scholarly journals Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries

2011 ◽  
Vol 70 (6) ◽  
pp. 1074-1079 ◽  
Author(s):  
Tanja A Stamm ◽  
Malin Mattsson ◽  
Carina Mihai ◽  
Juliane Stöcker ◽  
Alexa Binder ◽  
...  
Keyword(s):  
Systemic Sclerosis ◽  
Hand Function ◽  
Health Condition ◽  
European Countries ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Focus Group Interviews ◽  
Team Care ◽  
Group Interviews

ObjectiveTo describe the experiences of people with systemic sclerosis (SSc) in different European countries of functioning and health and to link these experiences to the WHO International Classification of Functioning, Disability and Health (ICF) to develop a common understanding from a bio-psycho-social perspective.MethodA qualitative multicentre study with focus-group interviews was performed in four European countries: Austria, Romania, Sweden and Switzerland. The qualitative data analysis followed a modified form of ‘meaning condensation’ and the concepts that emerged in the analysis were linked to the ICF.Results63 people with SSc participated in 13 focus groups. In total, 86 concepts were identified. 32 (37%) of these were linked to the ICF component body functions and structures, 21 (24%) to activities and participation, 26 (30%) to environmental factors, 6 (7%) to personal factors and 1 (1%) to the health condition itself. 19 concepts (22%) were identified in all four countries and included impaired hand function, household activities, paid work, drugs, climate and coldness, support from others and experiences with healthcare institutions, non-pharmacological treatment, social security and benefits.ConclusionConcepts identified in all four countries could be used for guiding clinical assessment, as well as interdisciplinary team care and rheumatological rehabilitation for patients with SSc. For a full understanding of the aspects of the disease that were most relevant to people with SSc, people with SSc from multiple countries needed to be involved.

Which Aspects of Functioning Are Relevant for Patients with Ankylosing Spondylitis: Results of Focus Group Interviews

2009 ◽  
Vol 36 (11) ◽  
pp. 2501-2511 ◽  
Author(s):  
ANNELIES BOONEN ◽  
MONIQUE van BERKEL ◽  
ALARCOS CIEZA ◽  
GEROLD STUCKI ◽  
DÉSIRÉE van der HEIJDE
Keyword(s):  
Health Status ◽  
Ankylosing Spondylitis ◽  
Focus Group ◽  
Self Report ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Focus Group Interviews ◽  
Group Sessions ◽  
Group Interviews ◽  
Disease Specific

Objective.To investigate whether concepts important to patients with ankylosing spondylitis (AS) are covered by disease-specific self-report health status instruments.Methods.A qualitative focus group study was conducted with AS patients on problems in daily functioning. Group sessions with 4 to 5 patients each were organized up to the point that no new information was brought forward. Group sessions were tape-recorded, transcribed, and divided into meaning units. Concepts contained in the meaning units were extracted. Self-report instruments on health status specific for AS were identified in a literature search. Using the International Classification of Functioning, Disability and Health (ICF) as a common reference, it was determined whether the concepts identified in the focus groups were covered by the instruments.Results.Nineteen patients participated in 4 focus group interviews. In total, 332 unique meaning units were linked to 90 second-level ICF categories, of which 25 referred to body functions, 10 to body structures, 35 to activities and participation and 30 to environmental factors. In addition, several concepts relating to personal factors were identified. Only 47 categories were also covered by one of the self-report instruments in AS. Only a minority of concepts addressed by the AS-specific questionnaires were not revealed as relevant in the interviews.Conclusion.Relevant aspects of the influence of AS are not covered by the classic disease-specific instruments. In particular, the influence of AS on socializing and leisure and the relevance of environmental and personal factors are not adequately assessed by available instruments.

Personal factors in rehabilitation

2019 ◽  
pp. 339-346
Author(s):  
Manoj Sivan ◽  
Margaret Phillips ◽  
Ian Baguley ◽  
Melissa Nott
Keyword(s):  
Lived Experience ◽  
Belief Systems ◽  
Health Condition ◽  
International Classification Of Functioning ◽  
Personality Factors ◽  
Health State ◽  
Personal Factors ◽  
Health Model ◽  
Patient’S Perception

A patient’s perception of their journey through rehabilitation is based on their personal aspirations and expectations as filtered through the value and belief systems within which they live. From these internal constructs, the uniqueness of an individual’s lived experience emerges and explains how two individuals with the same health condition or health state may respond to their situation very differently. This chapter covers contextual factors within the International Classification of Functioning, Disability and Health model, personality factors, attitudes, skills, and behaviour patterns in the context of how an individual will react to rehabilitation.

Wheelchairs and seating

2019 ◽  
pp. 305-318
Author(s):  
Manoj Sivan ◽  
Margaret Phillips ◽  
Ian Baguley ◽  
Melissa Nott
Keyword(s):  
Health Condition ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Freedom Of Movement ◽  
Health Model ◽  
The Individual ◽  
And Function ◽  
Life Roles

Freedom of movement is an essential component of independence and mobility is closely associated with quality of life. People who have difficulty with independent walking often require a wheelchair to assist with mobility. The International Classification of Functioning, Disability and Health model can be used to guide the provision of wheelchairs and seating through consideration of the individual personal factors and preferences, environmental limitations, the person’s desired activities and participation in life roles, as well as the person’s health condition or impairments of body structure and function. This chapter describes the steps in prescribing a wheelchair, types of manual and powered wheelchairs, and specialized seating and positioning components.

scholarly journals PERSONAL FACTORS AND THEIR PERSPECTIVE IN SOCIAL MEDICINE AND REHABILITATION

2017 ◽  
Vol 5 (7) ◽  
pp. 374-389
Author(s):  
Wolfgang Seger ◽  
Sabine Grotkamp ◽  
Wolfgang Cibis
Keyword(s):  
World Health Organisation ◽  
Health Condition ◽  
World Health ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Goal Definition ◽  
Medical Benefits ◽  
Degree Of Participation ◽  
Common Understanding

Motivation / Background: A broad and common understanding of the nature of Personal Factors is deemed to be necessary to gain and assess a comprehensive perspective regarding an individual’s health condition and accurately allocate social and medical benefits and interventions. Personal Factors have an impact on the functioning of individuals as facilitators or barriers. They play an essential role in the International Classification of Functioning, Disability and Health (ICF). To date, the World Health Organisation has not classified Personal Factors for global use. Method: A consensus group representing a broad spectrum of medical and social security professionals, research societies together with representatives of self-help organisations developed and published a proposal to classify relevant Personal Factors. Results: To face ongoing discussions misunderstandings are addressed, critics and suggestions balanced and positions created with pointed explanations and supplemented literature. Core messages summarise each position in a condensed form. Conclusions: Personal Factors may exert a powerful influence on the goal definition, goal achievement and type, complexity and length of necessary medical, social or rehabilitation benefits. Transparency, explicitness, fairness (standardisation) and the possibility for well-founded claims comprise additional arguments for reporting Personal Factors. They may be crucial to reach the goal of the highest degree of participation considering individual resources.

Functionality changes of migraine women

2018 ◽  
pp. 183-189
Author(s):  
Alyne Karine Lima Santos ◽  
Hugo Feitosa ◽  
Suellen F Silva ◽  
Manuella Moraes Monteiro Barbosa Barros ◽  
Josepha Karinne de Oliveira Ferro ◽  
...  
Keyword(s):  
Focus Group ◽  
International Headache Society ◽  
The Body ◽  
International Classification Of Functioning ◽  
Body Structure ◽  
Focus Group Interviews ◽  
Function Domain ◽  
Group Interviews ◽  
Structure Domain

Objective: Identification of changes in functionality of women with migraine according to the International Classification of Functioning, Disability, and Health (ICF). Method: This is a qualitative study conducted in the format of focus group interviews, which included women between 18 and 55 years old diagnosed with migraine based on the criteria of the International Headache Society. The women were divided into groups with averages of two to four people and, guided by a moderator, they were encouraged to talk about the influence of migraine on performing the tasks to which they are exposed daily, taking into account the environment in which they are inserted. The categories that reached the 30% agreement cutoff point in the groups were approved. Results: There were 10 rounds of interviews, each with a focus group with an average of two to four people, totaling 29 women with a mean age of 35 years old (95% CI: 18 - 51). Eighteen categories were approved, four in the Body Function domain, four in the Body Structure domain, six categories in the Activity and Participation domain and four categories in the Environmental Factors domain. Conclusion: Women with migraine perceive lteration in functionality in all ICF domains, with the Activities and Participation domain presenting the most mentioned categories.

The International Classification of Functioning, Disability, and Health (ICF) as a community participation model for people with multiple sclerosis: A hierarchical regression analysis

2020 ◽  
Vol 26 (2) ◽  
pp. 55-72
Author(s):  
Joseph Pfaller ◽  
Fong Chan ◽  
Kanako Iwanaga ◽  
Jia-Rung Wu ◽  
Stuart Rumrill ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Regression Analysis ◽  
Community Participation ◽  
International Classification Of Functioning ◽  
Self Management ◽  
Hierarchical Regression ◽  
Personal Factors ◽  
Disability And Health ◽  
The Relationship

AbstractMultiple sclerosis (MS) is a central nervous system disorder that impacts more than 400,000 people in the U.S. The disease results in multiple functional impairments that are diverse and varied across individuals. Additonally, MS has a profound impact on community participation which, like other rehabilitation outcomes, cannot be explained on the basis of functional limitations alone. The purpose of this study was to develop and evaluate a model of community participation for people living with MS using the World Health Organization (WHO) International Classification of Functioning, Disability, and Health (ICF) framework. The model focused on the roles that personal factors have as predictors of community participation, while also serving as mediators and moderators for the relationship between activity limitation and participation. Results from the hierarchical regression analysis indicated that demographic characteristics (i.e. MS type), personal factors (i.e. core self-evaluations (CSE), MS self-management, resilience, and social skills), and activity limitations accounted for 64% of the variance in participation. Further, mediation analysis indicated that CSE mediated the relationship between activity limitation and community participation. Finally, moderation analysis indicated an interaction effect between educational attainment and MS self-management. Implications for future research in rehabilitation and clinical application are discussed.

scholarly journals Dysphonia in adults with developmental stuttering: A descriptive study

2017 ◽  
Vol 64 (1) ◽  
Author(s):  
Anél Botha ◽  
Elizbé Ras ◽  
Shabnam Abdoola ◽  
Jeannie Van der Linde
Keyword(s):  
Voice Quality ◽  
Severity Index ◽  
Health Condition ◽  
World Health ◽  
International Classification Of Functioning ◽  
Future Research ◽  
Positive Correlations ◽  
Developmental Stuttering ◽  
Moderate Positive Correlation

Background: Persons with stuttering (PWS) often present with other co-occurring conditions. The World Health Organization’s (WHO) International Classification of Functioning, Disability and Health (ICF) proposes that it is important to understand the full burden of a health condition. A few studies have explored voice problems among PWS, and the characteristics of voices of PWS are relatively unknown. The importance of conducting future research has been emphasised.Objectives: This study aimed to describe the vocal characteristics of PWS.Method: Acoustic and perceptual data were collected during a comprehensive voice assessment. The severity of stuttering was also determined. Correlations between the stuttering severity instrument (SSI) and the acoustic measurements were evaluated to determine the significance. Twenty participants were tested for this study.Result: Only two participants (10%) obtained a positive Dysphonia Severity Index (DSI) score of 1.6 or higher, indicating that no dysphonia was present, while 90% of participants (n = 18) scored lower than 1.6, indicating that those participants presented with dysphonia. Some participants presented with weakness (asthenia) of voice (35%), while 65% presented with a slightly strained voice quality. Moderately positive correlations between breathiness and SSI (r = 0.40, p = 0.08) have been reported. In addition, participants with high SSI scores also scored a poor DSI of below 1.6, as observed by a moderate positive correlation between SSI and DSI (r = 0.41).Conclusion: The majority of PWS presented with dysphonia, evident in the perceptual or acoustic parameters of their voices. These results can be used for further investigation to create awareness and to establish intervention strategies for voice disorders among PWS.

scholarly journals An Integrated Account of Expert Perspectives on Functioning in Schizophrenia

2021 ◽  
Vol 10 (18) ◽  
pp. 4223
Author(s):  
Laura Nuño ◽  
Georgina Guilera ◽  
Emilio Rojo ◽  
Juana Gómez-Benito ◽  
Maite Barrios
Keyword(s):  
Content Validity ◽  
Expert Consensus ◽  
International Classification Of Functioning ◽  
Interdisciplinary Care ◽  
Personal Factors ◽  
Disability And Health ◽  
Professional Perspectives ◽  
Core Sets ◽  
Delphi Studies

An integrated and interdisciplinary care system for individuals with schizophrenia is essential, which implies the need for a tool that assesses the difficulties and contextual factors of relevance to their functioning, and facilitates coordinated working across the different professions involved in their care. The International Classification of Functioning, Disability and Health Core Sets (ICF-CS) cover these requirements. This study aimed to evaluate the content validity of the ICF-CSs for schizophrenia from the perspective of experts. Six three-round Delphi studies were conducted with expert panels from different professional backgrounds which have played a significant role in the treatment of individuals with schizophrenia (psychiatry, psychology, nursing, occupational therapy, social work and physiotherapy). In total, 790 experts from 85 different countries participated in the first round. In total, 90 ICF categories and 28 Personal factors reached expert consensus (reached consensus from four or more professional perspectives). All the categories in the brief version of the ICF-CS for schizophrenia reached consensus from all the professional perspectives considered. As for the comprehensive version, 89.7% of its categories reached expert consensus. The results support the worldwide content validity of the ICF-CSs for schizophrenia from an expert perspective and underline the importance of assessing functioning by considering all the components implied.

scholarly journals ICF Personal Factors Strengthen Commitment to Person-Centered Rehabilitation – A Scoping Review

2021 ◽  
Vol 2 ◽  
Author(s):  
Maarit Karhula ◽  
Sari Saukkonen ◽  
Essi Xiong ◽  
Anu Kinnunen ◽  
Tuija Heiskanen ◽  
...  
Keyword(s):  
Scoping Review ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Inclusion Criteria ◽  
Physical Context ◽  
Holistic Understanding ◽  
Socio Demographic Factors ◽  
And Behavior

Background: The International Classification of Functioning, Disability and Health (ICF) classification is a biopsychosocial frame of reference that contributes to a holistic understanding of the functioning of a client and the factors involved. Personal factors (PFs) are not currently classified in the ICF due to large societal and cultural diversity and lack of clarity in the scope of such factors.Aims: To ascertain which factors in the ICF classification have been defined as PFs in different studies and what conclusions have been drawn on their role in the ICF classification.Methods: The study was a scoping review. A systematic search for articles published in 2010–2020 was performed on the Cinahl, Pubmed, ScienceDirect, and Sport Discus databases. The PFs specified in the articles were classified according to the seven categories proposed by Geyh et al. socio-demographic factors; position in the immediate social and physical context; personal history and biography; feelings; thoughts and beliefs; motives; and general patterns of experience and behavior.Results: The search yielded 1,988 studies, of which 226 met the inclusion criteria. The studies had addressed a wide variety of PFs that were linked to all seven categories defined by Geyh et al. Some studies had also defined PFs that were linkable to other components of the ICF or that did not describe functioning. Approximately 22% (51) of the studies discussed the role of PFs in rehabilitation.Conclusions: The range of PFs in the ICF classification addressed in the reviewed studies is wide. PFs play an important role in rehabilitation. However, according to the reviewed studies, a more precise coding of PFs is not yet warranted.

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