Living with dementia: the felt worth of support workers

2019 ◽  
pp. 1-21
Author(s):  
Leigh Anne Hale ◽  
Matthew Lee Jenkins ◽  
Beth Mayland ◽  
Yvette Buttery ◽  
Pauline Norris ◽  
...  
Keyword(s):  
Conceptual Model ◽  
Interpersonal Relationships ◽  
Significant Finding ◽  
Structured Interviews ◽  
People With Dementia ◽  
The Individual ◽  
Individual Strategies ◽  
Private Homes

Abstract Considering the important role that paid support workers play in care of older people with dementia, it is vital that researchers and relevant organisations understand the factors that lead to them feeling valued for the work that they do, and the consequences of such valuing (or lack thereof). The current study employed semi-structured interviews to understand the individual experiences of 15 support workers based both in residential care homes and private homes. The General Inductive Approach was used to analyse the interview transcriptions and to develop a conceptual model that describes the conditions that lead to support workers feeling valued for the work that they do. This model consists of organisational or individual strategies, the context in which support work takes place, and various interactions, actions and intervening conditions that facilitate or prevent support workers feeling valued. A significant finding in this research was the role of interpersonal relationships and interactions which underlie all other aspects of the conceptual model developed here. By understanding the importance of how employers, families of older adults with dementia and peers interact with support workers, we may promote not only the quality of work that support workers deliver, but also the wellbeing of the support workers themselves.

scholarly journals Θεραπευτική σχέση και μακρόχρονη ομαδική συστημική ψυχοθεραπεία: μια ποιοτική προσέγγιση

2021 ◽  
Vol 26 (2) ◽  
pp. 127
Author(s):  
Tsabika Bafiti
Keyword(s):  
Group Therapy ◽  
Interpersonal Relationships ◽  
Therapeutic Relationship ◽  
Role Model ◽  
Higher Order ◽  
Structured Interviews ◽  
Major Mechanism

The therapeutic relationship has been highlighted as a major mechanism of therapeutic change in current literature. Existing research has focused on certain qualities of the therapist, such as empathy, acceptance and authenticity, as well as of the client, such as the quality of their interpersonal relationships and their expectations, which enhance the therapeutic alliance. Less is known about the importance of the therapeutic relationship in long-term systemic group therapy. Ten semi-structured interviews were conducted with clients who had completed long-term group therapy following an enriched systemic approach SANE - System Attachment Narrative Encephalon®. Participants were invited to talk about their personal experience of group therapy 2-8 years after its completion. Three higher order themes and six subthemes emerged related to the therapeutic relationship. The higher order themes are: (1) the role of the therapist; (2) the function of the therapist; (3) the qualities of the therapist. The subthemes are: 1.a) the therapist as a source of safety; 1.b) the therapist as a parental role model; 2.a) the expression of the therapist’s feelings; 2.b) the client’s transition from dependency to autonomy; 3.a) the therapist’s personality traits; 3.b) the therapist’s professional role fulfillment. The study aims to contribute to the bibliography of process research of long term group therapy from the clients’ perspective, in order to clarify the parameters of the therapeutic relationship the clients consider more important and helpful.

scholarly journals Patient’s experience of psoriatic arthritis: a conceptual model based on qualitative interviews

RMD Open ◽  
2020 ◽  
Vol 6 (3) ◽  
pp. e001321
Author(s):  
Alexis Ogdie ◽  
Kaleb Michaud ◽  
Miroslawa Nowak ◽  
Rachel Bruce ◽  
Sarah Cantor ◽  
...  
Keyword(s):  
Psoriatic Arthritis ◽  
Conceptual Model ◽  
Patient Experience ◽  
Qualitative Interviews ◽  
Signs And Symptoms ◽  
Structured Interviews ◽  
Skin Symptoms ◽  
Patient’S Experience ◽  
Significant Burden

IntroductionPsoriatic arthritis (PsA) is a heterogeneous chronic inflammatory musculoskeletal disorder that manifests as peripheral arthritis, dactylitis, enthesitis and spondylitis. PsA results in significant burden that impacts quality of life of patients. We examined the signs, symptoms and impacts reported by patients with PsA, to characterise the patient experience of PsA and develop a conceptual model representing this patient experience.MethodsSemi-structured interviews were conducted with patients with PsA recruited through the FORWARD databank. Spontaneous and probed signs, symptoms and impacts of PsA were assessed. Patients rated the disturbance of these concepts on their lives using a scale from 0 (‘does not disturb’) to 10 (‘greatly disturbs’). Signs, symptoms and impacts reported by >80% of patients with a disturbance rating of ≥5 were defined as salient concepts. Recruitment continued until concept saturation was achieved.Results19 patients with PsA were interviewed. The interviews elicited 42 symptoms of which 8 had not been identified in a previous literature review encompassing 15 relevant articles. The most salient signs and symptoms elicited in the interviews were joint pain, skin symptoms, stiffness, swollen/inflamed joints and fatigue all with moderate to high disturbance ratings (range: 5.5–7.8). The most salient impacts were sleep disturbance, physical disability, effects on daily activities and feelings of frustration with also moderate to high disturbance ratings (range: 6.1–7.4).ConclusionsThe interviews highlighted the adverse impact PsA has on the patient’s life and may inform on outcome variables or areas suitable to be assessed in PsA studies.

scholarly journals The Crisis of Japanese Identity in the 21st Century and Watsuji Tetsurō’s Ethics

Asian Studies ◽  
2015 ◽  
Vol 3 (1) ◽  
pp. 129-144 ◽  
Author(s):  
Kristýna VOJTÍŠKOVÁ
Keyword(s):  
Interpersonal Relationships ◽  
21St Century ◽  
Contemporary Problem ◽  
Japanese Society ◽  
Point Of View ◽  
Early 20Th Century ◽  
Japanese Identity ◽  
The Individual ◽  
The Relationship

 According to some thinkers, in the 21st century, the Japanese society is facing a crisis of values. The postmodern approach to the individual and society may be one of the causes of this problem. In this point of view, an inadequate grasp of the relationship between the individual and the society seems to play an important role. The problem of this relationship was elaborated by the early 20th century philosopher Watsuji Tetsurō who endeavoured to re-define the role of an individual in the society. This paper attempts to examine the contemporary problem of Japanese identity from the perspective of Watsuji’s conception of interpersonal relationships. 

scholarly journals Understanding coaching efficacy in education through activity systems: privileging the nuances of provision

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Rachel M. Lofthouse ◽  
Anthea Rose ◽  
Ruth Whiteside
Keyword(s):  
Activity Systems ◽  
Content Type ◽  
Coaching Efficacy ◽  
Range Of Functions ◽  
Cultural Historical Activity ◽  
The Individual ◽  
Specific Challenge

PurposeThe research demonstrates the role of activity systems based in Cultural Historical Activity Theory as a means of analysing characteristics and efficacy of specific provisions of coaching in education.Design/methodology/approachThree examples of coaching in education were selected, involving 51 schools in England. The three examples were re-analysed using activity systems. This drew on existing evaluation evidence, gathered through interviews, questionnaires, focus groups and recordings of coaching.FindingsIn each example, the object of the coaching was to address a specific challenge to secure the desired quality of education. Using activity systems it is possible to demonstrate that coaching has a range of functions (both intended and consequential). The individual examples illustrate the potential of coaching to support change in complex and diverse education settings.Research limitations/implicationsThe use of existing data from evaluations means that direct comparisons between examples are not made. While data were collected throughout the duration of each coaching programme no follow-up data was available.Practical implicationsThe analysis of the examples of coaching using activity systems provides evidence of the efficacy of specific coaching provision in achieving individually defined objectives related to sustaining and improving specific educational practices.Originality/valueThe research offers insights into how coaching in education might be better tuned to the specific needs of contexts and the challenges experienced by the individuals working in them. In addition, it demonstrates the value of activity systems as an analytical tool to make sense of coaching efficacy.

The Effects of Second Life on the Motivation of EFL Student Teachers

2019 ◽  
pp. 86-114 ◽  
Author(s):  
Galip Kartal ◽  
Cem Balçıkanlı
Keyword(s):  
Student Teachers ◽  
Second Life ◽  
Virtual World ◽  
Teaching And Learning ◽  
Real Life ◽  
Structured Interviews ◽  
Group Interviews ◽  
Free Environment

This study aimed at investigating the effects of using a virtual world, Second Life (SL), on the motivation of Turkish EFL student teachers. First, a 10-week real-life task syllabus was designed and conducted in SL. Focus-group interviews were utilized to enhance the quality of the tasks. Then, the effects of SL on motivation were tracked via qualitative research tools, namely semi-structured interviews, weekly evaluation forms, and observations. The findings showed that SL was effective in increasing motivation of the participating student teachers. The characteristics of the virtual world that were reported to have an effect on motivation were as follows: natural environment, realistic places, anxiety-free environment, excitement, and visual support. This chapter provides possibilities for those who are interested in employing virtual world technologies in foreign/second language teaching and learning and finally describes an investigation into the role of the virtual world in relation to affordances such technologies present across the globe.

scholarly journals What motivates informal caregivers of people with dementia (PWD): a qualitative study

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Shakiba Zahed ◽  
Maryam Emami ◽  
Shahrzad Bazargan-Hejazi ◽  
Ahmad Ali Eslami ◽  
Majid Barekatain ◽  
...  
Keyword(s):  
Social Media ◽  
Quality Of Care ◽  
Qualitative Study ◽  
Motivating Factors ◽  
Structured Interviews ◽  
Thematic Content Analysis ◽  
People With Dementia ◽  
The Family ◽  
Burden Of Caring

Abstract Background The burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and describe these motivating factors. Methods We conducted this qualitative study between January 2016 and January 2017 in Isfahan, Iran. Data were extracted through in-depth, semi-structured interviews with 19 caregivers of PWD. These data were then examined through thematic content analysis. Results We identified four categories of psychological motives based on the caregivers’ feedback and experience. These include 1) Moral-based motives, 2) Religious, and spiritual motives; 3) Financial motives, and 4) Wicked motives. Conclusions Our results revealed several aspects of caregivers’ motives. They include moral, religious, and spiritual aspects; sharing housing accommodations, and the likelihood of inheriting a portion of the patient’s assets based on unspoken rules and informal arrangements in the family, and wicked and immoral aspects. These findings can inform future efforts in enhancing the experiences of caregivers of PWD, and subsequently, the quality of care these patients receive. It further suggests that family members, members of a religious and spiritual organization, as well as social media, could play important roles in setting the stage.

scholarly journals Elicitation as a Multilayered Process

2018 ◽  
Vol 17 (1) ◽  
pp. 160940691879701 ◽  
Author(s):  
Emma K. Tsui ◽  
Emily Franzosa
Keyword(s):  
Data Collection ◽  
Individual Interview ◽  
Novel Approach ◽  
Shared Authority ◽  
Interview Training ◽  
The Individual ◽  
The Way

This article describes a novel approach to reciprocal peer interviewing in which participants interview one another sequentially, allowing each the space of a full interview to articulate her experiences and reflections. This structure of data collection offers a new conceptualization of the way that elicitation functions; not just as a process inside of an interview, but one that is also shaped by factors preceding and outside of the individual interview, a process we call “meta-elicitation.” We argue that this form of reciprocal peer interviewing offers a view of the emic that is both participant-led and uniquely balanced between collective and individual perspectives. However, we also argue that shared authority and rapport are actively, and not always successfully, negotiated in such interviews. To prepare participants for peer interviewing, we hosted a 1-day workshop involving interview training, planning, and the recording of interviews. To maximize quality of such projects, we recommend that external researchers consider carefully (1) the balance of structure and flexibility in designing the workshop and interviews, (2) thorough preparation of participants, and (3) the role of meta-elicitation dynamics during analysis.

Surgical management for venous leg ulcers: The role of hope, investment and agency

2016 ◽  
Vol 23 (8) ◽  
pp. 1075-1084
Author(s):  
Philippa Tollow ◽  
Jane Ogden
Keyword(s):  
Quality Of Life ◽  
Surgical Management ◽  
Leg Ulcers ◽  
Structured Interviews ◽  
Traditional Treatment ◽  
Venous Surgery ◽  
Traditional Approaches ◽  
Opening Up

A recent systematic review suggests that minimally invasive venous surgery for the treatment of leg ulcers may have a greater impact on quality of life than traditional approaches. A total of 11 participants who had previously undergone surgical management for leg ulcers took part in semi-structured interviews regarding their experiences. Using thematic analysis, three themes were identified: ‘Living in Flux’, ‘Perceptions of Chronicity’ and ‘Expectations’. Surgical treatment may not only improve patients’ quality of life due to treatment of the condition but also by opening up a sense of hope, investment and agency not associated with traditional treatment approaches.

scholarly journals The Role of Adrenoceptors in the Retina

Cells ◽  
2020 ◽  
Vol 9 (12) ◽  
pp. 2594
Author(s):  
Yue Ruan ◽  
Tobias Böhmer ◽  
Subao Jiang ◽  
Adrian Gericke
Keyword(s):  
Visual Information ◽  
Vision Loss ◽  
Retinal Diseases ◽  
System A ◽  
The Central Nervous System ◽  
The Individual ◽  
And Function ◽  
The Brain

The retina is a part of the central nervous system, a thin multilayer with neuronal lamination, responsible for detecting, preprocessing, and sending visual information to the brain. Many retinal diseases are characterized by hemodynamic perturbations and neurodegeneration leading to vision loss and reduced quality of life. Since catecholamines and respective bindings sites have been characterized in the retina, we systematically reviewed the literature with regard to retinal expression, distribution and function of alpha1 (α1)-, alpha2 (α2)-, and beta (β)-adrenoceptors (ARs). Moreover, we discuss the role of the individual adrenoceptors as targets for the treatment of retinal diseases.

scholarly journals Schizophrenia

2013 ◽  
Vol 19 (3) ◽  
pp. 4
Author(s):  
D Swingler
Keyword(s):  
Quality Of Life ◽  
Mental Disorder ◽  
Interpersonal Relationships ◽  
Poor Quality ◽  
Economic Costs ◽  
Font Size ◽  
Family Structures ◽  
Major Mental Disorder ◽  
The Individual

<div style="left: 70.8662px; top: 324.72px; font-size: 15.45px; font-family: serif; transform: scaleX(1.00514);" data-canvas-width="420.714">Schizophrenia is a major mental disorder that imposes a significant</div><div style="left: 70.8662px; top: 344.72px; font-size: 15.45px; font-family: serif; transform: scaleX(0.959387);" data-canvas-width="320.27549999999985">burden on the individual including poor quality of life</div><div style="left: 391.115px; top: 345.947px; font-size: 9.00733px; font-family: serif; transform: scaleX(0.974443);" data-canvas-width="10.231649999999998">[1]</div><div style="left: 401.346px; top: 344.72px; font-size: 15.45px; font-family: serif; transform: scaleX(0.956892);" data-canvas-width="88.2135">and increased</div><div style="left: 70.8662px; top: 364.72px; font-size: 15.45px; font-family: serif; transform: scaleX(0.984345);" data-canvas-width="59.98349999999999">morbidity</div><div style="left: 130.85px; top: 365.947px; font-size: 9.00733px; font-family: serif; transform: scaleX(0.974443);" data-canvas-width="10.231649999999998">[2]</div><div style="left: 141.082px; top: 364.72px; font-size: 15.45px; font-family: serif; transform: scaleX(1.04823);" data-canvas-width="95.32349999999998">and mortality;</div><div style="left: 236.409px; top: 365.947px; font-size: 9.00733px; font-family: serif; transform: scaleX(0.974443);" data-canvas-width="10.231649999999998">[3]</div><div style="left: 246.641px; top: 364.72px; font-size: 15.45px; font-family: serif; transform: scaleX(1.04289);" data-canvas-width="246.4904999999999">it disrupts interpersonal relationships</div><div style="left: 70.8662px; top: 384.72px; font-size: 15.45px; font-family: serif; transform: scaleX(0.992643);" data-canvas-width="415.7519999999999">and family structures, and has significant economic costs to society.</div>

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