scholarly journals Dyadic Experiences of Living With Cognitive Impairment Through a 3-Year Longitudinal Qualitative Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 751-751
Author(s):  
Jing Wang ◽  
Bei Wu ◽  
Eleanor McConnell ◽  
Ding Ding ◽  
Kirsten Corazzini
Keyword(s):  
Cognitive Impairment ◽  
Qualitative Study ◽  
Extended Period ◽  
Daily Activities ◽  
Dynamic Nature ◽  
Spousal Relationship ◽  
Spousal Relationships ◽  
Care Partners ◽  
Patterns Of Communication ◽  
Centered Care

Abstract The fastest growth of population living with cognitive impairment takes place in China. The estimated prevalence of cognitive impairment among older adults in China is between 13% and 20%. This study focused on persons with cognitive impairment (PWCI) and their spousal care partners to explore how spousal relationships impact dyadic experiences of living with cognitive impairment through a person-centered care lens. We conducted a longitudinal qualitative study of 10 dyads of PWCI and their care partners over three years with three data collection time points. Our findings suggest that the complexity of changing experience of living with cognitive impairment is interpreted in the dynamic nature of their spousal relationship and relationship with others, patterns of communication, daily activities and care during the extended period of cognitive decline. It is crucial to help them nurture the belief that there is a significant meaning in the journey of living with cognitive impairment.

scholarly journals Living With Cognitive Impairment in China: Exploring Dyadic Experiences Through a Person-Centered Care Lens

2020 ◽  
pp. 016402752093559
Author(s):  
Jing Wang ◽  
Kirsten N. Corazzini ◽  
Eleanor S. McConnell ◽  
Ding Ding ◽  
Hanzhang Xu ◽  
...  
Keyword(s):  
Older Adults ◽  
Cognitive Impairment ◽  
Cultural Context ◽  
Unmet Needs ◽  
Well Being ◽  
Barriers And Facilitators ◽  
Person Centered Care ◽  
Care Partners ◽  
Centered Care ◽  
Successes And Challenges

China has experienced a substantial increase in the number of older adults with dementia and milder forms of cognitive impairment. Being spouses of Persons with cognitive impairment (PWCI) and living with them for several decades does not necessarily mean that it is easier for them to provide person-centered care and maintain a valued and healthy relationship. The current study explored how elements of PCC, as operationalized by the Senses Framework, operate or fail to operate in the dyadic experiences of PWCI and their spousal care partners within the socio-cultural context of China. Our findings suggest that PWCI and their spouses experience the six senses through the person-centeredness in their daily interactions with each other. It also indicated successes and challenges to being person-centered early in the disease and identified their unmet needs as well as barriers and facilitators to improve their well-being.

scholarly journals Rethinking and Co-Design of Beloved Board Games for People With Mild Cognitive Impairment and Their Care Partners

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 558-558
Author(s):  
Chantal Kerssens ◽  
Maribeth Gandy ◽  
Kara Cohen ◽  
Laura Levy ◽  
Cecile Janssens ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Social Engagement ◽  
Game Design ◽  
Social Activity ◽  
Positive Interactions ◽  
Older Americans ◽  
Board Games ◽  
Care Partners ◽  
Progression Of Disease

Abstract Mild cognitive impairment (MCI) affects millions of older Americans and progression to dementia is common. Although people with MCI may experience impairments, they are often highly verbal, able, and eager to uphold beloved routines. Moreover, many seek opportunities to stay active, physically and mentally, to support their brain health. Some forms of cognitive training and social engagement potentially delay the onset and progression of disease, including dementia. This 12-month project used mixed methods to co-design and test an accessible version of well-known board games for people with MCI and a care partner without MCI. The overall goal was to foster a meaningful, joyous, social activity for players with differing capabilities using adapted game mechanics to create a compelling experience for both players. Coping strategies of care partners were studied to learn ways to foster positive interactions. Findings inform recommendations for game design and clinical interventions. Part of a symposium sponsored by Technology and Aging Interest Group.

scholarly journals Digital Storytelling in Older Adults With Typical Aging, and With Mild Cognitive Impairment or Dementia: A Systematic Literature Review

2021 ◽  
pp. 073346482110154
Author(s):  
Adriana Maria Rios Rincon ◽  
Antonio Miguel Cruz ◽  
Christine Daum ◽  
Noelannah Neubauer ◽  
Aidan Comeau ◽  
...  
Keyword(s):  
Older Adults ◽  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Literature Review ◽  
Systematic Literature Review ◽  
Digital Storytelling ◽  
Level Of Evidence ◽  
Form Of Life ◽  
Self Confidence ◽  
Care Partners

The rates of dementia are on the rise as populations age. Storytelling is commonly used in therapies for persons living with dementia and can be in the form of life review, and reminiscence therapy. A systematic literature review was conducted to examine the range and extent of the use of digital technologies for facilitating storytelling in older adults and their care partners, and to identify the processes and methods, the technologies used and their readiness levels, the evidence, and the associated outcomes. Eight electronic databases were searched: Medline, EMBASE, PsycINFO, CINAHL, Abstracts in Social Gerontology, ERIC, Web of Science, and Scopus. We included 34 studies. Mild cognitive impairment or dementia represented over half of medical conditions reported in the studies. Overall, our findings indicate that the most common use of digital storytelling was to support older adults’ memory, reminiscence, identity, and self-confidence; however, the level of evidence of its effectiveness was low.

scholarly journals Meaningful Engagement Among Assisted Living Residents With Dementia: Successful Approaches

2021 ◽  
pp. 073346482199686
Author(s):  
Candace L. Kemp ◽  
Alexis A. Bender ◽  
Joy Ciofi ◽  
Jennifer Craft Morgan ◽  
Elisabeth O. Burgess ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Assisted Living ◽  
Care Partners ◽  
Meaningful Engagement ◽  
Care Practices ◽  
The Moment ◽  
Record Review

Meaningful engagement is an important dimension of quality of life and care for persons living with dementia, including the growing number who reside in assisted living communities. This report presents preliminary findings from an ongoing qualitative study aimed at identifying best care practices to create and maintain meaningful engagement among persons with dementia. Over a 1-year period, we conducted interviews, residents’ record review, and participant observations in four diverse care communities. Our analysis identified four approaches that successfully promote meaningful engagement: (a) knowing the person, (b) connecting with and meeting people where they are, (c) being in the moment, and (d) viewing all encounters as opportunity. Incorporation of these approaches in care routines and adoption by all care partners can promote meaningful engagement, including during crises such as COVID-19.

scholarly journals Difficulties and motivations for physical exercise in women older than 65 years. A qualitative study

2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Yolanda López-Benavente ◽  
José Arnau-Sánchez ◽  
Tania Ros-Sánchez ◽  
Mª Beatriz Lidón-Cerezuela ◽  
Araceli Serrano-Noguera ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Qualitative Study ◽  
Physical Exercise ◽  
Qualitative Analysis ◽  
Focus Groups ◽  
Nursing Staff ◽  
Family Environment ◽  
Phenomenological Theory ◽  
The Other ◽  
Depth Interviews

ABSTRACT Objective: to identify difficulties and motivations for the practice of physical exercise in women older than 65 years. Method: qualitative study based on the phenomenological theory, with focus groups and in-depth interviews. The nursing staff selected 15 women by intentional sampling using the following criteria: age, time dedicated to physical exercise, independence, and absence of cognitive impairment and contraindication for this activity. Two focus groups were formed (one of them did physical exercise for less than 150 minutes per week and the other at least 150 minutes per week) in addition to conducting five in-depth interviews. Qualitative analysis of the data was performed through transcription, coding, categorization, and verification of results. Results: the difficulties to start and develop physical exercise were circumscribed to the perception of poor health and lack of free time; both circumstances result from care obligation, being represented as a gender imposition. However, the motivations are related to perception of strength, need for socialization, and perception of autonomy and freedom. Conclusions: the ideological representation of gender determines the women’s decision to exercise. Knowing the meaning and significance that women give to health and their role in the socio-family environment allows nurses to develop relationships and interventions to encourage the practice of physical exercise.

scholarly journals The COVID-19 Pandemic Reignites the Need for Person-Centered Gerontological Approach

2021 ◽  
Vol 7 ◽  
pp. 233372142110418
Author(s):  
Pamela A. Saunders ◽  
Tara McMullen ◽  
Sonya Barsness ◽  
Andrew Carle ◽  
Gay Powell Hanna
Keyword(s):  
Older Adults ◽  
Policy Development ◽  
Geriatric Medicine ◽  
Adverse Outcomes ◽  
Call To Action ◽  
Person Centered Care ◽  
People With Dementia ◽  
Care Partners ◽  
National Response ◽  
Centered Care

The national response to the COVID-19 pandemic pressed gerontologists to reflect, redesign, and reform services supporting older adults. Efforts to isolate a peer cohort to stabilize and maintain a standard of health had adverse outcomes and added pressure conflicting with autonomy and individual desires. In this, person-centered care emerges as a meaningful archetype to address dignity and independence. This article presents views from academics and practitioners across an interdisciplinary spectrum, arising from a webinar hosted by Georgetown University Program in Aging & Health. A description of personhood as an extension of the humanities is followed by a robust discussion of safety and autonomy for older adults during the COVID-19 pandemic. We examine the necessary commute between critical gerontological theory and the practice of humanistic gerontology. Further, this article disentangles humanism and person-centered care to balance autonomy and safety for older adults in congregate living situations and focuses on specific populations: people with dementia and their care partners. Discussion on the importance of person-centered policy development in a public health pandemic is also explored. The article concludes with a call to action for the adoption of a comprehensive person-centered care model across the fields of gerontology and geriatric medicine.

scholarly journals A Qualitative Study to Explore Ways to Observe Results of Engaging Activities in Clients with Dementia

2017 ◽  
Vol 2017 ◽  
pp. 1-8 ◽  
Author(s):  
Masahiro Ogawa ◽  
Seiji Nishida ◽  
Haruna Shirai
Keyword(s):  
Cognitive Impairment ◽  
Clinical Practice ◽  
Social Interaction ◽  
Qualitative Study ◽  
Emotional Expression ◽  
Occupational Therapists ◽  
Verbal Expression ◽  
Future Studies ◽  
Severity Of Dementia ◽  
Depth Interviews

Background. Many occupational therapists face the challenge of helping clients with dementia to select and perform meaningful occupations, which may be difficult due to cognitive impairment. Understanding tacit knowledge of well-experienced occupational therapists could positively affect occupational therapy practice for clients with dementia. Objectives of Study. To explore the observations of experienced occupational therapists when evaluating the effects of activities in clients with dementia. Methods. Ten occupational therapists with over 10 years of clinical experience participated in this qualitative study. In-depth interviews were conducted to ask the question, “What do you observe in clients with dementia when you assess the effectiveness of activities among these clients?” Findings. From 47 cases, we found five major themes and 18 subthemes. Main themes were “engaging activity,” “emotional expression during activity,” “verbal expression during activity,” “social interaction through activity,” and “something obtained as outcome of activity.” Relevance to Clinical Practice. The 18 subthemes could be used as viewpoints to observe engagements of activity in clients with dementia. Limitations and Recommendations for Further Research. Future studies could examine which viewpoints were utilized for each type of activity and/or severity of dementia as this was not investigated in the current study.

Motif Penggunaan Simbol Religiusitas Mahasiswa Berkopyah

2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Sanusi Sanusi
Keyword(s):  
Qualitative Study ◽  
Role Model ◽  
Daily Activities ◽  
Social Actions ◽  
Surrounding Environment ◽  
Dominant Tendency ◽  
Descriptive Qualitative

<p><em>This study aims to determine the logical reasons for each student's social actions based on certain motives in the use of religiosity symbols in the form of skullcaps in all daily activities on campus and the surrounding environment. This research is a descriptive-qualitative study that describes the trends of reasons and motives for the use of religiosity symbols in the form of kopyah for students qualitatively. The results of the study obtained a number of reasons and factors that underlie the encouragement of students to use kopyah on campus. The dominant tendency towards what is done by a kopyah user is the psychological motive of fulfilling the need for comfort for a santri, the preventive motive is encouragement to guard against all immoral acts and other sins; in the form of encouragement to follow what was exemplified by a cleric who became a role model as a form of piety of a santri. In this case, kopyah becomes a certain identity characteristic inherent in itself along with the practice of its religiosity.</em></p><p class="Affiliasi"><strong><em>Keywords</em></strong><strong>:</strong></p><p><em><em>Motif, Symbol, Religiosity, Kopyah</em><br /></em></p>

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