapat diminimalisir, serta fungsi dan peran masjid akan mampu menyentuh berbagai aspek seperti bidang ekonomi, kesehatan, dan pendidikan.</span></p>


2014 ◽  
Vol 23 (1) ◽  
pp. 42-54 ◽  
Author(s):  
Tanya Rose Curtis

As the field of telepractice grows, perceived barriers to service delivery must be anticipated and addressed in order to provide appropriate service delivery to individuals who will benefit from this model. When applying telepractice to the field of AAC, additional barriers are encountered when clients with complex communication needs are unable to speak, often present with severe quadriplegia and are unable to position themselves or access the computer independently, and/or may have cognitive impairments and limited computer experience. Some access methods, such as eye gaze, can also present technological challenges in the telepractice environment. These barriers can be overcome, and telepractice is not only practical and effective, but often a preferred means of service delivery for persons with complex communication needs.


SLEEP ◽  
2021 ◽  
Vol 44 (Supplement_2) ◽  
pp. A154-A155
Author(s):  
Liza Ashbrook ◽  
Andrew Krystal ◽  
Ying-Hui Fu ◽  
Louis Ptáček

Abstract Introduction Resilience, a life-long trait, corresponds to the ability to bounce back from adversity. What factors influence resilience is unclear. Here we describe a cohort of individuals with familial natural short sleep (FNSS). Four genes in five families have been identified that confer this trait, DEC2, NPSR1, GRM1 and ADRB1. Individuals in this cohort share a resilience phenotype alongside this decreased sleep need. Methods Those reporting less than 6.5 hours of sleep when allowed to sleep ad libitum without any complaints regarding overnight sleep or daytime sleepiness were then interviewed to determine FNSS affected status from 2009 to 2020. Data on mood, depression, sleepiness and resilience were collected from participants and family members enrolled in the FNSS study. Results 163 individuals meeting criteria for FNSS were enrolled. Compared to 47 unaffected family members, they had significantly shorter sleep duration as measured by self report and actigraphy, significantly more resilience as measured by the Connor-Davidson Resilience Scale, significantly less sleepiness as measured by the Epworth Sleepiness Scale, and significantly fewer symptoms of depression as measured by the Beck Depression Inventory. Conclusion FNSS individuals appear to have a distinct phenotype including shorter sleep duration, greater resilience, less subjective sleepiness, and fewer symptoms of depression. Better understanding the genetics and characteristics of those with familial natural short sleep may provide insight into mechanisms of both restorative sleep and resilience. Support (if any) This work was supported by NIH grants NS099333, NS072360 and NS104782 to L.J.P. and Y-H.F., and by the William Bowes Neurogenetics Fund to L.J.P. and Y.H.F.


2021 ◽  
pp. 030573562110089
Author(s):  
Melissa L Kirby ◽  
Karen Burland

Current research investigating the functions of music in everyday life has identified cognitive, emotional, and social functions of music. However, previous research focuses almost exclusively on neurotypical people and rarely considers the musical experiences of autistic people. In addition, there is limited research which focuses explicitly on the musical experiences of young people on the autism spectrum. Current research exploring the functions of music may therefore not accurately represent the experiences of the autistic community. This article aims to explore the function of music in the lives of young people on the autism spectrum through a series of interviews. Eleven young people on the autism spectrum age 12 to 25 ( M = 19.4) were interviewed about the function of music in their lives. An adaptive interview technique, utilizing multiple methods of communication, was employed to account for the participants’ broad communicative and personal needs. Interpretative phenomenological analysis revealed four key functions of music in the participants’ lives: Cognitive, Emotional, Social, and Identity. Collectively, these results provide a unique insight into the musical experiences of young people on the autism spectrum.


2021 ◽  
pp. 104365962110263
Author(s):  
Bindu Joseph ◽  
Michael Olasoji ◽  
Cheryl Moss ◽  
Wendy Cross

Introduction: In the past decade, there has been an influx of migrant nurses from India to Australia. Migrant professionals have specific transition needs associated with working in Mental Health (MH). This study aimed to explore the transition experience of overseas trained nurses from India working in Australian MH settings. Method: Hermeneutic phenomenology was the methodological approach used in the study. The participants ( N = 16) were overseas trained nurses from India. Data were collected through in-depth interview and analysed using thematic analysis. Results: The findings resulted in the identification of the following themes: (1) Living in dual culture, (2) Loneliness, (3) Discrimination, and (4) Feeling incomplete. Discussion: It is evident that the transition to work in MH in Australia was a journey of mixed experiences. While certain findings of this study are comparable with experiences of migrant nurses in other settings, it provides insight into those that are working in MH.


The Atlantic Ocean not only connected North and South America with Europe through trade but also provided the means for an exchange of knowledge and ideas, including political radicalism. Socialists and anarchists would use this “radical ocean” to escape state prosecution in their home countries and establish radical milieus abroad. However, this was often a rather unorganized development and therefore the connections that existed were quite diverse. The movement of individuals led to the establishment of organizational ties and the import and exchange of political publications between Europe and the Americas. The main aim of this book is to show how the transatlantic networks of political radicalism evolved with regard to socialist and anarchist milieus and in particular to look at the actors within the relevant processes—topics that have so far been neglected in the major histories of transnational political radicalism of the late nineteenth and early twentieth centuries. Individual case studies are examined within a wider context to show how networks were actually created, how they functioned and their impact on the broader history of the radical Atlantic.


2016 ◽  
Vol 7 (2) ◽  
pp. 117-147 ◽  
Author(s):  
Ruth Swanwick ◽  
Sue Wright ◽  
Jackie Salter

AbstractThis paper examines the meaning of plurality and diversity with respect to deaf children’s sign and spoken language exposure and repertoire within a super diverse context. Data is drawn from a small-scale project that took place in the North of England in a Local Authority (LA) site for deaf education. The project documented the language landscape of this site and gathered five individual case studies of deaf children to examine their plural and diverse language practices at home and at school. Analysis of the language landscape and case studies from this context is undertaken in order to define and exemplify deaf children’s language plurality and diversity in terms of context and individual experience. Concepts of repertoire are explored with particular reference to the unique type of translanguaging that the plural use of sign and spoken languages affords. Implications of these preliminary insights are discussed in terms of the development of methodologies that are sensitive to the particular translanguaging practices of deaf children, and approaches to pedagogy that are appropriately nuanced and responsive to deaf children’s language plurality and diversity.


2004 ◽  
Vol 18 (2) ◽  
pp. 154-171 ◽  
Author(s):  
Heidi L. Meehan ◽  
Stephen J. Bull ◽  
Dan M. Wood ◽  
David V.B. James

The present study explored the experiences of five competitive endurance athletes (1 female, 4 male) diagnosed with the overtraining syndrome (OTS). A multicontextual method of inquiry was used, which first involved a medical examination whereby OTS was diagnosed according to established criteria. In addition, 2 questionnaires were administered: the Athlete Daily Hassle Scale (Albinson & Pearce, 1998) and the Coping Response Inventory (Moos, 1992), and a semistructured interview was conducted. Individual case studies were then developed and cross-case analysis carried out. Findings from the present study illustrate that together with sport stress, nonsport stress appears to make an important contribution to the experience of those athletes diagnosed with the OTS. This finding provides evidence to support anecdotes in previous reports.


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