scholarly journals Quality of Life among Middle and Secondary School Children with Epilepsy

Author(s):  
Priyanka Narayanrao Pachange ◽  
J. V. Dixit ◽  
Arjun M. C. ◽  
Akhil Dhanesh Goel

Abstract Objectives Epilepsy is a leading cause of disability in school-going children. The objectives of this study were to estimate the prevalence of epilepsy in middle and secondary school children and to assess their quality of life (QOL). Materials and Methods This was a cross-sectional study done in schools under the municipal corporation area of Latur Taluka, Maharashtra. At school, children were screened for epilepsy and the positive children were visited at home. Children with confirmed epilepsy were used to calculate prevalence. The QOL of children diagnosed to have epilepsy was assessed using Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) version 1.0. Statistical Analysis Mean scores in scales and subscales of QOLCE-55 were calculated. Association between variables was analyzed using unpaired/independent t-test and analysis of variance. Statistically significance was fixed for a p-value less than 0.05. Results Prevalence of epilepsy in middle and secondary school children was found to be 3.20 per 1000. In QOLCE-55, physical functioning was the most compromised, with the lowest mean QOL score (mean = 58.3, standard deviation = 20.66). Present age of the child, age at the first seizure episode, and time interval since last seizure had a statistically significant relation with QOL. The treatment gap was found to be 70.4%. Conclusions Assessment of QOL in children with epilepsy is important for effective and comprehensive management of epilepsy.

2018 ◽  
Vol 14 (1) ◽  
pp. 264-269 ◽  
Author(s):  
Patricia Ciminelli ◽  
Sergio Machado ◽  
Manoela Palmeira ◽  
Mauro Giovanni Carta ◽  
Sarah Cristina Beirith ◽  
...  

Background: Emotional stress is frequently associated with otologic symptoms as tinnitus and dizziness. Stress can contribute to the beginning or worsening of tinnitus. Objective: The objective of the study is to evaluate the presence of stress symptoms in patients with chronic, subjective tinnitus, and correlate its presence to annoyance associated with tinnitus. Methods: This is a cross-sectional study. One hundred and eighty patients with chronic, subjective tinnitus were included. Patients answered the Tinnitus Handicap Inventory (THI) to evaluate the impact of tinnitus in the quality of life and answered the Lipp's inventory symptoms of stress for adults (ISSL). The data obtained was organized using Excel® 2010, mean values, linear regression and p-value were calculated. Results: Of the 180 patients included in the study, 117 (65%) had stress symptoms, 52 of the 117 (44%) were in the resistance phase and 23 of the 117 (20%) in the exhaustion phase, the remaining was in the alert phase. There was a clear progressive increase in stress as THI raised, with more impact of tinnitus in quality of life. Conclusion: The presence of stress symptoms, measured by ISSL was observed in most of our patients with chronic subjective tinnitus, specially in the resistance and exhaustion phases and it is directly associated with tinnitus annoyance.


2020 ◽  
Vol 17 (34) ◽  
pp. 867-873
Author(s):  
Dhfer ALSHAYBAN ◽  
Royes JOSEPH

Diabetes is a common chronic disease that is considered as one of the fastest-growing health problems in the world. Adherence to medications could be an important factor in reducing these complications and improving the quality of life. The purpose of this research was to assess the impact of treatment adherence on health-related quality of life in patients with type 2 diabetes. A multicenter cross-sectional study was carried out among 368 diabetes patients. General Medication Adherence Scale was used to assess the adherence level and EuroQol-5D to assess the quality of life. The results show that 19%, 21%, and 23% of patients had maintained low medication adherence due to patient’s intentional or unintentional behavior due to additional diseases or pills burden and due to financial constraints, respectively. Overall, 43% (n=162) participants had maintained high medication adherence, and 37% (n=138) had maintained low medication adherence to antidiabetic drugs. Nearly one-third (31%) of patients with high overall adherence had perfect health state in comparison with 4% among patients with low adherence. Further, the lower proportion (21%) of patients with high overall adherence had perfect health state in comparison with that among patients with low adherence (34%). In addition to the overall adherence, the association was statistically significant for the domains related to non-adherence due to the patient’s intentional or unintentional behavior (p-value 0.001) and non-adherence due to additional diseases or pills burden (p-value 0.001) after taking into account of socio-demographic and clinical characteristics. In conclusion, the findings suggest that the policymakers should establish an intervention to improve adherence to diabetic treatment, and thus improve the quality of life for the type 2 diabetic patients.


2021 ◽  
Vol 15 (11) ◽  
pp. 3087-3089
Author(s):  
Rashida Jabeen ◽  
Kousar Perveen ◽  
Muhammad Afzal ◽  
Sadia Khan

Kidney transplantation is the famous and most important choice of treatment of renal replacement therapies (RRTs) because of its positive impact on morbidity, survival and cost. The health related quality of life is becoming important outcome. Quality of life is usually impaired in patients who have renal transplant because of renal transplant patients have anxiety, lack of social, physical and emotional support and diminished ability to take care of themselves. The basic purpose of renal transplantation is to achieve maximum quality of life with minimum side effects. Methods: A cross sectional study was conducted at Rukhsana Akhtar Bahria International Orchard Hospital Lahore after approval from institution board of university of Lahore. 36 patients were enrolled in study by using purposive sampling technique. After taking informed consent all Kidney transplant patients aged between 18 years to 60 years, visited the post-transplantation OPD and continuously in follow-up sessions were included in study. A validated and standard WHO questionnaire of “Kidney Disease and Quality of Life (KDQOL-36™)” was used for data collection. Data was entered and analyzed in SPSS version.21.Chi-square test was applied to find out significant association between qualitative variables. P -Value < 0.05will be considered as statistically significant. Results: Majority of patients were from 40-49 years 10(27.0%). Females were more as compared to men (20(55.6) vs 16(44.4%)). 10(27.8) patients can read and write and 8(22.2%) have done matriculation. More patients live in Urban area as compared to rural area(19(52.8%) vs 17(47.2%)).8(22.2%) patients have less than 1 year of post kidney transplantation time and 19(52.8%) have 1 to 3 years. All the seven domains of KDQOL show poor QOL. General Health, Physical function and physical and emotional function shows average QOL and Emotional, social, daily activities and overall KDQOL shows poor QOL. There was insignificant association with age, gender, education; residential area and Post kidney transplantation length of time (years)(p-value > 0.05). Conclusions: After renal transplantation HRQOL becomes very important factor. After kidney transplantation HRQOL depends on many factors. It was concluded from current study that the HRQOL was not as good as it should be. Over the period of transplantation time patient’s quality of life remain same. The society, government, family, and medical staff need to support patients so they can also improve their QOL. Key word: Renal Diseases, Kidney transplant, Quality of life, KDQOL-36


2021 ◽  
Vol 3 (2) ◽  
Author(s):  
Patrícia De Castro Rodrigues ◽  
Julia Carvalho Galiano ◽  
Virginia Fernandes Moça Trevizani ◽  
Fania Cristina Santos

Introduction: Locomotion is a determinant of intrinsic capacity ofolder people and can be limited by dysfunction in locomotory organs,characterizing Locomotive Syndrome (LoS). Knowledge on locomotiveproblems and sarcopenia, and their interface with quality of life, in theoldest old in the literature is scarce.Objective: To evaluate the correlation between LoS and sarcopenia andtheir influence on quality of life in oldest old.Methods: A cross-sectional study of an observational, descriptive andanalytical epidemiological survey in independent older adults aged 80and over from São Paulo, Brazil and who participated in the third waveof the LOCOMOV Project, was carried out. Sociodemographic data,comorbidities, functioning in activities of daily living, physical functioning,quality of life, and presence of sarcopenia and LoS were assessed. Thestatistical analyses included the Test-for-Comparing-Two-Proportions,Pearson's Correlation Coefficient, the chi-Square test and Student´s t-test.Results: Thirty oldest old with a mean age of 89.1 years were evaluated.The prevalence of LoS was high (53.3%) and correlated significantly withchronic pain (p-value 0.024), worse performance on the SPPB and Gaitspeed (p-value <0.001). Sarcopenia was not correlated with LoS, but worsequality of life on the physical domain was significantly associated with LoS(p-value <0.001) regardless of the presence of sarcopenia.Conclusions: LoS was highly prevalent among the oldest old studied andnegatively impacted their quality of life, regardless of the presence ofsarcopenia. 


2020 ◽  
pp. 15-21
Author(s):  
Safruddin Safruddin ◽  
Maryunis ◽  
Suhermi ◽  
Sunarti Papalia

Pasien pendertita kanker payudara akan mengalami perubahan fisik, psikologis (seperti tingkat depresi dan kecemasan), fungsi sosial, seksual serta aktifitas sehari-hari. sehingga akan berpengaruh terhadap kualitas hidup atau quality of life (QOL)  penderita. Akan tetapi dengan adanya Perawatan paliatif yang baik diharapkan mampu merubah kualitas hidup pasien kanker menjadi lebih baik. penelitian ini bertujuan untuk mengetahui hubungan  perawatan paliatif dengan kualitas hidup pada pasien kanker payudara di Rumah Sakit Ibnu Sina YW-UMI Makassar. Penelitian ini menggunakan desain penelitian survei analitik dengan pendekatan cross sectional study. pengambilan sampel dalam penelitain ini adalah  purposive sampling dengan besar sampel sebanyak 43 responden. Hasil penelitian ini  menunjukkan bahwa perawatan paliatif dengan kualitas hidup baik yaitu 26 pasien (83,9%) dan yang memiliki  perawatan paliatif dengan kualitas hidup kurang baik 5 pasien (16,1%) sedangkan yang memiliki perawatan palitif dengan kualitas hidup cukup baik 3 pasien (30,0%) dan yang memiliki perawatan paliatif dengan kualitas hidup kurang baik 7 pasien (70,0%) sedangkan perawatan paliatif dengan kualitas hidup Baik 0 pasien (0,0%)  dan yang memiliki perawatan paliatif dengan kualitas hidup kurang baik 2  pasien (4,7%). Hasil uji statistik Chi Square diperoleh nilai probabilitas (p value =0,001. Sehigga dapat disimpulkan bahwa ini adalah terdapat hubungan antara perawatan paliatif dengan kualitas hidup pada kualitas hidup pada pasien kanker payudara di Rumah Sakit Ibnu Sina YW-UMI Makassar.


2021 ◽  
Vol 71 (2) ◽  
pp. 629-33
Author(s):  
Nadia Ramzan ◽  
Samreen Misbah ◽  
Shehla Baqai ◽  
Syed Fawad Mashhadi ◽  
Imtenan Sharif ◽  
...  

Objective: The study was conducted to assess the maternal health related quality of life and its affecting factors in postpartum period. Study Design: Analytical cross-sectional study. Place and Duration of Study: The study was done in a tertiary care hospital, Rawalpindi, from Mar to Jun 2019.Methodology: By using non-probability purposive sampling technique, sample of 268 women in post-partum period were interviewed. A validated short form-36 (SF-36) Questionnaire was administered to women aged 15-49 years, who had spontaneous vaginal delivery or cesarean section, and were within six weeks up to six months of postpartum period. Data was analyzed by using SPSS-22. A p-value of ≤0.05 was taken as significant. Results: Highest median scores were reported in physical functioning 75 (55, 90) and social functioning 75 (75, 62). Lowest median scores were reported in energy fatigue 37 (31, 50) body pain 45 (22, 62) and general health 45 (30, 60). Health-related quality of life scores showed significant difference (p-value <0.05) among subgroups of time since delivery, mode of delivery, education of women, husband’s education and antenatal visits. Conclusion: The study showed that health related quality of life score of postpartum women was moderately affected; where in physical and social functioning domains strongly contributes in better quality of life. Energy/fatigue, body pain and general health are the weakest domains adversely affecting quality of life. Women in subacute postpartum phase, with cesarean section, lower educational status and less than 04 antenatal visits are associated with poorer HRQOL.


2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 110s-110s
Author(s):  
R.S. Mehta ◽  
C.K. Garbuja

Background: The global scenario shows an increase trend of ostomy surgery. And, quality of life of ostomy patients has become a common concern. Understandings of factors that can have an impact on QoL should be assessed which will provide a guideline for improving QoL of ostomy patients. Aim: The aim of the study are to assess quality of life of ostomy patients and to find out the association between quality of life with selected demographic variables. Methods: A descriptive cross-sectional study was conducted to assess quality of life of ostomy patient. Ninety-four patients were selected by purposive sampling technique. COH-QOL-Ostomy questionnaire tool was used for data collection. Data were collected from descriptive and inferential statistics were used for data analysis. The P value was estimated at 95% confidence interval with 5% permissible error. Results: The study demonstrated that mean age of respondents was 51.10 ± 16.14 years. Permanent colostomy was common. The mean score for overall QoL was 6.50 ± 1.69. The physical domain (7.14 ± 2.32) had the highest score and spiritual (5.87 ± 1.56) had lowest. The major problems related to ostomy bag were leakage (68.90%), followed by itching around the stoma (52.70%), redness (32.40%), burning sensation (16.2%) and rashes (16.2%) respectively. Age, education, residence, occupation, duration of ostomy, reason and kind of ostomy, isolation of self from social gatherings and change in clothing style had significant effects on quality of life ( P < 0.05). Conclusion: The findings revealed that presence of ostomy influences QoL of ostomy patients. Hence, adequate stoma care services, health education and counseling are important for having a positive impact on patients living with ostomy.


2021 ◽  
Vol 26 (suppl 3) ◽  
pp. 5233-5240
Author(s):  
Juliana Andrade de Lacerda ◽  
Técia Mendes Daltro Borges ◽  
Marcelo de Castro Meneguim ◽  
Mario Vedovello Filho ◽  
Milton Santamaria Júnior ◽  
...  

Abstract The aim of this study was to evaluate the impact of malocclusion severity on the oral health-related quality of life (OHRQoL) of non-white adolescents. A cross-sectional study was conducted with 585 non-white Brazilian adolescents (12-15 years). The Dental Aesthetic Index (DAI) was used for the clinical assessment of malocclusion and Oral Health Impact Profile (OHIP-14) on OHRQoL. Deep bite and transverse occlusal relationships were assessed in association with the DAI. The adolescents with DAI 3 and 4 were distributed into 4 groups: G1 - individuals without transverse occlusal relationships or deep bite; G2 - individuals with only posterior crossbite; G3 - individuals with only deep bite; and G4 - individuals with Brodie bite. The backward stepwise procedure was used to select variables on each level, eliminating variables with a p≤0.20. From the logistic regression analyses, the adjusted odds ratios were estimated with the respective 95% confidence intervals. The adolescents with severe malocclusion divided into the G2, G3 and G4 showed p-value of 0.0501, 0.1475, and 0.5407, respectively, but did not remain in the final model. Malocclusion severity had no impact on the OHRQoL of non-white adolescents.


1970 ◽  
Vol 29 (6) ◽  
Author(s):  
Sri Handayani ◽  
Nita Yunianti Ratnasari ◽  
Putri Halimu Husna ◽  
Marni . ◽  
Tantut Susanto

BACKGROUND: The quality of life (QoL) construct has also contributed to understanding the comprehension of factors involved in the existence of people infected by the HIV/AIDS. The objective of this study is to assess the quality of life (QoL) of people with HIV/AIDS (PLWHA) in Wonogiri District, Indonesia.METHODS: A cross-sectional study was conducted from September to November 2017. Convenience sampling method was employed to recruit 39 people living with HIV/AIDS (PLWHA) at Voluntary Counselling and Testing (VCT) of Wonogiri, Indonesia. Research data were collected using a self-administered questionnaire of WHOQOL-HIV BREF. The data were further analysed using a ttest and a Chi-square test, while linear regression was used to evaluate factors that correlate with the PLWHAs’ quality of life.RESULTS: The results showed that the gross mean score of social relationships domain is 13.59; psychological domain is 13.31;environment domain is 13.28; spiritual/personal beliefs domainis 13.15; physical domain is 13.10; and level of independence domain is 13.77. The symptom of HIV is associated with quality of life (B =7.611, β = 0.362, t = 2,046, p value = 0.049).CONCLUSION: Healthcare provider should increase providerinitiated testing and counselling (PITC) to contracting group, high risk group, susceptible group, and the community. The PLWHA are recommended to actively participate in peer support groups (PSGs) so that they can improve their quality of life.


Author(s):  
Maryam Khormehr ◽  
Azam Honarmandpour ◽  
Mohammad Adineh ◽  
Azam Jahangirimehr ◽  
Elham Abdolahi Shahvali

Background: Childhood and adolescence is one of the most important, most sensitive and also most decisive periods of human life. Events during this period, for children and adolescents under the supervision of the welfare organisation, can lead to behavioural-cognitive and emotional problems and face the natural process of transition from this period with serious challenges. This study was conducted to evaluate the relationship between quality of life and happiness among children and adolescents under the supervision of welfare organisation of Ahwaz in 2015. Methodology: This descriptive-analytical cross-sectional study was conducted on 75 children and adolescents aged 8-18, under the supervision of the welfare organisation, using the available sampling method. The data collection tool was a demographic information questionnaire, the Kidscreen quality of life and the Oxford happiness. The collected data were analysed using SPSS software version 20 and independent t-test, Pearson correlation coefficient, Spearman and Chi-square tests. P value less than 0.05 was considered significant. Results: The results showed that there was a significant and direct correlation between quality of life and happiness in children and adolescents under the supervision of the welfare (P <0.001 and r = 0.656). All aspects of the quality of life in the group who did not show happiness reported to be lower. Conclusion: The quality of life of children and adolescents under the supervision of welfare is related to their happiness. The effect of the use of pharmaceutical supplements/drugs and its relationship with the happiness of children should be studied in future.


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