Informal Caregivers’ Perceptions of Burdens and Benefits Predict Greater Confidence in Their Abilities

Abstract Informal caregivers experience both burdens and benefits from caregiving. This analysis aimed to determine whether caregiver perceptions of burdens and benefits predicted feelings of confidence in their abilities. In the National Study of Caregiving (NSOC) Round II (2015), we identified 1,390 caregivers as “primary” for providing the greatest number of care hours in the past month to individuals age 65 and over. Logistic regression was performed to assess the influence of primary caregivers’ gender, age, relationship to their care recipients, and self-reported indications of burdens and benefits on the odds that they would report confidence in their abilities. Caregivers were more likely to report confidence in their abilities when caregiving taught them to deal with difficult situations (OR=5.93, 95% CI [4.67, 7.54]), gave them satisfaction that their care recipient was well cared for (OR=1.97, 95% CI [1.26, 3.04]), and when caregiving brought them closer to their care recipient (OR=2.61, 95% CI [2.02, 3.36]). Caregivers were less likely to feel confident if they reported frequent changes in routine (OR=.78, 95% CI [.64, .96]). The final model predicted confidence (chi-square = 525.383 [4] p < .001) and correctly classified 78.7% of cases. All other variables were non-significant. These findings suggest that confidence in abilities is influenced by caregivers’ perception of learning to handle difficult situations, satisfaction, closeness to the recipient, and burdens associated with changes in routine. Future research should further explore burdens and benefits of caregiving. Health care providers should routinely assess caregivers and provide referrals for additional resources.

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Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19

JMIR Research Protocols ◽

10.2196/25501 ◽

2020 ◽

Vol 9 (12) ◽

pp. e25501

Author(s):

Maclean Thiessen ◽

Andrea Michelle Soriano ◽

Hal John Loewen ◽

Kathleen Margaret Decker

Keyword(s):

Health Care Providers ◽

Scoping Review ◽

Information Needs ◽

Informal Caregivers ◽

Cochrane Library ◽

Future Research ◽

Care Providers ◽

Summary Table ◽

Care Protocol ◽

The Impact

Background During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. Objective The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. Methods This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. Results The results from this scoping review are expected to be available by late spring 2021. Conclusions The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. International Registered Report Identifier (IRRID) PRR1-10.2196/25501

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Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19 (Preprint)

10.2196/preprints.25501 ◽

2020 ◽

Author(s):

Maclean Thiessen ◽

Andrea Michelle Soriano ◽

Hal John Loewen ◽

Kathleen Margaret Decker

Keyword(s):

Health Care Providers ◽

Scoping Review ◽

Information Needs ◽

Informal Caregivers ◽

Cochrane Library ◽

Future Research ◽

Care Providers ◽

Summary Table ◽

Care Protocol ◽

The Impact

BACKGROUND During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. OBJECTIVE The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. METHODS This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. RESULTS The results from this scoping review are expected to be available by late spring 2021. CONCLUSIONS The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/25501

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Dementia anxiety among older adult caregivers: an exploratory study of older adult caregivers in Canada

International Psychogeriatrics ◽

10.1017/s1041610211000299 ◽

2011 ◽

Vol 23 (6) ◽

pp. 880-886 ◽

Cited By ~ 8

Author(s):

Nicole M. Alberts ◽

Heather D. Hadjistavropoulos ◽

Nicole E. Pugh ◽

Shannon L. Jones

Keyword(s):

Older Adult ◽

Caregiver Burden ◽

Health Care Providers ◽

Linear Regression Analysis ◽

Self Report ◽

Care Recipient ◽

Future Research ◽

Care Providers ◽

Adult Caregivers ◽

Older Adult Caregivers

ABSTRACTBackground: Although caring for individuals with dementia is known to result in increased burden and depression among caregivers, little research has investigated caregiver's anxiety or concern about eventually developing dementia themselves (i.e. dementia anxiety). Existing research reports mixed findings regarding variables (e.g. relationship to care recipient, sex, education) that predict dementia anxiety among caregivers and non-caregivers. Potential relationships among burden, depression and dementia anxiety have not been extensively examined. The present study explored caregiver and care recipient factors as predictors of dementia anxiety in older adult caregivers.Methods: A sample of 116 older adult caregivers answered demographic/background questions and completed a series of self-report measures assessing dementia anxiety, caregiver burden, depression, and the physical disability of the care recipient.Results: The majority of caregivers were female, Caucasian, and reported caring for a spouse. Analyses revealed that background variables were generally not related to dementia anxiety, while depression and caregiver burden were significantly associated. Using linear regression analysis, it was found that a diagnosis of dementia in the care recipient and caregiver depression were both significant predictors of caregiver dementia anxiety.Conclusion: Health care providers should be aware that dementia anxiety is associated with caring for individuals with dementia as well as with depression. Dementia anxiety may place additional strain on caregivers of individuals who have dementia and are suffering from depression and thus should be the focus of future research.

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The Lived Experience of Informal African American Male Caregivers

American Journal of Men s Health ◽

10.1177/1557988307305916 ◽

2007 ◽

Vol 3 (1) ◽

pp. 16-24 ◽

Cited By ~ 4

Author(s):

Jo Ann Weinland

Keyword(s):

African American ◽

Lived Experience ◽

Health Care Providers ◽

Phenomenological Study ◽

African American Men ◽

Demographic Data ◽

Informal Caregivers ◽

Care Recipient ◽

Financial Strain ◽

Care Providers

Informal caregivers play a major role in providing care to loved ones within the home and demands for dependent care are likely to increase. Informal caregivers are likely to continue to be responsible for the majority of care for loved ones living well into late stages of life. This article describes the lived experience of African American men providing care to a relative within the home and explores their definition of caregiver distress. The phenomenological study was conducted using face-to-face interviews with 10 Christian African American men. Demographic data about the caregiver and the care recipient were collected. Common themes included: commitment, support (family support and formal health-related support), spirituality, and caregiver burden (stress, time strain and financial strain). Implications include the need for health care providers to expand their knowledge related to the diversity of caregivers and to use culturally relevant comprehensive assessments of caregivers and recipients, discharge planning tools, and community resources.

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Acceptance of the HPV Vaccine in a Multiethnic Sample of Latinx Mothers

Qualitative Health Research ◽

10.1177/1049732320980697 ◽

2021 ◽

Vol 31 (3) ◽

pp. 472-483

Author(s):

Ana Cristina Lindsay ◽

Madelyne J. Valdez ◽

Denisse Delgado ◽

Emily Restrepo ◽

Yessica M. Guzmán ◽

...

Keyword(s):

Health Care Providers ◽

Thematic Analysis ◽

Hpv Vaccine ◽

Female Adolescents ◽

Future Research ◽

Care Providers ◽

Foreign Born ◽

Structured Interviews ◽

Direct Benefits ◽

Multiethnic Sample

This descriptive qualitative study explored Latinx mothers’ acceptance of the human papillomavirus (HPV) vaccine for their adolescent children. Data were collected through individual, semi-structured interviews and analyzed using a hybrid method of thematic analysis that incorporated deductive and inductive approaches. Twenty-two ( n = 22), mostly foreign-born, Latinx mothers of male and female adolescents participated in the study. Three main themes and nine subthemes emerged from the analyses. Findings identified the need for increased efforts to raise awareness and knowledge among Latinx mothers of the direct benefits of the HPV vaccine for sons, including stressing prevention of HPV-associated cancers in males. Findings also underscore the need for improved health care providers’ communication and recommendation of the HPV vaccine for Latinx adolescent males. Future research should intervene upon the study’s findings to address barriers that remain and affect Latinx mothers’ acceptance and uptake of the HPV vaccine for their children, in particular their sons.

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Ways that nurse practitioner students self-explain during diagnostic reasoning

Diagnosis ◽

10.1515/dx-2020-0136 ◽

2021 ◽

Vol 0 (0) ◽

Author(s):

Leah Burt ◽

Susan Corbridge ◽

Colleen Corte ◽

Laurie Quinn ◽

Lorna Finnegan ◽

...

Keyword(s):

Problem Solving ◽

Health Care Providers ◽

Nurse Practitioner ◽

Descriptive Analysis ◽

Diagnostic Errors ◽

Diagnostic Reasoning ◽

Knowledge Structures ◽

Future Research ◽

Biological Knowledge ◽

Care Providers

Abstract Objectives An important step in mitigating the burden of diagnostic errors is strengthening diagnostic reasoning among health care providers. A promising way forward is through self-explanation, the purposeful technique of generating self-directed explanations to process novel information while problem-solving. Self-explanation actively improves knowledge structures within learners’ memories, facilitating problem-solving accuracy and acquisition of knowledge. When students self-explain, they make sense of information in a variety of unique ways, ranging from simple restatements to multidimensional thoughts. Successful problem-solvers frequently use specific, high-quality self-explanation types. The unique types of self-explanation present among nurse practitioner (NP) student diagnosticians have yet to be explored. This study explores the question: How do NP students self-explain during diagnostic reasoning? Methods Thirty-seven Family NP students enrolled in the Doctor of Nursing Practice program at a large, Midwestern U.S. university diagnosed three written case studies while self-explaining. Dual methodology content analyses facilitated both deductive and qualitative descriptive analysis. Results Categories emerged describing the unique ways that NP student diagnosticians self-explain. Nine categories of inference self-explanations included clinical and biological foci. Eight categories of non-inference self-explanations monitored students’ understanding of clinical data and reflect shallow information processing. Conclusions Findings extend the understanding of self-explanation use during diagnostic reasoning by affording a glimpse into fine-grained knowledge structures of NP students. NP students apply both clinical and biological knowledge, actively improving immature knowledge structures. Future research should examine relationships between categories of self-explanation and markers of diagnostic success, a step in developing prompted self-explanation learning interventions.

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Accuracy of State-Level Surveillance during Emerging Outbreaks of Respiratory Viruses: A Model-Based Assessment

Medical Decision Making ◽

10.1177/0272989x211022276 ◽

2021 ◽

pp. 0272989X2110222

Author(s):

Yuwen Gu ◽

Elise DeDoncker ◽

Richard VanEnk ◽

Rajib Paul ◽

Susan Peters ◽

...

Keyword(s):

Growth Rate ◽

Data Collection ◽

Disease Progression ◽

Health Care Providers ◽

Growth Rates ◽

State Level ◽

Future Research ◽

Care Providers ◽

State Surveillance ◽

First Come First Serve

It is long perceived that the more data collection, the more knowledge emerges about the real disease progression. During emergencies like the H1N1 and the severe acute respiratory syndrome coronavirus 2 pandemics, public health surveillance requested increased testing to address the exacerbated demand. However, it is currently unknown how accurately surveillance portrays disease progression through incidence and confirmed case trends. State surveillance, unlike commercial testing, can process specimens based on the upcoming demand (e.g., with testing restrictions). Hence, proper assessment of accuracy may lead to improvements for a robust infrastructure. Using the H1N1 pandemic experience, we developed a simulation that models the true unobserved influenza incidence trend in the State of Michigan, as well as trends observed at different data collection points of the surveillance system. We calculated the growth rate, or speed at which each trend increases during the pandemic growth phase, and we performed statistical experiments to assess the biases (or differences) between growth rates of unobserved and observed trends. We highlight the following results: 1) emergency-driven high-risk perception increases reporting, which leads to reduction of biases in the growth rates; 2) the best predicted growth rates are those estimated from the trend of specimens submitted to the surveillance point that receives reports from a variety of health care providers; and 3) under several criteria to queue specimens for viral subtyping with limited capacity, the best-performing criterion was to queue first-come, first-serve restricted to specimens with higher hospitalization risk. Under this criterion, the lab released capacity to subtype specimens for each day in the trend, which reduced the growth rate bias the most compared to other queuing criteria. Future research should investigate additional restrictions to the queue.

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Exploring the Social Networks’ Use in the Health-Care Industry: A Multi-Level Analysis

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18147295 ◽

2021 ◽

Vol 18 (14) ◽

pp. 7295

Author(s):

Tommasina Pianese ◽

Patrizia Belfiore

Keyword(s):

Health Care ◽

Social Networks ◽

Health Care Providers ◽

Health Care Industry ◽

Future Research ◽

Great Level ◽

Care Providers ◽

Care Industry ◽

Multi Level ◽

Video And Audio

The application of social networks in the health domain has become increasingly prevalent. They are web-based technologies which bring together a group of people and health-care providers having in common health-related interests, who share text, image, video and audio contents and interact with each other. This explains the increasing amount of attention paid to this topic by researchers who have investigated a variety of issues dealing with the specific applications in the health-care industry. The aim of this study is to systematize this fragmented body of literature, and provide a comprehensive and multi-level overview of the studies that has been carried out to date on social network uses in healthcare, taking into account the great level of diversity that characterizes this industry. To this end, we conduct a scoping review enabling to identify the major research streams, whose aggregate knowledge are discussed according to three levels of analysis that reflect the viewpoints of the major actors using social networks for health-care purposes, i.e., governments, health-care providers (including health-care organizations and professionals) and social networks’ users (including ill patients and general public). We conclude by proposing directions for future research.

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Commentary on “Diabetes and people with learning disabilities: issues for policy, practice and education”

Tizard Learning Disability Review ◽

10.1108/tldr-11-2019-0035 ◽

2020 ◽

Vol 25 (1) ◽

pp. 35-39 ◽

Cited By ~ 1

Author(s):

Brianne Redquest ◽

Yona Lunsky

Keyword(s):

Health Care ◽

Learning Disabilities ◽

Health Care Providers ◽

Diabetes Care ◽

Future Research ◽

Care Providers ◽

Family Carers ◽

Content Type ◽

Policy Practice

Purpose There has been an increase in research exploring the area of intellectual and developmental disabilities (IDD) and diabetes. Despite being described as instrumental to diabetes care for people with IDD, the role and experiences of family carers, such as parents and siblings, are often neglected in this research. However, it is clear that family carers do not feel that they have sufficient knowledge about diabetes. The purpose of this commentary is to extend the content from “Diabetes and people with learning disabilities: Issues for policy, practice, and education (Maine et al., 2020)” and discuss how family carers can feel better supported when caring for someone with IDD and diabetes. Design/methodology/approach This commentary discusses specific efforts such as STOP diabetes, DESMOND-ID and OK-diabetes for people with IDD including family carers. Encouragement is given for health care providers to recommend such programmes to people with IDD and their family carers. It is also suggested that health care providers involve family carers in diabetes care planning and implementation for people with IDD. Findings It is hoped that if changes are made to current diabetes practices and more research with family carers is conducted, diabetes prevention and management for people with IDD will be more successful and family carers can feel more confident in providing support to their loved ones. Originality/value Research exploring the role of family carers in diabetes care for people with IDD and diabetes is very limited. This commentary makes recommendations to help family carers feel better supported in their role. It also provides areas for future research.

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A Scoping Review and Content Analysis of Common Depressive Symptoms of Young People

The Journal of School Nursing ◽

10.1177/10598405211012680 ◽

2021 ◽

pp. 105984052110126

Author(s):

Jia-Wen Guo ◽

Brooks R. Keeshin ◽

Mike Conway ◽

Wendy W. Chapman ◽

Katherine A. Sward

Keyword(s):

Content Analysis ◽

Depressive Symptoms ◽

Young People ◽

Health Care Providers ◽

Scoping Review ◽

School Nurses ◽

Future Research ◽

Depression Symptom ◽

Care Providers ◽

Five Dimensions

School nurses are the most accessible health care providers for many young people including adolescents and young adults. Early identification of depression results in improved outcomes, but little information is available comprehensively describing depressive symptoms specific to this population. The aim of this study was to develop a taxonomy of depressive symptoms that were manifested and described by young people based on a scoping review and content analysis. Twenty-five journal articles that included narrative descriptions of depressive symptoms in young people were included. A total of 60 depressive symptoms were identified and categorized into five dimensions: behavioral ( n = 8), cognitive ( n = 14), emotional ( n = 15), interpersonal ( n = 13), and somatic ( n = 10). This comprehensive depression symptom taxonomy can help school nurses to identify young people who may experience depression and will support future research to better screen for depression.

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