scholarly journals Psychosocial outcomes of peer support for patients with an inherited cardiac condition

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
K Frampton ◽  
S Sharma ◽  
ER Behr ◽  
K Webb ◽  
G Parry-Williams ◽  
...  
Keyword(s):  
Sudden Death ◽  
Peer Support ◽  
Support Group ◽  
Social Engagement ◽  
Peer Group ◽  
Group Discussion ◽  
Psychological Outcomes ◽  
Group Support ◽  
Specialist Nurse ◽  
Online Social Media

Abstract Funding Acknowledgements Type of funding sources: None. Introduction Inherited cardiac conditions (ICCs) are feared for their risk of sudden death. Individuals are often young and diagnosed after the sudden death of an apparently healthy family member. A diagnosis can have a profound psychological impact and negative effect on quality of life. Uncertainty surrounding the natural history of some diseases causes anxiety and concern about existing children or starting a family. Necessary lifestyle adjustments are often associated with a sense of isolation during social engagement with peers. Psychological support for such patients is scarce. However, a specialist nurse led peer group support within the ICC service may improve psychological outcomes and empower patients to support others.  Purpose To determine the effect of a nurse led peer support group on subjective psychological symptoms for patients with ICCs. Methods A pilot specialist nurse support group was established in February 2020 including 30 patients with ICCs. This consisted of a meeting in person followed by 6 subsequent 2 monthly online video meetings. Each session lasted 2 hours and included a talk by a healthcare professional on an ICC related topic, followed by an open forum for group discussion facilitated by the specialist nurse. An online social media chat forum was also developed. After 1 year, a bespoke questionnaire was distributed to all participants enquiring about the effect of group support on anxiety level, sense of isolation, knowledge about their condition and empowerment to support themselves and others.  Results 21 (70%) patients aged between 20 and 65 years old (mean age 49) responded. Diagnoses included Brugada syndrome, arrhythmogenic cardiomyopathy, dilated cardiomyopathy, hypertrophic cardiomyopathy and long QT syndrome. All participants agreed that the group provided a comfortable platform to ask questions about their condition. 95% of participants were keen to know more about their condition after diagnosis of which 86% agreed that knowledge about their condition had improved since joining the group. 90% of participants experienced anxiety related to their condition before joining the group of which 76% reported reduced levels since joining. 76% felt isolated after their diagnosis of which 86% reported that these feelings had lessened since joining the group. 86% of the group agreed that group discussion empowered them and helped them support other affected individuals.  Conclusion A pilot study support group for patients with ICCs reduced anxiety and sense of isolation, improved knowledge, and sense of empowerment and willingness to support other patients in ≥ 80% of attendees. There is potential that patient support groups can be kick started by specialist nurses and subsequently allowed to run by patients themselves. Apart from improving psychological outcomes, such practice may reduce the workload for the ICC multidisciplinary team.

scholarly journals Development Model of Family Empowerment and Peer Group Support in Independence of Caring on Indonesian’s Migrant Worker (TKI) Infected by HIV

Jurnal NERS ◽  
2016 ◽  
Vol 10 (2) ◽  
pp. 265 ◽  
Author(s):  
Nursalam Nursalam ◽  
Ah. Yusuf ◽  
Ika Yuni Widyawati ◽  
Candra Panji Asmoro
Keyword(s):  
Human Immunodeficiency Virus ◽  
Immune System ◽  
Peer Support ◽  
Migrant Workers ◽  
Peer Group ◽  
Group Support ◽  
Family Empowerment ◽  
Immunodeficiency Virus ◽  
The Family ◽  
Work Abroad

Introduction: Human Immunodeficiency Virus (HIV) is a retrovirus that infects cells of the immune system, destroying or damaging the function of cells of the immune system. This makes the immune system becomes weaker, and people become more liable to infection. A lot of new detected HIV transmission source comes from former workers who work abroad. The challenge in dealing the number of transmission performed comprehensive care of patients and their family empowerment and peer support groups. The aimed of this study was to develop the ability of a family of Indonesian Workers who are infected with HIV and Peer Support Group in independence of care. Methods: This study was used an explanatory design and quasy-experimental. Population in this study were the closest family who care for patients infected with HIV during work abroad as migrant workers in East Java. Samples were selected using simple random sampling technique. The independent variable was the peer group and family support, the dependent variable is the level of independence of care on the respondent. Data were collected using a questionnaire that has been tested for validity and reliability and results were tested using the Wilcoxon Signed Rank Test with alpha ≤0.05. Results: The results showed that this method can improve the independence of the family of the HIV-infected client care during labor as migrant workers abroad with a significance value of p=0.004. Conclusion: Empowerment of family and peer group support can be used to increase the independence of families and patients in the treatment of HIV-infected patients during work abroad as migrant workers. Future studies are expected to use a larger sample.Keywords: empowerment of the family, peer group support, independence treatment, TKI (Indonesian Labor), Human Immunodeficiency Virus (HIV)

scholarly journals PEMBERDAYAAN SOCIAL SUPPORT GROUP DALAM ADAPTASI NORMALISASI PADA ORANGTUA DENGAN ANAK KANKER DI KOTA BANDUNG BANDUNG

Dharmakarya ◽  
2018 ◽  
Vol 7 (2) ◽  
Author(s):  
Ikeu Nurhidayah
Keyword(s):  
Social Support ◽  
Small Group ◽  
Support Group ◽  
Peer Group ◽  
Group Discussion ◽  
Small Group Discussion

Kanker merupakan salah satu masalah kesehatan kronis pada anak yang semakin meningkat, termasuk di Jawa Barat. Kota Bandung merupaka kota tempat dimana terdapat rumah sakit rujukan pelayanan kanker anak di Jawa Barat, sehingga jumlah orangtua dengan anak kanker yang bermukim di Kota Bandung semakin meningkat terutama di area sekitar fasilitas rujukan. bupaten Bandung. Kanker anak memerlukan proses pengobatan yang panjang, yang akan berdampak bukan hanya pada anak, namun juga pada orangtua dan keluarga. Keluarga dengan anggota keluarga yang mengalami sakit kanker akan mengalami berbagai perubahan yang dipandang sebagai situasi krisis yang dapat mengganggu keseimbangan kehidupan keluarga. Fokus grup diskusi dengan orangtua  anak dengan kanker menunjukkan bahwa stres yang sangat luar biasa dirasakan semua orangtua pada saat mendapati kabar bahwa anaknya mengalami penyakit yang membutuhkan pengobatan sepanjang waktu, dan mengganggu keseimbangan keluarga, baik dari segi fisik, psikologis, sosial, spiritual, dan ekonomi. Orangtua harus dapat melakukan berbagai penyesuaian serta membantu anak untuk beradaptasi dengan penyakitnya. Normalisasi merupakan suatu proses dimana keluarga mencoba untuk menormalkan kehidupan sehari-hari walaupun memiliki anak dengan penyakit kronis, melalui proses adaptasi. Proses normalisasi keluarga dipengaruhi oleh berbagai faktor, salah satunya adalah dukungan melalui social support group yang bisa didapatkan oleh keluarga dari peer group, tenaga profesional dan kader kesehatan. Kegiatan ini berupa pemberdayaan social support group dalam adaptasi dan normalisasi keluarga dengan kanker di rumah singgah Yayasan Kasih Anak Kanker Indonesia cabang Bandung. Khalayak sasaran pada kegiatan ini adalah peer group (sesama orangta dengan anak penyandang kanker), volunteer yayasa dan kader kesehatan sejumlah 38 orang. Luaran kegiatan ini adalah peningkatan kemampuan kognitif dan psikomotor orangtua, kader kesehatan dan volunteer dalam memberikan dukungan keluarga dengan kanker untuk melakukan adaptasi dan proses normalisasi. Metode kegiatan ini dilakukan dengan ceramah, simulasi, small group discussion dan praktikum. Hasil kegiatan menunjukkan bahwa rata-rata skor pengetahuan partisipan sebelum dilakukan kegiatan pemberdayaan adalah 65,20 (SD: 0,2), dan rata-rata skor pengetahuan setelah dilakukan kegiatan adalah 87,4 (SD: 0,2), dengan rata-rata peningkatan skor 22,2 (SD: 0,12), dan kemampuan psikomotor peserta 100% dalam kategori baik. Hasil kegiatan ini merekomendasikan yayasan YKAKI untuk membentuk social support group untuk mendukung orantua dan keluarga dengan anak kanker. 

scholarly journals Development, implementation and participant evaluation of combining text messaging and peer group support in a weight management programme for African-American women

2020 ◽  
Vol 25 (5) ◽  
pp. 475-491
Author(s):  
Sohye Lee ◽  
Ruth Lindquist ◽  
Erica Schorr ◽  
Chih-Lin Chi ◽  
Diane J Treat-Jacobson
Keyword(s):  
African American ◽  
African American Women ◽  
Weight Management ◽  
Peer Support ◽  
Support Group ◽  
Text Messaging ◽  
Peer Group ◽  
Management Skills ◽  
American Women ◽  
Peer Support Group

Background Development of highly accessible interventions that are effective in reducing body weight, preventing weight gain, and maintaining weight loss is urgently needed to solve the current obesity epidemic, especially among African-American women. Aims The purpose of this paper is to describe the development, implementation, and participant evaluation processes of a combined text messaging and peer support group programme to enhance weight management skills among African-American women. Methods The programme’s conceptual framework and operational model were developed to enhance the research design and protocol to support the study rationale and to lay a solid theoretical base for programme implementation. The programme curriculum and schedule were established and embedded into the programme protocol. Results The 16-week text messaging and peer support group intervention was implemented from September 2014 to March 2015. In total, 2089 messages were sent using an online text messaging application. Eight support group sessions were held in the participant’s community centre or community church bi-weekly for approximately one hour. Conclusions This paper provides a blueprint of the methodological aspects and insights from participants’ evaluation of a combined weight management intervention that can be used or adapted by public health nurses and other community health professionals in their work to develop weight management skills among African-American women.

scholarly journals Intervensi dukungan Kelompok Sebaya terhadap Kemampuan Menyelesaikan Masalah pada Remaja

2019 ◽  
Vol 6 (2) ◽  
pp. 120-125
Author(s):  
Dina Zakiyyatul Fuadah ◽  
Ratna Hidayati ◽  
Aida Fitriyah
Keyword(s):  
Group Therapy ◽  
Peer Support ◽  
Support Group ◽  
Random Sampling ◽  
Peer Group ◽  
Simple Random Sampling ◽  
Test Design ◽  
Parameter Control ◽  
Peer Support Group ◽  
Post Test

Masalah remaja cenderung sulit untuk diatasi oleh remaja sendiri, hal ini terjadi karena remaja belum terbiasa menyelesaikan masalahnya sendiri tanpa meminta bantuan orang lain. Ketika remaja dapat menghadapi masalah tersebut dengan baik, maka akan menjadi modal dasar dalam menghadapi masalah selanjutnya sampai dewasa. Kemampuan remaja dalam menghadapi masalah inilah disebut dengan Adversity Quotient. Salah satu faktor pembentuk kemampuan menyelesaikan masalah (Adversity Quotient) yakni motivasi melalui kelompok sebaya (peer group). Penelitian ini bertujuan untuk menganalisis pengaruh peer support group therapy terhadap Adversity Quotient pada remaja usia menengah. Desain penelitian adalah pre experiment design dengan pendekatan one-group pre-post test design dengan populasi sebanyak 488 remaja usia menengah, dan jumlah sampel yang dijadikan penelitian sebanyak 32 siswa yang dipilih dengan teknik simple random sampling. Analisis statistik menggunakan uji Wilcoxon dengan α=0,05. Pada pretest sebesar 46,9% memiliki Adversity Quotient tingkatan moderate dan 50% pada parameter origin and ownership masuk dalam tingkatan moderate high. Pada posttest sebesar 56,2% memiliki Adversity Quotient tingkatan moderate high dan 62,5% pada parameter control, origin and ownership masuk dalam tingkatan moderate high. Hasil uji wilcoxon (ρ=0,000<α=0,05) menunjukkan bahwa peer support group therapy berpengaruh terhadap parameter dan tingkatan Adversity Quotient pada remaja menengah. Tiga pendekatan dasar ekspresi perasaan, dukungan sosial, dan keterampilan kognitif yang dapat memberikan dorongan untuk mempelajari keterampilan koping dan merubah perilaku kearah yang konstruktif. Remaja dapat melakukan dukungan kelompok sebaya untuk memberikan dukungan agar dapat meningkatkan kemampuan beradaptasi terhadap situasi kehidupan, dan mengajarkan keterampilan penyelesaian masalah.

Abstract P083: Qualitative Evidence Supporting a New Model of Health Behavior Change for African American Men in a Faith-Based Community

Circulation ◽  
2017 ◽  
Vol 135 (suppl_1) ◽  
Author(s):  
Sohye Lee ◽  
Ruth Lindquist
Keyword(s):  
African American ◽  
Behavior Change ◽  
Peer Support ◽  
Support Group ◽  
Stages Of Change ◽  
African American Men ◽  
Peer Group ◽  
Peer Support Group ◽  
Group Sessions ◽  
Over Time

Purpose: Programs of behavior change with education targeting application to lifestyle habits may result in changes in risk-related behavior and improved cardiovascular disease (CVD) outcomes. The purpose of this abstract is to describe the changes, as evidenced in the qualitative analyses of transcripts of 14 sessions of a 6-month peer support group intervention to foster risk-related behavioral change, and in final program interviews. Method: African American men (N=8), aged 45-83 years, from one Baptist church in NE U.S. participated in a peer-led behavior change program targeting Life’s Simple 7 (get active, control cholesterol, eat better, manage blood pressure, lose weight, reduce blood sugar, stop smoking), over a 6-month period. Research staff monitored the hour-long peer intervention sessions by phone and recorded and transcribed the sessions. Qualitative analysis comprised thematic analyses of the textual content of the peer group sessions and transcripts of follow-up interviews to identify evidence in the text supporting the existence of shifting stages of change within the group over time. Self-reported stages of readiness to change related to the 7 CVD behavioral risk areas were also quantified using 7 contemplation ladders with rungs ranging from zero (“no thoughts of changing”) to 10 (“taking action to change”). Results: Over the course of the 6-month intervention, changes in group participants’ stages of change were evident. Six key themes emerged from the group sessions, including: (1) individuals’ resistance to change behaviors (weeks 1-2); (2) engagement through peer discussion of challenges and barriers (weeks 2-5); (3) awareness of physical benefits of change (weeks 2-24); (4) peer group cooperation for problem solving (weeks 3-24); (5) initiating health promotion inclusive of family and community (weeks 11-24); and (6) teaching others (weeks 18-24). The median difference in change in the contemplation ladders was <0; likely due to a ceiling effect due to the recruitment of motivated men who were ready to change. In the 6-month interviews, although men have changed behaviors positively over time, participants still reported challenges to changing and maintaining behaviors in different areas. This reveals that behaviors are continuing to evolve, and that in this shifting, behavior change is still an ongoing process as the men become more aware of their behaviors and increasingly view them in context of family and community. Conclusions: In this 6-month, intensive peer-led intervention, the micro-culture of the peer support group transformed from self-focused resistance to cohesion, then to other-oriented action. The data moved beyond Prochaska’s Stages of Change Model to break out and define a new paradigm of change that affected family and community and which will likely lead to longer term, continued changes and ongoing reinforcement.

Genderdysforie en ASS

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Tatiana Brandsma ◽  
Kirsten Visser
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Autism Spectrum ◽  
Gender Variance ◽  
Medical Interventions ◽  
Peer Support Group ◽  
And Gender ◽  
Gender Presentation ◽  
Adolescents With Asd

There is a growing interest in the co-occurrence of autism spectrum disorder (ASD) and gender dysphoria (GD). Research has shown that people with ASD show more gender variance than people without ASD. Due to the difficulties associated with ASD (limited social skills, problems in information processing and difficulty with change), regular GD treatment does not seem to be adequately equipped for this specific group. In this study we want to gain insight into the clinical needs of adolescents with ASD and GD and their parents. We are conducting a pilot study to the effects of a specific peer support group for adolescents with ASD and GD on quality of life. A pre-posttest design is used. Prior to the start of the support group, during each meeting and at the end of the support group, the adolescents fill out several short questionnaires. The ASD and Gender support group consists of nine monthly meetings for the adolescents, covering topics such as autism and gender-related needs, psychoeducation on medical interventions, environmental factors, gender expression and practicing gender presentation skills. Simultaneously, parents can follow the parent meetings. Currently, three rounds of the peer support group have started (each round with about 10-12 adolescents).

scholarly journals Peer support for adolescent girls living with scoliosis: finding a digital community

2022 ◽  
Vol 9 (1) ◽  
pp. 10-11
Author(s):  
Marie Vigouroux ◽  
Kristina Amja ◽  
Richard B. Hovey
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Adolescent Girls ◽  
Structured Interviews ◽  
Future Directions ◽  
Level Of Involvement ◽  
Philosophical Hermeneutic ◽  
Peer Support Group ◽  
Digital Community ◽  
The Individual

Introduction : Scoliosis in a condition where a curve develops in the spine. Adolescent girls affected by scoliosis are significantly more likely to require treatment such as bracing or surgery than their male counterparts. Curvy Girls is a peer support group for adolescent girls with scoliosis that allows them to engage with each other in a safe environment. Objectives : This study endeavours to explore the experiences of adolescent girls living with scoliosis who are Curvy Girls members and understand how this peer support group has affected their experience. Approach : Sixteen participants were recruited through a senior board member of Curvy Girls. Data was gathered through semi-structured interviews with open-ended questions, transcribed verbatim, and analyzed using an applied philosophical hermeneutic approach, a practice of uncovering insights from transformational conversation. Findings : We found that the participants’ sense of belonging to Curvy Girls did not depend on their level of involvement with the group. Whether they were leaders in their in-person local group, or simply following the organization on social media, seeing themselves represented allowed the participants to feel like they belonged to the group. Future Directions : These findings may help clinicians, healthcare professionals, and peer support organisations deepen their understanding of the perspectives of this specific population. This transformed understanding could lead to the instauration of care and services that are better adapted to this population’s needs, resulting in lessening the burden of the condition on the individual and their support system.  

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