scholarly journals P.065 Alzheimer’s disease (AD) and dementias in Canada: First national surveillance data from the Canadian Chronic Disease Surveillance System (CCDSS)

2017 ◽  
Vol 44 (S2) ◽  
pp. S29-S29
Author(s):  
C Pelletier ◽  
C Robitaille ◽  
N Gabora-Roth ◽  
J Toews
Keyword(s):  
Disease Surveillance ◽  
Age Groups ◽  
Incidence Rates ◽  
Case Definition ◽  
Administrative Databases ◽  
Fiscal Year ◽  
Prevalence Rates ◽  
Disease Surveillance System ◽  
Icd 10 ◽  
Group Sex

Background: With a growing and aging population, the number of individuals with AD and dementias and their associated costs are expected to increase in Canada. Up to now, no national mechanism was in place to monitor the epidemiological burden of AD and dementias. This presentation will showcase the first CCDSS data available on these conditions. Methods: Through the CCDSS, a Federal/Provincial/Territorial partnership, health administrative databases are linked to collect data on chronic conditions. Using selected ICD-9(CM)/ICD-10 codes for AD and dementias, the validated case definition implemented to identify relevant cases aged 65+ is:1+ hospitalizations; or3+ physician claims within 2 years, with a 30-day-gap between each claim; or1+ anti-dementia drug prescriptions.Prevalence and incidence rates will be presented by 5-year age group, sex, province/territory, and fiscal year. Results: Overall, incidence and prevalence rates were higher in women. The prevalence rate approximately doubled between 5-year age groups and sex differences tended to widen with age. While aged-standardised data show increasing prevalence rates over time, incidence rates fluctuated but suggest a decline since 2009/10. Conclusions: CCDSS data can be used to monitor the burden of AD and dementias in Canada. This information is important for the assessment of prevention actions and the planning of health care resources.

Abstract P053: Increment And Stabilization Of Diabetes Prevalence In The Province Of Quebec, Canada: A Combination Of Lower Mortality And Incidence In Older Adults Only

Circulation ◽  
2021 ◽  
Vol 143 (Suppl_1) ◽  
Author(s):  
Sarah O'Connor ◽  
Claudia Blais ◽  
Jacinthe Leclerc ◽  
Denis Hamel ◽  
Marjolaine Dubé ◽  
...  
Keyword(s):  
Disease Surveillance ◽  
Age Groups ◽  
Incidence Rates ◽  
Diabetes Prevalence ◽  
Diabetes Incidence ◽  
Disease Surveillance System ◽  
Younger Age ◽  
Canadian Provinces ◽  
Prevention Of Diabetes ◽  
Crude Prevalence

Introduction: In the last decade, an increase in the prevalence and a reduction in the incidence of diabetes have been observed in many countries including Canada. Yet, some Canadian provinces depicted an elevation in incidence rates among younger age groups. Our objective was to document these trends in the province of Quebec from fiscal years 2001 to 2017. Hypothesis: Prevalence is increasing because of raising incidence in individuals aged <50 years. Methods: Prevalence, incidence and all-cause mortality among cases of diabetes ≥20 years were assessed using the Quebec Integrated Chronic Disease Surveillance System (n=6,551,045 in 2017). Estimations were age-standardized or stratified by 10-year age groups. Results: In 2017, the crude prevalence and incidence of diabetes were 9.9% [99% confidence interval: 9.9-10.0] (n=651,370) and 6.0 per 1,000 inhabitants [5.9-6.0] (n=35,355), respectively. Between 2001 and 2017, the age-standardized prevalence increased by 43% (6.3% [6.3-6.3] to 9.0% [9.0-9.1]), while age-standardized incidence decreased by 29% (8.3 per 1,000 [8.2-8.4] to 5.9 per 1,000 [5.9-6.0]). In every age group, the prevalence increased steadily with progressive stabilization from 2011 and onward, except for the 60-69 years old group who depicted a reduction from 2012 to 2017. Incidence remained stable among <50 years old, while it decreased for ≥50 years (-26%, -33%, -36% for 50-59, 60-69 and ≥70 years old, respectively) (Figure 1). Age-standardized mortality among adults with diabetes decreased by 24% (20.7 per 1,000 [20.1-21.3] to 15.8 per 1,000 [15.4-16.3]). Mortality rates decreased by 27% among the 40-49 years old, with greater reductions in older age groups (-28%, -35%, -34% in the 50-59, 60-69 and ≥70 years, respectively). Conclusions: The rise and stabilization of diabetes prevalence could be due to a reduction in incidence in patients aged ≥50 years and mortality among all age groups. Prevention of diabetes should be a priority among individuals aged <50 years as diabetes incidence is not decreasing.

scholarly journals Epidemiologic Analysis of Taiwanese Patients with Idiopathic Pulmonary Fibrosis

Healthcare ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 580
Author(s):  
Sheau-Ning Yang ◽  
Diahn-Warng Perng ◽  
Hsin-Kuo Ko ◽  
Yuh-Lih Chang ◽  
Chia-Chen Hsu ◽  
...  
Keyword(s):  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Survival Time ◽  
Age Groups ◽  
Incidence Rates ◽  
Case Definition ◽  
Annual Incidence ◽  
Research Database ◽  
Prevalence Rates ◽  
Cumulative Prevalence

Several databases of epidemiologic studies in patients with idiopathic pulmonary fibrosis (IPF) have been analyzed in the Western community. However, few studies have been reported in Asia. The objective of this study was to investigate the epidemiology of IPF in Taiwan. We collected and analyzed patients with IPF from the Taiwan National Health Insurance Research Database from 2001 to 2011. We estimated the annual incidence and cumulative prevalence of IPF and mean survival time of patients and determined the causes of death. The annual incidence rates of IPF remained stable after 2005, ranging from 0.7 to 1.3 cases per 100,000 people per year, whereas the cumulative prevalence rates increased steadily from 3.1 to 6.4 cases per 100,000 people per year during 2006–2011 based on a narrow case definition. Men older than 75 years had higher incidence compared with other age groups. The mean survival after diagnosis was 6.9 years. Old age, male sex, and respiratory hospitalization were associated with shorter survival time after diagnosis. Both the incidence and prevalence rates of IPF were lower in Taiwanese patients than Western ones. Moreover, the survival time was higher in the Asian population compared with the Western population. These results may suggest the heterogeneity of the IPF definition in different study populations and geographic locations.

scholarly journals 911. Assessment of Representativeness of IPD Surveillance Conducted by the National Microbiology Laboratory of Canada

2020 ◽  
Vol 7 (Supplement_1) ◽  
pp. S490-S490
Author(s):  
Rajeev M Nepal ◽  
Stephane B Dion ◽  
Ana Gabriela Grajales ◽  
Maria Major ◽  
Alejandro Cane ◽  
...  
Keyword(s):  
Disease Surveillance ◽  
Age Groups ◽  
Incidence Rates ◽  
Microbiology Laboratory ◽  
Disease Surveillance System ◽  
Time Period ◽  
Case Count ◽  
Surveillance Programs ◽  
The Difference ◽  
Insight Into

Abstract Background Understanding the evolving epidemiology of Streptococcus pneumoniae serotypes is important for assessing the current and potential future immunization programs. In Canada, Invasive pneumococcal disease (IPD) is mandatory reportable to provincial/territorial public health. Provinces and territories voluntarily submit annual IPD data to the Canadian Notifiable Disease Surveillance System (CNDSS), which publishes information on IPD cases and incidence rates, however serotype data are not available. Provinces/territories also voluntarily submit IPD isolates to the National Microbiology laboratory (NML) for serotyping; provinces that conduct their own serotyping submit this information. The NML produces comprehensive IPD surveillance reports including serotype distribution; due to lack of population denominator, no incidence rates are available. The two surveillance programs are not linked. The objective of the study is to assess the representativeness of the NML surveillance as compared to the CNDSS and provincial reportable diseases databases. Methods Over the study time period (2010-2017), we compared annual IPD case counts between the NML and CNDSS reports. Due to the difference in age grouping between CNDSS and NML, comparison was limited to these groups: all age, &lt; 5, 5-14 and &gt; 15 years. In addition, the IPD counts from NML were compared to data from four largest provinces. Results For &lt; 5 group, NML reported 91% of CNDSS case count whereas for 5-14 and &gt; 15 years of age, it was 81% and 79%, respectively. Compared to the corresponding provincial databases, NML reported 91%, 97%, and 93% case counts for Ontario, British Columbia, and Alberta, respectively, while it was only 47% for Quebec. Further analysis revealed that the discrepancy in Quebec is the result of under-representation of &gt;5 populations. Figure 1: Comparison of age stratified IPD case counts between CNDSS and NML Figure 2. Comparison of all age IPD case counts between NML and provincial databases Conclusion IPD surveillance conducted by NML has been instrumental to gain insight into the evolving epidemiology of S. pneumoniae serotypes in Canada. Comparisons of IPD counts from NML surveillance reports with reportable disease databases revealed different levels of concordance across provinces and age groups. The limitations of NML surveillance including incomplete or inconsistent reporting should be taken into consideration when interpreting the data. Disclosures Rajeev M. Nepal, PhD, Pfizer (Employee) Stephane B. Dion, PhD, Pfizer (Employee) Ana Gabriela Grajales, MD, Pfizer (Employee) Maria Major, B.Sc., MPH, Pfizer (Employee) Alejandro Cane, MD, Pfizer (Employee) Jelena Vojicic, MD, Pfizer (Employee)

scholarly journals Tularemia transmission to humans: a multifaceted surveillance approach

2018 ◽  
Vol 146 (16) ◽  
pp. 2139-2145 ◽  
Author(s):  
N. Akhvlediani ◽  
I. Burjanadze ◽  
D. Baliashvili ◽  
T. Tushishvili ◽  
M. Broladze ◽  
...  
Keyword(s):  
Risk Factors ◽  
Disease Surveillance ◽  
Incidence Rates ◽  
Clinical Factors ◽  
Notifiable Disease ◽  
Surveillance Studies ◽  
Disease Surveillance System ◽  
Acute Infections ◽  
System 2 ◽  
Incident Cases

AbstractTularemia has sustained seroprevalence in Eurasia, with estimates as high as 15% in endemic regions. The purpose of this report is to characterise the current epidemiology of Francisella tularensis subspecies holarctica in Georgia. Three surveillance activities are summarised: (1) acute infections captured in Georgia's notifiable disease surveillance system, (2) infectious disease seroprevalence study of military volunteers, and (3) a study of seroprevalence and risk factors in endemic regions. Descriptive analyses of demographic, exposure and clinical factors were conducted for the surveillance studies; bivariate analyses were computed to identify risk factors of seropositivity using likelihood ratio χ2 tests or Fisher's exact tests. Of the 19 incident cases reported between 2014 and August 2017, 10 were confirmed and nine met the presumptive definition; the estimated annual incidence was 0.12/100 000. The first cases of tularemia in Western Georgia were reported. Seroprevalences of antibodies for F. tularensis were 2.0% for military volunteers and 5.0% for residents in endemic regions. Exposures correlated with seropositivity included work with hay and contact with multiple types of animals. Seroprevalence studies conducted periodically may enhance our understanding of tularemia in countries with dramatically underestimated incidence rates.

scholarly journals LO021: Use of health services among non-institutionalized frail elderly with fracture: preliminary results

CJEM ◽  
2016 ◽  
Vol 18 (S1) ◽  
pp. S37-S37
Author(s):  
V. Fillion ◽  
S. Jean ◽  
M. Sirois ◽  
P. Gamache
Keyword(s):  
Chronic Disease ◽  
General Practitioner ◽  
Health Services ◽  
Surveillance System ◽  
Disease Surveillance ◽  
Administrative Databases ◽  
Assessment Index ◽  
Preliminary Results ◽  
Disease Surveillance System ◽  
Use Of Health Services

Introduction: Frail older adults experience an increased risk of a number of adverse health outcomes such as comorbidity, disability, dependency, institutionalization, falls, fractures, hospitalization, and mortality. Identification of frail adults is important. The objective of this study is to examine the association between frailty and use of health services (emergency, general practitioner, hospitalization) prior to and following a visit for a fracture in non-institutionalized seniors. Methods: This study is a population-based cohort build from the Quebec Integrated Chronic Disease Surveillance System, an innovative chronic disease surveillance system linking five health care administrative databases. Algorithms using data from this system are accurate and reliable for identifying fractures. The sample includes 179,734 seniors ≥ 65 years old, non-institutionalized in the year before the fracture. Their frailty status was measured using the elderly risk assessment index. Poisson regression models were used to compare use of health services (emergency, general practitioner, hospitalization) 1 year before and 1 year after a visit for a fracture (adjusting for age, sex, comorbidities, social deprivation, material deprivation and site of fracture). Results: Overall, preliminary results show that the use of health services increased significantly in the year following the fracture in frail non-institutionalized elderly vs the non-frail one (p < 0.05). Conclusion: This study suggests that frail seniors with a fracture require more health services after their incident fracture. Furthermore, using a frailty assessment index in health administrative databases can help identify seniors that are at high risk of needing more health services and, therefore, improve their care.

scholarly journals Linking Clinical and Administrative Data to Inform Performance Measures Regarding Access to Specialist Care for Patients with Rheumatoid Arthritis

2018 ◽  
Vol 3 (4) ◽  
Author(s):  
Deborah A Marshall ◽  
Claire Barber ◽  
Sharon Zhang ◽  
Jatin Patel ◽  
Guanmin Chen ◽  
...  
Keyword(s):  
Administrative Data ◽  
Performance Measure ◽  
Case Definition ◽  
Fiscal Year ◽  
Specialist Care ◽  
Data Repositories ◽  
Physician Visits ◽  
Icd 10 ◽  
One Year ◽  
New Onset

IntroductionRheumatoid arthritis (RA) is the most prevalent type of chronic adult inflammatory arthritis and requires timely diagnosis and subsequent access to specialist care and treatment from a rheumatologist. We developed a set of key performance indicators (KPIs) to evaluate access, effectiveness, acceptability, appropriateness and efficiency of care. Objectives and ApproachThe overall objective was to measure performance of a central intake system for referral to rheumatology against the KPIs. We report on one accessibility KPIs: the percentage of patients with new onset RA with at least one visit to a rheumatologist in the first 365 days since diagnosis.  We identified a cohort of RA patients using a validated case definition: >16 years, at least 1 RA related hospitalization (ICD-10-CA:M05.x-M06.x) or two RA related physician visits ≥ eight weeks apart within two years (ICD-9: 714.x).  The incident case date was date of hospitalization or second physician visit (whichever came first). ResultsThis KPI assessed the proportion of patients seen by a rheumatologist within one year of first RA visit by patients in the RA cohort. 13,914 cases of RA were diagnosed between April 1 2010 and March 31 2016. The percentage of patients with new onset RA with at least one visit to a rheumatologist in the first 365 days since diagnosis increased between fiscal years 2011 and 2015. Of the 2851 incident RA cases in fiscal year 2011, 1490 (53%) met the performance measure compared to 1710 of 2710 (63%) who met the definition in fiscal year 2015. Other KPIs, including wait times, are being evaluated using both clinical and administrative data. Conclusion/ImplicationsBy linking multiple administrative datasets, we are able to measure system performance against a defined KPI and identify opportunities for system improvement. This is the first initiative in Alberta for patients with RA where data from different multi-custodial data repositories have been extracted, linked and analyzed for this purpose.

scholarly journals The Canadian Chronic Disease Surveillance System: A model for collaborative surveillance

2018 ◽  
Vol 3 (3) ◽  
Author(s):  
Lisa Lix ◽  
James Ayles ◽  
Sharon Bartholomew ◽  
Charmaine Cooke ◽  
Joellyn Ellison ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Surveillance System ◽  
Disease Surveillance ◽  
Health Agency ◽  
Population Based ◽  
Population Characteristics ◽  
Administrative Databases ◽  
Distributed Model ◽  
Case Definitions ◽  
Disease Surveillance System

Chronic diseases have a major impact on populations and healthcare systems worldwide. Administrative health data are an ideal resource for chronic disease surveillance because they are population-based and routinely collected. For multi-jurisdictional surveillance, a distributed model is advantageous because it does not require individual-level data to be shared across jurisdictional boundaries. Our objective is to describe the process, structure, benefits, and challenges of a distributed model for chronic disease surveillance across all Canadian provinces and territories (P/Ts) using linked administrative data. The Public Health Agency of Canada (PHAC) established the Canadian Chronic Disease Surveillance System (CCDSS) in 2009 to facilitate standardized, national estimates of chronic disease prevalence, incidence, and outcomes. The CCDSS primarily relies on linked health insurance registration files, physician billing claims, and hospital discharge abstracts. Standardized case definitions and common analytic protocols are applied to the data for each P/T; aggregate data are shared with PHAC and summarized for reports and open access data initiatives. Advantages of this distributed model include: it uses the rich data resources available in all P/Ts; it supports chronic disease surveillance capacity building in all P/Ts; and changes in surveillance methodology can be easily developed by PHAC and implemented by the P/Ts. However, there are challenges: heterogeneity in administrative databases across jurisdictions and changes in data quality over time threaten the production of standardized disease estimates; a limited set of databases are common to all P/Ts, which hinders potential CCDSS expansion; and there is a need to balance comprehensive reporting with P/T disclosure requirements to protect privacy. The CCDSS distributed model for chronic disease surveillance has been successfully implemented and sustained by PHAC and its P/T partners. Many lessons have been learned about national surveillance involving jurisdictions that are heterogeneous with respect to healthcare databases, expertise and analytical capacity, population characteristics, and priorities.

scholarly journals The Incidence of Hip Fractures in Long-Term Care Homes in Saskatchewan from 2008 to 2012: an Analysis of Provincial Administrative Databases

2017 ◽  
Vol 20 (3) ◽  
pp. 97-104 ◽  
Author(s):  
Lilian U. Thorpe ◽  
Susan J. Whiting ◽  
Wenbin Li ◽  
William Dust ◽  
Thomas Hadjistavropoulos ◽  
...  
Keyword(s):  
Long Term Care ◽  
Large Population ◽  
Age Groups ◽  
Epidemiological Data ◽  
Incidence Rates ◽  
Administrative Databases ◽  
Medium Size ◽  
Neck Of Femur ◽  
Term Care

BackgroundHip fractures (HFs) represent an important cause of morbidity and mortality among adults in long-term care (LTC), but lack of detailed epidemiological data poses challenges to intervention planning. We aimed to determine the incidence of HFs among permanent LTC residents in Saskatchewan between 2008 and 2012, using linked, provincial administrative health databases, exploring associations between outcomes and basic individual and institutional characteristics.MethodsWe utilized the Ministry of Health databases to select HF cases based on ICD 10 diagnoses fracture of head and neck of femur, pertrochanteric fracture and subtrochanteric fracture of femur. HF incidence rates in LTC were compared to older adults in the general population.ResultsLTC residents were more likely to be female overall (65.5%), although this varied by age, with only 46.6% female in those under 65, but 77% female among those 90 years and older. Mean age of residents was highest in rural centres (85.2 yrs) and lowest in medium–large centres (81.0 yrs). Of 6,230 cases of HFs in the province during the study period, 2,743 (44%) were in the LTC cohort. Incidence rates per 1,000 person years increased with age and were higher in the LTC group (F = 68.6, M = 49.8) than the overall population (F = 1.62, M = 0.73). Rates of HFs in the province and in LTC were higher in females than males in all age groups, except for the youngest (< 65 years), where males had higher rates, and the oldest category (90+) where rates were similar. Women 90+ years in larger LTC had significantly higher (p = .035) HF rates than those in smaller LTC, and also had significantly (p = .001) higher rates in medium-large compared to smaller population centres. However, after age standardization to the overall SK population, it was apparent that the larger LTC facilities and the medium-large population centres had overall lower HF rates than the small and medium LTC facilities and the small urban and rural PCs, respectively. One health region had particularly high rates, even when accounting for age and sex composition.ConclusionBoth HF numbers and incidence rates were higher in LTC compared to the overall population, with higher rates in older women, small to medium size LTC, and particular health regions. Our data suggest the need for further exploration of potentially remediable factors for HFs in smaller LTCs, and for targeting specific facilities and regions with outlying HF rates.

scholarly journals Linking surveillance and administrative data to better understand dementia’s impact in Canada

2018 ◽  
Vol 3 (4) ◽  
Author(s):  
Tracy Johnson ◽  
Liudmila Husak ◽  
Catherine Pelletier ◽  
Sharon Bartholomew
Keyword(s):  
Nursing Homes ◽  
Administrative Data ◽  
Emergency Departments ◽  
Disease Surveillance ◽  
Health Agency ◽  
Home Care Services ◽  
Administrative Databases ◽  
Term Care ◽  
Disease Surveillance System ◽  
Combining Data

IntroductionCanadian Institute of Health Information and Public Health Agency of Canada combined analytical work for a dementia report. The report linked surveillance and administrative data to support policy makers, health system planners and public in understanding the prevalence of seniors with dementia and their interactions with the health care system. Objectives and ApproachDementia prevalence data from PHAC’s Canadian Chronic Disease Surveillance System was used as a denominator, and data from CIHI’s administrative databases was used as a numerator to calculate the statistics on interactions of seniors with dementia with the healthcare system. Examples of the measures reported by database include: Using DAD: Proportion of seniors with dementia who were hospitalized; Using NACRS: Proportion of seniors with dementia who visited emergency departments; Using CCRS: Proportion of seniors with dementia living in and outside of nursing homes; Using HCRS: Proportion of seniors with dementia living in the community and receiving home care services. ResultsResults for the measures above, as well as rates of patients receiving different services, statistics on where they live, their characteristics, quality of care by sectors, and impacts on caregivers will be presented. One out of 5 seniors with dementia is admitted to hospital every year, and one out of four visited emergency departments at least once. Two out of five seniors with dementia reside in long term care. While in nursing homes, seniors with dementia experience more inappropriate antipsychotic and restraint use compared to seniors without dementia. They are especially susceptible to injury and falls. Once hospitalized, they tend to stay longer waiting for placement and experience greater hospital harm. Caregivers of seniors with dementia experience more distress compared to caregivers of other seniors. Conclusion/ImplicationsThis work illustrates benefits of combining data from different organizations and sectors to help inform policy and fill data gaps. This innovative approach using PHAC’s surveillance and CIHI’s administrative data avoids confusion from varying estimates and duplication of work between organizations, generates new evidence, and reaches a broader audience.

Prevalence of lung cancer in Colombia and a new diagnostic algorithm using health administrative databases: A real-world evidence study.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e18764-e18764
Author(s):  
Giancarlo Buitrago ◽  
Javier Amaya-Nieto ◽  
Gabriel Fernando Torres
Keyword(s):  
Lung Cancer ◽  
Policy Design ◽  
Diagnostic Algorithm ◽  
Geographic Region ◽  
Administrative Databases ◽  
Prevalence Rates ◽  
Cross Sectional ◽  
Icd 10 ◽  
Estimate Prevalence ◽  
Official Sources

e18764 Background: Reliable, timely and detailed information of lung cancer mortality and costs from low- and middle-income countries is essential to policy design. We aimed to develop an electronic algorithm to identify lung cancer prevalent patient in Colombia using official databases and to estimate prevalence rates by age, sex, and geographic region. Methods: We performed a cross sectional study based on national claim databases in Colombia ( Base de datos de suficiencia de la Unidad de Pago por Capitación and Base de Datos Única de Afiliados) to identify lung cancer prevalent patients in 2017. Several algorithms based on the presence or absence of oncological procedures (Chemotherapy, radiotherapy and surgery), and a minimum number of months that each individual had lung cancer ICD-10 codes in the previous 3 years, were developed. After testing 16 algorithms, those with the closest prevalence rates to the ones reported by aggregated official sources (GLOBOCAN, National Cancer Institute and Cuenta de Alto Costo) were selected . We estimated prevalence rates by age, sex, and geographic region. Results: Two algorithm s were selected: i) it was defined as the presence of ICD-10 codes for 4 months or more (sensitive algorithm); and ii) adding the presence of at least one oncological procedure (specific algorithm). Estimated prevalence rates per 100,000 population were 15.3 and 9.7 for the sensitive and specific algorithms, respectively. These rates were higher in men (9.9), over 65 years old (37.1), who lived in Central and Bogota regions (14.7 and 10.9, respectively) (Table). Conclusions: Selected algorithms showed similar prevalence estimations to those reported by official sources and allowed us to estimate prevalence rates in specific aging, regional and gender groups for Colombia using national claims databases. These findings could be useful to identify clinical and economical outcomes related to lung cancer patients using national individual-level databases. [Table: see text]

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