Including Family Members in Caring for the Patient with Cancer

2021 ◽  
pp. 723-728
Author(s):  
Douglas S. Rait
Keyword(s):  
Family Relationships ◽  
Well Being ◽  
Models Of Care ◽  
Mental Health Consultation ◽  
Patient Centered ◽  
Patients With Cancer ◽  
Systems Model ◽  
Collaborative Models ◽  
The Family ◽  
Family Centered

The assumption that family relationships play an important role in the care and well-being of the cancer patient may be overlooked simply because it is so universal. At the same time, the elevated role of the family as a primary unit of care in oncology settings is now beginning to receive proper attention in medical and psychiatric circles, and growing evidence supports the efficacy of family interventions for patients with cancer. Family-centered, collaborative models of mental health consultation for patients with cancer are consistent with, and offer an expansion to, current patient-centered models of care in oncology settings. Normative couple and family responses to stages of cancer and its treatment are described, and premises of the family-systems model for assessment and consultation are presented. A case example illustrates how the dimensions of family development, family history, family relationships, and the family’s relationship with providers contribute to a family-centered assessment and consultation.

Divorce in the family and its psychological impact on the adolescent

2020 ◽  
Vol 45 (4) ◽  
pp. 132-139
Author(s):  
M. Iskakova ◽  
◽  
T. Nurzhanova ◽  
A. Sapargaliyeva ◽  
◽  
...  
Keyword(s):  
Family Relationships ◽  
Psychological Intervention ◽  
Psychological Impact ◽  
Strong Shock ◽  
Well Being ◽  
Number Of Children ◽  
The Family ◽  
Modern Family ◽  
Divorce Rates ◽  
Methodological Considerations

The purpose of this article is to review and describe the psychosocial impact of divorce on children and adolescents facing divorce situations in their lives, as well as to provide psychological intervention for their emotional well- being. Recently, problems related to the family have become increasingly relevant in society. The modern family has undergone major changes: its size and number of children have decreased, the roles of the older brother and sister have not become so great, and the influence of the older generation is not unconditional. But the most important thing is that the number of divorces has increased dramatically — almost every second marriage breaks up. But divorce is a strong shock for all family members, and first of all, for children. High divorce rates recorded in Kazakhstan, especially in cities, are one of the most serious consequences of the imbalance in family relationships. Finally, some suggestions were included regarding methodological considerations in conducting prospective research.

scholarly journals ICT to Promote Well-Being within Families

Sensors ◽  
2018 ◽  
Vol 18 (9) ◽  
pp. 2760 ◽  
Author(s):  
Jure Trilar ◽  
Andrej Kos ◽  
Simona Jazbinšek ◽  
Lea Jensterle ◽  
Emilija Stojmenova Duh
Keyword(s):  
Online Survey ◽  
Well Being ◽  
Structured Interviews ◽  
Family Time ◽  
Development Fund ◽  
European Regional Development Fund ◽  
The Family ◽  
The Republic ◽  
Family Centered ◽  
Future Program

Within the Active Living and Well-Being Project (RRP3), funded by the Republic of Slovenia and the European Regional Development Fund Investing in Your Future program, we aim to develop different approaches and prototype solutions to provide ICT solutions for the family in order to connect its members; communicate; promote quality family time, active life, a health-friendly lifestyle and well-being; and integrate various sensor and user-based data sources into a smart city ecosystem platform. A mixed methodology, combined qualitative and quantitative approaches, was selected to conduct the study. An online survey with a structured questionnaire as well as semi-structured interviews were performed. Through the analysis of the results, we tried to establish a family-centered design approach that would be inclusive as much as possible, creating benefits for all generations in order to develop an interactive prototype solution that would allow us to further test and verify different use-case scenarios.

Best Practice for Family-Centered Health Care

2017 ◽  
Author(s):  
Joanna Sturhahn Stratton ◽  
Katherine Buck ◽  
Allison M. Heru
Keyword(s):  
Health Care ◽  
Family Involvement ◽  
Best Practice ◽  
Model Of Care ◽  
Patient Centered ◽  
Step Model ◽  
Essential Components ◽  
The Family ◽  
Centered Care ◽  
Family Centered

The patient-centered medical home is a strong model of care that can be improved by harnessing the power of the patient’s family. This chapter highlights a three-step model of family involvement in patient care: (1) family inclusion, (2) family education and support, and (3) family systems therapy. The model is grounded in evidence-based research and incorporates the essential components of integrated care. A clinical case example illustrates how to involve the family in a stepwise progression. This model of family-centered care is applicable in any health care setting.

scholarly journals Bilingualism in the family and child well-being: A scoping review

2020 ◽  
Vol 24 (5-6) ◽  
pp. 1049-1070
Author(s):  
Lisa-Maria Müller ◽  
Katie Howard ◽  
Elspeth Wilson ◽  
Jenny Gibson ◽  
Napoleon Katsos
Keyword(s):  
Language Proficiency ◽  
Scoping Review ◽  
Family Relationships ◽  
Geographical Location ◽  
Well Being ◽  
Future Research ◽  
Significant Heterogeneity ◽  
Subjective Well Being ◽  
Diverse Range ◽  
The Family

Aims and objectives: The aim of this scoping review is to investigate the association between bilingualism in the family and child subjective well-being, by reviewing the literature to identify key themes to date and remaining questions for future research. Methodology: Scopus, Web of Knowledge, ERIC, Psych Articles and PsychInfo were searched systematically between September and October 2018, and after title, abstract and full-text screening, 17 of the initial 1433 articles were included in this review. Data and analysis: Each study was coded for the discipline from which it emerged, the language combination studied, the measures of well-being and language proficiency it used, the geographical location of the study and the number of participants. Data on the link between bilingualism and well-being was extracted from each study. Findings and conclusion: Two main themes were identified: ‘The effect of language proficiency on family relationships’ and ‘The acculturation of parents and children as mediated by language’. Across studies, there was significant heterogeneity in definition of concepts and a diverse range of measures employed. In addition, the studies identified suggest a positive link between minority language maintenance and child well-being, and a positive influence of bilingualism, rather than knowledge of only the home or the majority language. However, the directionality of these relationships will need to be investigated in future research. Originality: This is the first scoping review conducted systematically to explore the link between bilingualism in the family and child well-being internationally. It builds on previous work such as a narrative review which examined this association in the European context.

Conceptions of Family-Centered Medical Decisionmaking and Their Difficulties

2003 ◽  
Vol 12 (2) ◽  
pp. 196-200 ◽  
Author(s):  
INSOO HYUN
Keyword(s):  
Patient Autonomy ◽  
Family Members ◽  
Patient Centered ◽  
Medical Decisions ◽  
Competent Patient ◽  
Legitimate Interest ◽  
The Family ◽  
Related Line ◽  
Family Centered ◽  
Decisional Authority

Over the past decade or so, the predominant patient-centered ethos in American bioethics has come under attack by critics who claim that it is morally deficient in certain respects, particularly when viewed in the context of acute-care decisionmaking. One line of criticism has been that the current ethic of patient autonomy gives an individual competent patient far too much decisional authority over the terms of his own treatment so that the patient is at complete liberty to neglect the ways in which his medical decisions can drastically and negatively affect the lives of other family members. Given that family members must help shoulder the financial, emotional, and rehabilitative burdens involved in the patient's care, it has been argued that they too have a legitimate interest in choosing what sort of medical treatment the patient eventually receives. Another closely related line of criticism is that the prevailing focus on patient autonomy gives short shrift to the moral significance of the family as a genuine community. Echoing a view of the person advanced by most communitarian political theorists, some commentators have argued that the patient comes to the clinic so thoroughly embedded in a complex web of familial relationships and obligations that it does not make sense to identify him as the only person in the family to make decisions about treatment.

scholarly journals Socio-psychological features and legal norms of the life of adolescents from distant families of labor migrants

2021 ◽  
Vol 10 (46) ◽  
pp. 79-91
Author(s):  
Zoriana Kovalchuk ◽  
Yana Raievska ◽  
Liudmіla Beheza ◽  
Iryna Ievtushenko ◽  
Halyna Odyntsova
Keyword(s):  
Family Relationships ◽  
Functional Model ◽  
Psychological Adaptation ◽  
Well Being ◽  
Social Institution ◽  
Family Type ◽  
Emotional States ◽  
Labor Migrants ◽  
Low Level ◽  
The Family

The article considers the distant family as a social institution of education, formation and development of personality. The current state of solving the problem of socio-psychological and legal work with children from distant families is analyzed. The sample of the study is described in detail by family type, sex, absence of father / mother and duration of absence. The peculiarities of the functioning of the emotional sphere of adolescents from distant families (anxiety, aggression, hostility), low level of socio-psychological adaptation, low level of emotional well-being in the family have been experimentally determined. The relationship between the degree of socio-psychological adaptation of the adolescent’s personality and emotional states is proved. The dependence of gender differences in the functioning of the family and the emotional sphere of adolescents has been established. The types of groups of adolescents from distant families are determined, in particular: anxious, aggressive-anxious, hostile-anxious, aggressive-hostile, absence of manifestation of negative signs. A structural and functional model of social and psychological support of remote families has been developed, which provides for work with adolescents and their parents with the use of special technologies to ensure the effectiveness of conditions that form harmonious family relationships.

scholarly journals The Impact of the Financial Wellbeing of the Elderly of Kazakhstan on Their Family Life

2021 ◽  
Vol 16 (3) ◽  
pp. 152-166
Author(s):  
Z. T. Satpayeva ◽  
A. S. Bekbossinova ◽  
M. M. Ryskulova
Keyword(s):  
Family Relationships ◽  
Financial Literacy ◽  
Pension System ◽  
Family Relations ◽  
Secondary Data ◽  
Well Being ◽  
The Elderly ◽  
Primary Data ◽  
The Family ◽  
The Impact

Today, many countries in the world are concerned about the well-being of pensioners, as their number is growing every year and pension systems cannot cope with ensuring a decent old age. The well-being of pensioners is part of the well-being of society, and the pension system is an institution for ensuring the well-being of pensioners. Therefore, it is important to understand the relationship between the financial well-being of older people and the country’s pension system. It is also important to understand that the family is an integral part of a person and therefore the well-being of each family member affects family relationships. This article is devoted to the assessment of the financial well-being of pensioners in Kazakhstan as a key factor affecting the family relations of a pensioner with partner, children, and grandchildren. Primary and secondary data were used for this study. The primary data were collected through interviews, which allowed us to obtain a subjective definition of financial well-being on the part of pensioners and its impact on family relations. This data was processed and encoded using the Atlas.ti program. Data from the Bureau of National Statistics made it possible to objectively assess the financial situation of Kazakhstani pensioners. The study found that the concept of financial well-being among Kazakhstani pensioners is more important for men than for women. Pensioners are not happy with their financial well-being, but this does not significantly affect their relationship with their families. The results of the study will allow us to assess the financial well-being of pensioners and can be used in the reform of social policy, pension provision of the country. Through the use of interviews financial literacy has been identified as one of the key factors, which depends on circumstances and the context.

Patient-Clinician Communication Is a Joint Creation: Working Together Toward Well-Being

2018 ◽  
pp. 532-539 ◽  
Author(s):  
Timothy Gilligan ◽  
Liz Salmi ◽  
Andrea Enzinger
Keyword(s):  
Medical Condition ◽  
Well Being ◽  
Direct Access ◽  
Accurate Information ◽  
Access To Information ◽  
Patient Centered ◽  
Patients With Cancer ◽  
Whole Person ◽  
Working Together ◽  
Clinician Communication

Oncology clinicians face a monumentally difficult task: to guide patients on what may be the scariest and most unpleasant journey of their lives. They must preserve their patients’ hope while at the same time giving them accurate information. And patients with cancer face a monumentally difficult task: navigating a path while confronting an often-terrifying disease. Communication between patients with cancer, their loved ones, and the treating clinicians presents many challenges. We must become better at communicating with each other; patients need easier access to information about their medical condition and their health care; and we must establish relationships that are stronger and more respectful, trusting, and empathic. If we are to deliver patient-centered or whole-person care, we must know who our patients are, what is important to them, and how they derive meaning in their lives. In this review, we discuss ASCO's first Patient-Clinician Communication guideline, the importance and value of patients having direct access to their medical record, and how to address spirituality and/or religion with patients with cancer.

The Dying Patient in the Intensive Care Unit: Assisting the Family in Crisis

1993 ◽  
Vol 4 (3) ◽  
pp. 550-557
Author(s):  
Brian E. Mendyka
Keyword(s):  
Practical Experience ◽  
Positive Outcomes ◽  
Patient Centered ◽  
The Core ◽  
Clinical Events ◽  
The Family ◽  
Centered Care ◽  
Family Centered ◽  
Dying Patient

Critically ill patients belong to larger phenomenologic systems, their families. What affects one member affects other system members. Nursing care requires meticulous observation and assessment of family concerns, understanding of clinical events, and practical experience to achieve positive outcomes even if a death occurs. It seems easy to dismiss the family from the clinical and technical matters of the critical care unit, especially when much nursing energy goes into operating peripheral machinery, performing tasks, and pursuing ever-changing patient-centered goals. The following case study attempts to redefine and redirect the focus of what “patient-centered” means to include the nurse, the patient, and the family in the meaning of the core of family-centered care

Parents' and Adolescents' Perceptions of a Strong Family

1999 ◽  
Vol 84 (3_suppl) ◽  
pp. 1219-1224 ◽  
Author(s):  
Abraham P. Greeff ◽  
Marieanna C. le Roux
Keyword(s):  
Crisis Management ◽  
Family Relationships ◽  
Well Being ◽  
Communication Patterns ◽  
Family Characteristics ◽  
Religious Values ◽  
Family Strengths ◽  
Family Strength ◽  
Semistructured Interviews ◽  
The Family

Perceptions of family strengths of 40 parents and 20 adolescents were investigated by means of semistructured interviews and Likert-type ratings on commitment, appreciation, spending time together, communication patterns, religious values, and crisis management. Significant differences were found between the perceptions of parents and adolescents for the family characteristics of commitment, time spent together, and crisis management. Although family strength correlated positively with all six identified characteristics, time spent together and appreciation for each other had the highest correlation with family strength. This result supports the notion that sufficient quality time together may be a prerequisite for well-being in family relationships.

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