scholarly journals Longitudinal Effects of Becoming a Family Caregiver: The Caregiving Transitions Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 658-658
Author(s):  
David Roth ◽  
Steven Zarit
Keyword(s):  
Family Caregiver ◽  
Social Engagement ◽  
Process Model ◽  
Well Being ◽  
Population Based ◽  
Cellular Aging ◽  
Dementia Caregivers ◽  
Loved One ◽  
Health History ◽  
Health And Well Being

Abstract Taking on caregiving responsibilities for older adult family members with disabilities is often considered to be a highly stressful experience that may adversely affect the health of caregivers. However, the vast majority of studies in this area compare existing samples of caregivers with questionably matched non-caregiving controls. In this symposium, we will present findings for a population-based sample of persons who became family caregivers while participating in a longitudinal epidemiological study. Changes in health and well-being are compared between these caregivers and non-caregiving control participants who were matched on multiple demographic and pre-caregiving health history variables. All persons enrolled as caregivers were providing sustained and substantial caregiving assistance. Presentations will include 1) a descriptive overview of the screening, eligibility, and enrollment methods used to construct these unique, population-based samples; 2) comparisons of within-person changes on measures of self-reported health and well-being for dementia and non-dementia caregivers; 3) changes in the caregivers’ social networks, social engagement, and leisure time activities; 4) comparisons of longitudinal changes on circulating inflammatory biomarkers (e.g., IL-6, CRP, TNF alpha receptor 1) and cellular aging (telomere length); and 5) examinations of individual differences in caregiver outcomes using a stress process model. Becoming a family caregiver can be stressful, but the opportunity to help a loved one and the related feelings of purpose and deepening family connections may also promote resilience and enhance health. These questions are far from resolved, and rigorous, prospective, population-based studies like the Caregiving Transitions Study promise to provide compelling new insights.

scholarly journals Changes in Social Engagement for Incident Caregivers Compared to Controls

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 659-659
Author(s):  
Chelsea Liu ◽  
Marcela Blinka ◽  
Chanee Fabius ◽  
Virginia Howard
Keyword(s):  
Social Network ◽  
Social Engagement ◽  
Well Being ◽  
Geographic Region ◽  
Network Size ◽  
Leisure Satisfaction ◽  
Dementia Caregivers ◽  
Social Network Size ◽  
Spouse Caregivers ◽  
Health And Well Being

Abstract Maintaining social engagement is important for the health and well-being of older adults who become caregivers. We assessed the association between incident caregiving and leisure satisfaction as well as the 10-year change in social network size among 245 incident caregivers and 248 matched controls. Multiple linear regression analyses were used to adjust for age, gender, race, education level, income, and geographic region. Compared to controls, incident caregivers had significantly lower levels of leisure satisfaction (p<0.01) and greater declines in total social network size (p<0.01). Incident caregivers and controls did not differ on the change in the number of social network members contacted monthly. Among incident caregivers, dementia caregivers and spouse caregivers had lower leisure satisfaction compared to non-dementia caregivers and non-spouse caregivers, respectively, but no differences were found on social network measures. Future studies should further examine social engagement among caregivers and its influence on their health outcomes.

Supporting Employee Health at Work: How Perceptions Differ Across Wage Category

2021 ◽  
pp. 089011712110244
Author(s):  
Kristi Rahrig Jenkins ◽  
Emily Stiehl ◽  
Bruce W. Sherman ◽  
Susan L. Bales
Keyword(s):  
Organizational Support ◽  
Supervisor Support ◽  
Well Being ◽  
Perceived Support ◽  
Linear Regression Models ◽  
Job Responsibilities ◽  
Loved One ◽  
Negatively Associated ◽  
Workplace Stressors ◽  
Health And Well Being

Purpose: This study examines the association between sources of stress and perceptions of organizational and supervisor support for health and well-being. Design: Retrospective, cross-sectional analysis. Setting: Large university in the mid-western United States. Sample: This study focused on university employees with complete data for all variables (organizational support/N = 19,536; supervisor support/N = 20,287). Measures: 2019 socioeconomic and demographic characteristics, count of chronic conditions, sources of stress and perceptions of organizational and supervisor support. Analysis: For the multivariate analyzes, linear regression models were analyzed separately by wage bands (low ≤$46,100; middle >$46,100-$62,800; high >$62,800). Results: For all employees, workplace stressors, including problematic relationships at work and heavy job responsibilities, were negatively associated with perceptions of supervisor and organizational support. In comparison, the most salient home-based stressors were negatively associated with perceptions of supervisor support for the lowest-wage band (the death of a loved one, b = −0.13) and middle-wage band (personal illness or injury, b = −0.09), while the one for the highest-wage band (illness or injury of a loved one, b = 0.07) was positively associated with perceptions of supervisor support. Conclusion: Stressful job responsibilities and work relationships are associated with lower perceptions of supervisor and organizational support for health and well-being across all wage bands. Favorable perceived support for personal stressors only among high wage earning employees may suggest a need for improved equity of perceived support for these stressors among lower wage workers.

scholarly journals New Frontiers in Caregiving Research: Biopsychosocial Perspectives and Interventions

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 615-615
Author(s):  
Jyoti Savla ◽  
Karen Roberto ◽  
Mamta Sapra
Keyword(s):  
Family Caregivers ◽  
Memory Loss ◽  
Well Being ◽  
Psychoeducational Intervention ◽  
Loved One ◽  
Daily Diary Study ◽  
Physiological Processes ◽  
And Coping ◽  
With Memory ◽  
Health And Well Being

Abstract Although families embrace the opportunity to care for a loved one, caregiving is stressful and takes a toll on the caregiver’s health and well-being. Earlier studies of stress and coping among family caregivers focused on psychological outcomes and emotional well-being. In the last decade, stress researchers have broadened their focus to include biomarkers and health outcomes. Data from two studies of caregivers of persons with memory loss will be used to discuss two new frontiers of caregiving research. First, a daily-diary study will be used to identify the mechanism by which stress disrupts the physiological processes and proliferates into serious psychopathology and pre-clinical and clinical health conditions. Second, a mindfulness-based psychoeducational intervention study will be utilized to identify malleable factors that can be harnessed to lower stress and improve the well-being of family caregivers. Next steps for caregiving research in the context of demographic and technological trends will be discussed.

Community Networks

2013 ◽  
pp. 187-207
Author(s):  
John M. Carroll ◽  
Mary Beth Rosson
Keyword(s):  
Social Engagement ◽  
Well Being ◽  
Social Boundaries ◽  
Social Milieu ◽  
The Social ◽  
Helping Others ◽  
Design Idea ◽  
Virtuous Cycle ◽  
University Undergraduates ◽  
Health And Well Being

The authors present a socio-technical design that illustrates how a community network health intervention can mobilize human resources across social boundaries and enhance health and well-being for people on both sides of the boundary. They specifically address how to reduce the barriers to social engagement experienced by autistic individuals who want more supportive life opportunities. The authors focus on the social milieu of an American college town, on traditional town-gown boundaries, and on possibilities for integrating social resources within this context. Their design adopts community networking to not only connect autistic persons living within an existing social milieu (university undergraduates; local autistic children and their families), but also to integrate individuals across milieus. The key design idea is that facilitating cross-milieu interactions can initiate and sustain a virtuous cycle of being helped by helping others.

scholarly journals SYSTEMATIC REVIEW AND META-ANALYSIS OF RACIAL AND ETHNIC DIFFERENCES IN DEMENTIA CAREGIVER WELL-BEING

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S434-S434
Author(s):  
Chelsea Liu ◽  
Adrian Badana ◽  
Julia Burgdorf ◽  
Chanee D Fabius ◽  
William E Haley ◽  
...  
Keyword(s):  
Systematic Review ◽  
Ethnic Differences ◽  
Meta Analysis ◽  
Well Being ◽  
Population Based ◽  
Dementia Caregivers ◽  
Convenience Sample ◽  
Dementia Caregiver ◽  
Racial Ethnic ◽  
Physical Outcomes

Abstract Studies comparing racial/ethnic differences on psychological and physical outcomes of dementia caregivers have often reported differences in well-being for minority groups compared to Whites. However, due to issues with enrolling minorities into studies, recruitment methods often differ for minority and White participants and may lead to biased comparisons. We conducted a systematic review and meta-analysis to examine racial/ethnic differences in dementia caregiver outcomes and to determine whether any differences vary among studies with population-based samples compared to convenience samples. We systematically reviewed articles with primary data from PubMed, Google Scholar and PsycINFO, and included studies comparing either African American (AA) or Hispanic/Latino dementia caregivers to White caregivers on measures of psychological health (e.g. depression, anxiety, burden) and physical health (e.g. self-rated health, cardiovascular measures, stress biomarkers). Reviewers screened titles and abstracts, reviewed full texts and conducted risk-of-bias assessments. A total of 207 effects were extracted from 40 studies. Random-effects models showed that Hispanics/Latinos reported significantly lower levels of well-being than Whites (ps < .05) for both psychological outcomes (37 effects) and physical outcomes (15 effects), while AAs were not significantly different from Whites in either domain. No differences were observed for population-based studies (N=3; 23 effects) or convenience-sample studies (N=37; 184 effects). Although some previous studies with convenience samples found better psychological well-being in AA caregivers, that pattern was not confirmed in our meta-analysis. Additional analyses for the different indicators of well-being and the relationship of quality ratings to effect sizes will be discussed along with implications for future research.

scholarly journals Evaluation of the Usability and Acceptability of the InnoWell Platform as Rated by Older Adults: Survey Study

JMIR Aging ◽  
10.2196/25928 ◽  
2021 ◽  
Vol 4 (2) ◽  
pp. e25928
Author(s):  
Haley M LaMonica ◽  
Anna E Roberts ◽  
Tracey A Davenport ◽  
Ian B Hickie
Keyword(s):  
Older Adults ◽  
Social Engagement ◽  
Later Life ◽  
Well Being ◽  
Assessment Tools ◽  
Self Report ◽  
Digital Tool ◽  
System Usability Scale ◽  
Mental Well Being ◽  
Health And Well Being

Background As the global population ages, there is increased interest in developing strategies to promote health and well-being in later life, thus enabling continued productivity, social engagement, and independence. As older adults use technologies with greater frequency, proficiency, and confidence, health information technologies (HITs) now hold considerable potential as a means to enable broader access to tools and services for the purposes of screening, treatment, monitoring, and ongoing maintenance of health for this group. The InnoWell Platform is a digital tool co-designed with lived experience to facilitate better outcomes by enabling access to a comprehensive multidimensional assessment, the results of which are provided in real time to enable consumers to make informed decisions about clinical and nonclinical care options independently or in collaboration with a health professional. Objective This study aims to evaluate the usability and acceptability of a prototype of the InnoWell Platform, co-designed and configured with and for older adults, using self-report surveys. Methods Participants were adults 50 years and older who were invited to engage with the InnoWell Platform naturalistically (ie, at their own discretion) for a period of 90 days. In addition, they completed short web-based surveys at baseline regarding their background, health, and mental well-being. After 90 days, participants were asked to complete the System Usability Scale to evaluate the usability and acceptability of the prototyped InnoWell Platform, with the aim of informing the iterative redesign and development of this digital tool before implementation within a health service setting. Results A total of 19 participants consented to participate in the study; however, only the data from the 16 participants (mean age 62.8 years, SD 7.5; range 50-72) who completed at least part of the survey at 90 days were included in the analyses. Participants generally reported low levels of psychological distress and good mental well-being. In relation to the InnoWell Platform, the usability scores were suboptimal. Although the InnoWell Platform was noted to be easy to use, participants had difficulty identifying the relevance of the tool for their personal circumstances. Ease of use, the comprehensive nature of the assessment tools, and the ability to track progress over time were favored features of the InnoWell Platform, whereas the need for greater personalization and improved mobile functionality were cited as areas for improvement. Conclusions HITs such as the InnoWell Platform have tremendous potential to improve access to cost-effective and low-intensity interventions at scale to improve and maintain mental health and well-being in later life. However, to promote adoption of and continued engagement with such tools, it is essential that these HITs are personalized and relevant for older adult end users, accounting for differences in background, clinical profiles, and levels of need.

scholarly journals The Stress–Burnout Relationship: Examining the Moderating Effect of Physical Activity and Intrinsic Motivation for Off-Job Physical Activity

2019 ◽  
Vol 67 (7) ◽  
pp. 350-360 ◽  
Author(s):  
Sandrine Isoard-Gautheur ◽  
Clément Ginoux ◽  
Markus Gerber ◽  
Philippe Sarrazin
Keyword(s):  
Physical Activity ◽  
Intrinsic Motivation ◽  
Process Model ◽  
High Stress ◽  
Well Being ◽  
Moderating Effect ◽  
Job Burnout ◽  
The Relationship ◽  
Health And Well Being ◽  
Insight Into

Current research highlights the need to critically examine the factors that can reduce the relationship between work stress and burnout to improve employee health and well-being, as well as to create healthier workplaces. The objective of this study was to enhance insight into the association between stress and job burnout by testing the moderated moderating effect of off-job physical activity (PA) and intrinsic motivation for off-job PA on this association. A total of 369 university staff (70% females) completed a web survey comprising measures of perceived stress, job burnout, PA, and intrinsic motivation for PA. A three-way conditional process model revealed that the “Stress × PA” interaction was significant for cognitive weariness, and that the three-way interaction between “Stress × PA × Intrinsic Motivation for PA” was significantly related to job burnout, and to cognitive weariness. The results highlight (a) that stress was associated with higher levels of job burnout; (b) that under a high stress condition, PA was negatively linked to cognitive weariness; and (c) that intrinsic motivation for PA reinforced the positive moderating effect of PA on the stress–burnout relationship, especially when stress is high.

Avoidable mortality among parents whose children were placed in care in Sweden: a population-based study

2018 ◽  
Vol 72 (12) ◽  
pp. 1091-1098 ◽  
Author(s):  
Elizabeth Wall-Wieler ◽  
Bo Vinnerljung ◽  
Can Liu ◽  
Leslie L Roos ◽  
Anders Hjern
Keyword(s):  
Home Care ◽  
Well Being ◽  
Mortality Rates ◽  
Population Based ◽  
Matched Cohort ◽  
Avoidable Mortality ◽  
Population Based Study ◽  
Parental Health ◽  
Out Of Home Care ◽  
Health And Well Being

BackgroundSeparation from one’s child can have significant consequences for parental health and well-being. We aimed to investigate whether parents whose children were placed in care had higher rates of avoidable mortality.MethodsData were obtained from the Swedish national registers. Mortality rates among parents whose children were placed in care between 1990 and 2012 (17 503 mothers, 18 298 fathers) were compared with a 1:5 matched cohort of parents whose children were not placed. We computed rate differences and HRs of all-cause and avoidable mortality.ResultsAmong mothers, deaths due to preventable causes were 3.09 times greater (95% CI 2.24 to 4.26) and deaths due to amenable causes were 3.04 times greater (95% CI 2.03 to 4.57) for those whose children were placed in care. Among fathers, death due to preventable causes were 1.64 times greater (95% CI 1.32 to 2.02) and deaths due to amenable causes were 1.84 times greater (95% CI 1.33 to 2.55) for those whose children were placed in care. Avoidable mortality rates were higher among mothers whose children were young when placed in care and among parents whose children were all placed in care.ConclusionsParents who had a child placed in out-of-home care are at higher risk of avoidable mortality. Interventions targeting mothers who had a child aged less than 13 placed in care, and parents whose children were all placed in care could have the greatest impact in reducing avoidable mortality in this population.

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