scholarly journals 3487 Trust in Research Among Older Adults

2019 ◽  
Vol 3 (s1) ◽  
pp. 98-98
Author(s):  
Catherine Woodstock Striley ◽  
Shawnta Lloyd ◽  
Deepthi Varma ◽  
Krishna Vaddiparti ◽  
Linda B. Cottler
Keyword(s):  
Older Adults ◽  
Community Engagement ◽  
Social Services ◽  
Health Research ◽  
Research Study ◽  
Health Workers ◽  
Community Members ◽  
Study Population ◽  
Interest In Research

OBJECTIVES/SPECIFIC AIMS: Adults, 60 years of age and older, are in high demand for enrollment in many types of health research. Here we aimed to examine baseline, 60-day and 120-day follow-up trust in research and researchers of Floridians 60 years of age and older engaged in University of Florida’s HealthStreet community engagement initiative. METHODS/STUDY POPULATION: HealthStreet Community Health Workers (CHWs) assess health needs and trust in research of community members and screen for dementia, before providing medical and social services referrals and linkages to opportunities to participate in relevant health research at UF. In addition, participants are followed up at 60 and 120 days. RESULTS/ANTICIPATED RESULTS: Among the 2,193 older adults assessed by CHWs, 62.6% were female, 46.8% were African American, and 6.1% Hispanic/Latino. At baseline, 28.3% reported ever being in a research study; 7.7% reported not being interested in participating in research. Trust in research and researchers was high at baseline [scored from 1 to 10 where 10 was high; mean of 7.4 each for trust in research (SD=2.0) and trust in researchers (SD=2.1)] and high at both follow-ups [60 days 7.8 (SD=2.1) and 7.7 (SD=2) for trust in research and researchers respectively; 120 days 8.0 for both (SD=1.9 and 1.8 respectively)]. DISCUSSION/SIGNIFICANCE OF IMPACT: Individuals who are 60 and older have high trust in research and researchers when approached and high interest in research. Their trust continues through work with HealthStreet CHWs. Community engagement is an important part of the pipeline for recruitment of older adults for research.

scholarly journals 3418 Service referral follow up rate among participants of a community engagement initiative in Florida

2019 ◽  
Vol 3 (s1) ◽  
pp. 94-94
Author(s):  
Deepthi S Varma ◽  
Piyush V Chaudhari ◽  
Krishna Vaddiparti ◽  
Catherine Woodstock Striley ◽  
Linda B. Cottler
Keyword(s):  
Community Engagement ◽  
Social Services ◽  
Social Service ◽  
Service Providers ◽  
Health Needs ◽  
Utilization Rate ◽  
Community Members ◽  
University Of Florida ◽  
Service Referral

OBJECTIVES/SPECIFIC AIMS: To examine the rate of medical and social service referral utilization among community members who are enrolled in HealthStreet - a community engagement initiative at University of Florida. METHODS/STUDY POPULATION: HealthStreet utilizes the CHW model to conduct health needs assessment, provide referrals to medical and social services and link them to health research at UF. Across two follow-up schedules, these participants are contacted to assess their rate of referral utilization. RESULTS/ANTICIPATED RESULTS: From October 2011-October 2018, HealthStreet completed 10,829 health needs assessments and provided a total of 15,723 medical and/or social service referrals with an average of 1.48 referrals per person. About a third of people completed first and second follow-up respectively (n=3,461; 32.0% and n=3,477; 32.1%), and another third (n=3,891; 35.9%) completed neither. The total number of follow up attempts was 40,863, with an average of 3.85 attempts per person. The overall service utilization rate was 17.02%. The top barriers to utilization included, could not schedule an appointment (26.3%), busy on the date of appointment (21.9%), transportation (9.4%), and already received the service from elsewhere (4.7%). Others (28.3%) did not identify a specific barrier for non-utilization. DISCUSSION/SIGNIFICANCE OF IMPACT: Findings show that those who need services are still hampered by barriers to care that CHWs and other service providers could help them overcome. Facilitating the appointment and providing transportation would assist over a third of those needing services.

scholarly journals 2510 Disparities in navigation to health research among Floridians

2018 ◽  
Vol 2 (S1) ◽  
pp. 10-10
Author(s):  
Linda B. Cottler ◽  
Deepthi S. Varma ◽  
Krishna Vaddiparti ◽  
Catherine Striley
Keyword(s):  
Access To Care ◽  
Social Services ◽  
Health Research ◽  
Community Dwelling ◽  
Prescription Opioid ◽  
Community Members ◽  
University Of Florida ◽  
Never Married ◽  
Health Assessments ◽  
Study Population

OBJECTIVES/SPECIFIC AIMS: The analyses explore socio-demographic characteristics of community members who are navigated and enrolled in health research through HealthStreet—the CTSA community engagement initiative at University of Florida. METHODS/STUDY POPULATION: HealthStreet utilizes the Community Health Worker model to reach the community, conduct health assessments, provide referrals to medical/social services and link people to health research. We compared never navigated, navigated and not enrolled, navigated and enrolled on demographics, access to care, common health conditions and drug use among this community dwelling population. RESULTS/ANTICIPATED RESULTS: Among the 9581 community members, 51% were navigated to a study; 41% were screened eligible and enrolled (n=2024) for an overall enrollment yield of 21%. Disparities were found for all variables; never navigated Versus the others were more likely to be African American, never married, reporting less education and less access to care. The navigated and enrolled Versus others were older females who reported more education, food insecurity, more access to care, and higher rates of hypertension, depression, and prescription opioid and marijuana use. DISCUSSION/SIGNIFICANCE OF IMPACT: Our unique and comprehensive data can assist investigators to tailor recruitment efforts that reduce disparities in health research.

scholarly journals The effect of community dialogues and sensitization on patient reporting of adverse events in rural Uganda: uncontrolled before-after study

2018 ◽  
Author(s):  
Helen Byomire Ndagije ◽  
Leonard Manirakiza ◽  
Dan Kajungu ◽  
Edward Galiwango ◽  
Donna Kusemererwa ◽  
...  
Keyword(s):  
Adverse Events ◽  
Community Engagement ◽  
Adverse Drug Events ◽  
Health Workers ◽  
Household Survey ◽  
Rural Setting ◽  
Health Issues ◽  
Community Members ◽  
Cross Sectional ◽  
Before And After

AbstractBackgroundThe patients that experience adverse events are in the best position to report them, only if they were empowered to do so. Systematic community engagement and support to patients in a rural setting to monitor any potential harm from medicines should provide evidence for patient safety.MethodsThis paper describes an uncontrolled before and after study aimed at assessing the effect of a community engagement strategy, the Community Dialogues and Sensitization (CDS) intervention between January and April 2017, on the knowledge, attitude and practice of reporting adverse drug events by community members in the two eastern Ugandan districts. A representative cross-sectional baseline household survey was done prior to the intervention in September 2016 (n=1034) and the end-line survey (n=827) in July 2017.ResultsAfter implementation of the CDS intervention, there was an overall 20% (95% CI=16- 25) increase in awareness about adverse drug events in the community. The young people (15- 24 years) demonstrated a 41% (95% CI =31-52) increase and the un-educated showed a 50% (95% CI=37-63) increase in awareness about adverse drug events. The attitudes towards reporting increased overall by 5% in response to whether there was a need to report ADEs (95% CI =3-7). An overall 115% (95% CI =137-217) increase in the population that had ever experienced ADEs was also reported.ConclusionOur evaluation shows that the CDS intervention increases knowledge, improves attitudes by catalyzing discussions among community members and health workers on health issues and monitoring safety of medicines.

scholarly journals Sarcopenia for predicting falls and hospitalization in community-dwelling older adults: EWGSOP versus EWGSOP2

2019 ◽  
Vol 9 (1) ◽  
Author(s):  
Ming Yang ◽  
Ying Liu ◽  
Yun Zuo ◽  
Huairong Tang
Keyword(s):  
Older Adults ◽  
Community Dwelling ◽  
Predictive Values ◽  
Specific Distribution ◽  
European Working ◽  
Study Population ◽  
Incidence Of Hospitalization ◽  
Community Dwelling Older Adults ◽  
Gender Specific

AbstractThe European Working Group on Sarcopenia in Older People (EWGSOP) recently published an updated version (EWGSOP2). We aimed to compare the predictive values of EWGSOP-defined and EWGSOP2-defined sarcopenia for the incidence of falls and hospitalization in older adults. We defined sarcopenia according to the EWGSOP and the EWGSOP2. We further modified the cut-off points of the EWGSOP and EWGSOP2 according to the lowest quintile values of the gender-specific distribution of our study population, named “modified EWGSOP” and “modified EWGSOP2”, respectively. We included 384 participants. During the follow-up, 98 participants (26.5%) and 51 participants (13.8%) had at least one fall or hospitalization, respectively. EWGSOP2-defined sarcopenia (hazard ratio [HR] 1.86, 95% confidence interval [CI] 1.22–1.84) and modified EWGSOP2-defined sarcopenia (HR 2.09, 95% CI 1.23–3.55) were significantly associated with an increased incidence of falls, respectively. EWGSOP-defined sarcopenia and modified EWGSOP-defined sarcopenia also have a trend to be associated with the incidence of falls, but the results were not statistically significant. Only modified EWGSOP2-defined sarcopenia (HR 2.07, 95% CI 1.01–4.27) was significantly related to an increased incidence of hospitalization. In conclusion, EWGSOP2-defined sarcopenia performed more sensitive than EWGSOP-defined sarcopenia for predicting the incidence of falls or hospitalization, especially when using the modified cutoffs.

scholarly journals Pré-implantation de l’Accompagnement-citoyen personnalisé d’intégration communautaire (APIC): Adaptabilité, collaboration et financement, les déterminants d’une implantation réussie

2019 ◽  
Vol 38 (03) ◽  
pp. 315-327
Author(s):  
Laurie Piché ◽  
Sophie Arsenault ◽  
Mathilde Leblanc ◽  
Nathalie Croteau ◽  
Mélanie Levasseur
Keyword(s):  
Older Adults ◽  
Action Research ◽  
Social Participation ◽  
Research Study ◽  
Scientific Evidence ◽  
Leisure Activities ◽  
Economic Context ◽  
New Knowledge ◽  
Facilitators And Barriers

ABSTRACTThis study aimed to identify the facilitators and barriers to as well as the feasibility of Implementing Personalized Citizen Assistance for social participation (IPCA) in older adults with disabilities living in the community. The IPCA is a three-hour, weekly follow-up achieved by trained and supervised non-professional assistants that aims to increase engagement in social and leisure activities of people living with disabilities. An action research study was conducted with 16 people from the community. The adaptability of the IPCA, the presence of scientific evidence, the acknowledgement of a need for such an intervention, as well as expertise and collaboration, were the main facilitators in implementation of the IPCA. Meanwhile, funding, associated with an unfavorable political and economic context, was a barrier. Overall, the majority of the participants perceived that the IPCA could be offered in the community by volunteers. This new knowledge will facilitate the implementation of IPCA or other similar interventions.

scholarly journals Tele-Follow-Up of Older Adult Patients from the Geriatric Emergency Department Innovation (GEDI) Program

Geriatrics ◽  
2019 ◽  
Vol 4 (1) ◽  
pp. 18 ◽  
Author(s):  
Lucy Morse ◽  
Linda Xiong ◽  
Vanessa Ramirez-Zohfeld ◽  
Scott Dresden ◽  
Lee Lindquist
Keyword(s):  
Older Adults ◽  
Emergency Department ◽  
Social Services ◽  
Care Coordination ◽  
Symptom Management ◽  
Comparative Method ◽  
Patient Needs ◽  
Time Points ◽  
Phone Calls

The objective of this study was to characterize the content and interventions performed during follow-up phone calls made to patients discharged from the Geriatrics Emergency Department Innovation (GEDI) Program and to demonstrate the benefit of these calls in the care of older adults discharged from the emergency department (ED). This study utilizes retrospective chart review with qualitative analysis. It was set in a large, urban, academic hospital emergency department utilizing the Geriatric Emergency Department Innovations (GEDI) Program. The subjects were adults aged 65 and over who visited the emergency department for acute care. Follow-up telephone calls were made by geriatric nurse liaisons (GNLs) at 24–72 h and 10–14 days post-discharge from the ED. The GNLs documented the content of the phone calls, and these notes were analyzed through a constant comparative method to identify emergent themes. The results showed that the most commonly arising themes in the patients’ questions and nurses’ responses across time-points included symptom management, medications, and care coordination (physician appointments, social services, therapy, and medical equipment). Early follow-up presented the opportunity for nurses to address needs in symptom management and care coordination that directly related to the ED admission; later follow-up presented a unique opportunity to resolve sub-acute issues that were not addressed by the initial discharge plan and to manage newly arising symptoms and patient needs. Thus, telephone follow-up after emergency department discharge presents an opportunity to better connect older adults with appropriate outpatient care and to address needs arising shortly after discharge that may not have otherwise been detected. By following up at two discrete time-points, this intervention identifies and addresses distinct patient needs.

scholarly journals INTEREST GROUP SESSION—PATIENT/PERSON ENGAGEMENT IN RESEARCH INTEREST GROUP (PPER-IG): STRENGTH IN AGE: ENGAGING OLDER ADULTS AS HEALTH RESEARCHERS THROUGH COMMUNITY-BASED PARTNERSHIPS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S404-S404
Author(s):  
Silvia Sörensen ◽  
Rebecca S Allen ◽  
Reza Yousefi Nooraie
Keyword(s):  
Older Adults ◽  
Interest Group ◽  
Health Research ◽  
Deep South ◽  
University Of Alabama ◽  
Community Members ◽  
Patient Centered ◽  
Community Stakeholders ◽  
Research Findings ◽  
The University

Abstract The lack of clear translation of health research to improving older under-served patients’ lives presents a serious problem. Studies of aging rarely include the older adults themselves in the process of conceptualizing questions, implementing the research, and applying and evaluating the results. Lack of input particularly from marginalized and minority older adults may compromise the relevance and accuracy of health research findings. In this symposium, we present the design and evaluation of two projects funded by the Patient-Centered Outcomes Research Institute (PCORI), in which older adults are trained to understand research language, culture, and methods, and are subsequently incorporated into research projects in a variety of roles. Silvia Sörensen will describe the “Engaging Older Adult Learners as Health Researchers” (ENGOAL) in Rochester, NY. This program provides six months of weekly classes and 4-6 months of research apprenticeships for older adults. Dorine Otieno and Kate Kondolf will describe evaluation results from both quantitative and qualitative analyses. Rebecca Allen will describe the design and implementation of “Sharing Opinions and Advice about Research (SOAR) in the Deep South,” a partnership of The University of Alabama with community stakeholders from Sumter and Holt County to recruit and train community members to assist in the formulation of research questions based on the needs of their communities. Allen and Dragan will present the evaluation results from this project with regard to implementation and graduate education. Reza Yousefi-Nooraie will synthesize the insights from these projects and add the perspective of a social network analyst.

scholarly journals Racial and Ethnic Differences in Alzheimer’s Disease Knowledge Among Community-Dwelling Middle-Aged and Older Adults in Florida

2019 ◽  
Vol 32 (7-8) ◽  
pp. 564-572 ◽  
Author(s):  
Sadaf Arefi Milani ◽  
Shawnta Lloyd ◽  
Linda B. Cottler ◽  
Catherine W. Striley
Keyword(s):  
Alzheimer’S Disease ◽  
Older Adults ◽  
Alzheimer's Disease ◽  
Race And Ethnicity ◽  
Health Workers ◽  
Community Sample ◽  
Community Dwelling ◽  
Middle Aged ◽  
Community Members ◽  
Racial And Ethnic Differences

Objective: To compare Alzheimer’s disease (AD) knowledge by race and ethnicity in a community sample of middle-aged and older adults aged 50 and over in Florida. Method: Data from HealthStreet, a University of Florida community engagement program, which uses community health workers to assess the health conditions, concerns, and knowledge of community members, was used ( n = 842). A multivariate regression model was used to quantify differences in AD knowledge by race and ethnicity. Results: Older age and recruitment from Miami were associated with higher AD knowledge while being non-Hispanic Black, reporting male sex, having less than high school diploma, and reporting food insecurity were associated with lower AD knowledge. Discussion: Hispanics had comparable AD knowledge to non-Hispanic Whites and more knowledge than non-Hispanic Blacks after adjusting for other factors that could differentiate these groups. Almost half of the participants did not know hypertension is a risk factor for AD, highlighting a point of intervention.

scholarly journals Evaluating Community Engagement Strategies to Manage Stigma in Two African Genomics Studies Involving People Living with Schizophrenia or Rheumatic Heart Disease

2021 ◽  
Vol 2021 ◽  
pp. 1-9
Author(s):  
Megan M. Campbell ◽  
Olivia P. Matshabane ◽  
Sibonile Mqulwana ◽  
Michael Mndini ◽  
Mohamed Nagdee ◽  
...  
Keyword(s):  
Mental Health ◽  
Heart Disease ◽  
Community Engagement ◽  
Health Research ◽  
Research Study ◽  
Rating Scale ◽  
Evaluation Strategies ◽  
Genomics Research ◽  
Stigma Resistance ◽  
Rheumatic Heart

In global health research and genomics research specifically, community engagement has gained prominence in enhancing ethical conduct, particularly in managing the risk of stigmatization, but there is minimal scientific evidence on how to do this effectively. This article reports on community engagement evaluation strategies in two African genomics studies: the Stigma in African Genomics Research study and the Genomics of Schizophrenia in South African Xhosa People (SAX) study. Within the Stigma in African Genomics Research study, a self-report rating scale and open-ended questions were used to track participant responses to an experiential theatre workshop. The workshop focused on participant experiences of living with schizophrenia or rheumatic heart disease (RHD). While the schizophrenia group reported more alienation and less stigma resistance than the RHD group, both groups demonstrated increased stigma resistance over time, after participating in the workshops. Hearing from others living with and managing the same illness normalised participants’ own experiences and encouraged them. Within the SAX study, a short rating scale and qualitative feedback methods were used to evaluate a Mental Health Literacy Day targeting mental health stigma. Information talks about (i) the symptoms of schizophrenia and treatment options and (ii) the illness experiences of a patient in recovery were rated as the most helpful on the day. Audience members reported that these talks challenged negative perceptions about severe mental illness. Three important learnings emerged from these evaluations: firstly, integration of evaluation strategies at the research study planning phase is likely to promote more effective community engagement. Secondly, a combination of quantitative and qualitative methods that draw on simple descriptive statistics and thematic analysis can provide nuanced perspectives about the value of community engagement. Thirdly, such evidence is necessary in establishing and promoting the science of community engagement in genomics research and health research more broadly.

scholarly journals Malaria outbreak response in urban Santo Domingo, Dominican Republic: lessons learned for community engagement

2020 ◽  
Vol 44 ◽  
pp. 1
Author(s):  
Dianelba Valdez ◽  
Hunter Keys ◽  
Keyla Ureña ◽  
Domingo Cabral ◽  
Francisco Camilo ◽  
...  
Keyword(s):  
Dominican Republic ◽  
Community Engagement ◽  
Active Surveillance ◽  
Health Workers ◽  
Lessons Learned ◽  
Santo Domingo ◽  
Outbreak Response ◽  
Community Members ◽  
Community Based ◽  
Malaria Outbreak

Community engagement is crucial for public health initiatives, yet it remains an under-studied process within national disease elimination programs. This report shares key lessons learned for community engagement practices during a malaria outbreak response in the Los Tres Brazos neighborhood of urban Santo Domingo, Dominican Republic from 2015-2016. In this two-year period, 233 cases of malaria were reported—more than seven times the number of cases (31) reported in the previous two years. The initial outbreak response by the national malaria program emphasized “top-down” interventions such as active surveillance, vector control, and educative talks within the community. Despite a transient reduction in reported cases in mid-2015, transmission resurged at the end of 2015. The program responded by introducing active roles for trained community members that included door-to-door fever screening, testing with rapid diagnostic tests and treatment. Malaria cases declined significantly throughout 2016 and community-based active surveillance infrastructure helped to detect and limit a small episode of transmission in 2017. Results from qualitative research among community members revealed two key factors that facilitated their cooperation with community-based surveillance activities: motivation to help one’s community; and trust among stakeholders (community health workers, their neighbors and other key figures in the community, and malaria program staff and leadership). This experience suggests that community-led interventions and the program’s willingness to learn and adapt under changing circumstances can help control malaria transmission and pave the way for elimination.

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