The Dismal Fate of Flourishing in Public Policy Bioethics

2019 ◽  
pp. 46-58
Author(s):  
John H. Evans
Keyword(s):  
Public Policy ◽  
Gene Editing ◽  
Human Gene ◽  
Human Flourishing ◽  
The Public ◽  
Sociological Explanation

The re-emerging debate about human gene editing appears to be limited to whether gene editing will effectively advance the ends, goals, or values of autonomy, beneficence, nonmaleficence, and justice. As is the case for most of contemporary bioethics, what is not being considered is a substantive debate about what our goals should be in gene editing—that is, the debate is not trying to establish an account of human flourishing. The chapter posits that the public would include many other goals in their moral calculus and discusses why it is important to have this broader discussion. Finally, the chapter turns to a sociological explanation for why this debate is “thin” and not “thick,” why it only asks about whether the means of human gene editing maximize certain fixed ends instead of what our ends—our flourishing—should be.

Engaging the Public at a Science Festival

2017 ◽  
Vol 39 (2) ◽  
pp. 250-277 ◽  
Author(s):  
Kathleen M. Rose ◽  
Kaine Korzekwa ◽  
Dominique Brossard ◽  
Dietram A. Scheufele ◽  
Laura Heisler
Keyword(s):  
Public Engagement ◽  
Gene Editing ◽  
Human Gene ◽  
The Public ◽  
Scientific Issue ◽  
Public Engagement With Science ◽  
Risk And Benefit ◽  
Science Activities

Theoretically and methodologically sound research on the reach and impact of public engagement practices continues to lag behind. Using the 2015 Wisconsin Science Festival as context, we empirically investigate the impacts of a public engagement activity about a nascent and controversial scientific issue, human gene editing. Overall, we find the panel increased participants’ understanding of the complexities of human gene editing, as demonstrated by increases in knowledge and the moral acceptability of the technology among respondents, as well as the associated risk and benefit perceptions. Practical and theoretical implications for science festivals and public engagement with science activities are discussed.

scholarly journals Surpassing our genes: The subversive post-human message of 'Gattaca'

2021 ◽  
Author(s):  
Emily Klein ◽  
Leah Ceccarelli
Keyword(s):  
Genetic Engineering ◽  
Gene Editing ◽  
Human Gene ◽  
Genetic Discrimination ◽  
The Public ◽  
Public Debates ◽  
Human Individual

The movie Gattaca is often referenced in public debates about the societal dangers of human gene editing. In the public imaginary, its message is clear: the dystopian future it portrays stands as a warning against the societal acceptance of genetic perfectionism and genetic discrimination. This article argues that such a reading misses a deeper message of this cinematic text. Rather than offer a bioethics lesson against the use of genetics to make better human babies, in our opinion, the film actually argues that such genetic tampering is unlikely to succeed, but that the genetic engineering of a superior post-human individual is both possible and desirable.

scholarly journals An Examination of Expert Discourse on Human Gene Editing Using Natural Language Processing

2020 ◽  
Author(s):  
Micah Musser
Keyword(s):  
Natural Language Processing ◽  
Key Words ◽  
Language Processing ◽  
Gene Editing ◽  
Human Gene ◽  
Global Politics ◽  
The Public ◽  
New Gene ◽  
Research Questions ◽  
Key Terms

This research aims to explore the different ways in which scientists, ethicists, journalists, and officialcommissions speak to the public about new gene editing technologies. After building and preprocessingdatasets of writings from each type of author, I examined frequencies of a number of key words, traineda sentiment classifier based on 5,000 hand-labeled sentences, and explored the type of sentiments used todiscuss different issues. Key research questions included the degree of optimism or pessimism expressedby each type of author, the sentiment used in discussions about the global politics of gene editing, and thefrequency with which key terms are used by each category of expert.

Implementation of the Child Identity Card Policy in Bandung Regency

2019 ◽  
Vol 15 (1) ◽  
Author(s):  
Rodlial Ramdhan Tackbir Abubakar
Keyword(s):  
Public Policy ◽  
Policy Implementation ◽  
Research Method ◽  
The Public ◽  
Implementation Model ◽  
Edward Iii ◽  
Identity Card ◽  
Descriptive Approach ◽  
The Republic ◽  
Identity Cards

Previously, Indonesia only issued Identity Cards for citizens who had reached the age of 17 years. However, after the presence of a new policy from the Interior Ministry of the Republic of Indonesia contained in the Republic of Indonesia Minister of Home Affairs Regulation Number 2 concerning Child Identity Cards, now Indonesian citizens who are less than 17 years old can have an identity card in the form of a Child Identity Card. The main problem in this research are the limitations of blanks and need additional personnel to improve services, especially in the context of issuing child Identity Cards. Besides, the realization of the issuance of child identity cards still far from the target and socialization to the public has not been conveyed in its entirety.. This study aims to examine how the implementation of Child Identity card in Bandung Regency. The research method used is qualitative with descriptive approach. This research is presented by using a narrative that discusses the implementation of child identity card policies in Bandung Regency. The focus of this research emphasizes the implementation model of Edward III covering communication, resources, disposition, and bureaucratic structure. The result of the research shows that implementation of Child Identity card in Bandung Regency has run optimally.Keywords : Public Policy; Policy Implementation; Identity CardAfandi, Warjio.2015. Implementasi Peraturan Daerah Kabupaten Asahan Nomor 11 Tahun 2011 tentang Pajak Daerah dalam Pencapaian Target Pajak Bumi dan Bangunan Perdesaan dan Perkotaan. Jurnal Administrasi Publik.Vol. 6, Nomor 2Afrizal. 2017. Pelaksanaan Kebijakan Pembuatan Kartu Identitas Anak di Kota Bandar Lampung. Universitas LampungAryanti. 2014. Implementasi Kebijakan Kependudukan Di Kabupaten Kuantan Singingi (Studi Kasus Pengurusan Akta Kelahiran Tahun 2012). Jurnal Online Mahasiswa FISIP. Vol. 1, Nomor 2, Halaman 2.Dwitamara. 2013. Pengaturan dan Implementasi Mengenai Hak Anak. Jurnal Hukum. Vol.18, Nomor 2, Halaman 1.Edwards III. 1980. Implementing Publik Policy. Congresinal. Quartely pressErdani, Indarja, Harjanto. 2017. Pelaksanaan Peraturan Menteri Dalam Negeri Nomor 2 Tahun 2016 Tentang Kartu Identitas Anak di Kota Semarang. Diponegoro Law Journal. Vol.6, Nomor 2, Halaman 2.  Hafrida. 2016. Perlindungan Hukum Anak. Jurnal Ilmu Hukum, Ragam Jurnal. Vol. 7 Nomor 2, Halaman 1Monica, Noak, Winaya. 2015. Implementasi Kebijakan Kartu Tanda Penduduk Elektronik (E-Ktp) Studi Kasus di Kecamatan Denpasar Utara Provinsi Bali. Citizen charter journal. Vol.1 Nomor 2, Halaman 3.Muh. 2018. Respon Orang Tua Terhadap Kartu Identitas Anak. Universitas Islam Negeri Sunan Kalijaga YogyakartaMustafa, Syahbandir. 2016. Penggunaan Diskresi oleh Pejabat Pemerintah untuk Kelancaran Penyelenggaraanpemerintahan Daerah. Jurnal Magister Ilmu Hukum, 4(2)Nugroho. 2009. Public Policy : Dinamika kebijakan, Analisis Kebijakan, Manajemen Kebijakan. Jakarta. GramediaPradika. 2018. Implementasi Kebijakan Kartu Identitas Anak (Kia) di Dinas Kependudukan dan Pencatatan Sipil Kota Yogyakarta. Sekolah Tinggi Pembangunan Masyarakat Desa YogyakartaRahmawati. 2018. Efektivitas Pelaksanaan Program Kartu Identitas Anak (KIA) Di Dinas Kependudukan dan Catatan Sipil Kota Cilegon 2017. Universitas Sultan Ageng TirtayasaRamdhani, Ramdhani. 2017. Konsep Umum Pelaksanaan Kebijakan Publik. Jurnal Publik. Vol 11, Nomor 1, Halaman 10Subarsono. 2005. Analisis Kebijakan Publik. Yogyakarta. Pustaka pelajarSubarsono. 2013. Analisis Kebijakan Publik. Yogyakarta. Pustaka pelajarSudrajat. 2011. Perlindungan Hukum Anak Sebagai Hak Asasi Manusia. Jurnal Ilmu Hukum. Vol. 13, Nomor 2, Halaman 1 Suryono. 2014. Kebijakan Publik untuk Kesejahteraan Rakyat. Jurnal Ilmu Ilmiah. Vol.6, Nomor 2, Halaman 98Tangkilisan. 2003.Implementasi kebijakan publik : transformasi pikiran George Edward. Yogyakarta. Lukman Offset dan yayasan pembaruan administrasi publik indonesia.Wahab.2010. Pengantar Analisis Implementasi Kebijakan Negara. Jakarta: Rineka Cipta.Wardhani, Hasiolan, Minarsih. 2016. Pengaruh Lingkungan Kerja, Komunikasi, dan Kepemimpinan Terhadap Kinerja Pegawai. Journal of Management.Vol.2, Nomor 2Widodo. 2011. Analisis Kebijakan Publik: Konsep dan Aplikasi Analisis Proses Kebijakan Publik. Malang. Bayu MediaWinarno. 2007. Teori dan Proses Kebijakan Publik. Yogyakarta. Media PressindoWiranata. 2013.Perlindungan Hukum Anak. Jurnal Hukum Unsrat  Vol.1, Nomor 3, Halaman 5. Peraturan Perundang-undanganUndang-undang Nomor 24 Tahun 2013 Tentang Perubahan Atas Undang-Undang Republik Indonesia Nomor 23 Tahun 2006 tentang Administrasi KependudukanPeraturan Menteri Dalam Negeri Republik Indonesia nomor 2 Tahun 2016 tentang Kartu Identitas Anak.

Design as an Agent for Public Policy Innovation

2019 ◽  
Vol 2 (1) ◽  
Author(s):  
Federico VAZ ◽  
Sharon PRENDEVILLE
Keyword(s):  
Public Policy ◽  
Process Model ◽  
Public Policies ◽  
Policy Innovation ◽  
Design Methods ◽  
Policy Effectiveness ◽  
The Public ◽  
Dependent Activity ◽  
Effectiveness And Efficiency ◽  
Context Dependent

Described as units developing public policies in a design-oriented manner, Policy Labs are tasked to innovate to gain in policy effectiveness and efficiency. However, as public policymaking is a context-dependent activity, the way in which these novel organisations operate significantly differs. This study discusses the emergence of design approaches for policy innovation. The purpose is to map how Policy Labs in Europe introduce design approaches at distinct stages of the policymaking cycle. For this study, 30 organisations in Europe operating at various levels of government were surveyed. Based on the public policymaking process model, it investigates which design methods are Policy Labs deploying to innovate public policies. The study exposed a gap in the awareness of the utilised methods' nature. It also showed that the use of design methods is of less importance than the introduction of design mindsets for public policy innovation, namely ‘user-centredness’, ‘co-creation’, and ‘exploration’.

Resurrected Bodies

2010 ◽  
Vol 39 (1) ◽  
pp. 3-6 ◽  
Author(s):  
Arlene Macdonald
Keyword(s):  
Public Policy ◽  
Lived Experience ◽  
Organ Transplant ◽  
Transplant Recipients ◽  
Ethical Considerations ◽  
The Public ◽  
Professional Activities ◽  
Faith Traditions ◽  
Anthropological Literature ◽  
Religious Actors

The anthropological literature on transplant, though theoretically and ethnographically rich, does not address religion in any substantial way. And while bio-ethical considerations of transplant regularly address religion, treatments are generally circumscribed to a list of various faith traditions and their stance toward organ transplant. Such a presentation reduces “religion” to the world’s recognized faith traditions, “religious actors” to the official spokespersons of these traditions, and “religious belief” to moral injunctions. The objective of the thesis was to illuminate the prominent place of religion in the lived experience of transplant recipients and donors, in the public policy and professional activities of transplant officials, and in the transplant discourses of North America

Partisipasi Masyarakat dalam Proses Kebijakan Daerah

2012 ◽  
Vol 10 (2) ◽  
pp. 163-177
Author(s):  
Abdullah Manshur
Keyword(s):  
Public Policy ◽  
Public Participation ◽  
Policy Evaluation ◽  
Policy Process ◽  
Policy Formulation ◽  
Problem Situation ◽  
Policy Cycle ◽  
Policy Makers ◽  
The Public ◽  
Policy Making Process

Public policy is a decision to deal with a particular problem situation, that identifies the objectives, principles, ways, and means to achieve them. The ability and understanding of policy makers in the policy-making process is very important for the realization of public policy of rapid, accurate and adequate. The product to suit the needs of the public policy, public participation in the policy process is needed in the policy cycle, from policy formulation to policy evaluation. This paper attempts to review the importance of community participation and other forms of public participation in the policy process, in particular, policy areas.

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