scholarly journals Assessment of personal experiences navigating medical systems and society for patients of a midwestern Ryan White funded HIV Clinic

2017 ◽  
Vol 4 (suppl_1) ◽  
pp. S420-S421
Author(s):  
Chancelor Cruz ◽  
Elsa Vazquez Melendez ◽  
John Farrell

Abstract Background In the early years of the HIV/AIDS crisis, the debilitating consequences of HIV/AIDS stigma and discrimination became known as part of “the 3rd phase of the epidemic.” Many of these consequences still impact HIV/AIDS care today. In the state of Illinois, the HIV prevalence in Chicago and its collar counties does supersede the prevalence of HIV elsewhere in the state of Illinois, and past HIV research has utilized mostly urban MSM populations. Unfortunately, although HIV is not an exclusively urban disease, little is known about HIV stigma in smaller communities and lower prevalence contexts. Methods Participants were recruited from our local HIV clinic in a county population of 184,000 people. The clinic serves the HIV/AIDS population of Peoria proper as well as the 14 surrounding, more rural counties. Twenty participants were invited for a 1 hour recorded interview speaking of their experiences with HIV stigma. Using a qualitative approach in grounded theory, two researchers independently coded the transcripts and then came to a consensus. Core themes were then summarized. Results Sources of stigma included the general community in central Illinois, other outpatient medical clinics, medical testing facilities such as ancillary laboratories, and the LGBT community. Major sources of support included family and loved ones, the HIV medical clinic, and the HIV patient community. Many patients reported HIV education to be assuring, and though facing many social obstacles, ultimately feeling strengthened by adversity. In order to address HIV stigma in the community patients suggested greater networking among HIV infected patients and increased education for the general public. Conclusion HIV stigma is still a distressing social force to HIV infected patients in the heart of Illinois. Though medical management of HIV has advanced significantly in recent years, the stigma that accompanies a diagnosis of HIV infection remains to be effectively addressed in a comprehensive and conscientious manner. Our study points to the need for tailored interventions in outpatient medical settings, as well as throughout the general community in central Illinois. Disclosures All authors: No reported disclosures.

Author(s):  
Néstor Njejimana ◽  
Lucía Gómez-Tatay ◽  
José Miguel Hernández-Andreu

HIV/AIDS stigma is a global issue and a serious problem in African countries. Although prevalence remains high in this region, no detailed study has yet been carried out to determine and characterize this problem in Burundi. Using a qualitative analysis based on an extensive series of 114 interviews, we describe the main characteristics of HIV stigma in the country. The results of our study indicate that the problem of HIV/AIDS stigma is widespread in Burundian society, as all participants in the research reported having experienced some kind of HIV stigma. The seven dimensions of stigma identified in people living with HIV/AIDS (PLWHA) in Burundi are physical violence, verbal violence, marginalization, discrimination, self-stigma, fear and insecurity, and healthcare provider stigma. These dimensions of stigma can be experienced through different manifestations, which have been characterized in this study, revealing that the problem of stigma in PLWHA is still an important issue in Burundi.


2012 ◽  
Vol 17 (1) ◽  
pp. 434-443 ◽  
Author(s):  
L. Jeyaseelan ◽  
Shuba Kumar ◽  
Rani Mohanraj ◽  
Grace Rebekah ◽  
Deepa Rao ◽  
...  

2014 ◽  
Vol 1 (1) ◽  
Author(s):  
Dadang Dwi Purwanto

Stigma dan diskriminasi yang tinggi oleh masyarakat terhadap orang dengan HIV-AIDS (ODHA) mengakibatkan orang yang memberikan jarak, ketakutan, dan bahkan kurang setuju untuk ODHA. Jumlah orang yang hidup dengan HIV terus meningkat hingga tahun 2013 mencapai 286 orang, dan studi awal menunjukkan ada 6 orang yang hidup dengan HIV di Dusun Pandan Wangi. Tujuan dari penelitian ini untuk mengetahui hubungan pengetahuan masyarakat tentang HIV AIDS dengan stigma pada ODHA (Orang dengan HIV AIDS) di Dusun Pandan Wangi, Desa Pandan wangi, Kecamatan Diwek, Kabupaten Jombang. Desain analisis penelitian ini adalah pendekatan cross-sectional. Populasi dalam penelitian ini adalah 691 keluarga di Dusun Pandan wangi, Desa Pandan wangi, Kecamatan Diwek, Kabupaten Jombang dengan sampel total 69 yang menggunakan teknik pengambilan sampel proporsional Simple Random Sampling. dan di lakukan pada 26-29 Mei 2014. Variabel bebas dalam penelitian ini Pengetahuan umum tentang HIV AIDS sedangkan Variabel Dependent adalah ODHA Stigma. Instrumen dalam bentuk kuesioner. Analisis data melalui editing, coding, scoring, tabulating tes Spearman Rank .. Hasil penelitian hubungan pengetahuan masyarakat tentang HIV AIDS dengan stigma pada orang yang hidup dengan HIV, stigma memiliki pengetahuan yang baik dari rendahnya jumlah responden (10,1%), pengetahuan tentang diri dengan stigma sebagai total 27 responden (39,1%) dan kurangnya pengetahuan dengan stigma yang tinggi nomor 10 responden (14,5%). Statistik uji Rank Spearman diperoleh angka signifikan atau nilai probabilitas (0,000) standar secara signifikan lebih rendah dari 0,05 atau (p <α), , maka H1 diterima dan H0 ditolak, yang berarti Ada Pengetahuan Humas tentang HIV AIDS dengan stigma pada ODHA (orang dengan HIV AIDS). Dengan demikian dapat disimpulkan bahwa ada hubungan pengetahuan masyarakat tentang HIV / AIDS Stigma di ODHA (Orang dengan HIV / AIDS) di Dusun Pandan wangi, Desa Pandan wangi, Kecamatan Diwek, Kabupaten Jombang


2019 ◽  
Vol 9 (4) ◽  
pp. 157-165
Author(s):  
Mansoor Mohamed Fazil

Abstract This research focuses on the issue of state-minority contestations involving transforming and reconstituting each other in post-independent Sri Lanka. This study uses a qualitative research method that involves critical categories of analysis. Migdal’s theory of state-in-society was applied because it provides an effective conceptual framework to analyse and explain the data. The results indicate that the unitary state structure and discriminatory policies contributed to the formation of a minority militant social force (the Liberation Tigers of Tamil Eelam – The LTTE) which fought with the state to form a separate state. The several factors that backed to the defeat of the LTTE in 2009 by the military of the state. This defeat has appreciably weakened the Tamil minority. This study also reveals that contestations between different social forces within society, within the state, and between the state and society in Sri Lanka still prevail, hampering the promulgation of inclusive policies. This study concludes that inclusive policies are imperative to end state minority contestations in Sri Lanka.


Wacana Publik ◽  
2019 ◽  
Vol 12 (02) ◽  
Author(s):  
Syamsul Ma'arif

After had being carried out nationalization and hostility against west countries, the New Order regime made important decision to change Indonesia economic direction from etatism system to free market economy. A set of policies were taken in order private sector could play major role in economic. However, when another economic sectors were reformed substantially, effords to reform the State Owned Enterprises had failed. The State Owned Enterprise, in fact, remained to play dominant role like early years of guided democracy era. Role of the State Owned Enterprises was more and more powerfull). The main problem of reforms finally lied on reality that vested interest of bureaucrats (civil or military) was so large that could’nt been overcome. 


Author(s):  
Philippe Denis

This article focuses on working with children affected by HIV/AIDS in South Arica. In the early years of the AIDS epidemic, relief organizations focused their efforts on the material needs of children, but their psychological and emotional needs are no less important. Recognizing this, the Sinomlando Centre for Oral History and Memory Work in Africa, a research and community development center located at the University of KwaZulu-Natal, in Pietermaritzburg South Africa, has pioneered a model of psychosocial intervention for children in grief—particularly but not exclusively in the context of HIV/AIDS. This model uses the methodology of oral history in a novel manner, combined with other techniques such as life story work and narrative therapy. During the early years of the project, the model followed for the family visits was the oral history interview. A discussion on caregiver as the narrator and skills required in memory work especially in these cases concludes this article.


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