scholarly journals Users’ evaluation of Japan’s cancer information services: process, outcomes, satisfaction and independence

2021 ◽  
Vol 10 (4) ◽  
pp. e001635
Author(s):  
Chikako Yamaki ◽  
Tomoko Takayama ◽  
Masayo Hayakawa ◽  
Fumihiko Wakao
Keyword(s):  
Information Service ◽  
Active Role ◽  
Information Support ◽  
Cancer Information ◽  
Measurement Tool ◽  
Related Factors ◽  
Level Of Satisfaction ◽  
Counselling Process ◽  
The Impact

BackgroundCancer information service (CIS) programmes are becoming increasingly important because patients need to obtain appropriate information and take an active role in their treatment decisions. Programme evaluation is required to determine the level of satisfaction and quality of experiences of users. The purpose of this study is (1) to identify users’ evaluation of CIS programmes by both satisfaction and outcomes that reflect the quality of experience and impact of using the CIS, (2) to examine the related factors of these evaluation outcomes and (3) to analyse the differences of those relations between patients and families.MethodThe self-reported questionnaire was answered by 447 patients and 216 families of patients who used Cancer Information Support Centres (CISCs) at 16 designated cancer hospitals from January 2016 to April 2016. We developed 12 evaluation items, including satisfaction, experience and the impact of using CISC.ResultsRespondents evaluated the CISC highly, especially in terms of overall satisfaction, followed by the counselling process. Immediate access to CISC was the strongest factor affecting outcomes. Patients who wanted to consult about ‘disease or symptoms’ or ‘had no specific problem’ tended to provide high scores for some outcomes, but those who wanted to consult about a ‘financial problem’ or ‘discharge or care at home’ provided negative scores. These trends were also observed in families but to a more limited extent.ConclusionUsers’ evaluation of CISCs was sufficiently high in terms of overall satisfaction, showing reasonable scores in outcome levels. Immediate access was the strongest factor affecting outcomes and topics of consultation more directly affected evaluation by patients than by families. The distribution of the scores of the measures and related factors was reasonable. The 12-item measurement tool employed in this study seems to be useful for quality monitoring of the CIS.

Evaluating the user-perceived benefit of a virtual patient education and support community: LVNG With Lung Cancer.

2021 ◽  
Vol 39 (28_suppl) ◽  
pp. 92-92
Author(s):  
Mona L. Martin ◽  
Kristin Bucklen ◽  
Lise J. Hall ◽  
Beth Sandy ◽  
Dann Wonser ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Health Behaviors ◽  
Health Knowledge ◽  
Qualitative Interviews ◽  
Virtual Community ◽  
Good Health ◽  
Active Role ◽  
Cancer Information ◽  
Perceived Benefit

92 Background: The accessibility and quality of network support for people living with lung cancer (PLW) and their support partners (SP) can vary. Virtual platforms provide a unique opportunity for PLW/SP peer support and disease education; the challenge is to measure impact. Methods: Our aim was to determine user-perceived benefit of the Facebook-based virtual community LVNG With Lung Cancer ( https://www.facebook.com/LVNGWithLungCancerUS ). Qualitative interviews were conducted with community members aged ≥18 yrs and living with lung cancer or actively supporting someone who had lung cancer. Also, inbound community comments (Dec 2015–Oct 2016) were retrospectively analyzed and grouped by similarity of content. Results: 18 PLW and 2 SP were interviewed (N = 20, saturation of concept met within the first 10). Mean yrs since diagnosis was 2.75 (range 0.08–17). Of the total expressions of benefit (n = 513) made during the interviews, 32% focused on increased health knowledge, with most participants calling out cancer information, good health behaviors, and coping strategies as key community benefits. Social impacts of the community accounted for 28% of benefit expressions; having a forum to share experiences and having a supportive environment were most frequently cited. An additional 18% of benefit expressions revealed that the community gives members feelings of empowerment, including feeling less alone (55% of respondents) and feeling inspired to help others (40% of respondents). Benefits received from community membership led to behavioral change in many respondents: 55% asked their doctor more questions, 50% shared helpful experiences with other members, and 35% took a more active role in their healthcare. In a notable example, an SP member said the community provided her with the knowledge she needed to address her symptoms and fears with her doctor, who was hesitant to biopsy because she did not meet typical risk criteria. Her self-advocacy was successful and ultimately led to an early lung cancer diagnosis. Results from the retrospective analysis of actual postings (n = 24,336; all unique users during evaluation period: n = 12,187) reflected the themes patients offered during interviews as important reasons to participate: 63% of postings were asking for or sharing cancer information, 98% provided emotional support and/or understanding, and 84% were inspirational/optimistic. Conclusions: This dual approach of assessing real-world impact of a virtual Facebook community provided insight into the benefit that members derive and highlighted the integral role of support groups in patient-centric care. Importantly, once members’ emotional and educational needs were met, they were empowered and/or inspired to take positive actions leading to better health behaviors and increased quality of life – an outcome that may have wider applicability for diseases beyond lung cancer.

scholarly journals Videoconferencing Psychotherapy: a literature review of the perspective of relationships for patients and psychologists (Preprint)

2020 ◽  
Author(s):  
Francesco Cataldo ◽  
Shanton Chang ◽  
Antonette Mendoza ◽  
George Buchanan
Keyword(s):  
Literature Review ◽  
Therapeutic Alliance ◽  
Therapeutic Relationship ◽  
Active Role ◽  
High Demand ◽  
Face To Face ◽  
Patient Relationships ◽  
The Impact ◽  
The Relationship

BACKGROUND During the COVID-19 pandemic, people are being encouraged to maintain social distance. Technology is helping people to reschedule meetings from “face-to-face” interactions to remote videoconferencing. Psychologists are in high demand, due to an increase in stress as a result of COVID. Many seek to both keep treating their current patients, and welcome new ones, given the current high demand for their services. Videoconferencing provides an opportunity to do this. However, shifting treatment from face-to-face to the videoconferencing is not simple as both the psychologist and the patient miss the in-person information and cues, such as body language provides. OBJECTIVE A new theoretical framework is proposed to guide the design of future studies on the impact of the computer as a mediator of psychologist-patient relationships, and the influence of videoconferencing on the whole relationship process. METHODS A literature review has been conducted, screening studies focusing on communication, and the key concepts of therapeutic relationship and therapeutic alliance. RESULTS Studies report that patients are generally satisfied with videoconference therapy in terms of the relationship with their therapists and the establishment of the “therapeutic alliance”. However, psychologists report difficulties in establishing same quality of therapeutic relationship and therapeutic alliance. The analysed studies lead us to interpret data under a different perspective. A new model of relationship is proposed, along with further hypotheses. CONCLUSIONS It is important to consider the computer as having an active role in psychologists and patients’ relationships. CLINICALTRIAL

A Pilot Study on Educational Workshops for Caregivers of Patients with Brain Tumors Called AGAPE Showed its Feasibility and the Maintain Caregiver’s Quality of Life Despite Patient’s Disease Progression.

2021 ◽  
Author(s):  
Héloïse Bourien ◽  
Elodie Pelotte ◽  
Aurélie Thébault ◽  
Claire Larible-Lefort ◽  
Frédérique Lebrun ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Brain Tumors ◽  
Disease Progression ◽  
Adjuvant Treatment ◽  
Progressive Disease ◽  
Level Of Satisfaction ◽  
The Impact ◽  
Very High

Abstract Background Several studies have highlighted the difficulties faced by caregivers of patients with brain tumors. We created the educational workshops called AGAPE. Their aim is to explain precisely the medical aspects of brain tumors, describe resources available, and allow a moment of exchange between caregivers. Purpose To evaluate outcomes of AGAPE. Methods This was an observational uncontrolled pilot study. Feasibility was evaluated by the caregivers’ attendance of the 2 theoretical scheduled sessions and their satisfaction. Additional outcomes were the percentage of caregivers in favour of AGAPE sustainability and the impact on their quality of life according to CarGOQoL questionnaires (Caregiver Oncology Quality of Life) between baseline before the first workshop and after the last one. Results From February 2015 to March 2019, 12 three-month sessions were organized allowing 87 caregivers to participate. 84% of caregivers attended at least 2 theoretical sessions, the level of satisfaction was very high, and all caregivers were in favor of AGAPE sustainability. 36 caregivers submitted completed questionnaires at baseline and after the last workshop attended, separated by more than 2 months. The first workshop took place mostly during or after the adjuvant treatment of their loved ones. Two-thirds of their loved ones had a progressive disease after the first workshop and 21 died. Caregivers’ quality of life was stable between the first and last attended workshop. Conclusion Our study showed that AGAPE helped to maintain caregiver’s quality of life despite patient’s disease progression and its feasibility. Moreover, AGAPE may easily be run in other hospitals.

INFORMATION SUPPORT OF THE MARKETING RESEARCH SYSTEM OF THE MINERAL WATER MARKET

2021 ◽  
Vol 298 (5 Part 1) ◽  
pp. 245-251
Author(s):  
Alona Tanasiichuk ◽  
Liudmila Serednytska ◽  
Nataliia Dobrovolska ◽  
Keyword(s):  
Mineral Water ◽  
Business Processes ◽  
Consumer Preferences ◽  
Marketing Research ◽  
Information Support ◽  
Water Market ◽  
Business Decisions ◽  
Mixed Form ◽  
Level Of Satisfaction

It has been demonstrated that in the conditions of overcoming the consequences of corona crisis an important issue is the organization of business processes, which, as of the time of the study, is carried out on a mixed form. It is substantiated that enterprises should assess their capabilities and be ready to make quick business decisions in the case of reintroduction of quarantine for enterprises. It is substantiated that the organization of marketing research of commodity markets and timely provision of managers of structural units with reliable information is important for the effective conduct of business by domestic enterprises on a mixed form. In the study the sequence of information support for marketing research of the mineral water market has been developed. The dynamics of incomes and the level of demand of mineral water consumers during the period of corona crisis has been determined. As a result of the research it was concluded that the mineral water market, unlike other sectors of the economy, has favorable prospects for further development. A portrait of a mineral water consumer and his level of satisfaction with the quality of mineral water, pricing and assortment policy on the domestic market have been determined. This study will determine consumer preferences for the choice of mineral water and take into account its results by domestic production and trade enterprises. Other enterprises will be able to develop a similar sequence of information support for marketing research of the commodity market in which they carry out their business activities.

scholarly journals Development and Validation of a Questionnaire Evaluating the Impact of Prosthetic Dental Treatments on Patients’ Oral Health Quality of Life: A Prospective Pilot Study

2020 ◽  
Vol 17 (14) ◽  
pp. 5037 ◽  
Author(s):  
Eitan Mijiritsky ◽  
Yael Lerman ◽  
Ori Mijiritsky ◽  
Asaf Shely ◽  
Joseph Meyerson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Pilot Study ◽  
Post Treatment ◽  
Self Report ◽  
Measurement Tool ◽  
The Novel ◽  
Prospective Pilot Study ◽  
The Impact

Objectives: the aims of this study were the development of a novel questionnaire to assess the impact of prosthetic treatments on oral health-related quality of life (OHRQoL) and the performance of a prospective pilot study. Background: the currently preferred OHRQoL measurement tool is the oral health impact profile-49 (OHIP-49), a self-report questionnaire which mainly focuses on general effects related to oral health. Materials and methods: A total of 24 adult participants (9 females and 15 males) were recruited and asked to complete the novel questionnaire twice: once before the prosthetic treatment began and 4–6 weeks post-treatment. The assessment of the change in OHRQoL was based on the differences in participants’ answers before and after treatment. Data were analyzed using ANOVA with a repeated-measures method and t-tests. The reliability of the questionnaire was tested using Cronbach’s alpha and intraclass coefficient (ICC). Results: The questionnaire was found to be reliable (α ≥ 0.6), with “social disability” having the highest score (α = 0.868). All domains showed an improvement (α < 0.005) in OHRQoL scores after treatment. Conclusions: the novel questionnaire tested in this study was found to be reliable and convenient to use, and demonstrated that prosthetic treatments have a significant positive effect on OHRQoL post-treatment scores.

scholarly journals Broad Spectrum project: factors determining the quality of antibiotic use in primary care: an observational study protocol from Italy

BMJ Open ◽  
2020 ◽  
Vol 10 (7) ◽  
pp. e038843
Author(s):  
Peter Konstantin Kurotschka ◽  
Alice Serafini ◽  
Marco Massari ◽  
Roberto Da Cas ◽  
Adolfo Figueiras ◽  
...  
Keyword(s):  
Drug Prescription ◽  
National Health System ◽  
Antibiotic Use ◽  
Antibiotic Consumption ◽  
Prescription Data ◽  
Italian Region ◽  
Related Factors ◽  
Knowledge And Attitudes ◽  
The Impact

IntroductionThe overuse of antibiotics is causing worldwide spread of antimicrobial resistance (AMR). Compared with other countries, Italy has both high antibiotic consumption rates and high rates of AMR. Due to the fact that around 90% of antibiotics are prescribed by general practitioners (GPs), this study aims to measure the impact of knowledge, attitudes and sociodemographic and workplace-related factors on the quality of antibiotic prescriptions filled by GPs in the Italian Region of Sardinia.Methods and analysisKnowledge, attitude, sociodemographic and workplace-related factors deemed to influence physicians prescribing behaviour will be evaluated in a cross-sectional study conducted among all GPs of the Italian Region of Sardinia (n=1200). A knowledge and attitudes questionnaire (Knowledge and Attitudes on Antibiotics and Resistance - Italian version: ITA-KAAR) accompanied by a sociodemographic form will be linked to drug prescription data reimbursed by the National Health System. European Surveillance of Antibiotic Consumption quality indicators for outpatient antibiotic use will be calculated from drug prescription records. Every GP will be deemed to have demonstrated an adequate quality of prescriptions of antibiotics if half of the indicator score plus one is better than the median of the region. A multivariate Poisson regression model with robust variance estimation will be used to evaluate the impact of the determinants of antibiotic prescriptions on the actual prescribing quality of each physician.Ethics and disseminationThe project has been approved by the ethics committee of the Regional Health Trust of Sardinia (176/2019/CE, 24 September 2019). The results will be useful to inform evidence-based interventions to tackle irrational antibiotic use in the community.

Evaluation of a Hospital-Based Utilization Management Program

1995 ◽  
Vol 8 (1) ◽  
pp. 38-45 ◽  
Author(s):  
Karen Cardiff ◽  
Geoffrey Anderson ◽  
Samuel Sheps
Keyword(s):  
Quality Of Care ◽  
Acute Care Hospital ◽  
Severity Of Illness ◽  
Management Program ◽  
Measurement Tool ◽  
Care Hospital ◽  
Readmission Rates ◽  
Utilization Management ◽  
The Impact

The objective of this study was to evaluate the impact of a utilization management (UM) program designed to decrease inappropriate use of acute care hospital beds while maintaining quality of care. The measure used to define appropriateness was the ISD-A, a diagnosis-independent measurement tool which relies on severity of illness and intensity of service criteria. The outcome measures for the study included appropriate admission to hospital and continued days of stay in hospital, 30-day readmission rates and physician perceptions of the impact of the intervention on quality of care, access to services and patient discharge patterns. The sample frame for the study included two control and two intervention community hospitals, involving 1,800 patient charts. Readmission rates were determined by analyzing all separations from medical services (N=42,014) in the two experimental and two control hospitals. All physicians with admitting privileges (N=312) at the intervention hospitals were surveyed; obstetricians, pediatricians, and psychiatrists were excluded from the survey. The results of the study demonstrated that the proportion of inappropriate admissions did not decrease significantly in any of the hospitals, but there were significant decreases in inappropriate continued stay in the intervention hospitals (p < 0.05). Both intervention and one of the control hospitals had lower 30-day readmission rates in the “after” period than in the “before” period (p < 0.05). Eighty-six percent believed that there had been no adverse impact on access to care and, although 25% thought the program may have led to premature discharge, this was not supported by the readmission data.

scholarly journals The Impact of Quality of Life on the Health of Older People from a Multidimensional Perspective

2018 ◽  
Vol 2018 ◽  
pp. 1-7 ◽  
Author(s):  
Luis Miguel Rondón García ◽  
Jose Manuel Ramírez Navarrro
Keyword(s):  
Quality Of Life ◽  
Meta Analysis ◽  
Social Contact ◽  
Well Being ◽  
The Elderly ◽  
Subjective Health ◽  
Level Of Satisfaction ◽  
Capacity Level ◽  
The Impact

Background. This research analyzes the impact of quality of life as a metavariable that conditions the health and social welfare of the elderly. The sample of this study is composed of 500 people, randomly selected from the major day centers for the elderly in the province of Granada (Spain).Method. For the inferential analysis, we used the CUBRECAVI questionnaire, which is a multidimensional scale of health and quality of life, along with the Katz and García measure questionnaires, which are also applied to quality of life. Through the technique of the interview, we have distributed the participants into two groups: experimental and control.Results and Conclusions. Once the tests have been completed, we have concluded from the meta-analysis and validation tests that the participants have a good perception of their quality of life, considering health, leisure, environmental quality, functional capacity, level of satisfaction, social support, social networks, and positive social interactions as the determinants of their well-being, although social contact reduces as the age advances. We conclude that multidimensional evaluation is an effective tool to evaluate the quality of life and the objective and subjective health of the elderly. These variables can be related to the improvement of health and well-being.

Changing Trend of Population Migration in China and Its Spatial Pattern

2016 ◽  
Vol 04 (04) ◽  
pp. 1650032
Author(s):  
Ning WANG
Keyword(s):  
Spatial Pattern ◽  
Migrant Workers ◽  
Active Role ◽  
Small Towns ◽  
Migrant Population ◽  
Balanced Development ◽  
Changing Trend ◽  
New Generation ◽  
The Impact

Based on the data from the sixth national census of the population at the county level, this paper comprehensively analyzes the changing trend of the migration of the population in China and its spatial pattern at national, large regional and urban levels. The results show that: (1) the overall scale of the migration of the population in China presents a constantly increasing trend, and the pattern that the Eastern regions are still the primary destination does not change; however, migration to the Central and Western regions shows a rapid growth; (2) the generational change of the migrant population has obvious characteristics, and a great number of the new generation of migrant workers call for higher demands regarding the quality of future urbanization; (3) the aggregates of the migrant population in cities at the prefecture level and above, especially in metropolises and megacities, are obvious, and small towns play an active role in absorbing the migrant population nearby; (4) the activity of the migration of the population in cities is closely related to their economic development, administrative level, etc. In the future, we should attach importance to the new requirements of urban development proposed by the structural change in the migration of the population, weaken the impact of the urban administrative level on migration, and promote a balanced development of the urban scale system.

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