scholarly journals 532 - “Mapping the Lived Experiences: The Dyad Journey of People with Agitation in Alzheimer’s and Their Care Partners”

2021 ◽  
Vol 33 (S1) ◽  
pp. 76-77
Author(s):  
Mary Chi Michael

AbstractA substantial amount of analysis has been dedicated to understanding the individual journeys of the “patient” and the “caregiver” in Alzheimer’s disease. This work has provided valuable insights, but a few priorities remain:how is the lived experience journey in Alzheimer’s shaped by the complexities of agitation and other behavioral aspects of the disease;how can insights from “social listening” analysis structure our understanding of these journeys;how can we understand the dyad journey of the person with Alzheimer’s and the care partner as well as the interactions therein, particularly through the lens of agitation.This project, “Mapping the Lived Experiences” recasts the Alzheimer’s journey to better reflect these priorities. We offer a visual interpretation of the journey with the rationale and proof points that underpin it.“Mapping the Lived Experiences” prioritizes agitation and other behavioral aspects of Alzheimer’s as pivotal, enduring challenges on the disease journey. We frame the journey into two overarching phases: “the first loss,” which accounts for the more widely recognized symptoms of the disease, such as memory loss and declining cognitive function; and “the second loss,” which is characterized by agitation and behavioral aspects of the disease. We structure the journey around “milestone moments” – moments when both the person with Alzheimer’s and the care partner recognize that the disease has taken a major progression.The “milestones” moment framework reflects an interpretive framework developed through an ongoing “social listening” research project. This social listening research allows analysis of the online conversation as it is happening in social channels and discussion boards, and it provides a poignant counterpoint to quantitative market research insofar as it illuminates the unfiltered, unmitigated experiences as articulated by the people who are learning in real-time to manage and live with Alzheimer’s. From social listening insights and analysis, our research posits that journeys – for both the person with Alzheimer’s and the care partner – are not linear, straight-line trajectories, but jagged, fragmented paths marked by “milestone moments” that shape thinking, understanding, and behavior.“Mapping the Lived Experiences” offers a dyad visualization and articulations, as it fuses the journeys of the person with lived experience and the care partner together in the same visual space. This approach reveals how, over time, these journey relate, inform, and ultimately depart from one another. This dyad offers new insights into both the lived experience and care partner journeys.

Author(s):  
Caroline Doyle ◽  
Karen Gardner ◽  
Karen Wells

It is widely acknowledged that ‘good policy’ should be informed by the people it most directly affects. In Australia, the value of drawing on lived experiences in the development and delivery of services has recently been noted in health areas, such as disability and mental health. However, learning from people with lived experiences in the criminal justice sector, such as people who have served time in prison, has received little attention. This article discusses the significance of and challenges related to capturing the voices of people who are currently serving time or have served time in prison. We argue that formalising the perspectives of these individuals into policymaking through co-design processes may be an important method for enhancing program responses to rising incarceration and reincarceration rates.


Author(s):  
Caroline Doyle ◽  
Karen Gardner ◽  
Karen Wells

It is widely acknowledged that ‘good policy’ should be informed by the people it most directly affects. However, learning from people with lived experiences in the criminal justice sector, such as people who have served time in prison, has received little attention. This article discusses the significance of and challenges related to capturing the voices of people who are currently serving time or have served time in prison. We argue that formalising the perspectives of these individuals into policymaking through co-design processes may be an important method for enhancing program responses to rising incarceration and reincarceration rates. *This is a corrected version of the original article published ‘Online First’ on February 17, 2021. Some text in the literature review was unintentionally missing attribution. The Correction Notice can be found at https://doi.org/10.5204/ijcjsd.1941


2015 ◽  
Vol 11 (1) ◽  
pp. 41-54 ◽  
Author(s):  
Zsófia Demjén

This paper demonstrates how a range of linguistic methods can be harnessed in pursuit of a deeper understanding of the ‘lived experience’ of psychological disorders. It argues that such methods should be applied more in medical contexts, especially in medical humanities. Key extracts from The Unabridged Journals of Sylvia Plath are examined, as a case study of the experience of depression. Combinations of qualitative and quantitative linguistic methods, and inter- and intra-textual comparisons are used to consider distinctive patterns in the use of metaphor, personal pronouns and (the semantics of) verbs, as well as other relevant aspects of language. Qualitative techniques provide in-depth insights, while quantitative corpus methods make the analyses more robust and ensure the breadth necessary to gain insights into the individual experience. Depression emerges as a highly complex and sometimes potentially contradictory experience for Plath, involving both a sense of apathy and inner turmoil. It involves a sense of a split self, trapped in a state that one cannot overcome, and intense self-focus, a turning in on oneself and a view of the world that is both more negative and more polarized than the norm. It is argued that a linguistic approach is useful beyond this specific case.


2020 ◽  
Vol 11 (SPL1) ◽  
pp. 748-752
Author(s):  
Swapnali Khabade ◽  
Bharat Rathi ◽  
Renu Rathi

A novel, severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), causes severe acute respiratory syndrome and spread globally from Wuhan, China. In March 2020 the World Health Organization declared the SARS-Cov-2 virus as a COVID- 19, a global pandemic. This pandemic happened to be followed by some restrictions, and specially lockdown playing the leading role for the people to get disassociated with their personal and social schedules. And now the food is the most necessary thing to take care of. It seems the new challenge for the individual is self-isolation to maintain themselves on the health basis and fight against the pandemic situation by boosting their immunity. Food organised by proper diet may maintain the physical and mental health of the individual. Ayurveda aims to promote and preserve the health, strength and the longevity of the healthy person and to cure the disease by properly channelling with and without Ahara. In Ayurveda, diet (Ahara) is considered as one of the critical pillars of life, and Langhana plays an important role too. This article will review the relevance of dietetic approach described in Ayurveda with and without food (Asthavidhi visheshaytana & Lanhgan) during COVID-19 like a pandemic.


2020 ◽  
Vol 10 (3) ◽  
pp. 43-57
Author(s):  
See Seng Tan

Abstract: The longstanding effort to develop a people-based regionalism in Southeast Asia has been shaped by an inherent tension between the liberal inclination to privilege the individual and the community under formation, on the one hand, and the realist insistence on the primacy of the state, on the other. This article explores the conditions and constraints affecting ASEAN’s progress in remaking Southeast Asia into a people-focused and caring community in three areas: disaster management, development, and democratization (understood here as human rights). Arguably, the persistent gap in Southeast Asia between aspiration and expectation is determined less by political ideology than by the pragmatic responses of ASEAN member states to the forces of nationalism and protectionism, as well as their respective sense of local and regional responsibility.Resumen: El esfuerzo histórico para desarrollar un regionalismo basado en las personas del sudeste de Asia ha estado marcado por una tensión fundamental entre la inclinación liberal de privilegiar el individuo y la comunidad y la insistencia realista sobre la primacía del estado. Este artículo explora las condiciones y limitaciones que afectan el progreso de la ASEAN en la reestructuración de Asia sudoriental en una comunidad centrada en el cuidado de las personas en: gestión de desastres, desarrollo y democratización (i.e., derechos humanos). La brecha persistente en el sudeste asiático entre la aspiración y la expectativa está determinada por las respuestas pragmáticas de los miembros de la ASEAN sometidos a las fuerzas del nacionalismo y proteccionismo, así como su respectivo sentido de responsabilidad local y regional.Résumé: L’effort historique pour développer un régionalisme fondé sur les peuples en Asie du Sud-Est a été marqué par une tension fondamentale entre l’inclination libérale qui privilégie, d’une part, l’individu et la communauté et, d’autre part, l’insistance réaliste sur la primauté de l’État. Cet article explore les conditions et les contraintes qui nuisent aux progrès de l’ANASE dans le cadre d’une refonte de l’Asie du Sud-Est en une communauté centrée et attentive aux peuples dans trois domaines : la gestion des désastres, le développement et la démocratisation (en référence aux droits humains). Le fossé persistant en Asie du Sud-Est entre les aspirations et les attentes est vraisemblablement moins déterminé par l’idéologie politique que par les réponses pragmatiques des États membres de l’ANASE soumis aux forces du nationalisme et du protectionnisme ainsi que par leur sens respectif de la responsabilité locale et régionale.


2017 ◽  
Vol 168 (3) ◽  
pp. 127-133
Author(s):  
Matthew Parkan

Airborne LiDAR data: relevance of visual interpretation for forestry Airborne LiDAR surveys are particularly well adapted to map, study and manage large forest extents. Products derived from this technology are increasingly used by managers to establish a general diagnosis of the condition of forests. Less common is the use of these products to conduct detailed analyses on small areas; for example creating detailed reference maps like inventories or timber marking to support field operations. In this context, the use of direct visual interpretation is interesting, because it is much easier to implement than automatic algorithms and allows a quick and reliable identification of zonal (e.g. forest edge, deciduous/persistent ratio), structural (stratification) and point (e.g. tree/stem position and height) features. This article examines three important points which determine the relevance of visual interpretation: acquisition parameters, interactive representation and identification of forest characteristics. It is shown that the use of thematic color maps within interactive 3D point cloud and/or cross-sections makes it possible to establish (for all strata) detailed and accurate maps of a parcel at the individual tree scale.


Author(s):  
Dr.Prachyakorn Chaiyakot ◽  
Wachara Chaiyakhet ◽  
Dr.Woraluck Lalitsasivimol ◽  
Dr.Siriluck Thongpoon

Songkhla Lake Basin has a long history of at least 6,000 years and has a wide variety of tourism resources including nature, history, beliefs, culture and various traditions of the local people. It covers 3 provinces, the whole area of Phatthalung, 12 districts of Songkhla and 2 districts of Nakhon Si Thammarat Province. It has an area of approximately 8,727 square kilometers. There are many tourist attractions because the basin has a long history through different eras, natural, historic, ancient sites, and the culture of the local people. In 2018, both Thai and foreign tourists visited Songkhla and Phatthalung, which is the main area of Songkhla Lake Basin. The total number of tourists that came was 7,628,813 and 1,641,841 and an income of 68,252.64 and 3,470.96 million baht was generated from each province, respectively (Ministry of Tourism and Sports, 2020). Although Songkhla Lake Basin has various tourist attractions, the promotion of tourism with the involvement of government agencies in the past mainly focused on promoting tourism along with the tourist attractions rather than encouraging tourists to experience and learn the culture of the people living in the area; the culture that reflects the uniqueness of the people in the south. This study, therefore, aims to find creative tourism activities in SLB in order to increase the value of tourism resources, create tourism activities that are aligned with the resources available in the community and increase the number of tourists in the area. Data for this study were collected using a secondary source of data collection method. It was done through a literature review of related documents, texts, magazines, and research which focus on Songkhla Lake Basin as a guideline for designing tourism activities. The field survey was done through twelve community-based tourism sites in SLB to find creative tourism activities. Data on each activity were collected in detail by interviewing the tourism community leaders and the local people. Content analysis was used to describe the individual open-ended questions by focusing on the important issues and the information obtained was presented as a narrative. Keywords: Songkhla Lake Basin, Creative Tourism, Local Wisdom


Author(s):  
Russell M. Harris ◽  
Russell A. Bors

We collected personal documents from various participants on the topic of "a personal experience in which you observed or experienced psychopathology." The protocols were "topical autobiographical" personal documents, which we analyzed using the procedures set forth by van Kaam, to describe—rather than attempting to explain—lived experiences. Subsequently, 15 protocols obtained from an undergraduate class in psychopathology at the University of Regina were analyzed. We feel that both the methodology used and our findings reveal a new way of viewing psychopathology, showing the inadequacy of reducing psychopathology to diagnostic labels. We found that the fullness of the pathological experience can only be understood through elucidating experienced interpersonal dynamics. Consequently, both an essential and a situational quality is evidenced, revealing the inadequacy of theories in which either the existence of psychopathology or its subjective character are denied.


2021 ◽  
Vol 79 (1) ◽  
Author(s):  
Neema Murembe ◽  
Teddy Kyomuhangi ◽  
Kimberly Manalili ◽  
Florence Beinempaka ◽  
Primrose Nakazibwe ◽  
...  

Abstract Background Vulnerability at the individual, family, community or organization level affects access and utilization of health services, and is a key consideration for health equity. Several frameworks have been used to explore the concept of vulnerability and identified demographics including ethnicity, economic class, level of education, and geographical location. While the magnitude of vulnerable populations is not clearly documented and understood, specific indicators, such as extreme poverty, show that vulnerability among women is pervasive. Women in low and middle-income countries often do not control economic resources and are culturally disadvantaged, which exacerbates other vulnerabilities they experience. In this commentary, we explore the different understandings of vulnerability and the importance of engaging communities in defining vulnerability for research, as well as for programming and provision of maternal newborn and child health (MNCH) services. Methodology In a recent community-based qualitative study, we examined the healthcare utilization experiences of vulnerable women with MNCH services in rural southwestern Uganda. Focus group discussions were conducted with community leaders and community health workers in two districts of Southwestern Uganda. In addition, we did individual interviews with women living in extreme poverty and having other conventional vulnerability characteristics. Findings and discussion We found that the traditional criteria of vulnerability were insufficient to identify categories of vulnerable women to target in the context of MNCH programming and service provision in resource-limited settings. Through our engagement with communities and through the narratives of the people we interviewed, we obtained insight into how nuanced vulnerability can be, and how important it is to ground definitions of vulnerability within the specific context. We identified additional aspects of vulnerability through this study, including: women who suffer from alcoholism or have husbands with alcoholism, women with a history of home births, women that have given birth only to girls, and those living on fishing sites. Conclusion Engaging communities in defining vulnerability is critical for the effective design, implementation and monitoring of MNCH programs, as it ensures these services are reaching those who are most in need.


Forests ◽  
2021 ◽  
Vol 12 (4) ◽  
pp. 425
Author(s):  
Noviana Budianti ◽  
Hiromi Mizunaga ◽  
Atsuhiro Iio

Unmanned aerial vehicles (UAV) provide a new platform for monitoring crown-level leaf phenology due to the ability to cover a vast area while offering branch-level image resolution. However, below-crown vegetation, e.g., understory vegetation, subcanopy trees, and the branches of neighboring trees, along with the multi-layered structure of the target crown may significantly reduce the accuracy of UAV-based estimates of crown leaf phenology. To test this hypothesis, we compared UAV-derived crown leaf phenology results against those based on ground observations at the individual tree scale for 19 deciduous broad-leaved species (55 individuals in total) characterized by different crown structures. The mean crown-level green chromatic coordinate derived from UAV images poorly explained inter- and intra-species variations in spring leaf phenology, most probably due to the consistently early leaf emergence in the below-crown vegetation. The start dates for leaf expansion and end dates for leaf falling could be estimated with an accuracy of <1-week when the influence of below-crown vegetation was removed from the UAV images through visual interpretation. However, a large discrepancy between the phenological metrics derived from UAV images and ground observations was still found for the end date of leaf expansion (EOE) and start date of leaf falling (SOF). Bayesian modeling revealed that the discrepancy for EOE increased as crown length and volume increased. The crown structure was not found to contribute to the discrepancy in SOF value. Our study provides evidence that crown structure is a pivotal factor to consider when using UAV photography to reliably estimate crown leaf phenology at the individual tree-scale.


Sign in / Sign up

Export Citation Format

Share Document