Using pollutant release and transfer register data in human health research: a scoping review

2014 ◽  
Vol 22 (1) ◽  
pp. 51-65 ◽  
Author(s):  
Osnat Wine ◽  
Cian Hackett ◽  
Sandy Campbell ◽  
Orlando Cabrera-Rivera ◽  
Irena Buka ◽  
...  
Keyword(s):  
Human Health ◽  
Scoping Review ◽  
Health Research ◽  
Research Needs ◽  
Right To Know ◽  
Environmental Health Research ◽  
Literature Searches ◽  
Health Related ◽  
Research And Policy ◽  
Analyze Data

Pollutant release and transfer registers (PRTRs) collect and provide information on chemicals released to the environment or otherwise managed as waste. They support the public’s right-to-know and provide useful information in gauging performance of facilities, sectors, and governments. The extent to which these data have been used in research, particularly in relation to human health, has not been documented. In this scoping review our objective was to learn from scholarly literature the extent and nature of the use of PRTR data in human health research. We performed literature searches (1994–2011) using various search engines and (or) key words. Articles selected for review were chosen following predefined criteria, to extract and analyze data. One hundred and eighty four papers were identified. Forty investigated possible relations with health outcomes: 33 of them identified positive associations. The rest explored other uses of PRTR data. Papers identified challenges, some imputable to the PRTR. We conclude that PRTR data are useful for research, including health-related studies, and have significant potential for prioritizing research needs that can influence policy, management, and ultimately human health. In spite of their inherent limitations, PRTRs represent a perfectible, unique useful source, whose application to human health research appears to be underutilized. Developing strategies to overcome these limitations could improve data quality and increase its utility in future environmental health research and policy applications.

scholarly journals Conceptual model of comprehensive research metrics for improved human health and environment

2009 ◽  
Vol 14 (2) ◽  
pp. 519-531 ◽  
Author(s):  
Jill Engel-Cox ◽  
Bennett Van Houten ◽  
Jerry Phelps ◽  
Shyanika Rose
Keyword(s):  
Environmental Health ◽  
Human Health ◽  
Health Research ◽  
Research Process ◽  
Logic Model ◽  
Grant Programs ◽  
Environmental Health Sciences ◽  
Research Programs ◽  
Environmental Health Research ◽  
Near Term

Performance measurement predominantly consisted of near-term outputs measured through bibliometrics, but the recent focus is on accountability for investment based on long-term outcomes. Our objective is to build a logic model and associated metrics through which to measure the contribution of environmental health research programs to improvements in human health, the environment, and the economy. We developed a logic model that defines the components and linkages between extramural environmental health research grant programs and the outputs and outcomes related to health and social welfare, environmental quality and sustainability, economics, and quality of life, focusing on the environmental health research portfolio of the National Institute of Environmental Health Sciences (NIEHS) Division of Extramural Research and Training and delineates pathways for contributions by five types of institutional partners in the research process. The model is being applied to specific NIEHS research applications and the broader research community. We briefly discuss two examples and discuss the strengths and limits of outcome- based evaluation of research programs.

scholarly journals Intersectionality-based quantitative health research and sex/gender sensitivity: a scoping review

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Emily Mena ◽  
◽  
Gabriele Bolte
Keyword(s):  
Gender Differences ◽  
Scoping Review ◽  
Health Research ◽  
Quantitative Data ◽  
Social Dimensions ◽  
Gender And Race ◽  
Health Related ◽  
Quantitative Analyses ◽  
Race Ethnicity ◽  
The U.S

Abstract Background The implementation of a theoretical intersectionality framework into quantitative data analyses is gaining increasing interest in health research. The substantive foundation of intersectionality was established in the U.S., based on the claim of black feminists to broaden the scope of contemporary gender studies by considering the intersection between sex/gender and race/ethnicity more firmly. The aim of our scoping review with particular emphasis on sex/gender was to assess how intersectionality-informed studies in epidemiological research considered different social dimensions in their multivariable and multivariate analyses. Methods Following the PRISMA Extension for Scoping Reviews (PRISMA-ScR), we conducted a literature review in PubMed. Three distinct health-related fields were brought into focus: diabetes representing a frequent chronic disease, smoking as a wide-spread behavioural health determinant and physical activity as a central target for health promotion. Initially, we compared which and how different social dimensions were accounted for and how inter-categorical and intersectionality-informed analyses were conducted. Further, we assessed sex/gender sensitivity by comparing operationalisation of sex/gender, how sex/gender theories were used and which central theoretical sex/gender concepts were referred to when aiming at explanation of (intersectional) sex/gender differences. Results Our results suggest, that intersectionality-based analyses within the three selected health-related fields are mainly conducted in the U.S. and focused on the intersection between sex/gender and race/ethnicity by using them jointly as subgrouping variables and as parts of interaction terms in regression analyses. Income and education as proxies for social class as well as age are mainly used for adjustment in quantitative analyses. Other approaches for calculating interactions (i.a. synergy-index, CART-analysis) are an exception. Even though sex/gender was considered in every included study and Gender was the most frequent theoretical sex/gender concept referred to when theoretically explaining sex/gender differences, it was exclusively operationalised as binary and solution-linked sex/gender variables were hardly considered in quantitative analyses. Conclusion The systematic integration of solution-linked variables indicating modifiable aspects of sex/gender-related living conditions and disadvantages could improve sex/gender sensitivity as part of intersectionality-based quantitative data analysis in health research.

Highlighting Resilience

2017 ◽  
Author(s):  
Elizabeth Hoover
Keyword(s):  
Health Care ◽  
Environmental Health ◽  
Environmental Contamination ◽  
Health Research ◽  
Third Space ◽  
Research Needs ◽  
Environmental Health Research ◽  
The Face ◽  
The Individual

The book’s conclusion highlights how Akwesasro:non suggestions for ways to improve environmental health research and health care can be framed through a model of three bodies: the individual, social, and political bodies. This final chapter also explores how Mohawks have created a third space of sovereignty that addresses their health, cultural and research needs in the face of environmental contamination, through grassroots and tribal programs

Strategies of communicating health-related risks to vulnerable groups of immigrants during a pandemic: a scoping review of qualitative and quantitative evidence

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Olena Koval ◽  
Ole Andreas Engen ◽  
Jacob Kringen ◽  
Siri Wiig
Keyword(s):  
Risk Communication ◽  
Scoping Review ◽  
Community Education ◽  
Communication Strategies ◽  
Vulnerable Groups ◽  
Content Type ◽  
Literature Searches ◽  
Related Risk ◽  
Health Related ◽  
Academic Search

PurposeThe purpose of this rapid scoping review was to map existing literature on risk communication strategies implemented by authorities and aimed at vulnerable immigrants in the context of pandemics.Design/methodology/approachExisting literature on the topic was charted in terms of its nature and volume by summarizing evidence regarding the communication strategies. Literature searches were conducted in Academic Search Premier and CINAHL, databases were searched from 2011 to present on March 31, 2021.FindingsFive articles met the criteria and were included in this review, pointing at limited research in this area. The findings indicated that a close interaction between communication authorities and immigrants is important. Community education, building trust in communication sources, clear risk communication and inclusive decision-making among all were found to be important when communicating health risks to immigrants.Research limitations/implicationsThe primary limitation of this rapid scoping review is that the literature searches were conducted in only two databases, namely, Academic Search Premier and CINAHL. A wider search across several other databases could have given more profound results. Furthermore, some studies where immigrants were conceptualized as, for instance, “disadvantaged groups” might be overseen due to a choice of the search strategy used in this study. There are also certain limitations related to the studies included in this review.Practical implicationsIdentifying efficient ways of conveying recommendations may further assist authorities and scientists in developing more effective health-related risk communication.Originality/valueThis study covered health-related risk communication in the context of pandemics, addressing the need to investigate different groups of immigrants and the challenges related to communicating risks to these groups.

scholarly journals Use of infographics as a health-related knowledge translation tool: protocol for a scoping review

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e046117
Author(s):  
Esther Mc Sween-Cadieux ◽  
Catherine Chabot ◽  
Amandine Fillol ◽  
Trisha Saha ◽  
Christian Dagenais
Keyword(s):  
Knowledge Translation ◽  
Scoping Review ◽  
Health Research ◽  
Information Science ◽  
Data Extraction ◽  
Relevant Literature ◽  
Data Extraction Form ◽  
Health Related ◽  
Study Designs ◽  
User Friendly

IntroductionEfforts to bridge the know–do gap have paved the way for development of the field of knowledge translation (KT). KT aims to understand how evidence use can best be promoted and supported through different activities. For dissemination activities, infographics are gaining in popularity as a promising KT tool to reach multiple health research users (eg, health practitioners, patients and families, decision-makers). However, to our knowledge, no study has yet mapped the available evidence on this tool using a systematic method. This scoping review will explore the depth and breadth of evidence on infographics use and its effectiveness in improving research uptake (eg, raising awareness, influencing attitudes, increasing knowledge, informing practice and changing behaviour).Methods and analysisWe will use the scoping review methodological framework first proposed by Arksey and O’Malley (2005), improved by Levac et al, and further refined by the Joanna Briggs Institute (2020). The search will be conducted in MEDLINE, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, Social Science Abstracts, Library and Information Science Abstracts, Education Resources Information Center, Cairn and Google Scholar. We will also search for relevant literature from the reference lists of the included publications. Two independent reviewers will select the studies. All study designs will be eligible for inclusion, with no date or publication status restrictions. The included studies will have evaluated infographics that disseminate health research evidence and target a non-scientific audience. A data extraction form will be developed and used to extract and chart the data, which will then be synthesised to present a descriptive summary of the results.Ethics and disseminationEthics approval is not required. To inform the research and KT communities, various dissemination activities will be developed, including user-friendly KT tools (eg, webinars, fact sheets and infographics), open-access publication and presentations at KT events and conferences.

scholarly journals Children and young people’s contributions to public involvement and engagement activities in health-related research: A scoping review

PLoS ONE ◽  
2021 ◽  
Vol 16 (6) ◽  
pp. e0252774
Author(s):  
Alison Rouncefield-Swales ◽  
Jane Harris ◽  
Bernie Carter ◽  
Lucy Bray ◽  
Toni Bewley ◽  
...  
Keyword(s):  
Young People ◽  
Scoping Review ◽  
Health Research ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Children And Young People ◽  
Related Research ◽  
Health Related Research ◽  
Health Related ◽  
The Impact

Background There has been an increasing interest in how children and young people can be involved in patient and public involvement and engagement (PPIE) in health research. However, relatively little robust evidence exists about which children and young people are reported as being involved or excluded from PPIE; the methods reported as being used to involve them in PPIE; and the reasons presented for their involvement in PPIE and what happens as a result. We performed a scoping review to identify, synthesise and present what is known from the literature about patient and public involvement and engagement activities with children and young people in health related research. Methods Relevant studies were identified by searches in Scopus, Medline, CINAHL, Cochrane and PsychInfo databases, and hand checking of reference lists and grey literature. An adapted version of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2) was used as a framework to collate the data. Two reviewers independently screened articles and decisions were consensually made. Main findings A total of 9805 references were identified (after duplicates were removed) through the literature search, of which 233 full-text articles were assessed for eligibility. Forty studies published between 2000 and 2019 were included in the review. The review reveals ambiguities in the quality of reporting of PPIE with children with clear reporting on demographics and health conditions. The review found that children and young people were commonly involved in multiple stages of research but there was also significant variation in the level at which children and young people were involved in PPIE. Evaluation of the impact of children and young people’s involvement in PPIE was limited. Conclusions Consultation, engagement and participation can all offer children and young people worthwhile ways of contributing to research with the level, purpose and impact of involvement determined by the children and young people themselves. However, careful decisions need to be made to ensure that it is suited to the context, setting and focus so that the desired PPIE impacts are achieved. Improvements should be made to the evaluation and reporting of PPIE in research. This will help researchers and funders to better understand the benefits, challenges and impact of PPIE with children and young people on health research.

scholarly journals Introduction into Health-Related Folklore and Its Research: From First-Hand Experiences to Second-Hand Narrating Models

2021 ◽  
Vol 82 ◽  
pp. 7-20
Author(s):  
Reet Hiiemäe ◽  
Keyword(s):  
Mass Media ◽  
Religious Belief ◽  
Health Research ◽  
Added Value ◽  
Research Needs ◽  
Journal Issue ◽  
Health Related ◽  
Anthropological Approach ◽  
Social Narrative

y accentuating the central keywords and observations of the articles published in this special journal issue, the author – situating the articles in a broader theoretical framework – offers a glimpse at the role of the humanities in the research of the realm of health in such a unique period as the Covid-19 pandemic. The author concludes that based on the complexity of the topic (its physical and mental, individual and collective angles, impact of the mass media and partly recycled narrative models), health research needs to take into consideration the topic’s social, narrative, religious, belief, and other aspects in a nuanced way, and here folkloristic and medical anthropological approach with its specialized methodology and empirical groundedness can offer significant added value.

scholarly journals Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0255265
Author(s):  
Kathleen Murphy ◽  
Karina Branje ◽  
Tara White ◽  
Ashlee Cunsolo ◽  
Margot Latimer ◽  
...  
Keyword(s):  
Community Engagement ◽  
Participatory Research ◽  
Scoping Review ◽  
Health Research ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Research Process ◽  
Atlantic Canada ◽  
Health Related ◽  
Canada Data

Introduction Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamation in Canada and globally, however clearer reporting and understandings of community-led research is needed. This scoping review assesses (a) how and to what extent researchers are reporting community engagement in Indigenous health research in Atlantic Canada, and (b) what recommendations exist in the literature regarding participatory and community-led research. Methods Eleven databases were searched using keywords for Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001-June 2020. Records were independently screened by two reviewers and were included if they were: peer-reviewed; written in English; health-related; and focused on Atlantic Canada. Data were extracted using a piloted data charting form, and a descriptive and thematic analysis was performed. 211 articles were retained for inclusion. Results Few empirical articles reported community engagement in all aspects of the research process. Most described incorporating community engagement at the project’s onset and/or during data collection; only a few articles explicitly identified as entirely community-directed or led. Results revealed a gap in reported capacity-building for both Indigenous communities and researchers, necessary for holistic community engagement. Also revealed was the need for funding bodies, ethics boards, and peer review processes to better facilitate participatory and community-led Indigenous health research. Conclusion As Indigenous communities continue reclaiming sovereignty over identities and territories, participatory research must involve substantive, agreed-upon involvement of Indigenous communities, with community-directed and led research as the ultimate goal.

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