Work ability of informal caregivers of patients treated by the public home care service of Brazil: A cross-sectional study

Aims: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area). Methods: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables. Results: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities. Conclusions: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

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Perceptions of Clients and their Informal Caregivers Regarding Fear of Death and Dying in Home Care - A Multicenter Cross Sectional Study

10.29011/2689-9825.000016 ◽

2020 ◽

Keyword(s):

Home Care ◽

Informal Caregivers ◽

Death And Dying ◽

Cross Sectional Study ◽

Fear Of Death ◽

Sectional Study ◽

Cross Sectional

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Hand hygiene by the nursing team in home care: a cross-sectional study

Revista da Escola de Enfermagem da USP ◽

10.1590/1980-220x-reeusp-2021-0104 ◽

2021 ◽

Vol 55 ◽

Author(s):

Jéssica Fernanda Corrêa Cordeiro ◽

Mayra Gonçalves Menegueti ◽

Ana Maria Laus ◽

Anaclara Ferreira Veiga Tipple ◽

Rodrigo Carvalho Santana ◽

...

Keyword(s):

Hand Hygiene ◽

Home Care ◽

Patient Adherence ◽

Care Service ◽

Home Visits ◽

Cross Sectional Study ◽

World Health ◽

Sectional Study ◽

Cross Sectional ◽

Nursing Professionals

ABSTRACT Objective: to identify whether nursing professionals carry out hand hygiene, how they do it, and what resources are available for this practice during home visits. Method: cross-sectional study conducted in a public Home Care service. The World Health Organization instrument was used to observe the hand hygiene technique, the time of performance, and the product used. Results: a total of 940 hand hygiene opportunities taking place in 231 home visits were observed. Overall adherence was 14.4%, with the practice of hand hygiene being higher after contact with the patient (53.7%). Before aseptic procedures, after risk/exposure to body fluids, after contact with the patient’s environment, and before contact with the patient, adherence was 0.4%. Regarding the quality of the technique, in none of the 135 practices the recommended steps were followed. As for the structure available in the households, 35 (15.2%) had accessible sinks and none had liquid soap and alcohol-based formulation. Conclusion: adherence to hand hygiene by nursing professionals in home care was low, the technique was not performed, and households did not have resources for the practice.

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Social network of family caregivers of disabled and dependent patients

Revista da Escola de Enfermagem da USP ◽

10.1590/s0080-623420140000600014 ◽

2014 ◽

Vol 48 (spe) ◽

pp. 95-101 ◽

Cited By ~ 1

Author(s):

Cintia Hitomi Yamashita ◽

Jaqueline Correia Gaspar ◽

Fernanda Amendola ◽

Márcia Regina Martins Alvarenga ◽

Maria Amélia de Campos Oliveira

Keyword(s):

Social Network ◽

Home Care ◽

Family Caregivers ◽

Care Service ◽

Cross Sectional Study ◽

Spearman Correlation ◽

Sectional Study ◽

Cross Sectional ◽

The Social ◽

Per Capita

Cross-sectional study that used the Social Network Index and the genogram to assess the social network of 110 family caregivers of dependent patients attended by a Home Care Service in São Paulo, Brazil. Data were analyzed using the test U of Mann-Whitney, Kruskal-Wallis and Spearman correlation. Results were considered statistically significant when p<0,05. Few caregivers participated in activities outside the home and the average number of people they had a bond was 4,4 relatives and 3,6 friends. Caregivers who reported pain and those who had a partner had higher average number of relatives who to trust. The average number of friends was higher in the group that reported use of medication for depression. Total and per capita incomes correlated with the social network. It was found that family members are the primary caregiver’s social network.    

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Nutritional status of multiple sclerosis (MS) patients attending Kasr Alainy MS unit: an exploratory cross-sectional study

Journal of Egyptian Public Health Association ◽

10.1186/s42506-021-00080-3 ◽

2021 ◽

Vol 96 (1) ◽

Author(s):

Zeinab E. Afifi ◽

Rania I. Shehata ◽

Asmaa F. El Sayed ◽

El Sayed M. Hammad ◽

Marwa R. Salem

Keyword(s):

Multiple Sclerosis ◽

Nutritional Status ◽

Dietary Habits ◽

Care Service ◽

Structured Interview ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Level Measurement ◽

Impact Scale

Abstract Background Nutrition was claimed to be a factor in MS causation, course, complications, and management. Several studies were conducted to assess the nutritional status of MS patients; however, few studies were conducted to assess this problem in Egypt. Therefore, the purpose of the current study was to assess the nutritional status of a sample of MS patients. Methods The researchers conducted an exploratory cross-sectional study among 76 relapsing-remitting MS (RRMS) patients attending Kasr Alainy Multiple Sclerosis Unit (KAMSU) from October 2018 to January 2019 to assess the nutritional status of a sample of MS patients. Data were collected using a structured interview questionnaire including an inquiry about the socioeconomic status, and nutritional status using anthropometric measurements, patient-generated subjective global assessment (PG-SGA), semi-quantitative food frequency questionnaires (SQFFQ), and hemoglobin level measurement. Assessment of fatigue was done using the Modified Fatigue Impact Scale 5-items version. Results The mean age of the study participants was 30 ± 6 years. The disease duration ranged from 2 to 264 months. Malnutrition was prevalent among 67.1% (27.6 % overweight, 36.8% obese, and 2.6% underweight). Half of the investigated patients were anemic. According to the PG-SGA, more than half of the studied patients (53.9%) were classified as moderately or suspected malnourished. The unhealthy dietary habits such as taking only a few meals, junk food intake and skipping breakfast were observed in considerable proportions of the group. The SQFFQ revealed overconsumption of energy and fat, and less than acceptable consumption of dietary fibers by most of the studied patients. Conclusions Overweight, obesity, anemia, and unhealthy dietary habits were prevalent among the RRMS patients attending the KAMSU. Nutrition care service is extremely needed for this group of patients.

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Exploration of COVID-19-Based Changes to Caregiver Burden and Caregiving Intensity among Informal Caregivers

Innovation in Aging ◽

10.1093/geroni/igaa057.3459 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 945-945

Author(s):

Steven Cohen ◽

Zachary Kunicki ◽

Megan Drohan ◽

Mary Greaney

Keyword(s):

Caregiver Burden ◽

Informal Caregivers ◽

Cross Sectional Study ◽

Sectional Study ◽

Multinomial Regression ◽

Chi Square ◽

Cross Sectional ◽

Unpaid Care ◽

Factors Associated ◽

Amazon's Mechanical Turk

Abstract Individuals providing unpaid care of assistance to family members and friends (e.g. informal caregivers), may have been uniquely impacted by the COVID-19 pandemic. Research is needed to examine the pandemic’s effect on informal caregivers’ caregiving intensity and burden. Therefore, this cross-sectional study was conducted to explore self-reported changes in caregiver intensity (CI) and caregiver burden (CB) due to the pandemic to identify factors associated with changes in responsibilities and burdens. In June 2020, informal caregivers providing care to someone aged 50+ (n=835) reported their current and pre-pandemic caregiving intensity and burden. Data were collected via Amazon’s Mechanical Turk. Chi-square tests were used to examine bivariate associations between pandemic time (pre vs. post) differences in CI and CB. Multinomial regression was used to assess multivariate predictors of changes to CI and CB due to COVID-19. Results showed a significant U-shaped association between initial CB and CB change due to COVID-19. Higher levels of initial CB were associated with both a significant decrease in CB during COVID-19 (OR 1.33, 95%CI 1.06-1.67), and a significant increase in CB during COVID-19 (OR 1.22, 95%CI 1.05-1.43). There were no significant associations between initial CB and changes in CI due to COVID-19, although older caregivers were more likely to experience a decrease in CB due to caregiving (OR 1.02, 95%CI 1.00-1.05). These mixed results suggest that caregivers with high initial CB experienced the most extreme changes to CB due to COVID-19. Future planned analyses will focus on understanding the potential drivers behind these unexpected results.

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