scholarly journals Students’ attitudes towards somatic genome editing versus genome editing of the germline using an example of familial leukemia

2021 ◽  
Author(s):  
Beate Vajen ◽  
Joelle Ronez ◽  
Wiebke Rathje ◽  
Laura Heinisch ◽  
Smilla Ebeling ◽  
...  
Keyword(s):  
Genome Editing ◽  
Public Discourse ◽  
Qualitative Data ◽  
Genetic Diseases ◽  
Qualitative Evaluation ◽  
Ethical Challenges ◽  
The Public ◽  
Open Questions ◽  
Somatic Genome ◽  
Students Attitudes

AbstractAlthough the discussion on possibilities and pitfalls of genome editing is ever present, limited qualitative data on the attitudes of students, who will come into contact with this technology within a social and professional context, is available. The attitude of 97 medical students and 103 students of other subjects from Hannover and Oldenburg, Germany, was analyzed in winter 2017/18. For this purpose, two dilemmas on somatic and germline genome editing concerning familial leukemia were developed. After reading the dilemmas, the students filled out a paper-and-pencil test with five open questions. The qualitative evaluation of the answers was carried by a deductive-inductive procedure of content analysis. There was a high approval for the use of somatic genome editing. When it came to germline genome editing, concerns were raised regarding enhancement, interventions in nature, and loss of uniqueness. The students recognized that somatic genome editing and germline genome editing prove different ethical challenges and need to be judged separately. Many students expressed not feeling fully informed. The results of this project show the importance of educating the public about the possibilities, limitations, and risks of somatic and germline genome editing. We recommend that this should already be addressed in schools in order to optimally prepare students and adults for participation in public discourse. Especially for patients affected by genetic diseases, it is of great importance that the treating physicians and geneticists are sufficiently informed about the method of genome editing to ensure good counseling.

scholarly journals Epidemics, genome editing and human rights

2021 ◽  
pp. 199-209
Author(s):  
Branislav Fabry
Keyword(s):  
Public Health ◽  
Human Rights ◽  
Genome Editing ◽  
Legal Regulation ◽  
Western World ◽  
Health Issues ◽  
Ethical Challenges ◽  
The Public ◽  
New Treatment ◽  
The Impact

The article deals with the contemporary legal and ethical challenges, caused by coronavirus COVID-19. It analyses the reason why the western world was so much surprized by that pandemics. The text mentions the succeses of western medicine in the battle against epidemics in the 20th century and sees it as one of the reason for underestimating the public health issues in 21st century. The article also emphasizes on other contemporary threat, the antimicrobiotic resistance and the need for new legal answers to pandemics. It deals with problem of human genome editing as the central topic by creating of hereditary immunity against new viral threats. The text also mentions the risks of such new treatment and the impact on human dignity that is understood as leading value in the contemporary legal regulation on biotechnology.

Trust in distant sources: An analytical model capturing antecedents of risk and trustworthiness as perceived by journalists

Journalism ◽  
2017 ◽  
Vol 21 (1) ◽  
pp. 130-145 ◽  
Author(s):  
Florian Wintterlin
Keyword(s):  
Analytical Model ◽  
Public Discourse ◽  
Qualitative Data ◽  
Reliable Information ◽  
Trust Building ◽  
Crucial Element ◽  
The Public ◽  
Home Based ◽  
The Relationship ◽  
Depth Interviews

The trustworthiness of journalistic sources has always been a crucial element of journalistic working patterns and gained recently prominence in the public discourse about spectacular verification fails. To ensure the correctness of news, journalists have to trust their sources to deliver reliable information. This article explores trust building processes in the relationship between journalists and distant sources they access online. Sociological and psychological trust literature and research on credibility are used to develop an analytical model of reflexive trust in journalistic sources. Based on qualitative data from 12 in-depth interviews with German journalists, the model is applied to relationships between home-based journalists and sources based in crisis regions.

Discursive construction of an anti-immigration Europe by a Sweden Democrat in the European Parliament

2019 ◽  
Vol 16 (3) ◽  
pp. 429-439
Author(s):  
Kamber Güler
Keyword(s):  
Critical Discourse Analysis ◽  
Direct Democracy ◽  
Public Discourse ◽  
Social Power ◽  
European Parliament ◽  
Critical Discourse ◽  
Discursive Construction ◽  
Cognitive Approach ◽  
The Public ◽  
Political Group

Discourses are mostly used by the elites as a means of controlling public discourse and hence, the public mind. In this way, they try to legitimate their ideology, values and norms in the society, which may result in social power abuse, dominance or inequality. The role of a critical discourse analyst is to understand and expose such abuses and inequalities. To this end, this paper is aimed at understanding and exposing the discursive construction of an anti-immigration Europe by the elites in the European Parliament (EP), through the example of Kristina Winberg, a member of the Sweden Democrats political party in Sweden and the political group of Europe of Freedom and Direct Democracy in the EP. In the theoretical and methodological framework, the premises and strategies of van Dijk’s socio-cognitive approach of critical discourse analysis make it possible to achieve the aim of the paper.

On Waxen Wings: Challenges to the Public Sphere in the Network Age

2016 ◽  
Vol 3 (1) ◽  
Author(s):  
Mike Francoeur
Keyword(s):  
Public Sphere ◽  
Public Discourse ◽  
The Internet ◽  
The Public ◽  
Digital Space ◽  
Multiple Viewpoints ◽  
Internet Users ◽  
Economic Production ◽  
The Public Sphere ◽  
Communicative Space

There is a tendency, particularly among Western pundits and technologists, to examine the Internet in almost universally positive terms; this is most evident in any discussion of the medium’s capacity for democratization. While the Internet has produced many great things for society in terms of cultural and economic production, some consideration must be given to the implications that such a revolutionary medium holds for the public sphere. By creating a communicative space that essentially grants everyone his or her own microphone, the Internet is fragmenting public discourse due to the proliferation of opinions and messages and the removal of traditional gatekeepers of information. More significantly, because of the structural qualities of the Internet, users no longer have to expose themselves to opinions and viewpoints that fall outside their own preconceived notions. This limits the robustness of the public sphere by limiting the healthy debate that can only occur when exposed to multiple viewpoints. Ultimately, the Internet is not going anywhere, so it is important to equip the public with the tools and knowledge to be able to navigate the digital space. 

COVID-19 and the politicisation of medical preprints on Twitter: Quantitative Analysis of Social Media Data (Preprint)

2020 ◽  
Author(s):  
Aleksandra Urman ◽  
Stefania Ionescu ◽  
David Garcia ◽  
Anikó Hannák
Keyword(s):  
Social Media ◽  
Direct Effect ◽  
Public Discourse ◽  
The Public ◽  
Media Companies ◽  
Preventative Measures ◽  
Twitter Users ◽  
New Research ◽  
Sharing Patterns ◽  
Political Divide

BACKGROUND Since the beginning of the COVID-19 pandemic, scientists have been willing to share their results quickly to speed up the development of potential treatments and/or a vaccine. At the same time, traditional peer-review-based publication systems are not always able to process new research promptly. This has contributed to a surge in the number of medical preprints published since January 2020. In the absence of a vaccine, preventative measures such as social distancing are most helpful in slowing the spread of COVID-19. Their effectiveness can be undermined if the public does not comply with them. Hence, public discourse can have a direct effect on the progression of the pandemic. Research shows that social media discussions on COVID-19 are driven mainly by the findings from preprints, not peer-reviewed papers, highlighting the need to examine the ways medical preprints are shared and discussed online. OBJECTIVE We examine the patterns of medRxiv preprint sharing on Twitter to establish (1) whether the number of tweets linking to medRxiv increased with the advent of the COVID-19 pandemic; (2) which medical preprints were mentioned on Twitter most often; (3) whether medRxiv sharing patterns on Twitter exhibit political partisanship; (4) whether the discourse surrounding medical preprints among Twitter users has changed throughout the pandemic. METHODS The analysis is based on tweets (n=557,405) containing links to medRxriv preprint repository that were posted between the creation of the repository in June 2019 and June 2020. The study relies on a combination of statistical techniques and text analysis methods. RESULTS Since January 2020, the number of tweets linking to medRxiv has increased drastically, peaking in April 2020 with a subsequent cool-down. Before the pandemic, preprints were shared predominantly by users we identify as medical professionals and scientists. After January 2020, other users, including politically-engaged ones, have started increasingly tweeting about medRxiv. Our findings indicate a political divide in sharing patterns of the top-10 most-tweeted preprints. All of them were shared more frequently by users who describe themselves as Republicans than by users who describe themselves as Democrats. Finally, we observe a change in the discourse around medRxiv preprints. Pre-pandemic tweets linking to them were predominantly using the word “preprint”. In February 2020 “preprint” was taken over by the word “study”. Our analysis suggests this change is at least partially driven by politically-engaged users. Widely shared medical preprints can have a direct effect on the public discourse around COVID-19, which in turn can affect the societies’ willingness to comply with preventative measures. This calls for an increased responsibility when dealing with medical preprints from all parties involved: scientists, preprint repositories, media, politicians, and social media companies. CONCLUSIONS Widely shared medical preprints can have a direct effect on the public discourse around COVID-19, which in turn can affect the societies’ willingness to comply with preventative measures. This calls for an increased responsibility when dealing with medical preprints from all parties involved: scientists, preprint repositories, media, politicians, and social media companies.

Financial Crises and the Public Discourse on Financial Elites

2018 ◽  
Author(s):  
Youssef Cassis ◽  
Giuseppe Telesca
Keyword(s):  
Great Depression ◽  
Great Recession ◽  
Public Discourse ◽  
Codes Of Conduct ◽  
The Public ◽  
The Great Recession ◽  
The Great Depression ◽  
Early Twenty ◽  
Before And After ◽  
Late Twentieth

Why were elite bankers and financiers demoted from ‘masters’ to ‘servants’ of society after the Great Depression, a crisis to which they contributed only marginally? Why do they seem to have got away with the recent crisis, in spite of their palpable responsibilities in triggering the Great Recession? This chapter provides an analysis of the differences between the bankers of the Great Depression and their colleagues of the late twentieth/early twenty-first century—regarding their position within, and attitude towards the firm, work culture, mental models, and codes of conduct—complemented with a scrutiny of the public discourse on bankers and financiers before and after the two crises. The authors argue that the (relative) mildness of the Great Recession, compared to the Great Depression, has contributed to preserve elite bankers’ and financiers’ status, income, wealth, and influence. Yet, the long-term consequences of their loss of reputational capital are difficult to assess.

Navigating the Ethics of Big Data in Public Health

2019 ◽  
pp. 353-367
Author(s):  
Effy Vayena ◽  
Lawrence Madoff
Keyword(s):  
Public Health ◽  
Big Data ◽  
Credit Card ◽  
Health Sector ◽  
Public Health Research ◽  
Ethical Challenges ◽  
The Public ◽  
Health Community ◽  
Digital Disease Detection ◽  
The Public Sphere

“Big data,” which encompasses massive amounts of information from both within the health sector (such as electronic health records) and outside the health sector (social media, search queries, cell phone metadata, credit card expenditures), is increasingly envisioned as a rich source to inform public health research and practice. This chapter examines the enormous range of sources, the highly varied nature of these data, and the differing motivations for their collection, which together challenge the public health community in ethically mining and exploiting big data. Ethical challenges revolve around the blurring of three previously clearer boundaries: between personal health data and nonhealth data; between the private and the public sphere in the online world; and, finally, between the powers and responsibilities of state and nonstate actors in relation to big data. Considerations include the implications for privacy, control and sharing of data, fair distribution of benefits and burdens, civic empowerment, accountability, and digital disease detection.

scholarly journals Identifying and bridging the knowledge-to-practice gaps in rehabilitation professionals working with at-risk infants in the public health sector of South Africa: a multimethod study protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e039242
Author(s):  
Pragashnie Govender
Keyword(s):  
Public Health ◽  
South Africa ◽  
At Risk ◽  
Neonatal Intensive Care ◽  
Qualitative Data ◽  
Health Sector ◽  
Critical Time ◽  
Reliability And Validity ◽  
The Public ◽  
Public Health Sector

IntroductionEarly childhood is a critical time when the benefits of early interventions are intensified, and the adverse effects of risk can be reduced. For the optimal provision of early intervention, professionals in the field are required to have specialised knowledge and skills in implementing these programmes. In the context of South Africa, there is evidence to suggest that therapists are ill-prepared to handle the unique challenges posed in neonatal intensive care units and wards with at-risk infants in the first few weeks of life. This is attributed to several reasons; however, irrespective of the causative factors, the need to bridge this knowledge-to-practice gap remains essential.Methods and analysisThis study is a multimethod stakeholder-driven study using a scoping review followed by an appreciative inquiry and Delphi process that will aid in the development, implementation and evaluation of a knowledge translation intervention to bridge knowledge-gaps in occupational and physiotherapists working in the field. Therapists currently working in the public health sector will be recruited for participation in the various stages of the study. The analysis will occur via thematic analysis for qualitative data and percentages and frequencies for descriptive quantitative data. Issues around trustworthiness and rigour, and reliability and validity, will be ensured within each of the phases, by use of a content validity index and inter-rater reliability for the Delphi survey; thick descriptions, peer debriefing, member checking and an audit trail for the qualitative data.Ethics and disseminationThe study has received full ethical approval from the Health Research and Knowledge Management Directorate of the Department of Health and a Biomedical Research Ethics Committee. The results will be published in peer-reviewed academic journals and disseminated to the relevant stakeholders within this study.

scholarly journals Climate Change Inaction and Optimism

Philosophies ◽  
2021 ◽  
Vol 6 (3) ◽  
pp. 61
Author(s):  
Philip J. Wilson
Keyword(s):  
Climate Change ◽  
Economic Growth ◽  
Collective Action ◽  
Public Discourse ◽  
Collective Action Problem ◽  
The Public ◽  
Policy Context ◽  
Positive Action ◽  
Ideological Fantasy

The problem of climate change inaction is sometimes said to be ‘wicked’, or essentially insoluble, and it has also been seen as a collective action problem, which is correct but inconsequential. In the absence of progress, much is made of various frailties of the public, hence the need for an optimistic tone in public discourse to overcome fatalism and encourage positive action. This argument is immaterial without meaningful action in the first place, and to favour what amounts to the suppression of truth over intellectual openness is in any case disreputable. ‘Optimism’ is also vexed in this context, often having been opposed to the sombre mood of environmentalists by advocates of economic growth. The greater mental impediments are ideological fantasy, which is blind to the contradictions in public discourse, and the misapprehension that if optimism is appropriate in one social or policy context it must be appropriate in others. Optimism, far from spurring climate change action, fosters inaction.

scholarly journals Citizen views on genome editing: effects of species and purpose

2021 ◽  
Author(s):  
Gesa Busch ◽  
Erin Ryan ◽  
Marina A. G. von Keyserlingk ◽  
Daniel M. Weary
Keyword(s):  
Disease Resistance ◽  
Product Quality ◽  
Genome Editing ◽  
Total Sample ◽  
Moral Foundations ◽  
Perceived Risks ◽  
Public Response ◽  
The Public ◽  
Wide Range ◽  
The Us

AbstractPublic opinion can affect the adoption of genome editing technologies. In food production, genome editing can be applied to a wide range of applications, in different species and with different purposes. This study analyzed how the public responds to five different applications of genome editing, varying the species involved and the proposed purpose of the modification. Three of the applications described the introduction of disease resistance within different species (human, plant, animal), and two targeted product quality and quantity in cattle. Online surveys in Canada, the US, Austria, Germany and Italy were carried out with a total sample size of 3698 participants. Using a between-subject design, participants were confronted with one of the five applications and asked to decide whether they considered it right or wrong. Perceived risks, benefits, and the perception of the technology as tampering with nature were surveyed and were complemented with socio-demographics and a measure of the participants’ moral foundations. In all countries, participants evaluated the application of disease resistance in humans as most right to do, followed by disease resistance in plants, and then in animals, and considered changes in product quality and quantity in cattle as least right to do. However, US and Italian participants were generally more positive toward all scenarios, and German and Austrian participants more negative. Cluster analyses identified four groups of participants: ‘strong supporters’ who saw only benefits and little risks, ‘slight supporters’ who perceived risks and valued benefits, ‘neutrals’ who showed no pronounced opinion, and ‘opponents’ who perceived higher risks and lower benefits. This research contributes to understanding public response to applications of genome editing, revealing differences that can help guide decisions related to adoption of these technologies.

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