scholarly journals Taking the heat or taking the temperature? A qualitative study of a large-scale exercise in seeking to measure for improvement, not blame

2018 ◽  
Vol 198 ◽  
pp. 157-164 ◽  
Author(s):  
Natalie Armstrong ◽  
Liz Brewster ◽  
Carolyn Tarrant ◽  
Ruth Dixon ◽  
Janet Willars ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Large Scale

scholarly journals Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries

2021 ◽  
pp. 1-14
Author(s):  
Federica Lucivero ◽  
Luca Marelli ◽  
Nora Hangel ◽  
Bettina Maria Zimmermann ◽  
Barbara Prainsack ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Large Scale ◽  
European Countries ◽  
Contact Tracing

FRI0562 THE PERSPECTIVE OF YOUNG PEOPLE WITH INFLAMMATORY ARTHRITIS ON PATIENT REPORTED OUTCOME MEASURES: RESULTS OF A EUROPE-WIDE SURVEY

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 883-883
Author(s):  
A. Alunno ◽  
E. Mosor ◽  
T. Stamm ◽  
P. Studenic
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Personal Experience ◽  
Large Scale ◽  
Young Patients ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Self Management ◽  
Research Support ◽  
Patient Reported

Background:Although patient-reported outcome measures (PROMs) are widely used in clinical practice and research, it is unclear if these instruments adequately cover the perspective of young people (18-35 years) with inflammatory arthritis (IA). We recently performed focus groups on PROMs with 53 young IA patients from 4 European countries, but the perspective of these patients has never been explored on a large scale.Objectives:To explore personal experience, opinions and beliefs of young people with IA across Europe concerning PROMs content, characteristics and ways of administration in order to inform EULAR points to consider (PtC) for including the perspective of young patients with IA into PROMs.Methods:Based on the results of our previous qualitative study, a task force including patients, rheumatologists and health professionals developed an online survey. The survey covered personal experience, preferences and opinions concerning PROMs. After being pilot tested and revised accordingly, the survey was distributed through the EULAR people with arthritis and rheumatism in Europe (PARE), Young PARE networks and the Emerging EULAR Network (EMEUNET).Results:547 people (88% females) from 29 countries aged 18-35 years with a diagnosis of juvenile idiopathic arthritis, rheumatoid arthritis, Still’s disease, psoriatic arthritis or spondyloarthritis completed the survey (Figure 1). Thirty-seven percent of respondents reported they never filled a PROM. A North-South and West-East Europe gradient was observed (30.4% vs 56.3% and 25.5% vs 58.8% respectively). Figure 2 outlines key findings of our survey. Among respondents having filled PROMs (n=313), two thirds perceived their access to PROM results useful for self-management of their health. Discomfort while filling PROMs was an issue for nearly half of the respondents, as questions were perceived as scaring or not relevant. This discomfort, the fear of judgement, or inadequate assessed time frames were major reasons for difficulties in translating the health experience into a rating scale. Still 75% use their own experience in the past as reference. Among several reasons, people scored differently from what they felt to emphasize how much better or worse they felt from previous assessment. Concerning preferences of numerical rating scales (NRS) or visual analogue scales (VAS) explored in all respondents regardless having ever filled in PROMs, those in favour of VAS mainly reasoned this by having more possibilities to select and those favouring NRS by better readability and interpretation. Maintaining a sitting position, preparing food, doing physical activity, intimacy and sleep problems were the items selected most frequently in the survey as in the qualitative study to be included in PROMs. The implementation of discussion on self-management, education/work and support possibilities at regular clinic visits was considered important by over 60% of responders. Overall, electronic capturing of PROMs was preferred over paper-based questionnaires (57% vs 13%).Conclusion:Our survey explored for the first time the personal experience and opinions of young people with IA concerning PROMs on a large scale and confirmed the results obtained in the qualitative study. This survey informed the EULAR PtC for including the perspective of young patients with IA into PROMs.References:[1] Mosor E et al. Arthritis Rheumatol. 2019; 71 (suppl 10)Disclosure of Interests:Alessia Alunno: None declared, Erika Mosor: None declared, Tanja Stamm Grant/research support from: AbbVie, Roche, Consultant of: AbbVie, Sanofi Genzyme, Speakers bureau: AbbVie, Roche, Sanofi, Paul Studenic Grant/research support from: Abbvie

Non-commemorative memory in news production: Discovering underlying motivations for journalists’ memory work

2019 ◽  
pp. 175069801986315 ◽  
Author(s):  
Stefanie Trümper ◽  
Irene GB Broer
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
The Netherlands ◽  
Storm Surge ◽  
Large Scale ◽  
News Production ◽  
News Reporting ◽  
Memory Work ◽  
Bare Potential ◽  
Key Events

Memory in journalism has largely been investigated in relation to the commemoration of historical key events. This article sheds light on everyday, less obvious forms of memory in journalism with a focus on non-commemorative memory. We carried out a large-scale content analysis of contemporary newspaper articles (n = 2799) about two historic storm surge disasters in the Netherlands (1953) and Germany (1962) and a subsequent qualitative study based on 10 interviews with Dutch and German journalists. Combining content-based results with actor views enabled us to look below the surface of memory in news reporting and lay bare potential triggers, justifications, and underlying motivations for memory use. We found that journalists frequently use memory to connect past, present, and future, driven by a range of professional, economic, ideological, and cultural motivations that go beyond commemoration. We propose the term “strategic motivations” to better understand the dynamics of memory in journalism.

scholarly journals Running a hospital patient safety campaign: a qualitative study

2014 ◽  
Vol 28 (4) ◽  
pp. 562-575 ◽  
Author(s):  
Piotr Ozieranski ◽  
Victoria Robins ◽  
Joel Minion ◽  
Janet Willars ◽  
John Wright ◽  
...  
Keyword(s):  
Patient Safety ◽  
Qualitative Study ◽  
Large Scale ◽  
Participant Observation ◽  
Comparative Method ◽  
Observation Data ◽  
Senior Managers ◽  
Frontline Staff ◽  
Content Type ◽  
History Of

Purpose – Research on patient safety campaigns has mostly concentrated on large-scale multi-organisation efforts, yet locally led improvement is increasingly promoted. The purpose of this paper is to characterise the design and implementation of an internal patient safety campaign at a large acute National Health Service hospital trust with a view to understanding how to optimise such campaigns. Design/methodology/approach – The authors conducted a qualitative study of a campaign that sought to achieve 12 patient safety goals. The authors interviewed 19 managers and 45 frontline staff, supplemented by 56 hours of non-participant observation. Data analysis was based on the constant comparative method. Findings – The campaign was motivated by senior managers’ commitment to patient safety improvement, a series of serious untoward incidents, and a history of campaign-style initiatives at the trust. While the campaign succeeded in generating enthusiasm and focus among managers and some frontline staff, it encountered three challenges. First, though many staff at the sharp end were aware of the campaign, their knowledge, and acceptance of its content, rationale, and relevance for distinct clinical areas were variable. Second, the mechanisms of change, albeit effective in creating focus, may have been too limited. Third, many saw the tempo of the campaign as too rapid. Overall, the campaign enjoyed some success in raising the profile of patient safety. However, its ability to promote change was mixed, and progress was difficult to evidence because of lack of reliable measurement. Originality/value – The study shows that single-organisation campaigns may help in raising the profile of patient safety. The authors offer important lessons for the successful running of such campaigns.

scholarly journals Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public’s perspective

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Annabelle Cumyn ◽  
Adrien Barton ◽  
Roxanne Dault ◽  
Nissrine Safa ◽  
Anne-Marie Cloutier ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Large Scale ◽  
Health Data ◽  
Promising Alternative ◽  
New Approach ◽  
Secondary Use ◽  
Awareness Campaigns ◽  
Learning Health System ◽  
Research Activities ◽  
Meta Consent

Abstract Background The advent of learning healthcare systems (LHSs) raises an important implementation challenge concerning how to request and manage consent to support secondary use of data in learning cycles, particularly research activities. Current consent models in Quebec were not established with the context of LHSs in mind and do not support the agility and transparency required to obtain consent from all involved, especially the citizens. Therefore, a new approach to consent is needed. Previous work identified the meta-consent model as a promising alternative to fulfill the requirements of LHSs, particularly large-scale deployments. We elicited the public’s attitude toward the meta-consent model to evaluate if the model could be understood by the citizens and would be deemed acceptable to prepare for its possible implementation in Quebec. Methods Eight focus groups, with a total of 63 members of the general public from various backgrounds were conducted in Quebec, Canada, in 2019. Explicit attention was given to literacy levels, language spoken at home and rural vs urban settings. We assessed attitudes, concerns and facilitators regarding key components of the meta-consent model: predefined categories to personalized consent requests, a dynamic web-based infrastructure to record meta-consent, and default settings. To analyse the discussions, a thematic content analysis was performed using a qualitative software. Results Our findings showed that participants were supportive of this new approach of consent as it promotes transparency and offers autonomy for the management of their health data. Key facilitators were identified to be considered in the implementation of a meta-consent model in the Quebec LHSs: information and transparency, awareness campaigns, development of educational tools, collaboration of front-line healthcare professionals, default settings deemed acceptable by the society as well as close partnerships with recognized and trusted institutions. Conclusions This qualitative study reveals the openness of a sample of the Quebec population regarding the meta-consent model for secondary use of health data for research. This first exploratory study conducted with the public is an important step in guiding decision-makers in the next phases of implementing the various strategies to support access and use of health data in Quebec.

scholarly journals Factors influencing the performance of community health workers: A qualitative study of Anganwadi Workers from Bihar, India

PLoS ONE ◽  
2020 ◽  
Vol 15 (11) ◽  
pp. e0242460
Author(s):  
Aparna John ◽  
Nicholas Nisbett ◽  
Inka Barnett ◽  
Rasmi Avula ◽  
Purnima Menon
Keyword(s):  
Qualitative Study ◽  
Community Health ◽  
Large Scale ◽  
Health Workers ◽  
Seasonal Migration ◽  
High Coverage ◽  
Factors Affecting ◽  
Community Factors ◽  
Factors Influencing ◽  
The Individual

Globally, there remain significant knowledge and evidence gaps around how to support Community Health Worker (CHW) programmes to achieve high coverage and quality of interventions. India’s Integrated Child Development Services scheme employs the largest CHW cadre in the world—Anganwadi Workers (AWWs). However, factors influencing the performance of these workers remain under researched. Lessons from it have potential to impact on other large scale global CHW programmes. A qualitative study of AWWs in the Indian state of Bihar was conducted to identify key drivers of performance in 2015. In-depth interviews were conducted with 30 AWWs; data was analysed using both inductive and deductive thematic analysis. The study adapted and contextualised existing frameworks on CHW performance, finding that factors affecting performance occur at the individual, community, programme and organisational levels, including factors not previously identified in the literature. Individual factors include initial financial motives and family support; programme factors include beneficiaries’ and AWWs’ service preferences and work environment; community factors include caste dynamics and community and seasonal migration; and organisational factors include corruption. The initial motives of the worker (the need to retain a job for family financial needs) and community expectations (for product-oriented services) ensure continued efforts even when her motivation is low. The main constraints to performance remain factors outside of her control, including limited availability of programme resources and challenging relationships shaped by caste dynamics, seasonal migration, and corruption. Programme efforts to improve performance (such as incentives, working conditions and supportive management) need to consider these complex, inter-related multiple determinants of performance. Our findings, including new factors, contribute to the global literature on factors affecting the performance of CHWs and have wide application.

scholarly journals Critical care work during COVID-19: a qualitative study of staff experiences in the UK

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e048124
Author(s):  
Catherine M Montgomery ◽  
Sally Humphreys ◽  
Corrienne McCulloch ◽  
Annemarie B Docherty ◽  
Steve Sturdy ◽  
...  
Keyword(s):  
Critical Care ◽  
Qualitative Study ◽  
Large Scale ◽  
Care Staff ◽  
Patient Acuity ◽  
Allied Health Professionals ◽  
Telephone Interviews ◽  
Extreme Stress ◽  
The Uk ◽  
Staff Experiences

ObjectiveTo understand National Health Service (NHS) staff experiences of working in critical care during the first wave of the COVID-19 pandemic in the UK.DesignQualitative study using semistructured telephone interviews and rapid analysis, interpreted using Baehr’s sociological lens of ‘communities of fate’.ParticipantsForty NHS staff working in critical care, including 21 nurses, 10 doctors and advanced critical care practitioners, 4 allied health professionals, 3 operating department practitioners and 2 ward clerks. Participants were interviewed between August and October 2020; we purposefully sought the experiences of trained and experienced critical care staff and those who were redeployed.SettingFour hospitals in the UK.ResultsCOVID-19 presented staff with a situation of extreme stress, duress and social emergency, leading to a shared set of experiences which we have characterised as a community of fate. This involved not only fear and dread of working in critical care, but also a collective sense of duty and vocation. Caring for patients and families involved changes to usual ways of working, revolving around: reorganisation of space and personnel, personal protective equipment, lack of evidence for treating COVID-19, inability for families to be physically present, and the trauma of witnessing extreme patient acuity and death on a large scale. The stress and isolation of working in critical care during COVID-19 was mitigated by strong teamwork, camaraderie, pride and fulfilment.ConclusionCOVID-19 has changed working practices in critical care and profoundly affected staff physically, mentally and emotionally. Attention needs to be paid to the social and organisational conditions in which individuals work, addressing both practical resourcing and the interpersonal dynamics of critical care provision.

scholarly journals Implementation factors affecting the large-scale deployment of digital health and well-being technologies: A qualitative study of the initial phases of the ‘Living-It-Up’ programme

2016 ◽  
Vol 22 (4) ◽  
pp. 867-877 ◽  
Author(s):  
Ruth Agbakoba ◽  
Marilyn McGee-Lennon ◽  
Matt-Mouley Bouamrane ◽  
Nicholas Watson ◽  
Frances S Mair
Keyword(s):  
Qualitative Study ◽  
Large Scale ◽  
Digital Health ◽  
Well Being ◽  
Normalisation Process Theory ◽  
Important Lesson ◽  
Factors Affecting ◽  
Services Delivery ◽  
Design Activities ◽  
Health And Well Being

Little is known about the factors which facilitate or impede the large-scale deployment of health and well-being consumer technologies. The Living-It-Up project is a large-scale digital intervention led by NHS 24, aiming to transform health and well-being services delivery throughout Scotland. We conducted a qualitative study of the factors affecting the implementation and deployment of the Living-It-Up services. We collected a range of data during the initial phase of deployment, including semi-structured interviews (N = 6); participant observation sessions (N = 5) and meetings with key stakeholders (N = 3). We used the Normalisation Process Theory as an explanatory framework to interpret the social processes at play during the initial phases of deployment. Initial findings illustrate that it is clear − and perhaps not surprising − that the size and diversity of the Living-It-Up consortium made implementation processes more complex within a ‘multi-stakeholder’ environment. To overcome these barriers, there is a need to clearly define roles, tasks and responsibilities among the consortium partners. Furthermore, varying levels of expectations and requirements, as well as diverse cultures and ways of working, must be effectively managed. Factors which facilitated implementation included extensive stakeholder engagement, such as co-design activities, which can contribute to an increased ‘buy-in’ from users in the long term. An important lesson from the Living-It-Up initiative is that attempting to co-design innovative digital services, but at the same time, recruiting large numbers of users is likely to generate conflicting implementation priorities which hinder − or at least substantially slow down − the effective rollout of services at scale. The deployment of Living-It-Up services is ongoing, but our results to date suggest that − in order to be successful − the roll-out of digital health and well-being technologies at scale requires a delicate and pragmatic trade-off between co-design activities, the development of innovative services and the efforts allocated to widespread marketing and recruitment initiatives.

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