The social impact of haemophilia

1970 ◽  
Vol 2 (3) ◽  
pp. 237-264 ◽  
Author(s):  
R. A. Boon ◽  
D. F. Roberts
Keyword(s):  
Social Impact ◽  
Genetic Disorders ◽  
Educational Standards ◽  
The North ◽  
School Time ◽  
The Social ◽  
The Family ◽  
Education And Employment ◽  
Physically Handicapped ◽  
Improved Methods

SummaryHaemophilia, one of the oldest known genetic disorders, imposes varying degrees of disability on those affected. A survey of 137 haemophiliacs, seventy-eight adults and fifty-nine children, in the north of England was conducted to discover the extent of social, educational and employment problems created by the disease, while investigation of sixty-nine mothers of patients provided information on its impact on family life.Some problems are adequately met, others not; those of education and employment are the most serious. Educational deficiencies are due to incomplete and interrupted schooling. Choice of employment is severely restricted for them, and stability of employment is adversely affected by episodes of ill-health. But with improved methods of medical treatment the children are losing less school time than the adults did, fewer of them attend schools for the physically handicapped, and this should result in the attainment of better educational standards, and therefore more hope for permanent and satisfactory employment in the future.The birth of a haemophilic child markedly affects the family, particularly the mother, but again there is a difference in response between the present and the older generation of mothers.

scholarly journals Social Impact of IVF (After COVID-19 Pandemic and New Normal)

2020 ◽  
Vol 8 (2) ◽  
pp. 1
Author(s):  
Dunya Ahmed ◽  
Mohamed Buheji ◽  
Noor Albakri
Keyword(s):  
Social Life ◽  
Social Impact ◽  
National Policy ◽  
Social Stability ◽  
Family Stability ◽  
New Normal ◽  
Fertility Ratio ◽  
The Social ◽  
The Family ◽  
Impact On Family

This study aims to analyse the different IVF services and its possible impact on family and social life, after the COVID-19 pandemic. The authors selected the Kingdom of Bahrain as a context for the research and explored the IVF influence on the ‘family stability’ and the ‘social stability’. The framework proposed shows the importance of future foresight of IVF transformation in both the area of life and livelihood.The study used a quantitative method to understand the type of demands on the supplied IVF services, and where the capacity could be raised in the new normal. The paper concludes that IVF could be a source for family stability and as one of the means of controlling the rising of psychosocial phenomena in the future. The other implication of this study calls for monitoring the rapid increases of dependency ratio, as fertility ratio drops, and how IVF services should be planned as part of a national policy; especially with the repeated emergency crisis.

Efficiency of the electricity sector in Mexico 2008-2015

2020 ◽  
Vol 14 (4) ◽  
pp. 683-706
Author(s):  
César Lenin Navarro-Chávez ◽  
Odette V. Delfín-Ortega ◽  
Atzimba Díaz-Pulido
Keyword(s):  
Network Model ◽  
Social Impact ◽  
Electricity Sector ◽  
Data Envelopment ◽  
Content Type ◽  
The North ◽  
Analysis Methodology ◽  
Factor Rotation ◽  
The Social ◽  
Components Method

Purpose The purpose of this paper is to determine the level of efficiency in the Mexico electricity industry during the 2008-2015 period. Design/methodology/approach A data envelopment analysis (DEA) network model is proposed, where technical efficiency is calculated. A factorial analysis using the principal components method was carried out first. Later, latent dimensions were calculated through the variance criterion and sedimentation graph, where four components were presented. After performing factor rotation, the nodes were grouped: generation, transmission, distribution and sales. It proceeded later to structure a DEA network model. Findings From the calculations made, the most efficient node was the transmission, while the North Gulf and East Center divisions were the only efficient. Research limitations/implications The limitations presented in this study were data collection. Practical implications The implications that were observed were that through the results obtained, proposals can be made to the Mexican electricity sector to improve each of the nodes, and have a better operation and reduce energy losses. Social implications The social impact of this type of study is that based on the results obtained, they present the basis for improving energy policy and users can have a better service that has better quality and coverage. Originality/value The originality of this study consists in the use of two methodologies, factor analysis methodology and DEA network model.

scholarly journals REFLECTION ON THE SOCIAL STATUS OF THE ADYGHE WOMAN IN THE RESEARCHES OF THE EUROPEAN AUTHORS OF THE XVII - XIX  ENTURY

2019 ◽  
Author(s):  
З.Х. Кумахова
Keyword(s):  
Social Status ◽  
Women's Status ◽  
North Caucasus ◽  
Women’S Status ◽  
The North ◽  
The Social ◽  
The Family ◽  
The Status ◽  
Status Of Women

В данной статье анализируются исследования европейских путе- шественников, побывавших на Северном Кавказе в XVII–XIX в., затрагивающие статус женщины в традиционном черкесском обществе. Выявленные источники классифицируются по сюжетам, описывающим формирование статуса женщи- ны с младенчества до достижения положения матери семейства. В настоящей статье предпринята попытка комплексно изучить вышеупомянутые источники, выявив стороны жизни адыгской женщины, привлекавшие внимание иностранных исследователей. This article analyzes the research of European travelers who visited the North Caucasus in the 17th - 19th centuries. affecting the status of women in traditional Circassian society. The sources identifi ed are classifi ed by stories describin This article analyses the researches of European travellers who visited the North Caucasus in the period from 17th to 19th centuries, that covered the issue of the status of women in traditional Circassian society. The identifi ed sources are classifi ed according to the plot describing the development of women’s status from infancy to getting the position of the mother of the family. In this article, an attempt has been made to study comprehensively the abovementioned sources, identifying the Adyghe woman’s aspects of life, which attracted the attention of foreign researchers g the formation of the status of women from infancy to the position of the mother of the family. In this article, an attempt was made to comprehensively study the above sources, identifying the sides of the life of the Adyg woman, which attracted the attention of foreign researchers.

scholarly journals PERKAWINAN ADAT MAMASA STUDI ADMINISTRASI KEPENDUDUKAN ANAK DILUAR NIKAH (PERDA KABUPATEN MAMASA NOMOR 5 TAHUN 2017)

2021 ◽  
Vol 3 (1) ◽  
pp. 17-26
Author(s):  
Yustianto Yustianto ◽  
Syamsul Bahri ◽  
Juharni Juharni
Keyword(s):  
Social Impact ◽  
Birth Certificates ◽  
Literature Study ◽  
Biological Father ◽  
The Social ◽  
The Family ◽  
Qualitative Descriptive ◽  
Traditional Marriage ◽  
Negative Impacts

Penelitian ini dilakukan di Dinas Kependudukan dan Pencatatan Sipil Kabupaten Mamasa yang dilaksanakan pada bulan April-Mei 2020. Pendekatan dalam penelitian ini menggunakan deskriptif kualitatif berdasarkan fenomenologi yang terjadi. Teknik pengumpulan data melalui observasi, wawancara mendalam, dan studi kepustakaan. Tujuan dari penelitian ini adalah: (1) Untuk mengetahui mekanisme perkawinan adat Mamasa untuk anak lahir diluar nikah; (2) Untuk mengetahui peran adat Mamasa dalam pembuatan akta lahir bagi anak diluar nikah; dan (3) Untuk mengetahui dampak social yang ditimbulkan dari perkawinan anak diluar nikah. Hasil penelitian menunjukkan bahwa: (1) Mekanisme perkawinan adat Mamasa untuk anak diluar nikah dilakukan melalui sebuah ritual adat sebagai suatu tradisi adat yang dalam istilah masyarakat adat Mamasa disebut dengan istilah dipa’arrangi tangngana langi yang berarti diangkat kembali martabatnya. Pihak keluarga ayah anak diluar nikah tersebut mendatangi pihak keluarga ibu dari anak tersebut untuk memberikan pengakuan bahwa anak tersebut memiliki ayah biologis yang siap bertanggungjawab layaknya sebagai seorang ayah; (2) Peran adat Mamasa dalam pembuatan akta lahir anak diluar nikah selama ini belum dilakukan sebagai mana semestinya yang diatur di dalam Perda Nomor 5 Tahun 2017. Pembuatan akta lahir anak diluar nikah di Dukcapil Mamasa murni merupakan kebijakan dari Dukcapil dimana surat keterangan yang bertanda didalamnya bukan Lembaga Adat sebagaimana seharusnya: dan (3) Dampak sosial perkawinan adat Mamasa terhadap anak diluar nikah adalah memberikan pengakuan kepada kedudukan seorang anak dalam keluarga dan lingkungan sosialnya. Selain itu pihak keluarga perempuan sebagai korban juga diangkat kembali martabatnya. Namun ada dampak negatif dengan adanya perkawinan adat dimana dapat menjadi preseden buruk bagi lingkungan masyarakat adat. Hal ini disebabkan para pelaku tidak diberi sanksi adat yang dapat memberi efek jerah. This research was conducted at the Population and Civil Registry Office of Mamasa Regency which was conducted in April-May 2020. The approach in this study was a qualitative descriptive based on the phenomenology that occurred. The data were collected through observation, in-depth interviews, and literature study. The objectives of this study are: (1) To find out the relationship between mamasa traditional marriage and children born out of wedlock; (2) To understand the role of Mamasa culture in making birth certificates for children born out of wedlock; and (3) To find out the social impacts arising from the marriage of children born out of wedlock. The results of the study show that: (1) The mechanism of Mamasa traditional marriage for children born out of wedlock is carried out through traditional rituals as a tradition, which in terms of Mamasa indigenous people is called ‘dipa’arrangi tangangana langi’ which means ‘reappointed in dignity’. The family of the father of the child born out of wedlock goes to the family of the mother of this child to acknowledge that the child has a biological father who is ready to take responsibility as a father; (2) The role of Mamasa tradition in making birth certificates for children born out of wedlock so far has not been carried out as the regulation in Perda Number 5 in 2017. The making of birth certificates for children born out of wedlock in Mamasa Dukcapil is not an approved Customary Institution: and (3) the social impact of Mamasa traditional marriage to children born out of wedlock gives recognition of the position of the children in the family and social environment. In addition, the mothers’ families also received back their dignity. However, there are negative impacts of the existence of traditional marriages which can set a bad precedent for the environment of indigenous peoples. This is because the perpetrators are not given customary sanctions which can have a lucrative effect.

When the sea become a monster? The social impact of the Storegga tsunami, 8200 BP, on the Mesolithic of northern Europe

2021 ◽  
Author(s):  
Astrid Nyland ◽  
Graeme Warren ◽  
James Walker
Keyword(s):  
North Sea ◽  
Social Impact ◽  
Submarine Landslide ◽  
Social Structures ◽  
Northern Europe ◽  
Archaeological Material ◽  
The North ◽  
The Social ◽  
The North Sea ◽  
Outer Coast

<p>Around 8200 years ago, the Storegga tsunami, caused by a massive submarine landslide off the coast of Central Norway, struck the coasts of west Norway, Scotland and Doggerland. This event is well known from wide ranging geological and palaeobotanical work undertaken over the last 30 years. What has been less explored, however, is the potential social impact that this natural freak event had on the Mesolithic hunter-gatherer societies living on the coasts and shores of the North Sea. What happened in the tsunami’s aftermath? It has been widely assumed to have been a disaster – but was it? What constituted a disaster in the Mesolithic? In the Mesolithic, people were hunter-gatherer-fishers, they lived by, off, and with the sea. Settlement sites in West Norway were concentrated along the outer coast. People lived on the shores of islands and headlands, or along resource rich tidal currents. Eastern Scottish Mesolithic sites are also found on contemporary coasts, while the coasts of central Doggerland have long since become submerged. What happened to groups in these landscapes on the day the sea became a monster and in the years that followed? In this paper, we will outline a newly started project that will investigate the social impact of the tsunami in areas of the North Sea that have distinctive Mesolithic histories. These coastal inhabitants had, for millennia, developed their own traditions to engage with and learn how to exploit and keep safe from the sea. What can we learn about Mesolithic societies by investigating how communities handled the forces of a tsunami? Responses identified in the archaeological material and environmental archives can potentially inform us of social structures, institutions or ways of living that made the existing societies resilient or vulnerable.</p>

scholarly journals PROGRAMA NACIONAL DE PRODUÇÃO E USO DO BIODIESEL: divergências sobre os resultados sociais da política de biocombustíveis

2015 ◽  
Vol 18 (2) ◽  
pp. 659
Author(s):  
Jane Marchi Madureira ◽  
Sinclair Mallet Guy Guerra
Keyword(s):  
Tax Incentives ◽  
Raw Material ◽  
Biodiesel Production ◽  
Family Farm ◽  
National Program ◽  
Family Farming ◽  
The North ◽  
The Social ◽  
The Family ◽  
Social Side

Um dos principais objetivos do Programa Nacional de Produção e Uso do Biodiesel (PNPB) tem sido desenvolver aagricultura familiar, através de incentivos fiscais às usinas produtoras de biodiesel que adquirem matérias-primas desse segmento. Este trabalho faz um breve levantamento das principais discussões em torno dos resultados sociais que o programa vem apresentando e conclui que mesmo o Estado mobilizando diversos agentes para atuarem em favor do eixo social, não há consenso em relação aos ganhos efetivos do programa no tocante a esse aspecto, tampouco desenvolvimento das regiões Norte e Nordeste como resultadoda implantação da política de biodiesel.Palavras-chave: PNPB, biodiesel, eixo social, agricultura familiar.NATIONAL PROGRAM OF BIODIESEL PRODUCTION AND USE: divergences on the social results of the biodiesel policyAbstract: One of the major objectives of the National Program of Biodiesel Production and Use has been the development of the family farm, through tax incentives for the biodiesel producers, which acquire raw material from this segment. This paper makes a survey of the main debates about the social results that have been presented by the program, concluding that even the State using their means in favor of the social side, there is no consensus on the program achievements at this point, nor the development of the North and Northeast regions as a result of the biodiesel policy.Key words: PNPB, biodiesel, social axis, family farming.

scholarly journals THE EMOTIONAL STATE OF PARENTS IN THE STRUCTURE OF THE STAHES OF THE EXPERIENCE OF HAVING A CHILD WITH DEVELOPMENTAL DISABILITIES

2016 ◽  
Vol 7 (2) ◽  
pp. 150-157 ◽  
Author(s):  
BOGDANNA ANDREYKO
Keyword(s):  
Developmental Disabilities ◽  
Social Impact ◽  
Sick Child ◽  
Emotional State ◽  
Emotional Experience ◽  
Research Data ◽  
Emotional States ◽  
Psychological Reactions ◽  
The Social ◽  
The Family

The article analyses research data and scholarly approaches to the study: of problems of parents arising from their child’s illness; the emotional states of parents raising a child with developmental disabilities; stages of emotional experience related to the birth of a sick child. The family as an integral unit has to face various situations determined by the social impact of the child’s disease or impairment, as well as emotional and psychological reactions of the parents to it. Being aware of the psychological stages singled out in the grief theory helps professionals: to understand the reaction of the family of a child with developmental disabilities; realise when and how it is best to intervene, flexibly apply the theory of stages, and account for the specific characteristics of a particular family and individual reactions to such shocks.

scholarly journals Modificaciones de la estructura jurídica de la familia en Colombia como resultado de las sentencias creadoras de derecho de la corte constitucional

Justicia ◽  
2013 ◽  
Vol 18 (24) ◽  
Author(s):  
Hayd Valencia de Urina ◽  
Mario Andrés Cadena ◽  
Luisa Fernanda D ◽  
Cristian Alberto Bedoya ◽  
John Deivi S
Keyword(s):  
Social Impact ◽  
The Internet ◽  
Same Sex ◽  
Distant Future ◽  
Legal Procedure ◽  
Head Of Household ◽  
The Social ◽  
The Family ◽  
The Right ◽  
Traditional Roles

Este artículo de reflexión analiza la categoría de familia, que presenta nuevas formas de estructuración de su dinámica fruto del acceso de la mujer al trabajo, competencia laboral, igualdad de género, madresolterismo, parejas por la Internet, hijos criados por sus abuelos, mujeres cabeza de familia, padres quedesempeñan labores en el hogar, por señalar algunos. Los cambios de la familia en este siglo, deja más preguntas que respuestas: ¿qué sucederá con los roles tradicionales de masculinidad, maternidad y paternidad? ¿Cómo enfrentará el “hijo” de una pareja del mismo sexo su falta de especificidad? Las normas legales en materia de familia se crearon pensando en la conformación tradicional del grupo familiar. La propuesta en esta investigación es abordar la relación entre el Derecho y la familia, el impacto social que genera y prepararnos para los cambios que hoy y en un futuro no muy lejano seguiremos encontrando.   AbstractThis article of reflection analyzes the family category, present new forms of structure of his dynamics fruit of the access of the woman to the work, labor competition, equality of kind, mother solterismo, for the Internet, children raised by his grandparents, women head of household, parents who recover labors in the home, for indicating some. The changes of the familia in this century, it leaves more questions that answers: what will happen with the traditional roles of masculinity, maternity and paternity? How there will face the “son” of a pair of the same sex his lack of specificity? The legal procedure as for family were created thinking about the traditional conformation of the familiar group. The offer in this investigation is to approach the relation between the right and the family, the social impact that it generates and to prepare ourselves for the changes that today and in a not very distant future we will continue finding.

scholarly journals Evidence of the Storegga Tsunami 8200 BP? An Archaeological Review of Impact After a Large-Scale Marine Event in Mesolithic Northern Europe

2021 ◽  
Vol 9 ◽  
Author(s):  
Astrid J. Nyland ◽  
James Walker ◽  
Graeme Warren
Keyword(s):  
Natural Hazards ◽  
North Sea ◽  
Large Scale ◽  
Social Impact ◽  
Northern Europe ◽  
Archaeological Material ◽  
Southern North Sea ◽  
The North ◽  
Western Norway ◽  
The Social

Around 8,200 years ago, the Storegga tsunami hit the coasts of the Norwegian and North Seas. This event is well known from wide ranging geological and palaeobotanical work undertaken over the last 30 years. Outside of attempts at palaeodemographic models, however, exploration of the social impact of the wave on Mesolithic hunter-gatherer societies living on the coasts of west Norway, the north and east British Isles, and around the southern North Sea basin have been less common. It has been widely assumed that the tsunami was a disaster–but what constituted a disaster for the Mesolithic peoples who lived through this event? What can we learn about life after natural hazards by considering the archaeological material from regions with distinct Mesolithic histories? This paper presents a review of evidence of the Storegga tsunami at Mesolithic sites from western Norway, the Northeast UK, and elsewhere around the southern North Sea basin. We consider the ways in which the social impact of the Storegga tsunami has been studied up till now and suggest an alternative way forward.

Begging in Ibadan, Southern Nigeria

1974 ◽  
Vol 33 (2) ◽  
pp. 197-202 ◽  
Author(s):  
Anne Bamisaiye
Keyword(s):  
Social Policy ◽  
Social Organization ◽  
Western State ◽  
The North ◽  
The Social ◽  
Southern Nigeria ◽  
Cultural Pattern ◽  
Characteristic Features ◽  
Physically Handicapped

The social organization of migrant Hausa beggars from the North of Nigeria is described for Ibadan, capital of Western State, southern Nigeria. The beggars, all physically handicapped, are divided into sub-occupational associations on the basis of type of handicap. Beggars have a recognized role in Hausa communities, as evidenced by the turbaning of the chiefs of the begging associations by the chief of the Hausa quarter. Begging among the Hausa appears to be a cultural pattern resulting from the interaction of characteristic features of Hausa social organization and the doctrines of Islam with regard to charity. Whereas the Hausa do not stigmatize begging as an occupation, the Yoruba of southern Nigeria undoubtedly do. The influence of the structural conditions and climate of values within which contact between beggars and the Yoruba takes place is discussed as influencing the attribution of stigma. The implications for social policy are mentioned briefly.

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