scholarly journals Promoting physical activity-related health competences in people with intellectual disability

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D Bruland ◽  
A Mauro ◽  
ÄD Latteck
Keyword(s):  
Physical Activity ◽  
Intellectual Disability ◽  
General Population ◽  
Intellectual Disabilities ◽  
Health Inequalities ◽  
Self Efficacy ◽  
Health Problems ◽  
Living Environment ◽  
Vulnerable Group ◽  
People With Intellectual Disabilities

Abstract Background Physical inactivity is a global health problem. Physically active people show lower rates of chronic diseases or mortality. People with intellectual disabilities (PWID), a vulnerable group for health problems, have significantly lower levels of physical activity (PA) than general population. Due to reduced cognitive abilities, communicative and literacy skills, PWID have less access to health programs. Target-group-oriented interventions are rare. Methods Methodological triangulation to survey PA-related health competences in all 3 subcategories: 3 participating observations and 24 interviews with PWID (inclusion criteria for both: mild or moderate ID); staff online survey (n = 67), all in an integration assistance institution. Participatory approach: 2 expert groups with PWID advise researchers e.g. validating results. Results As expected, movement abilities and body awareness various highly from general population. An effect knowledge is widely spread (PA = health), but execution knowledge of PA is only marginally available e.g. not knowing how to increase PA healthy. Control competences as results from interview and observations: intrinsic motivation is highly present (unlike results from staff survey), but volition - self-efficacy and bring into action - is very poor, self-management and a lack of ideas are identified as a major problem. Low expectation of self-efficacy proved to be the biggest obstacles for PA, but caregiver are an own health resource. Expert groups confirm important of PWID perspectives on living environment. Conclusions To promote a PA lifestyle, health education with a focus on promoting self-efficacy orientated to the living environment (incl. caregiver) regarding own perspectives and health resources is needed. In this way, a vulnerable group for health problems can be empowered. Results indicate a successful approach to promote PA-related health competences in PWID to minimize health inequalities in relation to general population. Key messages Health inequalities among people with intellectual disability through promoting a PA lifestyle can be minimized. Intervention for people with intellectual disabilities must take into account the perspectives and the resources of the users.

scholarly journals “With Enthusiasm and Energy throughout the Day”: Promoting a Physically Active Lifestyle in People with Intellectual Disability by Using a Participatory Approach

2021 ◽  
Vol 18 (23) ◽  
pp. 12329
Author(s):  
Antonia Mauro ◽  
Dirk Bruland ◽  
Änne-Dörte Latteck
Keyword(s):  
Physical Activity ◽  
Intellectual Disabilities ◽  
Everyday Life ◽  
Developmental Process ◽  
Qualitative Interviews ◽  
Management Strategies ◽  
Participatory Approach ◽  
Living Environment ◽  
Target Group ◽  
People With Intellectual Disabilities

People with intellectual disabilities have a comparatively low level of physical activity and are affected by associated numerous impairments and diseases. However, target group specific interventions and concepts aiming at sustainable physical activity-related behavior change in everyday life are rare and the needs and perspectives of the target group have hardly been considered so far. Therefore, a target-group oriented intervention was developed. The research and developmental process was characterized by a participatory approach, involving people with intellectual disabilities throughout the whole process. For example, the interview guideline, design of the interview situation and ways of communicating were developed in a participatory manner. Twenty-four qualitative interviews with people with intellectual disabilities were conducted to explore individual physical activity-related experiences and strategies. Individual and contextual influences on physical activity were identified. Interview results were used to conceptualize an intervention that aims at promoting physical activity in the everyday life of people with intellectual disabilities by strengthening their self-management strategies. The intervention was tested in practice and modified based on communicative validation methods. Good acceptance in the long term is also expected, as the intervention takes place in people’s living environment, is socially embedded and builds upon the needs of the target group.

scholarly journals Preventing ‘deaths by indifference’: identification of reasonable adjustments is key

2014 ◽  
Vol 205 (2) ◽  
pp. 86-87 ◽  
Author(s):  
Irene Tuffrey-Wijne ◽  
Sheila Hollins
Keyword(s):  
Mental Health ◽  
At Risk ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Mental Health Problems ◽  
Premature Death ◽  
Healthcare Services ◽  
Health Problems ◽  
Healthcare Provision ◽  
People With Intellectual Disabilities

SummaryPeople with intellectual disabilities are at risk of premature death due to failings in healthcare provision. To prevent this, it is important for healthcare services to identify and flag not only vulnerable conditions (including intellectual disability, dementia and mental health problems), but also the specific adjustments needed by individual patients.

Mortality disparities and deprivation among people with intellectual disabilities in England: 2000–2019

2021 ◽  
pp. jech-2021-216798
Author(s):  
Freya Tyrer ◽  
Richard Morriss ◽  
Reza Kiani ◽  
Satheesh K Gangadharan ◽  
Mark J Rutherford
Keyword(s):  
Intellectual Disability ◽  
General Population ◽  
Intellectual Disabilities ◽  
Differential Mortality ◽  
Practice Research ◽  
Clinical Practice Research Datalink ◽  
Risk Of Death ◽  
Increased Risk ◽  
People With Intellectual Disabilities ◽  
Mortality Disparities

BackgroundThe effect of policy initiatives and deprivation on mortality disparities in people with intellectual disabilities is not clear.MethodsAn electronic health record observational study of linked primary care data in England from the Clinical Practice Research Datalink and the Office for National Statistics deaths data from 2000 to 2019 was undertaken. All-cause and cause-specific mortality for people with intellectual disabilities were calculated by gender and deprivation status (index of multiple deprivation quintile) using direct age-standardised mortality rates (all years) and ratios (SMR; 2000–2009 vs 2010–2019).ResultsAmong 1.0 million patients (n=33 844 with intellectual disability; n=980 586 general population without intellectual disability), differential mortality was consistently higher in people with intellectual disabilities and there was no evidence of attenuation over time. There was a dose–response relationship between all-cause mortality and lower deprivation quintile in the general population which was not observed in people with intellectual disabilities. Cause-specific SMR were consistent in both the 2000–2009 and 2010–2019 calendar periods, with a threefold increased risk of death in both males and females with intellectual disabilities (SMR ranges: 2.91–3.51). Mortality was highest from epilepsy (SMR ranges: 22.90–52.74) and aspiration pneumonia (SMR ranges: 19.31–35.44). SMRs were disproportionately high for people with intellectual disabilities living in the least deprived areas.ConclusionsPeople with intellectual disabilities in England continue to experience significant mortality disparities and there is no evidence that the situation is improving. Deprivation indicators may not be effective for targeting vulnerable individuals.

Promoting physical activity in everyday life of people with intellectual disabilities: An intervention overview

2021 ◽  
pp. 174462952110264
Author(s):  
Niklas Nutsch ◽  
Dirk Bruland ◽  
Änne-Dörte Latteck
Keyword(s):  
Physical Activity ◽  
General Population ◽  
Intellectual Disabilities ◽  
Everyday Life ◽  
Scoping Review ◽  
Physical Activity Interventions ◽  
People With Intellectual Disabilities ◽  
Intervention Description ◽  
Positive Effect ◽  
Individuals With Intellectual Disabilities

People with intellectual disabilities show significantly lower levels of physical activity than the general population in respect to all consequences for health. A positive effect of physical activity on health preservation has been proven, but interventions for physical activity in everyday life seem to be rare for people with intellectual disabilities. Based on a previously conducted scoping review the Template for Intervention Description and Replication (TIDieR) checklist was prepared. This article describes and compares physical activity interventions in everyday life for individuals with intellectual disabilities with the aim to of identifying successful strategies and areas for improvement. The 12 included interventions are heterogeneous, but commonalities and similarities can be identified. There are suggestions for successful strategies to implement physical activity interventions. However, much information could not be found. The promotion of healthier lifestyles is important to improve the overall health in this population.

Coping With Criticism and Praise

2015 ◽  
Vol 120 (3) ◽  
pp. 258-268 ◽  
Author(s):  
Lynn Esdale ◽  
Andrew Jahoda ◽  
Carol Pert
Keyword(s):  
Intellectual Disability ◽  
Positive Affect ◽  
Intellectual Disabilities ◽  
The Self ◽  
Self Perceptions ◽  
Stigma And Discrimination ◽  
People With Intellectual Disabilities ◽  
Study Participants

AbstractThrough experiencing stigma and discrimination, people with intellectual disability may become more sensitive to criticism from others and be less likely to believe praise. This study compared how people with and without intellectual disability viewed praise and criticism, using a vignette task developed for the study. Participants were asked to imagine someone saying something praiseworthy or critical and were then asked about their emotions, beliefs, and thoughts. People with intellectual disability were more likely to believe and be distressed by criticism. Contrary to predictions, this group were also more likely to believe praise and experience positive affect. The results suggest that the self-perceptions of people with intellectual disabilities is more dynamic and reliant on the views of others.

Enhancing clinical practice: reducing health inequalities – reflections on a clinical education and training partnership

2016 ◽  
Vol 10 (6) ◽  
pp. 342-348
Author(s):  
Karina Marshall-Tate
Keyword(s):  
Intellectual Disabilities ◽  
Health Inequalities ◽  
Positive Impact ◽  
Education And Training ◽  
Health Staff ◽  
Significant Group ◽  
Content Type ◽  
Knowledge And Skills ◽  
People With Intellectual Disabilities ◽  
And Training

Purpose The purpose of this paper is to outline a two-year project designed to reduce health inequalities and improve health outcomes of people with intellectual disabilities using health services in South London by raising awareness and increasing health staff confidence and capability. Design/methodology/approach The project was conducted in two stages. In stage 1, a mapping exercise was undertaken to establish existing intellectual disabilities education and training availability. In stage 2, a network of stakeholders was formed and education and training materials were developed and delivered. Findings A formal evaluation of the project is underway and this paper seeks to share information about the project. That said prima facie data appear to indicate that health staff who attended education and training events learned new knowledge and skills that they could implement in their practice, increasing confidence and capability. Research limitations/implications Health staff who attended the events appeared to have an interest in intellectual disabilities and wanted to increase their knowledge and skills base. This means that there is a significant group of health staff that the project was unable to reach or who may not know that they need to know about intellectual disabilities. The results of the project have not yet been formally analysed. Practical implications Work-based education and training events can have a positive impact on health staff capability and confidence, however, it would appear that only those who already have an interest in the field or recognise its value to their own practice attend such events. To truly capture all health staff intellectual disabilities needs to be visibly included in all health curricula. Originality/value This project has not focussed on one profession or one aspect of healthcare and has embraced the values of inter professional and inter agency learning; this has enabled health staff to learn from each other and think in a “joined up” way replicating the realities of providing healthcare to people with intellectual disabilities.

Physical Activity Benefits and Needs in Adults With Intellectual Disabilities: Systematic Review of the Literature

2011 ◽  
Vol 116 (3) ◽  
pp. 220-232 ◽  
Author(s):  
Pamela Bartlo ◽  
Penelope J. Klein
Keyword(s):  
Physical Activity ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Inclusion Criteria ◽  
Physical Activity Interventions ◽  
Methodological Rigor ◽  
Electronic Database Search ◽  
Adults With Intellectual Disabilities ◽  
Individuals With Intellectual Disabilities

Abstract Regular physical activity is vital for adult individuals with intellectual disabilities. The purpose of this review was to assess critically the evidence on effectiveness of physical activity interventions for adults with intellectual disability. An electronic database search was conducted. Research was then assessed for methodological rigor, and strength of the evidence was determined. Eleven clinical studies met inclusion criteria. Interventions studied included a variety of physical activity modes. Critical review revealed moderate to strong evidence that physical activity positively affected balance, muscle strength, and quality of life in individuals with intellectual disability. The authors also found that the research in this area needs to be translated into practice, specifically the development of physical activity programs that are adaptable to the needs of individuals with intellectual disability.

Intellectual Disability, Identity, and the Internet

2013 ◽  
pp. 198-223
Author(s):  
Darren D. Chadwick ◽  
Chris Fullwood ◽  
Caroline J. Wesson
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Internet Use ◽  
Computer Mediated Communication ◽  
The Internet ◽  
Mediated Communication ◽  
Disability Identity ◽  
Computer Mediated ◽  
Online Behaviour ◽  
People With Intellectual Disabilities

This chapter provides insight into the nature of online engagement by people with intellectual disabilities, the extent and quality of this engagement in terms of the access that people have, and how people with intellectual disabilities present themselves in the online world. The authors of this chapter provide an overview of the extant literature on intellectual disability, identity, and the Internet. The chapter begins by outlining issues around Internet use and access by people with intellectual disabilities, including potential barriers. It then moves on to address online behaviour and the potential benefits of Internet use for people with intellectual disabilities. The chief focus of the chapter follows, describing the manner in which computer mediated communication affects how people with intellectual disabilities present themselves in the online world as well as considering the role that family members and supporters play in the development and management of people’s online identities. Finally, the chapter introduces future directions for research into intellectual disability, identity, and the Internet.

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